Re: Elimination diet success?

March 7, 2011

dont mess about with elimination diets do it via IGG testing

yorktest.com

heres how I did it:

http://www.allergyfreeheaven.co.uk/

On 7 Mar 2011, at 04:58, carey largent wrote:

> Hi all,

>

> I am on day 6 of an elimination diet. Tough! New Dr. I saw last week

> thinks that my RA is linked to some intestinal problems and possible

> food allergies. I know many of you have changed your diet or maybe

> tried the elimination diet at one point or another. I would love to

> hear how your journey was with this. Successful? Is there a

> possibility of a herx with this? I guess I am just looking to connect

> with others who might have tried this...

>

> I have yet to start the antibiotics because I want to get my

> intestinal issues either taken care of or at least diagnosed before

> wrecking them even more with antibiotics. I am also nursing my new

> baby and can't take antibiotics.

>

> By the way, have any of you had your appendix out? I did when I was

> five, and my Dr. says there is definitely a link between that and my

> intestinal problems. Your appendix apparently is responsible for

> producing all the good bacteria for your gut flora. It was a light

> bulb moment for me when he said that.

>

> Carey

>

March 7, 2011

Carey,

I have found food to be a HUGE part of my RA symptoms. When I avoid wheat and

gluten and limit dairy and pork...I do very well. And now 6 months into it, I've

found that I can cheat a little and have a slice of pizza or cake and not suffer

too much from it. In the beginning there was a huge correlation to the

consumption of reactive foods and the swelling in my hands. So it was easy to

avoid those foods.

I did have a minor herx about day 4 of the elimination, which is common, so you

should be past that.

I encourage you to stay with this. With the combination of diet and AP (100mg

minocycline- brand-once a day, three days a week MWF)

I am nearly symptom free 6 months into AP and 8 months into dietary

restrictions. It is truly wonderful.

So I applaud your doctor for suggesting food as an agent in your RA symptoms. It

was my physical therapist who suggested it to me, and my chiropractor who

encouraged me to use Metagenic's Ultra Clear medical food (a low-allergenic meal

replacement.) I used that three times a day for the month of August, along with

" clean " foods. Now I drink it for breakfast every day.

I encourage you to get on a good probiotic. I use the one from Dr. Sinatra. Also

take two capsules of their Omega Q Plus. When I miss a few days of this, I feel

all achy. www.drsinatra.com

Keep us posted on how you are doing. I think you are on the right path. Amy

>

> Hi all,

>

> I am on day 6 of an elimination diet. Tough! New Dr. I saw last week

> thinks that my RA is linked to some intestinal problems and possible

> food allergies. I know many of you have changed your diet or maybe

> tried the elimination diet at one point or another. I would love to

> hear how your journey was with this. Successful? Is there a

> possibility of a herx with this? I guess I am just looking to connect

> with others who might have tried this...

>

> I have yet to start the antibiotics because I want to get my

> intestinal issues either taken care of or at least diagnosed before

> wrecking them even more with antibiotics. I am also nursing my new

> baby and can't take antibiotics.

>

> By the way, have any of you had your appendix out? I did when I was

> five, and my Dr. says there is definitely a link between that and my

> intestinal problems. Your appendix apparently is responsible for

> producing all the good bacteria for your gut flora. It was a light

> bulb moment for me when he said that.

>

> Carey

>

March 7, 2011

Hi, Carey. Which Ultraclear do you use? My doc suggested Metagenics

Ultrainflamex, but I think you had better luck with Ultraclear. Same

problem with my hands, switching to now. Thanks, June

On Mar 7, 2011, at 12:03 PM, Amy wrote:

>

> Carey,

>

> I have found food to be a HUGE part of my RA symptoms. When I avoid

> wheat and gluten and limit dairy and pork...I do very well. And now

> 6 months into it, I've found that I can cheat a little and have a

> slice of pizza or cake and not suffer too much from it. In the

> beginning there was a huge correlation to the consumption of

> reactive foods and the swelling in my hands. So it was easy to avoid

> those foods.

>

> I did have a minor herx about day 4 of the elimination, which is

> common, so you should be past that.

>

> I encourage you to stay with this. With the combination of diet and

> AP (100mg minocycline- brand-once a day, three days a week MWF)

> I am nearly symptom free 6 months into AP and 8 months into dietary

> restrictions. It is truly wonderful.

>

> So I applaud your doctor for suggesting food as an agent in your RA

> symptoms. It was my physical therapist who suggested it to me, and

> my chiropractor who encouraged me to use Metagenic's Ultra Clear

> medical food (a low-allergenic meal replacement.) I used that three

> times a day for the month of August, along with " clean " foods. Now I

> drink it for breakfast every day.

>

> I encourage you to get on a good probiotic. I use the one from Dr.

> Sinatra. Also take two capsules of their Omega Q Plus. When I miss a

> few days of this, I feel all achy. www.drsinatra.com

>

> Keep us posted on how you are doing. I think you are on the right

> path. Amy

>

> >

> > Hi all,

> >

> > I am on day 6 of an elimination diet. Tough! New Dr. I saw last week

> > thinks that my RA is linked to some intestinal problems and possible

> > food allergies. I know many of you have changed your diet or maybe

> > tried the elimination diet at one point or another. I would love to

> > hear how your journey was with this. Successful? Is there a

> > possibility of a herx with this? I guess I am just looking to

> connect

> > with others who might have tried this...

