Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Sandy, I know what you mean. My leg pain is a burning pain that is different from fibro too. What is Arava? Do you take meth orally? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 C., I also have the burning pain in my legs.I also have fibromyalgia but this pain is different from the fibro pain. It hurts so bad sometimes I have a hard time walking. I am on Methotrexate and Arava and I get that overwhelming fatigue also. I take my Metho on Monday and feel okay but the rest of the week I feel exhausted. Love Ya, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 My prayers are with you and your mom. Don't stress about not being there, I'm sure she understands your situation completely. It seems like quit a few of us are flaring right now. I wonder if it is the weather or what. Hope you get to feeling better soon. Love & prayers C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 earlier in this diseae, tere wa a tie when i as on very few pain edsand everythig hurt--legs arms, chest ears joints etc sometimes te nlyrelief i got was tolay on a warm tub of water sometimes fo hours and somtimes for three times a day. I think iremember meone saying ha wrm waer iscontraindiated in some pins erhaps MS (?) so echeck this outwith your dctor. rightnow i am having chest pain costcondrial joints and in the back rib area isisespecially proounced. vn he pain mes dont helpmuch. also i think i am have a flare-NO--iknowi am havng flare, besides the ribs, back a myjoints arehurting despite the pain ms. and my feet feel like teyhave rocker bottoms. so walking is painful. i hopethi passes quickly. found out my mother has heart blockage--they re going t ta shunt, ifthat does not work, ten an angioplasty, if that does no work teywill d a by pas. they thik this will be next wek. i want t go there to be withher, but it would be hard with the way i fel now. she would have this wor done in atlanta (om lives in north georgia, so ifi o i would have to geta motel. and then there is theissue of ringing al y breathing machines, so myhusbnd would hve tobring me in hevan. so leae ssay a prayer for me nd my mother. loe denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 i have take meth both orally and im (shot in themuscle) loe denis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 My friends, i waable to ge hrogh about 100 posts. Igues i have o be hnet ih yu, just need o vent a little. i guess i a haig a rough time aticulalythe latfew days. i a n tears. you knowone of thoeimes wen eeryting hurts, placeyou did no even know youhadeven myhands are ching. i knw tat rrying abut it jus make t wors, ihave urn te mother ting over t god. ifi m suposd to be hre iwillbe. right now al i cn do is ret. i tld my husbad i wish he was homejust o tmea up of offee. oh well. i try not to complain. jushavingone f hhos days. knw somethng is wrong, ome symptoms i've nothad orno hadin a long time. anywayenough. i still can egraeful i am not whre i was two yers ago. pleawe keep me in your prayers. love denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 : My prayers are with you as you are going through such difficult times. When reading all you have and are going throught, I feel very lucky that I have been able to be diagnosed so early in the disease. I truly feel this group will help so many in the future with this disease and I personally plan on trying to get the word out about it so that others like yourself don't have to live through such things before someone finds what's wrong and tries to help. I'll say a prayer for your mom also. I know how hard it is to be living away from parents (mine have been back in Ohio since March) and when one is sick it does hurt to be so far away. If you can't be there physically, you certainly can be their emotionally and spiritually. Try not to let the stress flair you (haha) and just keep telling her how much you love her. You are only human and do have such physical limitations you have to be fair to yourself if you can't go. Thank you for sharing all the troubles and experiences you have gone through. We all learn so much by trial and error with this disease and I for one know I would be lost without the group. Hang in there! Many prayers for your and your mothers health. It's so good to see you posting again. Have a good Friday and hope your pain lets up!!!!!!!!!!!!!!! dlbmo@... wrote: earlier in this diseae, tere wa a tie when i as on very few pain edsand everythig hurt--legs arms, chest ears joints etc sometimes te nlyrelief i got was tolay on a warm tub of water sometimes fo hours and somtimes for three times a day. I think iremember meone saying ha wrm waer iscontraindiated in some pins erhaps MS (?) so echeck this outwith your dctor. rightnow i am having chest pain costcondrial joints and in the back rib area isisespecially proounced. vn he pain mes dont helpmuch. also i think i am have a flare-NO--iknowi am havng flare, besides the ribs, back a myjoints arehurting despite the pain ms. and my feet feel like teyhave rocker bottoms. so walking is painful. i hopethi passes quickly. found out my mother has heart blockage--they re going t ta shunt, ifthat does not work, ten an angioplasty, if that does no work teywill d a by pas. they thik this will be next wek. i want t go there to be withher, but it would be hard with the way i fel now. she would have this wor done in atlanta (om lives in north georgia, so ifi o i would have to geta motel. and then there is theissue of ringing al y breathing machines, so myhusbnd would hve tobring me in hevan. so leae ssay a prayer for me nd my mother. loe denise hi and welcome. maybe we can come up with answers that our doctors can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 , I know how you feel, I had the same kind of week this week. Hurt ALL over. I'd cry in the bathtub and then tell my self to stop feeling sorry for myself. Then the cycle would start over again. It's the pain and not being able to do anything. I know in my heart that I have soooooo much to be thankful for. I haven't gone through anything like you and some of the rest of the group have. Guess I should get off the pity pot and count my blessings. You are such an inspirering person to me, but you have the right to feel like you do. I think a good cry does us all a heap of good. Call any time if you need to talk. Hope today gets better for you. You are in my prayers. Love C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 sorry to hear you are going through a rough time. You are a lot stronger of a person than I am and I know this is yet another hurdle you will overcome love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
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