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Re: Digest Number 776

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Astrid:

here. I too am very mobile and have popped my hip and arms

out of socket. I was told I may have a hyperextensive syndrome also.

I know it sounds funny but at any given time without stretching I can reach

down and completely put my palms on the floor with knees straight.

Was playing racquetball in college and did backhand and my whole arm came

out of the socket. Boy that one hurt. Rheumatologist did some

movement tests on me and said I was extremely limber.

There are connective tissue diseases that involve things like this I

believe. I ran into a lady whose daughter has a very difficult time

with things like this. Can't remember the name of what she had and

it was very rare and the child was only 6 or 7 but I do remember hyperextension

was in the diagnosis. It rang a bell when you said this with me and

wanted to let you know I experience it too. I have been diagnosed

with some type of connective tissue disease (they don't know what) but

maybe that has something to do with it now that I come to think of it.

Jusr wanted to let you know there is another person popping out of joint

here too and you are not alone. Hopefully I'll find the time to sit

down and try to research some on the net.

Don't let docs make you feel like a hypochondriac. Would like

them to try to live through a week in our bodies and I bet they would have

a whole different perspective on this huh.

Hope your heading into a good weekend!

Cath

Strid wrote:

Hi all

I am now back online..

i was just wondering if u ever get inguries there are nothing like

what u see in ordinary people?

i have just pulverized the cartiladge in my left knee and i often

feel when i go to the mergency room that the doctors there look at me like

i am an hypocondriac, ( maybe not spell correct)

I am very hypermobile in my joints and dislocate easy even in my

hipjoints.. the doctor told that one does not do that.. well i do and feel

very sad when told that no such thing is possible.

Otherwise i`m kinda ok.. we have a thing here in Denmark that makes

sure that i get a job. The state payes half my salery in return i get part

time job put payed for full time.

I don`t get medicated because my doctor says i doesn`t do any good

in long term.. so i am on a full doze of asperin.. :))

Lovely to be back

Hugs to all

Astrid

Re: from to the group

>

> Dear :

>

> Of course we all understand and are happy you have the opportunity

to

> fulfill this dream and do what you love. We will miss your

posts, but

> hope you are able to get through the difficult family problems

one day

> at a time.

>

> Remeber we all love you and are here for you. Anything

we can do or

> help you with you know to just holler.

>

> We will all be anxiously waiting for you to return and be able

to post

> again. Glad it's not for poor health conditions and good

for you for

> doing what will make you feel good. Don't feel bad about

doing what you

> need for yourself. I should take a lession from that at

times and am

> working at doing just that so thanks for helping to remind me

I need to

> take care of my stuff too.

>

> Have a great time and say hello every now and then if you can.

>

> Take care,

>

> Cath

>

>

>

> Lu1953@... wrote:

>

> > I would like to thank everyone who has written to me

this past week.

> > My

> > parting from the group is a personal decision that I know some

will

> > not

> > understand. I miss each and everyone of you and you are all

still in

> > my

> > prayers and in my heart.

> > But I must leave. My health is fine it is not the cause.

> > Right now I have a greater need to complete some long left

unattended

> > dreams.

> > Before I became so very ill with RP and my tracheal collapse

I was

> > conditioning horses for 20 and 40 mile rides. It has been almost

7

> > years

> > now. I miss my horses. I miss the trails and I miss being able

to

> > spend

> > countless hours with my children riding the mountains and the

valleys.

> >

> > Several months ago the doctors gave me the go ahead to go back

into

> > riding

> > again. To me it has been a new lease on life. Realistically,

I know I

> > will

> > never be able to do the forty mile rides again. But I can still

train

> > and

> > condition for the 20 miles. I've even been able to work with

the

> > governing

> > body for NARTC so that my handicap is accounted for and not

held

> > against me.

> > Many of you may already know this. But my daughter is one of

the best

> > nature

> > horse people. Together we shared the same dream, to turn are

property

> > into a

> > working training facility for horses. We have that will under

way. I

> > have a

> > special project, a Paso Fino Mare was given to us. She has

been badly

> > abused

> > by a mechanically method called Soring. One our students wants

to take

> > her

> > on as her project horse. So I will need the time to correctly

teach

> > her how

> > to recondition this beautiful, gentle and loving horse. This

is what I

> > need

> > right now.

> > Also, three of my family members are terminally ill. And not

expected

> > to

> > make to the end of the year. Sadly, they all live in the same

town,

> > but are

> > 500 miles away. I will be spending as much time as possible

with them.

> >

> > As of late. I have been very sensitive and touching. Which

is not my

> > normal

> > me. I'm sorry to those who I've jumped down your throats. It

has taken

> > me a

> > very long time to make the decision to leave. Because I love

each and

> > every

> > one of you. But I need to do what is best for me. And that

is to

> > finish a

> > promises to my daughter, myself and my God. And to do so I

have to

> > give some

> > things up.

> > As I have told the members that have reached privately. I am

still

> > willing

> > to help find answers or just to chat. But I do have to go.

At this

> > point in

> > time I don't foresee my returning to the group.

> > Again I pray that you all will understand and wish me will.

> >

> > Love R.

> >

> >

> >

> > ----------------------- Headers --------------------------------

> > -----------------------------------------------------------------------

> >

> > -----------------------------------------------------------------------

> > There is strength in numbers and together we can cope and help

others.

>

>

>

>

> [This message contained attachments]

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

>

There is strength in numbers

and together we can cope and help others.

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