> >

> > I have yet to start the antibiotics because I want to get my

> > intestinal issues either taken care of or at least diagnosed before

> > wrecking them even more with antibiotics. I am also nursing my new

> > baby and can't take antibiotics.

> >

> > By the way, have any of you had your appendix out? I did when I was

> > five, and my Dr. says there is definitely a link between that and my

> > intestinal problems. Your appendix apparently is responsible for

> > producing all the good bacteria for your gut flora. It was a light

> > bulb moment for me when he said that.

> >

> > Carey

> >

>

March 7, 2011

Carey, sound like you've got a very unique doc! Where are you located? Best of

luck to you and the little one, sally

rheumatic Elimination diet success?

Hi all,

I am on day 6 of an elimination diet. Tough! New Dr. I saw last week

thinks that my RA is linked to some intestinal problems and possible

food allergies. I know many of you have changed your diet or maybe

tried the elimination diet at one point or another. I would love to

hear how your journey was with this. Successful? Is there a

possibility of a herx with this? I guess I am just looking to connect

with others who might have tried this...

I have yet to start the antibiotics because I want to get my

intestinal issues either taken care of or at least diagnosed before

wrecking them even more with antibiotics. I am also nursing my new

baby and can't take antibiotics.

By the way, have any of you had your appendix out? I did when I was

five, and my Dr. says there is definitely a link between that and my

intestinal problems. Your appendix apparently is responsible for

producing all the good bacteria for your gut flora. It was a light

bulb moment for me when he said that.

Carey

=

March 7, 2011

I've had success with this diet:

http://www.gaps.me/preview/?page_id=28

This video has a good explanation of how it works:

http://vimeo.com/10507542

This is the best elimination diet I have found for RA:

http://www.frot.co.nz/dietnet/reviews/mcferran01.htm

I have a friend who's gone into complete remission just on this GAPS

diet and low dose naltrexone.

March 7, 2011

I've had two of these tests and not found found them helpful at all.

They said I was allergic to foods I was fine with and some they said I

could eat, I could not. Those test results can change from day to day

depending upon what you are eating.

dont mess about with elimination diets do it via IGG testing

yorktest.com

heres how I did it:

http://www.allergyfreeheaven.co.uk/ <http://www.allergyfreeheaven.co.uk/>

March 7, 2011

That's what my Dr. said about the testing... , did you end up doing a

diet to figure out which foods you are sensitive too?

Amy, did you put yourself through your own elimination diet or with a Dr?

Was there a particular one you followed? How was the meal replacement? Did

it taste ok? Were you able to maintain weight?

On Mon, Mar 7, 2011 at 2:30 PM, Sauve <moniquesauve@...> wrote:

>

> I've had two of these tests and not found found them helpful at all.

> They said I was allergic to foods I was fine with and some they said I

> could eat, I could not. Those test results can change from day to day

> depending upon what you are eating.

>

> dont mess about with elimination diets do it via IGG testing

>

> yorktest.com

>

> heres how I did it:

>

> http://www.allergyfreeheaven.co.uk/ <http://www.allergyfreeheaven.co.uk/>

>

March 7, 2011

disregard, my last question ... I see that you did the GAPS and the

other elimination diet. How long did it take for you to see results?

On Mon, Mar 7, 2011 at 2:30 PM, Sauve <moniquesauve@...> wrote:

>

> I've had two of these tests and not found found them helpful at all.

> They said I was allergic to foods I was fine with and some they said I

> could eat, I could not. Those test results can change from day to day

> depending upon what you are eating.

>

> dont mess about with elimination diets do it via IGG testing

>

> yorktest.com

>

> heres how I did it:

>

> http://www.allergyfreeheaven.co.uk/ <http://www.allergyfreeheaven.co.uk/>

>

March 8, 2011

June,

I use the UltraClear just because it is less expensive. The Ultrainflammex has

great supplements in it to address inflammation.

the month that I drank UltraClear 3 times a day I combined it with an

elimination diet. Kept a notebook of what I ate and how I felt. It was easy to

identify my reactive foods. So while a doctor suggested it, I did it on my own.

Amy

>

> >

> > Carey,

> >

> > I have found food to be a HUGE part of my RA symptoms. When I avoid

> > wheat and gluten and limit dairy and pork...I do very well. And now

> > 6 months into it, I've found that I can cheat a little and have a

> > slice of pizza or cake and not suffer too much from it. In the

> > beginning there was a huge correlation to the consumption of

> > reactive foods and the swelling in my hands. So it was easy to avoid

> > those foods.

> >

> > I did have a minor herx about day 4 of the elimination, which is

> > common, so you should be past that.

> >

> > I encourage you to stay with this. With the combination of diet and

> > AP (100mg minocycline- brand-once a day, three days a week MWF)

> > I am nearly symptom free 6 months into AP and 8 months into dietary

> > restrictions. It is truly wonderful.

> >

> > So I applaud your doctor for suggesting food as an agent in your RA

> > symptoms. It was my physical therapist who suggested it to me, and

> > my chiropractor who encouraged me to use Metagenic's Ultra Clear

> > medical food (a low-allergenic meal replacement.) I used that three

> > times a day for the month of August, along with " clean " foods. Now I

> > drink it for breakfast every day.

> >

> > I encourage you to get on a good probiotic. I use the one from Dr.

