Methotraxate and hair loss

[Guest guest]

Hi everyone ,

I have RA and been treated by Humira and Methotrexate . for months now i have

 been losing hair like crazy and when i wanted to my rhumatologist this week he

suggested that i can stop taking Methotrexate for 6 months and see how this will

affects my hair loss. I am affried from fleer up so should i stop it or not ? I

will appreciate your suggestions

[Guest guest]

I started on methetrexate for 12 weeks, had lair loss and became way way worse

in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the mthetrexate

and started on humira, which did help but I was afraid to stay on it since i

work for a school district. Started AP and within weeks was feeling MUCH better.

My hair contiuned to shed however, and also break off (hair can break off at the

point where it was growing when you took a medicine.. so if your hair is

long..it can be breaking off for years) When I added LDN my hair and nails

started to grow back again!!!! I am very happy to have a new hair style and

polish on my nails again!! Kathy

[Guest guest]

Hi Kathy,

 

I haven't posted to this group in a long time - since I've been in remission for

RA for about 8 years now -  I have experienced some hair loss lately, and of

course, vanity being my middle name, I worry about that.   Can you tell me

what LDN is and where I can buy it?l

 

I never did take any of the hard drugs out there, only antibiotics and

supplements recommended by my doctor.  I have wondered whether taking

antibiotics long-term may cause hair loss.   Any ideas out there?

 

Ana in Alaska

From: Kathy <sunbriar@...>

Subject: rheumatic Re:Methotraxate and hair loss

rheumatic

Date: Friday, September 24, 2010, 5:46 AM

 

I started on methetrexate for 12 weeks, had lair loss and became way way worse

in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the mthetrexate

and started on humira, which did help but I was afraid to stay on it since i

work for a school district. Started AP and within weeks was feeling MUCH better.

My hair contiuned to shed however, and also break off (hair can break off at the

point where it was growing when you took a medicine.. so if your hair is

long..it can be breaking off for years) When I added LDN my hair and nails

started to grow back again!!!! I am very happy to have a new hair style and

polish on my nails again!! Kathy

[Guest guest]

Hi. Has everyone out there had good experiences with LDN? Thanks, June

On Oct 3, 2010, at 11:53 AM, Ana Willson wrote:

> Hi Kathy,

>

> I haven't posted to this group in a long time - since I've been in

> remission for RA for about 8 years now - I have experienced some

> hair loss lately, and of course, vanity being my middle name, I

> worry about that. Can you tell me what LDN is and where I can buy

> it?l

>

> I never did take any of the hard drugs out there, only antibiotics

> and supplements recommended by my doctor. I have wondered whether

> taking antibiotics long-term may cause hair loss. Any ideas out

> there?

>

> Ana in Alaska

>

>

>

> From: Kathy <sunbriar@...>

> Subject: rheumatic Re:Methotraxate and hair loss

> rheumatic

> Date: Friday, September 24, 2010, 5:46 AM

>

>

>

> I started on methetrexate for 12 weeks, had lair loss and became way

> way worse in all ways (joint pain , bone pain, nausea, dizzy etc)

> stopped the mthetrexate and started on humira, which did help but I

> was afraid to stay on it since i work for a school district. Started

> AP and within weeks was feeling MUCH better. My hair contiuned to

> shed however, and also break off (hair can break off at the point

> where it was growing when you took a medicine.. so if your hair is

> long..it can be breaking off for years) When I added LDN my hair and

> nails started to grow back again!!!! I am very happy to have a new

> hair style and polish on my nails again!! Kathy

>

>

[Guest guest]

Hello,

my name is Eva and I have been taking low dose Naltrexone for over a year now. I

did stop for about two months since I had hip surgery and was taking medication

with codien in it. When you take that you can not take the LDN. I was walking

very bend over had almost no muscle tone in the middle of my body, after about

two months I could tell that it was helping me a lot and now I am almost

upright. I do have scoliosis of the lower back and never will be totally upright

( leaning to the right LOL) but it has helped a lot. It also deminishes the pain

level.

