Re: Re: help with OB treatment

[Guest guest]

HI , Yes, they did that yesterday. Seems I have suddenly, an enormous amount

of estrogen...hence, the sore back, breasts and estrogen discharge.

I agree, I think progesterone is lacking.

Troy who...?? Hee Hee, that was for Cooky in Pittsburg, She knows I have a huge

crush on the SS of the Pittsburgh Steelers...Troy Polamalu...

RE: rheumatic help with OB treatment

>

>

>

> Well it looks like my attempt to write back in Green didn't work (grr) so

> here are my writings shortened..Sooo sorry

>

> OB and pulm fibrosis....Inger has access to the studies, etc...AND the DR

> who developed photopheresis, Dr. Rick Edelson is at Yale as well..he is

> researchable online and I contacted him and he wrote letters on my behalf

> regarding my obtaining tx with photopheresis for the OB...let me know if

> there is anything I can do.

>

> Thank you so much Deb.I think I have enough now.

> I really don't know a whole lot about this person.only what I wrote.

>

> Right now...I am in the middle of more issues...Having 2 US this week...my

> breasts had been veryyyy sore for months...could not find anything..ok, then

> the past month, my back has been killing me(2 wks ago my Internist cked my

> kidneys and urine, all good there ) and I have had an awful discharge..well,

> my GYN today said my estrogen is off the charts...which, due to my age,

> should not be..so they are doing an US to ck and see what is going on...and

> she told me I am definitely having a biopsy..UGH...sort of figured on the

> biopsy...so...appts all week and will know more later...I have felt like I

> am going to have a period...for over a month now...since that stopped a few

> years ago...veryyyy unexpected...they are not sure of anything yet but gyn

> said they are looking for cancer...as they see cancer in autoimmune

> patients...50% more than the rest of the population...especially, breast,

> ovarian and lung...so....always something...

>

> .Deb hopefull this is not

> cancer. It may just be vaginosis Lots of the symptoms you have sound like

> it. I need to add you to my nightly prayers. so far the prayers for my #1

> hope is doing good. You will too.

>

> Let me know if you need anything else re the person you know with OB...does

> she have an autoimmune disease or....is it just ideopathic OB? Yes she has

> rheumatoidSometimes OB occurs in environmental occupations, like anything to

> do with birds...or with oddly enough, popcorn factories and

> flavorings...weird huh?

>

> Not really look at all the stuff that goes into your

> lungs in these places.!!

>

>

> You have a great evening and blessings too.

>

> ,___

>

>

[Guest guest]

Hope all works out for you O. They were doing tests here in Pittsburgh

about the effects of auto immune diseases on the circulatory system. This

was way back in about 2000. I was part of it but dropped out because I never

had anything to add. Being on Minocin I never had the symptoms others had!

Thanks I have the info I needed.

cooky

: rheumatic Re: help with OB treatment

Hi, Cooky. I just saw your post and see that you have the info you need.

Just to say I had to stop the Mino and substitute, Doxy, because of the

breathing issue, result of taking the abx. But Dr. Sinnott has me on

Azithromycin. It is good (but not as good as Mino) and so am on a plateau

for now with that. But so far no allergic reaction. He agrees with several

of you that posted, that one can develop supersensitivities, which he thinks

I did to the Mino. I hope your friend does not have OB. I will be going for

tests today and (hopefully) find out more conclusively.

Debbie, I am so, so sorry to hear of your issues. I will be thinking of you

and wishing you the best. It is amazing how destructive this disease can be.

Hang in there.