> > Sinatra. Also take two capsules of their Omega Q Plus. When I miss a

> > few days of this, I feel all achy. www.drsinatra.com

> >

> > Keep us posted on how you are doing. I think you are on the right

> > path. Amy

>

March 8, 2011

I have another appointment tomorrow and will ask my Dr. about these

supplements. Are they like milkshakes?

So Amy, within 1 month you felt as though you had it nailed down in regards

to what foods you needed to avoid? What state of health were you in when

you started? Would you have considered yourself in a flare? I would love

to have this figured out in such a short amount of time! You give me hope.

On Tue, Mar 8, 2011 at 12:43 PM, Amy <muttville@...> wrote:

>

> June,

>

> I use the UltraClear just because it is less expensive. The Ultrainflammex

> has great supplements in it to address inflammation.

>

> the month that I drank UltraClear 3 times a day I combined it with an

> elimination diet. Kept a notebook of what I ate and how I felt. It was easy

> to identify my reactive foods. So while a doctor suggested it, I did it on

> my own. Amy

>

> >

> > >

> > > Carey,

> > >

> > > I have found food to be a HUGE part of my RA symptoms. When I avoid

> > > wheat and gluten and limit dairy and pork...I do very well. And now

> > > 6 months into it, I've found that I can cheat a little and have a

> > > slice of pizza or cake and not suffer too much from it. In the

> > > beginning there was a huge correlation to the consumption of

> > > reactive foods and the swelling in my hands. So it was easy to avoid

> > > those foods.

> > >

> > > I did have a minor herx about day 4 of the elimination, which is

> > > common, so you should be past that.

> > >

> > > I encourage you to stay with this. With the combination of diet and

> > > AP (100mg minocycline- brand-once a day, three days a week MWF)

> > > I am nearly symptom free 6 months into AP and 8 months into dietary

> > > restrictions. It is truly wonderful.

> > >

> > > So I applaud your doctor for suggesting food as an agent in your RA

> > > symptoms. It was my physical therapist who suggested it to me, and

> > > my chiropractor who encouraged me to use Metagenic's Ultra Clear

> > > medical food (a low-allergenic meal replacement.) I used that three

> > > times a day for the month of August, along with " clean " foods. Now I

> > > drink it for breakfast every day.

> > >

> > > I encourage you to get on a good probiotic. I use the one from Dr.

> > > Sinatra. Also take two capsules of their Omega Q Plus. When I miss a

> > > few days of this, I feel all achy. www.drsinatra.com

> > >

> > > Keep us posted on how you are doing. I think you are on the right

> > > path. Amy

> >

>

March 8, 2011

Hi

When I did the elimination diet I saw lessening of pain in the 1st

week. With GAPS it's been up and down. I still don't do well with dairy

except butter so that's caused some ups and downs.

disregard, my last question ... I see that you did the GAPS and the

other elimination diet. How long did it take for you to see results?

March 8, 2011

First of all, thank you so much to dareemle, monika and eva for answering my

questions about exercise/muscles.

Re the elimination diets; my Naturapath says to eliminate Wheat (a lot more

of us are gluten intolerant than you think), Dairy and Sugar.

I try to avoid wheat, occasionally have some dairy (get repaid with

diarrhea) and will have a chocolate bar a couple of times a week.

I'm still having an itchy scalp - the Borax shampoo/ascorbic acid rinse is

not working.

Good to have you all for advice.

, Calgary

March 8, 2011

, I am sure the GAPS diet is much more intense than the elimination?

Good luck!

March 9, 2011

Hi Sue...I think that if you are having that strong of a reaction to

dairy then it is definitely related, I am cutting most of it out

myself, have RA in hands...June

On Mar 8, 2011, at 11:22 PM, Gorrill wrote:

> First of all, thank you so much to dareemle, monika and eva for

> answering my

> questions about exercise/muscles.

> Re the elimination diets; my Naturapath says to eliminate Wheat (a

> lot more

> of us are gluten intolerant than you think), Dairy and Sugar.

> I try to avoid wheat, occasionally have some dairy (get repaid with

> diarrhea) and will have a chocolate bar a couple of times a week.

> I'm still having an itchy scalp - the Borax shampoo/ascorbic acid

> rinse is

> not working.

> Good to have you all for advice.

>

> , Calgary

>

March 9, 2011

The elimination diet is more restrictive than GAPS so while it lasts it

is harder to do but GAPS takes much longer to finish (about 2 y).

, I am sure the GAPS diet is much more intense than the elimination?

Good luck!

March 9, 2011

Carey,

I was definitely at the peak of my RA symptoms when I started watching my diet

in August 2010. I didn't start AP until September and was already feeling

better. Looking back, I see it as the summer I lost use of my hands. I look

forward to being able to start my flower and veggie garden this spring.

I just completed my Internet Arthritis Registry survey and was disappointed that

there are ZERO questions about diet.

But I was able to report the use of minocycline and the improvement of my

symptoms...to the point where I do not use mobic any more.

From what I've experienced with alternative medicine, your body " clears " a food

after you've not eaten it for 10 days. It is then you can eat it and see if you

have any reaction. It does get complicated sometimes as with some people it can

take 2 to 3 days for symptoms to show up. For me, I saw inflammation in my hands

the day after eating wheat, oats, corn, gluten, milk, and pork.

Amy

>

> >

> > June,

> >

> > I use the UltraClear just because it is less expensive. The Ultrainflammex

> > has great supplements in it to address inflammation.

