Guest guest Posted October 14, 1999 Report Share Posted October 14, 1999 If you have trouble unsubscribing go directly to www.onelist.com and click help and you will get specific instructions. I'm writing this because some members have sent numerous emails like yours and seem to get so frustrated because it doesn't seem to work. sincerely lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2000 Report Share Posted June 24, 2000 jandog, don't go, give it another chance. Irishladi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2000 Report Share Posted June 24, 2000 Irishladi Im only getting off the list because I havent been posting to it and i am recouping from my liver transplant 2 months ago and have lots to do and it is just adding mail right now.. I will be back im sure.. thanks for the encouragement though:) Janis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2000 Report Share Posted June 24, 2000 I second this...... HUGS....Merril ****************************** irishladi26@... wrote: > jandog, don't go, give it another chance. Irishladi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2000 Report Share Posted June 24, 2000 Janis.... wishy you wouldn't go just now.....but you know what is best for you..... HUGS.... Merril Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2000 Report Share Posted June 24, 2000 Thanks for explaining. Hope you are feeling better soon. My prayers and thoughts are with you and your's.Irishladi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2000 Report Share Posted June 25, 2000 In a message dated 6/24/00 12:39:11 PM Eastern Daylight Time, jandog7@... writes: << Irishladi Im only getting off the list because I havent been posting to it and i am recouping from my liver transplant 2 months ago and have lots to do and it is just adding mail right now.. >> I wish you well......and am so happy you did well. i`d sure like to hear about the transplant, when you feel well enough to tell us. debmc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Love the list but I can't find my personal mail in all the mail everyday! God Bless You All! Suzanne ps I wish I could go to a website and read the letters! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 birdla9092@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 PLEASE REMOVE MY ADDRESS FROM YOUR LISTING.. --- mmztcass@... wrote: > Can anyone tell me if the flushing from the niacin > will pass through > the breast milk and cause the baby to flush as well? > I'm thinking of > starting the lowest dose possible and work up to > maybe 100 mgs. per > day. I don't want the baby to start having the > flushes. I still have > not gotten the individual B bottles yet, just > sticking with the > B-Complex which has Niacinamide in it instead of > niacin. I do know > niacin is the better to go with the copper than the > niacinamide. I > didn't see anything to answer my question when I was > searching through > the archive for this list. > > Thanks, > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 I took care of that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Did you sent e-mail here requesting to be unsubscribed? hyperthyroidism-unsubscribeegroups It that is not working, go to " Edit My Membership " and change settings to " no e-mail. " Then you will never know you are a member. > > > Can anyone tell me if the flushing from the niacin > > > will pass through > > > the breast milk and cause the baby to flush as well? > > > I'm thinking of > > > starting the lowest dose possible and work up to > > > maybe 100 mgs. per > > > day. I don't want the baby to start having the > > > flushes. I still have > > > not gotten the individual B bottles yet, just > > > sticking with the > > > B-Complex which has Niacinamide in it instead of > > > niacin. I do know > > > niacin is the better to go with the copper than the > > > niacinamide. I > > > didn't see anything to answer my question when I was > > > searching through > > > the archive for this list. > > > > > > Thanks, > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2002 Report Share Posted September 19, 2002 Please take me off this list. I have tried going thru normal chanels with no luck. Thanks, Debelak Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Please take me out of this group. Actually i'm going out of town for a long vacation where i cannot check my mails frequently. Thanks Rama " claudia.morris " <claudia.morris@...> wrote: If you find someone...PLEASE LET ME KNOW! This IS uncharted waters, and very few MDs will know what to do with this. I'm having a heck of a time. Even the nutritionalists will look at you oddly re: supplements of vit E and omega 3. There are actually reference ranges for everything. So you will know if there are deficiencies etc. If any of the vit ADEK are low (even low- normal), you will want to supplement. If the celiac panel is positive, you will need a referral to a gastrointestinal specialist for further evaluation of celiac disease...and genetic HLA testing could also be helpful. If it is determined that it is not " celiac disease " (biopsy negative) but there are antibodies to gliadin (wheat/gluten) in a child with a neurological condition like apraxia...going gluten'casein free is worth a try. There is a DQ1 HLA gluten-sensitivity gene (determined on a blood or buccal swab test) that is associated with neurological complications...I am wondering if this is a marker in some of our kids? There are a few apraxic families out there with pending HLA panels, and if all these kids have DQ1 - it would be too much of a coincidence, and this may turn out to be something with overlapping symptoms of celiac disease, but a different condition altogether. Already there are way too many apraxic and apraxic/PDD children that I know personally, with positive anti-gliadin IgG and gut issues and/or gluten sensitivity. Such a marker would be