Re: length of treatment of auxillary antibiotics

[Guest guest]

Hi Amy,

I just googled Augmentin to learn more about it, side effects, etc. It says it

is in the penicillin family, used for bacteria infection. Why did you add this

to mino? To hear that all joint pain went away is incredible. Something I

can't even imagine anymore. I am beginning to not be so concerned with doing so

much " natural " remedies for my RA......and just watching how fast time in going

by, and being homebound for now over 4 years. Truthfully, since I don't have

any documentation on the date and time that I will die......I'm feeling like

trying anything now to get a quality of life back. Sitting at home and watching

my body deteriorate is frightening. Sally

rheumatic length of treatment of auxillary antibiotics

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

Sally, in 1998 I was where you are, maybe worse, as I could not turn over in bed

or go shopping for food, so I would order from the grocery store and they would

deliver to my house for a fee.  I ordered everything that was bad for me as I

could not order fresh veg.  I started on the AP protocol as was suggested in

book but it was not enough for me, so I upped the dosage and found that worked

for me.  When I was barely able to drive I made an appoint to see an AP doc 2

1/2 hrs (1 way) away to get  antibiotics intravenously

and start celation.  I would have to pull my legs into the car w/my hands and

prayed I did not have an problems in the 2/ 1/2 hrs while driving.  I, like you,

live alone, so if anything happened to me I was up the creek w/o a paddle. 

After 2 weeks of the intravenous antibiotics and celation I knew that I had made

the right choice even though I really could not afford the treatments

financially.  I charged the treatments and paid as I could,  even took a 2ND

mortgage on my house.  Now I tell everyone, when I hear them say " I can't afford

it " , if your not worth it then who is.  I now live w/very little pain and know

that if I had not done the treatments over 10 yrs ago, I would not be here

today.  I still take antibiotics, but not as much as i did when I 1st started.

I now take care 8 of dogs 3 special needs.  I have one dog, 18 yr old dog that

has major arthritis and she is treated w/antibiotics as well.  All I have to do

is look in her eyes and when I see inflammation and pain I know I need to get

her on the protocol.  Even though she is almost 19 yrs old (March is her

birthday) she acts like a puppy. 

Josie (Dallas TX)

________________________________

From: " mannasal@... " <mannasal@...>

rheumatic

Sent: Sun, December 5, 2010 12:30:55 PM

Subject: Re: rheumatic length of treatment of auxillary antibiotics

Hi Amy,

I just googled Augmentin to learn more about it, side effects, etc.  It says it

is in the penicillin family, used for bacteria infection.  Why did you add this

to mino?  To hear that all joint pain went away is incredible.  Something I

can't even imagine anymore.  I am beginning to not be so concerned with doing so

much " natural " remedies for my RA......and just watching how fast time in going

by, and being homebound for now over 4 years.  Truthfully, since I don't have

any documentation on the date and time that I will die......I'm feeling like

trying anything now to get a quality of life back.  Sitting at home and watching

my body deteriorate is frightening.  Sally 

rheumatic length of treatment of auxillary antibiotics

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

Hi Amy,  I went on A/P with Minocin only for about 2-21/2 years.  Did very

very well on that and then reached a plateau where I stayed, what I thought was

in a position where I didn't seem like I was still going forward.  i was not

going backward either.  I just knew that I needed to tweak things a bit.  so,

I researched the Marshall Protocol and decided to do that protocol which is

Minocin with Benicar and some other antibiotics taken periodically in increasing

dosages from time to time and rotated them. I also started with azithromycin in

tiny dosese at 10 day intervals.  I really believe that I had some other

bacteria in my body besides the micooplasma that needed to be cleaned up and

gotten rid of.  I believe that these added antibiotics took care of some of

those resistant germs.   that turned the tide and within 18 mos to 2 years, I

was in remission and am still on the antibiotic minocin, at 1/2 dose, three days

a week MWF. the protocol

explains it all.  Thanks for asking, Dolores 

From: Amy <muttville@...>

Subject: rheumatic length of treatment of auxillary antibiotics

rheumatic

Date: Sunday, December 5, 2010, 11:46 AM

 

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

Hi, Dolores,

You are tempting me with the protocol, considering that it worked for you.. I

do great on 200mg Minocin until the cold weather and damp rains hit NY. Once we

hit below 40 degrees, my pain and exhaustion (from ReA) become uncontrollable. I

leave town a few times a winter season to get some sanity back, but this is both

a bandaid and it's also expensive.