> >

> > the month that I drank UltraClear 3 times a day I combined it with an

> > elimination diet. Kept a notebook of what I ate and how I felt. It was easy

> > to identify my reactive foods. So while a doctor suggested it, I did it on

> > my own. Amy

March 9, 2011

I am absolutely convinced that diet is a big part of this path.Â When I first

saw my AP Dr she gave me a fact sheet about all kinds of food stuffs, what not

to eat,Â what I could eat & should be eating.Â Â Must admit when IÂ scanned the

sheet I found itÂ very daunting,Â especially as I believed I had a very healthy

diet anyway, however the next day I actually sat down with a cuppa & read

it.Â Â I

found there were a lot of 'do not eat' foods that I didn't eat anyway which cut

out 3/4 of the sheet...lolÂ but then I had to make a decision, do I do this or

not ??Â Then I thought about what I was doing,Â what decisions I had already

made

& more importanty why I had made those decisions.Â It was simple really, I

hadÂ a

disease & was in excruciating agony when I flared,Â IÂ found out about AP

& Â found

a doctor that thought she could help me, butÂ it was pointless going to see

aÂ doctor unless I was prepared to do what I was told.Â Initially I gave up

everything & did exactly what I was told to doÂ then after a while I started

reintroducing certain foods to see what happened & what I learned was

facinating, ieÂ I see almost immediate reactions to some foods;

particularlyÂ milk, if I drink one glass ofÂ milk I react within 1/2 hr, if I

eat

porkÂ I react within 12 hrs,Â if I eat any long grainedÂ rice I react within 24

hrs, bananas 3-4 hrsÂ etc.Â It was & is a very interesting exercise.

I suggest to anyone who wants toÂ feel a whole lot better than they do now

thatÂ diet is a big part of thisÂ journey.

MazÂ

________________________________

From: Amy <muttville@...>

rheumatic

Sent: Thu, 10 March, 2011 11:01:39 AM

Subject: rheumatic Re: Elimination diet success?

Â

Carey,

I was definitely at the peak of my RA symptoms when I started watching my diet

in August 2010. I didn't start AP until September and was already feeling

better. Looking back, I see it as the summer I lost use of my hands. I look

forward to being able to start my flower and veggie garden this spring.

I just completed my Internet Arthritis Registry survey and was disappointed that

there are ZERO questions about diet.

But I was able to report the use of minocycline and the improvement of my

symptoms...to the point where I do not use mobic any more.

From what I've experienced with alternative medicine, your body " clears " a food

after you've not eaten it for 10 days. It is then you can eat it and see if you

have any reaction. It does get complicated sometimes as with some people it can

take 2 to 3 days for symptoms to show up. For me, I saw inflammation in my hands

the day after eating wheat, oats, corn, gluten, milk, and pork.

Amy

>

> >

> > June,

> >

> > I use the UltraClear just because it is less expensive. The Ultrainflammex

> > has great supplements in it to address inflammation.

> >

> > the month that I drank UltraClear 3 times a day I combined it with an

> > elimination diet. Kept a notebook of what I ate and how I felt. It was easy

> > to identify my reactive foods. So while a doctor suggested it, I did it on

> > my own. Amy

March 10, 2011

What diet is this? Is therea sheet somewhere? Thanks,June

On Mar 9, 2011, at 8:03 PM, Marilyn M wrote:

> I am absolutely convinced that diet is a big part of this path.

> When I first

> saw my AP Dr she gave me a fact sheet about all kinds of food

> stuffs, what not

> to eat, what I could eat & should be eating. Must admit when I

> scanned the

> sheet I found it very daunting, especially as I believed I had a

> very healthy

> diet anyway, however the next day I actually sat down with a cuppa &

> read it. I

> found there were a lot of 'do not eat' foods that I didn't eat

> anyway which cut

> out 3/4 of the sheet...lol but then I had to make a decision, do I

> do this or

> not ?? Then I thought about what I was doing, what decisions I had

> already made

> & more importanty why I had made those decisions. It was simple

> really, I had a

> disease & was in excruciating agony when I flared, I found out about

> AP & found

> a doctor that thought she could help me, but it was pointless going

> to see

> a doctor unless I was prepared to do what I was told. Initially I

> gave up

> everything & did exactly what I was told to do then after a while I

> started

> reintroducing certain foods to see what happened & what I learned was

> facinating, ie I see almost immediate reactions to some foods;

> particularly milk, if I drink one glass of milk I react within 1/2

> hr, if I eat

> pork I react within 12 hrs, if I eat any long grained rice I react

> within 24

> hrs, bananas 3-4 hrs etc. It was & is a very interesting exercise.

>

> I suggest to anyone who wants to feel a whole lot better than they

> do now

> that diet is a big part of this journey.

>

> Maz

>

> ________________________________

> From: Amy <muttville@...>

> rheumatic

> Sent: Thu, 10 March, 2011 11:01:39 AM

> Subject: rheumatic Re: Elimination diet success?

>

> Carey,

>

> I was definitely at the peak of my RA symptoms when I started

> watching my diet

> in August 2010. I didn't start AP until September and was already

> feeling

> better. Looking back, I see it as the summer I lost use of my hands.

> I look

> forward to being able to start my flower and veggie garden this

> spring.

>

> I just completed my Internet Arthritis Registry survey and was

> disappointed that

> there are ZERO questions about diet.

>

> But I was able to report the use of minocycline and the improvement

> of my

> symptoms...to the point where I do not use mobic any more.

