Re: Re: Wyeth brand Minocin

[Guest guest]

This is Dolores!  How does the decreased dose work for you.  My maintenance

schedule was 50mg of pelleted Minocin (Green & Black ) once every M W & F. 

That was working fine till, I ran out of Minocin, my mom got sick and in & out

of the hospital for a few months till she passed.  Got overwhelmed with paper

work taking care of her demise, remains, making decisions I was not used to

doing and the whole shebang fell on my shoulders. Was her only child. Then the

holidays came and so did the kids.  I was shopping, cooking, cleaning &

wrapping.  Was happy to see them and happy to see them go.  by Jan 1, I was

exhausted, had my blood checked and as I had suspected, I was losing my

remission.  ANA & RF was up.  Other blood work showed increases also and I was

bone tired and achy.  Am back on Minocin after a long battle with the Insurance

company.  3 doctors wrote letters on my behalf.  Now I am tired but not so

achy and hopefully making a

comback. Will have blood checked again in 3 months to see where I

stand.  Triax brand has changed colors but is still pelletized inside the

capsule..It took 5 years to go into remission and only 3 months to lose it. on

top of that, my eye doc talked me into having a lazer procedure done as a

precautionary measure and like a dmaned fool, I let him.  Should have gone for

a second opinion first. Now I can barely see out of my right eye. The doc sent

me to an eye specialist, His friend who now wants to lazer both eyes.I am going

to a third doctor that neither if them know and then if the damage is

repairable, I will most likely fly back to NY to the NYU Eye Institute.  I

believe all that stress and no medication is what brought back all my

sysmptoms.  This month I started taking extra special care of myself and not

let anything distract me from getting back to remission. Take care, Dolores &

Mike 

From: Bob & Carol Zarn <bczarn@...>

Subject: rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Sunday, March 20, 2011, 11:22 AM

 

Kinga,

I went into remission on the Lederle generic minocycline which later became

Wyeth during that time.

The capsule was blue and orange exactly like the pelleted version only had

powder inside.

I started with 100mg per day for the first two weeks and then went up to 100mg

am and 100mg pm. After reaching remission/control I had heard that the

Lederle/Wyeth gemeric was not going to be available in Canada anymore so

switched to the brand which is now Steiffel and take 100mg on Mon and Thurs as a

maintenance dose.

hth.

carol_DM

[Guest guest]

How long did it take you to reach remission, and how bad was your arthritis

before.

Kinga

rheumatic Re: Wyeth brand Minocin

Kinga,

I went into remission on the Lederle generic minocycline which later became

Wyeth during that time.

The capsule was blue and orange exactly like the pelleted version only had

powder inside.

I started with 100mg per day for the first two weeks and then went up to 100mg

am and 100mg pm. After reaching remission/control I had heard that the

Lederle/Wyeth gemeric was not going to be available in Canada anymore so

switched to the brand which is now Steiffel and take 100mg on Mon and Thurs as a

maintenance dose.

hth.

carol_DM

[Guest guest]

Am I right to assume you are taking Wyeth minocin?

Kinga

rheumatic Re: Wyeth brand Minocin

Hi,

I do not have arthritis. I have dermatomyositis and mixed connective tissue

disease with CREST.

It took approximately two years after starting the AP to reach

remission/control.

carol_DM

[Guest guest]

Thans  Carole.  I am back to full 100mg dose right now and hoping it won't

take too long to go back into remission.  Also, I was wondering.  When I lived

in NY in the winter, I would always be cuddled up in my lazy boy chair and slept

a lot.  it is now spring and noticed that although I am in P>R. and the weather

is nicer here, I started going into this hibernation mode around Nov.  I blamed

it on the other circumstances I was going thru plus not having my med supply. 

Are there people who go through this hibernation sort of malaise in the winter,

no matter where they live?It is always sleepy time around here this past winter

and every winter.  Don't know when it started, but I noticed it several years

ago after I retired from my nursing job.  Is it boredom, or depression or just

old age catching up with me?