Mona

rheumatic length of treatment of auxillary antibiotics

rheumatic

Date: Sunday, December 5, 2010, 11:46 AM

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

Thank you, Dolores. I love this forum. Interesting that cold weather increases

your symptoms. I wouldn't think cold would change anything about an infection.

Hmmm. there's something to think about. Again, I'm going to encourage everyone

to join the internet arthritis registry. For medical researchers to learn things

such as symptoms worsening with cold weather could lead to some great

breakthroughs.

http://www.arthritis.org/arthritis-internet-registry.php

Check it out. thanks. Amy

[Guest guest]

Amy....who is the sponser of the registry?...........frank

From: Amy <muttville@...>

Subject: rheumatic Re: length of treatment of auxillary antibiotics

rheumatic

Date: Tuesday, December 7, 2010, 12:07 PM

 

Thank you, Dolores. I love this forum. Interesting that cold weather

increases your symptoms. I wouldn't think cold would change anything about an

infection. Hmmm. there's something to think about. Again, I'm going to encourage

everyone to join the internet arthritis registry. For medical researchers to

learn things such as symptoms worsening with cold weather could lead to some

great breakthroughs.

http://www.arthritis.org/arthritis-internet-registry.php

Check it out. thanks. Amy

[Guest guest]

Dear Amy, This is Dolores.  You read me wrong.  I never said that cold

weather had anything to do with to do with my infection.  The reason I had to

move to a warm climate is because I developed Interstial Pulmonary Fibrosis. 

My lungs were not exchanging sufficient air and my heart was not working right

because of it so I had constant chest pain when I would try to inhale in

freezing weather especially when I tried to walk up the subway stairs with a

heavy coat, boots, hats, sweaters, gloves and several pairs of socks.  I found

it difficult to climb even one flight of stairs.  And you know that in NY most

apartments have steps and all trains have steps.  I had to use the bus a lot

and it was okay during summer and when I strolled slowly.  Systemic Scleroderma

is considered a terminal illness in that it affects the entire system and

damages every organ of the body.  I owe my life to the antibiotic protocol

in that it stopped the disease from

progressing and now my body is in the healing mode.  This could never have

happened by using the toxic drugs like prednisone, humira, remicade and

methotrexate.  Still most rheumatologists prescribe these drugs from the get

go.  They are feel good medications which only palliate the symptoms but do

nothing to cure or arrest the disease.  Dr. MacPherson Brown treated all

his arthritic patients for 40+ yrs. successfully, and we all owe him a big debt

of gratitude for discoveriing the micoplasmas.  His book, " The Road Back "

explains everything in detail.  And the book, " The New Arthritiss Breakthrough "

by Henry Scammell expands on the reason for the antibiotic protocol and how it

works. I chose to give my body over to a protocol that works rather than become

an experiment for some pharmaceutical company looking to make millions on yet

another toxic medication that will be sure to kill me.  No thanks.  I am in

remission and fully functional

after 5 years of therapy.  In 2005, my lungs and heart were so badly

damaged from sclerosis that I was given only months to live.  I am living

proof that the antibiotic protocol works.  I need no one else to tell me what

caused my scleroderma and how to get rid of it.  That is all history to me. 

Micoplasma pneumonae caused my scleroderma and Minocin and several other combos

of antibiotics cured me.  End of story!  I am in the middle of seeing a bunch

of specialists for a yearly check up and all of my results are coming back

normal.  My best to all of you and Happy Holidays to all,  Dolores  

From: Amy <muttville@...>

Subject: rheumatic Re: length of treatment of auxillary antibiotics

rheumatic

Date: Tuesday, December 7, 2010, 12:07 PM

 

Thank you, Dolores. I love this forum. Interesting that cold weather increases

your symptoms. I wouldn't think cold would change anything about an infection.

Hmmm. there's something to think about. Again, I'm going to encourage everyone

to join the internet arthritis registry. For medical researchers to learn things

such as symptoms worsening with cold weather could lead to some great

breakthroughs.

http://www.arthritis.org/arthritis-internet-registry.php

Check it out. thanks. Amy

[Guest guest]

Hi Mona!  Yes, it is a royal pain in the you know what to have to deal with the

cold weather when  your body is not acting properly and the cold weather only

makes you hurt more.  But, I feel that I am important enought to myself to do

all I can to help myself and I would have moved to Siberia if I had to, to help

me with my condition.  With scleroderma, I only had two choices.  Live or

Die!  There was no alternate for me.  So, I packed up, left my beloved city

and first headed to Corpus Christi, TX.  Then my mom was diagnosed with

Alzheimers..  She lived in Florida, So I went there and became her caretaker. 