>

> From what I've experienced with alternative medicine, your body

> " clears " a food

> after you've not eaten it for 10 days. It is then you can eat it and

> see if you

> have any reaction. It does get complicated sometimes as with some

> people it can

> take 2 to 3 days for symptoms to show up. For me, I saw inflammation

> in my hands

> the day after eating wheat, oats, corn, gluten, milk, and pork.

>

> Amy

>

> >

> > >

> > > June,

> > >

> > > I use the UltraClear just because it is less expensive. The

> Ultrainflammex

> > > has great supplements in it to address inflammation.

> > >

> > > the month that I drank UltraClear 3 times a day I combined it

> with an

> > > elimination diet. Kept a notebook of what I ate and how I felt.

> It was easy

> > > to identify my reactive foods. So while a doctor suggested it, I

> did it on

> > > my own. Amy

>

March 10, 2011

Maz,

I LOVE your post. thanks for sharing your process of stepping up and doing all

you can for your health. Before RA, I had chronic fatigue syndrome for 9 years

(with a 9-year break of good health inbetween...this is interesting,

scientifically, as mycoplasmas have been linked to CFS...so perhaps they just

went dormant for 9 years). Anyway, it does take conviction and discipline...but

the rewards are great (HEALTH!)

Interesting to hear that someone else with RA is reactive to pork. But rice and

bananas...that's rare. As we say here in the south, " Bless your heart. "

It was my physical therapist who suggested to me to look at food reactions. He

said that whenever he sees a systemic illness (something that is throughout the

whole system, or body) he looks to food as a causative factor.

Maz, are you also on AP? How are you doing today?

Amy in NC

>

> I am absolutely convinced that diet is a big part of this path.Â When I first

> saw my AP Dr she gave me a fact sheet about all kinds of food stuffs, what not

> to eat,Â what I could eat & should be eating.Â Â Must admit when IÂ scanned

the

> sheet I found itÂ very daunting,Â especially as I believed I had a very

healthy

> diet anyway, however the next day I actually sat down with a cuppa & read

it.Â Â I

> found there were a lot of 'do not eat' foods that I didn't eat anyway which

cut

> out 3/4 of the sheet...lolÂ but then I had to make a decision, do I do this

or

> not ??Â Then I thought about what I was doing,Â what decisions I had already

made

> & more importanty why I had made those decisions.Â It was simple really, I

hadÂ a

> disease & was in excruciating agony when I flared,Â IÂ found out about AP

& Â found

> a doctor that thought she could help me, butÂ it was pointless going to see

> aÂ doctor unless I was prepared to do what I was told.Â Initially I gave up

> everything & did exactly what I was told to doÂ then after a while I started

> reintroducing certain foods to see what happened & what I learned was

> facinating, ieÂ I see almost immediate reactions to some foods;

> particularlyÂ milk, if I drink one glass ofÂ milk I react within 1/2 hr, if I

eat

> porkÂ I react within 12 hrs,Â if I eat any long grainedÂ rice I react within

24

> hrs, bananas 3-4 hrsÂ etc.Â It was & is a very interesting exercise.

>

> I suggest to anyone who wants toÂ feel a whole lot better than they do now

> thatÂ diet is a big part of thisÂ journey.

>

> MazÂ

March 10, 2011

Amy and Maz,

I have been allergic to pork for years but never made the connection with RA.

After a episode of six weeks having issues with stomach pains and diarhea, after

eating ham,Â many years ago, I just stopped eating it. I had some sausage about

two years ago and it made me sick within the hour. Since my husband also ate the

sausage but did not get sick I presumed it had pork in it. I am very careful

when I do buy sausage that it is oly beef or turkey. I do have a problem with

Raspberry. My doctor did the MRT food sensitivity test. Some of it came back

with items marked high food sensitivity, which surprised me because those foods

I have no problem with were as the once marked okay to eat some of them I know I

have a problem with if I eat it to ofter. This test was done about three years

ago, I may have another test done by my allergy doctor.

Eva

From: Amy <muttville@...>

Subject: rheumatic Re: Elimination diet success?

rheumatic

Date: Thursday, March 10, 2011, 9:12 AM

Â

Maz,

I LOVE your post. thanks for sharing your process of stepping up and doing all

you can for your health. Before RA, I had chronic fatigue syndrome for 9 years

(with a 9-year break of good health inbetween...this is interesting,

scientifically, as mycoplasmas have been linked to CFS...so perhaps they just

went dormant for 9 years). Anyway, it does take conviction and discipline...but

the rewards are great (HEALTH!)

Interesting to hear that someone else with RA is reactive to pork. But rice and

bananas...that's rare. As we say here in the south, " Bless your heart. "

It was my physical therapist who suggested to me to look at food reactions. He

said that whenever he sees a systemic illness (something that is throughout the

whole system, or body) he looks to food as a causative factor.

Maz, are you also on AP? How are you doing today?