From: Bob & Carol Zarn <bczarn@...>

Subject: rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Monday, March 21, 2011, 9:01 PM

 

Dolores,

The decreased dose works quite well for me. I have considered dropping it to

50mg twice a week but have a lot of the 100mg minocin to use up and am also a

bit reluctant to go down just in case.

carol_DM

[Guest guest]

I personally feel that it could be boredom/depression. As a Canadian, I do feel

the winter blues, but if you have time, the best cure is to do an outdoor sport

if you can. Although these are difficult if you have RA, even walking qualifies

as an outdoor sport. Since I moved to the tropical part of Canada, Niagara

Falls area, I checked the stats and the " average " daytime high on the coldest day

of the year, Jan 23 is -1 dec C. , or about 30F. Not too bad really. Probably

not much different in NY. It may be warmer though and damper and greyer

depending on where you are.

You could try snowshoeing or crosscountry skiing on easy flat terrain.

The trick is to go out every day around noon or 1pm which is the warmest time of

day. If its really yucky where you are, you could travel to ski areas, even if

you don't ski, as seeing lots of snow on a bright sunny day will lift anyones

mood.

Dressing properly is key. I put on my long underwear in November and pretty

much wear it 24/7 until early April. ( I am a person who is always cold)

If you have a fireplace and or whirlpool tub, this is great after your midday

walk.

YOu really need to make an effort and keep busy, and not hibernate, or if you

are blessed with retirement, you can alternate periods of business with periods

of hibernation.

Get the right amount of sleep (8 hours) not more or less. Napping is OK during

the day, but then you need to reduce your nighttime sleep as well. If you are

not sleeping well in general this needs to be addressed.

But make no mistake we need daylight and fresh air every day.

Kinga

rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Monday, March 21, 2011, 9:01 PM

Dolores,

The decreased dose works quite well for me. I have considered dropping it to

50mg twice a week but have a lot of the 100mg minocin to use up and am also a

bit reluctant to go down just in case.

carol_DM

[Guest guest]

It is between 75 & 85 degrees F. here all year round with occassional windy days

and tropical showers all year round.  The sun shines all year round.  Not a

drop of snow and only a cooling breeze from the ocean which is very welcomed. 

So, how could it be boredom or depression.  The place is full of colorful

birds and all sorts of animals like Iguanas, frogs, geckos and roosters.  Plant

life with fruit hanging off the trees.  It is like living in Paradise.  Yet, I

am so tired that sometimes I just fall asleep in the chair or the car or even on

the toilet.  I just can't stay awake.  I even fall asleep in the middle of

writing e:mails.  I don't have narcolepsy and this only happens from November

on til sometime in spring.  I thought it was only because of the New York

winters, but this is my second winter in Texas and this year I felt it more

since Mom passed away in Oct.  Last year, I felt it a little for about 4

months, but this year, it

started in early Nov and I am still feeling dragged out and sleepy.  So,does

anyone out there have any articles or know anything about people going into a

hybernation state like bears do.  Is this a possibility.  I've been to a sleep

lab for apnea.  Have not used my CPAP machine for a while because I need to get

new tubing and that is also a fight with the Insurance company,  I am also

having eye problems and seeing specialists for that.  All that wers me out. 

Need solid information on the subject of hibrnation in humans.  Thank you,

Dolores  

From: Bob & Carol Zarn <bczarn@...>

Subject: rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Monday, March 21, 2011, 9:01 PM

Dolores,

The decreased dose works quite well for me. I have considered dropping it to

50mg twice a week but have a lot of the 100mg minocin to use up and am also a

bit reluctant to go down just in case.

carol_DM

[Guest guest]

Dolores,

have you had your thyroid checked? I had the problem too and would even fall

asleep at a stop light. Have it checked.

Best wishes, Eva

From: Bob & Carol Zarn <bczarn@...>

Subject: rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Monday, March 21, 2011, 9:01 PM

Dolores,

The decreased dose works quite well for me. I have considered dropping it to

50mg twice a week but have a lot of the 100mg minocin to use up and am also a

bit reluctant to go down just in case.

carol_DM

[Guest guest]

Hi Eva, Yes, my thyroid has been checked many times, it is a tad off, but not

enough for medication.  That seems to be the concensus from many docs over many

years.  And this only happens in winter, not summer.  so, I can't figure this

out either.  But thanks for the suggestion.  How are you feeling?  Dolores

From: Bob & Carol Zarn <bczarn@...>

Subject: rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Monday, March 21, 2011, 9:01 PM