My husband also has Raynauds and couldn't handle the cold weather in Pensacola

so we moved all the way to Puerto Rico and took my mom with us.  Not only was

all that a lot of work, but also very expensive.  I do not regret one moment of

my decision.  Everyday is beautiful and warm and it is cooler here in summer

than it is in

NYC,because I live 300 ft. from the ocean's edge and get the trade wind breezes

all the time.  But I notice that I am becoming climatized. The last few nights

I had to carry a sweater with me.  The temperature went down to 72 degrees and

I felt chilly!  Still it was a lovely night with my sweater over my shoulders,

I finished all my christmas shopping at Sam's Club and Walmart.  Had a great

dinner at Chili's, took the dog for a walk and came home to a very pleasant

house and watched some cable TV and then got on the computer.  Life does not

get sweeter than this.  My best to you .  if you live in the vicinity

of NYC, I will let you know when I plan to visit my friends next summer so we

can meet.   .I need to come back once in a while to get my NYC fix.  I was

born in the Village and am completely and  totally a New Yorker through and

through, but my health comes first.Besides, there are lots of people living here

that have come from

NYC especially in winter.    Take care, Happy Holidays, Dolores 

From: Amy <muttville@...>

Subject: rheumatic length of treatment of auxillary antibiotics

rheumatic

Date: Sunday, December 5, 2010, 11:46 AM

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

The Arthritis Foundation is behind the internet arthritis registry. And while

they currently recommend the toxic DMARDS, it is my hope that through the

registry, they will see the results from antibiotic protocol and we can help get

others on AP and on the road to a cure. But it takes those on AP to sign up on

the registry so the data can get into the hands of medical researchers. Amy

PS , thanks for deleting most of the message before yours so the post isn't

filled with repeated entries.

>

> Amy....who is the sponser of the registry?...........frank

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increases your symptoms. I wouldn't think cold would change anything about an

infection. Hmmm. there's something to think about. Again, I'm going to encourage

everyone to join the internet arthritis registry. For medical researchers to

learn things such as symptoms worsening with cold weather could lead to some

great breakthroughs.

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[Guest guest]

Josie,

Thank you for your kind words and caring. It is great encouragement to me, and

many of us on this site, to hear your stories.....then to end with LIVING AND

ENJOYING LIFE AGAIN! The " living and enjoying life " is what I strive to do now,

in the moment....and not wait until remission. This part for me, is a big part

of the healing.

Over the last 4 yrs, I have spent thousands $$ on looking for

answers.....treatments, supplements, physics, astrology, $4000. water system,

infarred sauna, infared mat to sleep on, acupuncture, etc etc etc. Of course,

reimbursement from insurance has been 0. If the time is needed, I will sell my

house for more money for healing. Here in town we have a lovely health food

store that deliveries to me. I'm eating lots of green organic vegies....and

raw.

Sometimes I wonder if I would just throw everything out....supp,etc, constant

research, constant thinking.....and just surrender to my situation that it is

now and read some good novels, perhaps healing would come, or perhaps not.

This certainly is a difficult puzzle to figure out, so back to the drawing

board....one piece at a time. Blessings, Sally

How lovely that you are caring for such special dogs!

rheumatic length of treatment of auxillary antibiotics

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

Sally, never give up.  I know I wanted to give up so many times (in the 90's)

but could not do that to my parents.  I have since lost both my parents (my

mother to the disease I have) and am so greatful that AP made me well enough

that I could travel to CA to take care of my mother when she was stricken in

Oct. to Nov. 2006.  I will be driving to VA next week as I will be building a

house on some 12 acres I bought 3 yrs ago.  I plan on living in VA and start a

small operation to help dogs that have specail needs.

I have saved neigbors cats and dogs from illnesses that the vets have said that

there was no hope, just by using AP, supplemnets and changing their food to a

concotion that I make.  I have even helped a woman in WI that has a severly

handicapped dog w/sezuiers, heart mumur and crippled.  Her vet is shocked @

the dogs improvement, not only in appearence but also in the bloodwork and

listening to his heart.  