Amy in NC

>

> I am absolutely convinced that diet is a big part of this path.Ã‚Â When I

first

> saw my AP Dr she gave me a fact sheet about all kinds of food stuffs, what not

> to eat,Ã‚Â what I could eat & should be eating.Ã‚Â Ã‚Â Must admit when IÃ‚Â

scanned the

> sheet I found itÃ‚Â very daunting,Ã‚Â especially as I believed I had a very

healthy

> diet anyway, however the next day I actually sat down with a cuppa & read

it.Ã‚Â Ã‚Â I

> found there were a lot of 'do not eat' foods that I didn't eat anyway which

cut

> out 3/4 of the sheet...lolÃ‚Â but then I had to make a decision, do I do this

or

> not ??Ã‚Â Then I thought about what I was doing,Ã‚Â what decisions I had

already made

> & more importanty why I had made those decisions.Ã‚Â It was simple really, I

hadÃ‚Â a

> disease & was in excruciating agony when I flared,Ã‚Â IÃ‚Â found out about AP

& Ã‚Â found

> a doctor that thought she could help me, butÃ‚Â it was pointless going to see

> aÃ‚Â doctor unless I was prepared to do what I was told.Ã‚Â Initially I gave

up

> everything & did exactly what I was told to doÃ‚Â then after a while I started

> reintroducing certain foods to see what happened & what I learned was

> facinating, ieÃ‚Â I see almost immediate reactions to some foods;

> particularlyÃ‚Â milk, if I drink one glass ofÃ‚Â milk I react within 1/2 hr,

if I eat

> porkÃ‚Â I react within 12 hrs,Ã‚Â if I eat any long grainedÃ‚Â rice I react

within 24

> hrs, bananas 3-4 hrsÃ‚Â etc.Ã‚Â It was & is a very interesting exercise.

>

> I suggest to anyone who wants toÃ‚Â feel a whole lot better than they do now

> thatÃ‚Â diet is a big part of thisÃ‚Â journey.

>

> MazÃ‚Â

March 10, 2011

Awwww can't order Omega Q plus from drsinatra.... they don't ship to Canada!

On 09/03/2011 4:01 PM, Amy wrote:

>

> Carey,

>

> I was definitely at the peak of my RA symptoms when I started watching

> my diet in August 2010. I didn't start AP until September and was

> already feeling better. Looking back, I see it as the summer I lost

> use of my hands. I look forward to being able to start my flower and

> veggie garden this spring.

>

> I just completed my Internet Arthritis Registry survey and was

> disappointed that there are ZERO questions about diet.

>

> But I was able to report the use of minocycline and the improvement of

> my symptoms...to the point where I do not use mobic any more.

>

> >From what I've experienced with alternative medicine, your body

> " clears " a food after you've not eaten it for 10 days. It is then you

> can eat it and see if you have any reaction. It does get complicated

> sometimes as with some people it can take 2 to 3 days for symptoms to

> show up. For me, I saw inflammation in my hands the day after eating

> wheat, oats, corn, gluten, milk, and pork.

>

> Amy

>

> >

> > >

> > > June,

> > >

> > > I use the UltraClear just because it is less expensive. The

> Ultrainflammex

> > > has great supplements in it to address inflammation.

> > >

> > > the month that I drank UltraClear 3 times a day I combined it with an

> > > elimination diet. Kept a notebook of what I ate and how I felt. It

> was easy

> > > to identify my reactive foods. So while a doctor suggested it, I

> did it on

> > > my own. Amy

>

March 10, 2011

Hi Ladies.Â I too, started out with chronic fatigue syndrome in 1986.Â Was

treated a year later with antivirals and seemed to be able to cope better for a

while, but never regained the excellent healthy state I enjoyed thru most of my

younger years.Â I just thought that went with aging.Â Then around 2003-2004

and thru 2005, I just kept coming down with strange illnesses that nobody could

diagnose completely and I kept getting referred to different docs for different

things.Â After several hospitalizations and some surgeries, I was diagnosed with

some sort of autoimmune disease, most probably scleroderma is what they

thought.Â Was told I was terminal and offered the usual toxic meds which I

refused because years earlier, I had a cousin who died from complications of

Lupus and had been given the same course.Â At the same appointment, I was told

that because my lungs were so sclerosed, that I didn't have long to llive and

not eligible for a lung

transplant.Â So, I went home to die.Â Did some research and a lovely lady

from RBF told me about " The Antibiotic Protocol.Â " Â I reached remission in

August 2009.Â Maintained that till I ran out of Minocin for several months

while I fought with my Insurance company who finall broke down and okayed the

brand name Minocin after several doctors wrote in for me.Â I am from NY, but I

can also say, " Bless their hearts " Â I started slipping out of remission and my

RF & ANA started on the uphill rise again.Â I am once more on AP and trying to

get back to remission. I willÂ get tested every three months till I am back to

0.Â Meanwhile, I rest a lot, watch my diet, drink fluids and relax.Â That is

the hardest part because I am a typical type A personality always on the run.Â

I am learning to ignore my surroundings and not push myselfÂ so much.Â I once

in a while get a burst of energy, so I know that I am once again on the

mend.Â Â Â I wonder how many

started out with CFIDS.Â Has anyone ever done a survey or a count?Â That

would be interesting to find out.Â Best to all Dolores & MikeÂ Â

From: Amy <muttville@...>

Subject: rheumatic Re: Elimination diet success?

rheumatic

Date: Thursday, March 10, 2011, 9:12 AM

Â

Maz,

I LOVE your post. thanks for sharing your process of stepping up and doing all

you can for your health. Before RA, I had chronic fatigue syndrome for 9 years

(with a 9-year break of good health inbetween...this is interesting,

scientifically, as mycoplasmas have been linked to CFS...so perhaps they just

went dormant for 9 years). Anyway, it does take conviction and discipline...but

the rewards are great (HEALTH!)