Dolores,

The decreased dose works quite well for me. I have considered dropping it to

50mg twice a week but have a lot of the 100mg minocin to use up and am also a

bit reluctant to go down just in case.

carol_DM

[Guest guest]

Dolores,

Monday I went to see my choir director at his office and believe it or not he

works for the rheumy I fired three years ago. She seen me in the hallway and

greeted me like a lost relative. She asked me how my health was and my tests and

I told her the only thing still is slightly elevated is my ANA the rest is

normal. So she pipes up and said you are in remission. I told her not all there

yet but close. I still have my ups and downs and some days I hurt some and other

days I am okay. Naturally the hip still gives me fits when the weather changes,

but any other way I am doing okay, about 90%.

Good that your thyroid is not bad. I have to take thyroid armoure. Now my

thyroid is normal again.

Eva

From: Bob & Carol Zarn <bczarn@...>

Subject: rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Monday, March 21, 2011, 9:01 PM

Dolores,

The decreased dose works quite well for me. I have considered dropping it to

50mg twice a week but have a lot of the 100mg minocin to use up and am also a

bit reluctant to go down just in case.

carol_DM

[Guest guest]

Wow!  Didn't it feel good that you were able to tell her that you are on the

mend?  Why did you fire her>  Was she against A/P at the time.  When I met

you, were you on A/P or had you just started it?  I can't remember.  I

remember your skin appeared to be so dry.  But you looked well and the fact

that you made it up those stairs was phenomenal.  That was a very nice visit

with you & Burl. When we got word that my mom had Alzheimers and the doc was

going to put her in a nursing home, we quit that job in Texas and went to

Florida to see Mom.  She was living in a deplorable state. So, we rented a two

bedroom apt in Florida for a year, but northern Fl. was still way to cold. 

Even Mike got Raynaud's living there.  I was nearly in remission in Texas, but

had a bit of a setback in Pensacola and it took a couple of more months to

finally reach remmission in August.  We moved to P.R. once our lease was up. 

We love it here, but do not like the

medical care.  It is much better in NY.  That is why I have my name on a list

for a NY apt.  They are hard to come by and sometimes, I am sorry that I gave

mine up.  But, I just couldn't handle the weather in winter and then take on my

mom and work at the same time that I am trying to go into remission.  That

was just a bit too much on my plate to handle.  We are loving living here, but

for medical, I plan to fly back to NY for the summers and see my old doctors. 

And spend the winters here. Like the real snowbirds.   Now that Mom is gone

it will be easier to navigate as I would not be disturbing her schedule. 

Tomorrow, I see a retinologist.  I saw an opthalmologist surgeon yesterday and

he checked out my optic nerve. I will get the results when I go back. That

first doctor should never have lazered my eye.  He caused a lot of damage and

messed up a perfectly good eye.  Now I can barely see out of that eye. The

second opthalmologist

I saw first said he would lazer both eyes and put in implants, but now has

changed his mind and wrote a note to the first doc telling him he will not take

care of me as his patient.  The doctor I saw yesterday said the first doc

caused a major damage.  So, I cannot drive the car, nor see the print on the

computer unless I put it up to 150%.  It might look like I am shouting.  I am

not.  Just can't see.  All day yesterday, I wore dark glasses as the light

sent shooting pains through the back of my head.  I had to take half of a pain

pill  to get through.  The only problem I have is that sleepiness that I get

every winter.  I was amazed when it happened again this winter because

the weather is warm.  I am going to bed now as I have an early appointment

with the retinologist.  Will keep you up to date with the eye problem.  Our

best to you & Burl and your family and good wishes for your healing.   I know

you will get there soon.  

Take care.  Love, Dolores    

From: Bob & Carol Zarn <bczarn@...>

Subject: rheumatic Re: Wyeth brand Minocin

rheumatic

Date: Monday, March 21, 2011, 9:01 PM

Dolores,

The decreased dose works quite well for me. I have considered dropping it to

50mg twice a week but have a lot of the 100mg minocin to use up and am also a

bit reluctant to go down just in case.

carol_DM

[Guest guest]

hey Dolores I use a c pap machine. If I dont use it i am totally

exhausted in the am. I literally stop breathing a couple of times a

night. I am sure the tubing is not that expensive. I suggest you get

some and get back on that cpap machine. You risk a heart attack.

thanks

belinda

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