great for screening if it reflected kids who will respond to gluten-free diet, carnitine, high- dose omega 3 and vit E (ph's oil). I don't think there is any vit E level in blood that would dissuade me from trying vitamin E since vitamin E is so safe, and our kids may need higher doses...we just don't know. Unfortunately plasma vitamin E levels do not well reflect vitamin E in the red blood cell or in the nervous system and other organs, where it needs to be. Low carnitine levels (even low normal), if identified...should be treated with carnitine supplements. (Prescription and not over the counter). But since I am particularly interested in understanding how all these parameters tie into apraxia...I can help you with interpretations. So far I've heard about a handful of apraxic kids with a variety of fat soluable vitamin deficiencies (including rickets), positive celiac panels and apraxic kids with significant carnitine deficiencies. This is telling me that our kids REALLY deserve a medical work-up in addition to the intensive 1:1 ST and OT. - > Hi all - > Pedi thought blood tests that listed were a great idea and as > he said " you guys are charting unknown territory " so he was all for it. > He had to look some up, etc. and luckily for us admitted that, although > he could read the results, he wouldn't be able to interpret the results > correctly or see non-obvious things. > > So what type of doc am I looking for now? Nutrionist? Most of the > metabolic people at boston children's are diabetes related, etc. I > don't need a referral and can go almost anywhere. I just want to ID the > right kind of doctor to look at this. > > Any ideas? > Thanking in advance.... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Please take me out of this group. Actually i'm going out of town for a long vacation where i cannot check my mails frequently. Thanks Rama " claudia.morris " <claudia.morris@...> wrote: If you find someone...PLEASE LET ME KNOW! This IS uncharted waters, and very few MDs will know what to do with this. I'm having a heck of a time. Even the nutritionalists will look at you oddly re: supplements of vit E and omega 3. There are actually reference ranges for everything. So you will know if there are deficiencies etc. If any of the vit ADEK are low (even low- normal), you will want to supplement. If the celiac panel is positive, you will need a referral to a gastrointestinal specialist for further evaluation of celiac disease...and genetic HLA testing could also be helpful. If it is determined that it is not " celiac disease " (biopsy negative) but there are antibodies to gliadin (wheat/gluten) in a child with a neurological condition like apraxia...going gluten'casein free is worth a try. There is a DQ1 HLA gluten-sensitivity gene (determined on a blood or buccal swab test) that is associated with neurological complications...I am wondering if this is a marker in some of our kids? There are a few apraxic families out there with pending HLA panels, and if all these kids have DQ1 - it would be too much of a coincidence, and this may turn out to be something with overlapping symptoms of celiac disease, but a different condition altogether. Already there are way too many apraxic and apraxic/PDD children that I know personally, with positive anti-gliadin IgG and gut issues and/or gluten sensitivity. Such a marker would be great for screening if it reflected kids who will respond to gluten-free diet, carnitine, high- dose omega 3 and vit E (ph's oil). I don't think there is any vit E level in blood that would dissuade me from trying vitamin E since vitamin E is so safe, and our kids may need higher doses...we just don't know. Unfortunately plasma vitamin E levels do not well reflect vitamin E in the red blood cell or in the nervous system and other organs, where it needs to be. Low carnitine levels (even low normal), if identified...should be treated with carnitine supplements. (Prescription and not over the counter). But since I am particularly interested in understanding how all these parameters tie into apraxia...I can help you with interpretations. So far I've heard about a handful of apraxic kids with a variety of fat soluable vitamin deficiencies (including rickets), positive celiac panels and apraxic kids with significant carnitine deficiencies. This is telling me that our kids REALLY deserve a medical work-up in addition to the intensive 1:1 ST and OT. - > Hi all - > Pedi thought blood tests that listed were a great idea and as > he said " you guys are charting unknown territory " so he was all for it. > He had to look some up, etc. and luckily for us admitted that, although > he could read the results, he wouldn't be able to interpret the results > correctly or see non-obvious things. > > So what type of doc am I looking for now? Nutrionist? Most of the > metabolic people at boston children's are diabetes related, etc. I > don't need a referral and can go almost anywhere. I just want to ID the > right kind of doctor to look at this. > > Any ideas? > Thanking in advance.... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Click unsubscribe at the bottom of this e-mail message. In a message dated 6/18/2007 9:51:31 A.M. Eastern Daylight Time, dragonfly371@... writes: Hi Could you please remove my email address from your list? Thank you! _dragonfly371@dragonf_ (mailto:dragonfly371@...) __________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. [Non-text portions of this message have been removed] ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2007 Report Share Posted June 24, 2007 -unsubscribe You have to unsubscribe yourself by sending an e-mail to the above address. S S unsubscribed please, tx _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 REMOVE FROM YOUR LIST PLEASE Quote Link to comment Share on other sites More sharing options...
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