Interesting to hear that someone else with RA is reactive to pork. But rice and

bananas...that's rare. As we say here in the south, " Bless your heart. "

It was my physical therapist who suggested to me to look at food reactions. He

said that whenever he sees a systemic illness (something that is throughout the

whole system, or body) he looks to food as a causative factor.

Maz, are you also on AP? How are you doing today?

Amy in NC

>

> I am absolutely convinced that diet is a big part of this path.Ã‚Â When I

first

> saw my AP Dr she gave me a fact sheet about all kinds of food stuffs, what not

> to eat,Ã‚Â what I could eat & should be eating.Ã‚Â Ã‚Â Must admit when IÃ‚Â

scanned the

> sheet I found itÃ‚Â very daunting,Ã‚Â especially as I believed I had a very

healthy

> diet anyway, however the next day I actually sat down with a cuppa & read

it.Ã‚Â Ã‚Â I

> found there were a lot of 'do not eat' foods that I didn't eat anyway which

cut

> out 3/4 of the sheet...lolÃ‚Â but then I had to make a decision, do I do this

or

> not ??Ã‚Â Then I thought about what I was doing,Ã‚Â what decisions I had

already made

> & more importanty why I had made those decisions.Ã‚Â It was simple really, I

hadÃ‚Â a

> disease & was in excruciating agony when I flared,Ã‚Â IÃ‚Â found out about AP

& Ã‚Â found

> a doctor that thought she could help me, butÃ‚Â it was pointless going to see

> aÃ‚Â doctor unless I was prepared to do what I was told.Ã‚Â Initially I gave

up

> everything & did exactly what I was told to doÃ‚Â then after a while I started

> reintroducing certain foods to see what happened & what I learned was

> facinating, ieÃ‚Â I see almost immediate reactions to some foods;

> particularlyÃ‚Â milk, if I drink one glass ofÃ‚Â milk I react within 1/2 hr,

if I eat

> porkÃ‚Â I react within 12 hrs,Ã‚Â if I eat any long grainedÃ‚Â rice I react

within 24

> hrs, bananas 3-4 hrsÃ‚Â etc.Ã‚Â It was & is a very interesting exercise.

>

> I suggest to anyone who wants toÃ‚Â feel a whole lot better than they do now

> thatÃ‚Â diet is a big part of thisÃ‚Â journey.

>

> MazÃ‚Â

March 10, 2011

Hi June,

Yes my Dr had written down a whole list of do not & do foods to watchout for ..

I can send a copy to your email address if you want it ??

Maz

________________________________

From: june avignone <j.avignone@...>

rheumatic

Sent: Fri, 11 March, 2011 1:44:24 AM

Subject: Re: rheumatic Re: Elimination diet success?

What diet is this? Is therea sheet somewhere? Thanks,June

On Mar 9, 2011, at 8:03 PM, Marilyn M wrote:

> I am absolutely convinced that diet is a big part of this path.

> When I first

> saw my AP Dr she gave me a fact sheet about all kinds of food

> stuffs, what not

> to eat, what I could eat & should be eating. Must admit when I

> scanned the

> sheet I found it very daunting, especially as I believed I had a

> very healthy

> diet anyway, however the next day I actually sat down with a cuppa &

> read it. I

> found there were a lot of 'do not eat' foods that I didn't eat

> anyway which cut

> out 3/4 of the sheet...lol but then I had to make a decision, do I

> do this or

> not ?? Then I thought about what I was doing, what decisions I had

> already made

> & more importanty why I had made those decisions. It was simple

> really, I had a

> disease & was in excruciating agony when I flared, I found out about

> AP & found

> a doctor that thought she could help me, but it was pointless going

> to see

> a doctor unless I was prepared to do what I was told. Initially I

> gave up

> everything & did exactly what I was told to do then after a while I

> started

> reintroducing certain foods to see what happened & what I learned was

> facinating, ie I see almost immediate reactions to some foods;

> particularly milk, if I drink one glass of milk I react within 1/2

> hr, if I eat

> pork I react within 12 hrs, if I eat any long grained rice I react

> within 24

> hrs, bananas 3-4 hrs etc. It was & is a very interesting exercise.

>

> I suggest to anyone who wants to feel a whole lot better than they

> do now

> that diet is a big part of this journey.

>

> Maz

>

> ________________________________

> From: Amy <muttville@...>

> rheumatic

> Sent: Thu, 10 March, 2011 11:01:39 AM

> Subject: rheumatic Re: Elimination diet success?

>

> Carey,

>

> I was definitely at the peak of my RA symptoms when I started

> watching my diet

> in August 2010. I didn't start AP until September and was already

> feeling

> better. Looking back, I see it as the summer I lost use of my hands.

> I look

> forward to being able to start my flower and veggie garden this

> spring.

>

> I just completed my Internet Arthritis Registry survey and was

> disappointed that

> there are ZERO questions about diet.

>

> But I was able to report the use of minocycline and the improvement

> of my

> symptoms...to the point where I do not use mobic any more.

>

> From what I've experienced with alternative medicine, your body

> " clears " a food

> after you've not eaten it for 10 days. It is then you can eat it and

> see if you

> have any reaction. It does get complicated sometimes as with some

> people it can

> take 2 to 3 days for symptoms to show up. For me, I saw inflammation

> in my hands

> the day after eating wheat, oats, corn, gluten, milk, and pork.

>

> Amy

>

> >

> > >

> > > June,

> > >

> > > I use the UltraClear just because it is less expensive. The

> Ultrainflammex

> > > has great supplements in it to address inflammation.