It might be scary now but eventually this time will be just a distant memory.

If you ever need to talk you are welcome to call me.  972 291 7669 

 Josie (Dallas TX)

________________________________

From: " mannasal@... " <mannasal@...>

rheumatic

Sent: Fri, December 10, 2010 3:19:11 PM

Subject: Re: rheumatic length of treatment of auxillary antibiotics

Josie,

Thank you for your kind words and caring.  It is great encouragement to me, and

many of us on this site, to hear your stories.....then to end with LIVING AND

ENJOYING LIFE AGAIN!  The " living and enjoying life " is what I strive to do now,

in the moment....and not wait until remission.  This part for me, is a big part

of the healing.

Over the last 4 yrs, I have spent thousands $$ on looking for

answers.....treatments, supplements, physics, astrology, $4000. water system,

infarred sauna, infared mat to sleep on, acupuncture, etc etc etc.  Of course,

reimbursement from insurance has been 0.  If the time is needed, I will sell my

house for more money for healing.  Here in town we have a lovely health food

store that deliveries to me.  I'm eating lots of green organic vegies....and

raw.

Sometimes I wonder if I would just throw everything out....supp,etc, constant

research, constant thinking.....and just surrender to my situation that it is

now and read some good novels, perhaps healing would come, or perhaps not.

This certainly is a difficult puzzle to figure out, so back to the drawing

board....one piece at a time.  Blessings, Sally

How lovely that you are caring for such special dogs!

rheumatic length of treatment of auxillary antibiotics

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

Josie,

How beautiful to hear of 1) you have a life and 2) you have a new life in

Virginia! Today in Iowa we are having our lst snow. I have lovely big windows

that I sit and look out to this beautiful snow coming down. I so wanted to go

outside and let the snow fall on me. The simple things.

Blessings to you and the incredible service/love you are giving to our 4 legged

friends, Sally

rheumatic length of treatment of auxillary antibiotics

Dolores, you mentioned you did several antibiotics in your treatment. How long

were you on those? I am on mino, 100mg MWF. I did 10 days of Augmentin in

September and all my joint pain disappeared, then came back eventually. I am now

on a 30-day course of Augmentin, doing so much better. I only have about a week

left on the Augmentin. I will stay on the mino, but I wonder if it is wise to

stop the Augmentin now. I also hesitate to do it much longer. How long you were

on the other antibiotics? Anybody else who has input on this, I'd appreciate it.

Thanks! Amy

[Guest guest]

Amy

I too found that a week of Augmentin took away all my RA joint pain.

What was the dose you were using for the month-long course of Augmentin?

Ros

[Guest guest]

Is Augmentin in pill form or IV? thanks, June

On Dec 11, 2010, at 6:12 PM, lind Gittings wrote:

> Amy

>

> I too found that a week of Augmentin took away all my RA joint pain.

> What was the dose you were using for the month-long course of

> Augmentin?

>

> Ros

>

>

[Guest guest]

As to why I took the antibiotic, Augmentin: I started Augmentin as I had an

abscess in my jaw. It didn't bother me at the dentist. The abscess was

discovered on a panoramic x-ray during a routine check up. I had some divine

intervention here as the next day I had an appointment with my MD. While I was

in the waiting room, that tooth started throbbing. So I got antibiotics from

her. I asked for something that would work on Staph as well, per information I

read in The Road Back. She prescribed Augmentin which is in the penicillin

family, but as an added ingredient to make it more effective against more

bacteria. 7 days on that and all my joint pain went away. It did come back. That

was in September 2010. I asked my MD for another, longer round of Augmentin. She

came through for me with a 30-day prescription. I just finished that up last

week. So far I am holding steady with improved joint pain in my hands. Just had

bloodword drawn to recheck rheumatoid factor and anti-ccp. I'll report back on

those.

My Rx bottle reads " AMOX/K CLAV 875-125 Tab SANDOZ Generic For AUGMENTIN 875MG.

I took two a day. I'm assuming those numbers mean 875mg of augmentin and 125

whatever units of that second ingredient.

Hope this helps.

Amy

>

> Amy

>

> I too found that a week of Augmentin took away all my RA joint pain.

> What was the dose you were using for the month-long course of Augmentin?

>

> Ros

>