I have been diligent in following the earlier rec's and getting health and

other issues attended to. Now that the Zithro is controlling the RA I have

been able to deal with the other issues. I am to be admitted to the hospital

today re: the heart and lung issues. Lots of tests...so this may be the last

post I get in for a while. Hope to follow you guys..Debbie - I also saw in

reading up on the heart issues...rheumatic disease sufferers are also 50%

more likely to have heart complications. =<

o

---

[Guest guest]

thinking of you maryo and the hospital testing be in your favor! sally

rheumatic Re: help with OB treatment

Hi, Cooky. I just saw your post and see that you have the info you need. Just to

say I had to stop the Mino and substitute, Doxy, because of the breathing issue,

result of taking the abx. But Dr. Sinnott has me on Azithromycin. It is good

(but not as good as Mino) and so am on a plateau for now with that. But so far

no allergic reaction. He agrees with several of you that posted, that one can

develop supersensitivities, which he thinks I did to the Mino. I hope your

friend does not have OB. I will be going for tests today and (hopefully) find

out more conclusively.

Debbie, I am so, so sorry to hear of your issues. I will be thinking of you and

wishing you the best. It is amazing how destructive this disease can be. Hang in

there.

I have been diligent in following the earlier rec's and getting health and other

issues attended to. Now that the Zithro is controlling the RA I have been able

to deal with the other issues. I am to be admitted to the hospital today re: the

heart and lung issues. Lots of tests...so this may be the last post I get in for

a while. Hope to follow you guys..Debbie - I also saw in reading up on the heart

issues...rheumatic disease sufferers are also 50% more likely to have heart

complications. =<

o

>

> Hi everyone,

>

>

>

> I keep a lot of your emails in case I ever need info on something. but for

> the life of me I can't find any info sent on OB. I know Debbie Gibson and

> O have it but I just can't find the emails on what you are being

> treated with.

>

>

>

> I am getting Clindy IV's at a local hospital and of course the IV nurse has

> a sister who has rheumatoid and questioning further she also has Ob. She has

> been to Cleveland clinic and they don't have answers for her.but we do

> (teehee)! She is in Delaware and near Baltimore hospital. OK so I copied

> antibiotic info for her and I need you guys to write your treatment. I am so

> sorry to have to ask. I should be able to find it!! (grrr I get frustrated).

>

>

>

> Thanks

>

>

>

> cooky

>

>

>

>

[Guest guest]

o,

i just goggled Zithro to learn more. Is that something to be added to

minocyline for treatment of RA? They both are antibiotics, but different

families. sounds like Zithro is working for you. was that an alternative when

you went off of minocyline? thanks mary o, sally

rheumatic Re: help with OB treatment

Hi, Cooky. I just saw your post and see that you have the info you need. Just to

say I had to stop the Mino and substitute, Doxy, because of the breathing issue,

result of taking the abx. But Dr. Sinnott has me on Azithromycin. It is good

(but not as good as Mino) and so am on a plateau for now with that. But so far

no allergic reaction. He agrees with several of you that posted, that one can

develop supersensitivities, which he thinks I did to the Mino. I hope your

friend does not have OB. I will be going for tests today and (hopefully) find

out more conclusively.

Debbie, I am so, so sorry to hear of your issues. I will be thinking of you and

wishing you the best. It is amazing how destructive this disease can be. Hang in

there.

I have been diligent in following the earlier rec's and getting health and other

issues attended to. Now that the Zithro is controlling the RA I have been able

to deal with the other issues. I am to be admitted to the hospital today re: the

heart and lung issues. Lots of tests...so this may be the last post I get in for

a while. Hope to follow you guys..Debbie - I also saw in reading up on the heart

issues...rheumatic disease sufferers are also 50% more likely to have heart

complications. =<

o

>

> Hi everyone,

>

>

>

> I keep a lot of your emails in case I ever need info on something. but for

> the life of me I can't find any info sent on OB. I know Debbie Gibson and

> O have it but I just can't find the emails on what you are being

> treated with.

>

>

>

> I am getting Clindy IV's at a local hospital and of course the IV nurse has

> a sister who has rheumatoid and questioning further she also has Ob. She has

> been to Cleveland clinic and they don't have answers for her.but we do

> (teehee)! She is in Delaware and near Baltimore hospital. OK so I copied

> antibiotic info for her and I need you guys to write your treatment. I am so

> sorry to have to ask. I should be able to find it!! (grrr I get frustrated).

>

>

>

> Thanks

>

>

>

> cooky

>

>

>

>