> > >

> > > the month that I drank UltraClear 3 times a day I combined it

> with an

> > > elimination diet. Kept a notebook of what I ate and how I felt.

> It was easy

> > > to identify my reactive foods. So while a doctor suggested it, I

> did it on

> > > my own. Amy

>

March 10, 2011

Hi Amy,

No biggie from my end, just something I have always believedÂ .. if you make the

effort to see a doctor what's the point unless you are prepared to do what you

need to do at your end, ie foods, drinks, gentle exercise, watching your weight

(especially as we get older) etc etc .. to me that is me being proactive in my

journey & doing my very best to help my immune system kick this in the butt.Â

When I was flaring if someone had told me eatingÂ crayfish poo would take

awayÂ the agony I was in I believe I would have even eaten that...lol

In answer to your question yes I am on AP (but not mino, simply because (1) we

can't get the same branded stuff you get over here & (2) my AP Dr wants to

target all the co-infections at the same time).Â I need to point out that I

haveÂ PRA with a little bit of RA & Fibro thrown in for good measure as well as

probably Lyme thanks to a tickÂ so of course there are plenty of bugs to kill

off.Â I started my diet regime in March 08 & my abx in Jun 08, after a lot of

tweaking/changing abx I finally reached a stage of being asymptomatic about 15

mths later.Â Yes I had a couple of hiccups this past 6 mths but with yet

another

tweak of meds am again pain free.Â SoÂ from my point of view I am doing not too

bad, thanks for asking.

MazÂ

Â

________________________________

From: Amy <muttville@...>

rheumatic

Sent: Fri, 11 March, 2011 2:12:53 AM

Subject: rheumatic Re: Elimination diet success?

Â

Maz,

I LOVE your post. thanks for sharing your process of stepping up and doing all

you can for your health. Before RA, I had chronic fatigue syndrome for 9 years

(with a 9-year break of good health inbetween...this is interesting,

scientifically, as mycoplasmas have been linked to CFS...so perhaps they just

went dormant for 9 years). Anyway, it does take conviction and discipline...but

the rewards are great (HEALTH!)

Interesting to hear that someone else with RA is reactive to pork. But rice and

bananas...that's rare. As we say here in the south, " Bless your heart. "

It was my physical therapist who suggested to me to look at food reactions. He

said that whenever he sees a systemic illness (something that is throughout the

whole system, or body) he looks to food as a causative factor.

Maz, are you also on AP? How are you doing today?

Amy in NC

>

> I am absolutely convinced that diet is a big part of this path.Ã‚Â When I

first

> saw my AP Dr she gave me a fact sheet about all kinds of food stuffs, what not

> to eat,Ã‚Â what I could eat & should be eating.Ã‚Â Ã‚Â Must admit when IÃ‚Â

scanned

>the

>

> sheet I found itÃ‚Â very daunting,Ã‚Â especially as I believed I had a very

healthy

>

> diet anyway, however the next day I actually sat down with a cuppa & read

>it.Ã‚Â Ã‚Â I

>

> found there were a lot of 'do not eat' foods that I didn't eat anyway which

cut

>

> out 3/4 of the sheet...lolÃ‚Â but then I had to make a decision, do I do this

or

>

> not ??Ã‚Â Then I thought about what I was doing,Ã‚Â what decisions I had

already

>made

>

> & more importanty why I had made those decisions.Ã‚Â It was simple really, I

>hadÃ‚Â a

>

> disease & was in excruciating agony when I flared,Ã‚Â IÃ‚Â found out about AP

> & Ã‚Â found

>

> a doctor that thought she could help me, butÃ‚Â it was pointless going to see

> aÃ‚Â doctor unless I was prepared to do what I was told.Ã‚Â Initially I gave

up

> everything & did exactly what I was told to doÃ‚Â then after a while I started

> reintroducing certain foods to see what happened & what I learned was

> facinating, ieÃ‚Â I see almost immediate reactions to some foods;

> particularlyÃ‚Â milk, if I drink one glass ofÃ‚Â milk I react within 1/2 hr,

if I

>eat

>

> porkÃ‚Â I react within 12 hrs,Ã‚Â if I eat any long grainedÃ‚Â rice I react

within 24

>

> hrs, bananas 3-4 hrsÃ‚Â etc.Ã‚Â It was & is a very interesting exercise.

>

> I suggest to anyone who wants toÃ‚Â feel a whole lot better than they do now

> thatÃ‚Â diet is a big part of thisÃ‚Â journey.

>

> MazÃ‚Â

March 10, 2011

Hi Eva,

Nice to hear from you, you have come so far in your own journey.

One of the things on my 'food regime' as I like to call it (diet is such a

downer word isn't it!) anywayÂ some of the things we are particularly sensative

to isÂ ANY processed meats, whether it be ham, sausages etc .. so I am not

surprised you reacted to both of these.Â

What I found really interesting is when I had that allergic reaction just before

Xmas last year the specialist tested me for all kinds of things - starting with

the usual, ie dairy gluten etcÂ etcÂ & they all came back negative but because

of

this rotten diseaseÂ in realityÂ I react to both of them, so much for the

testing....lol

Am looking forward to hearing how you are & what you are up to this year.

Maz

Â

________________________________

From: Eva Holloway <holloway-eva@...>

rheumatic

Sent: Fri, 11 March, 2011 2:29:07 AM