I have RA and dermatomyositis for over five years, I was on lots of biological

medications and on Prednison, for at least one year on a high dosage. That and

the other drugs caused a lot of damage. I have been on the antibiotic protocol

now for almost three years and doing so much better. I can walk, do things

around the house and finaly lost that brain fog. Naturally I also take

suplements with the antibiotics plus some very good probiotics which are a must

in this regime.

If you look up low dose naltrexone then you get your information. Your doctor

must write the prescription and you need to find a compounding pharmacy, or use

the one on-line: have your doctor fax the script to the one you choose or do it

yourself. If you want to do it yourself send me a personal e-mail and I will

tell you how to.

Eva

>

> From: Kathy <sunbriar@...>

> Subject: rheumatic Re:Methotraxate and hair loss

> rheumatic

> Date: Friday, September 24, 2010, 5:46 AM

>

>

>

> I started on methetrexate for 12 weeks, had lair loss and became way 

> way worse in all ways (joint pain , bone pain, nausea, dizzy etc) 

> stopped the mthetrexate and started on humira, which did help but I 

> was afraid to stay on it since i work for a school district. Started 

> AP and within weeks was feeling MUCH better. My hair contiuned to 

> shed however, and also break off (hair can break off at the point 

> where it was growing when you took a medicine.. so if your hair is 

> long..it can be breaking off for years) When I added LDN my hair and 

> nails started to grow back again!!!! I am very happy to have a new 

> hair style and polish on my nails again!! Kathy

>

>

[Guest guest]

Hello Ana,

8 yrs in remission!!!!! How blessed you are! Sally

rheumatic Re:Methotraxate and hair loss

rheumatic

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way worse

in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the mthetrexate

and started on humira, which did help but I was afraid to stay on it since i

work for a school district. Started AP and within weeks was feeling MUCH better.

My hair contiuned to shed however, and also break off (hair can break off at the

point where it was growing when you took a medicine.. so if your hair is

long..it can be breaking off for years) When I added LDN my hair and nails

started to grow back again!!!! I am very happy to have a new hair style and

polish on my nails again!! Kathy

[Guest guest]

I'm on LDN 8 or so weeks. Too early to tell, but I know recommend for AI

disease. I am sleeping better, and much much deeper. That is very good sign to

help the body heal. Sally

rheumatic Re:Methotraxate and hair loss

rheumatic

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way

way worse in all ways (joint pain , bone pain, nausea, dizzy etc)

stopped the mthetrexate and started on humira, which did help but I

was afraid to stay on it since i work for a school district. Started

AP and within weeks was feeling MUCH better. My hair contiuned to

shed however, and also break off (hair can break off at the point

where it was growing when you took a medicine.. so if your hair is

long..it can be breaking off for years) When I added LDN my hair and

nails started to grow back again!!!! I am very happy to have a new

hair style and polish on my nails again!! Kathy

[Guest guest]

Hi Ana in Alaska,

Have you had your thyroid checked lately? An out-of-whack thyroid might

cause hair loss. Another consideration is vitamin D and iodine

deficiencies. El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Ana Willson

Sent: Sunday, October 03, 2010 11:54 AM

rheumatic

Subject: Re: rheumatic Re:Methotraxate and hair loss

Hi Kathy,

I haven't posted to this group in a long time - since I've been in remission

for RA for about 8 years now - I have experienced some hair loss lately,

and of course, vanity being my middle name, I worry about that. Can you

tell me what LDN is and where I can buy it?l

I never did take any of the hard drugs out there, only antibiotics and

supplements recommended by my doctor. I have wondered whether taking

antibiotics long-term may cause hair loss. Any ideas out there?

Ana in Alaska

From: Kathy <sunbriar@... <mailto:sunbriar%40wv.net> >

Subject: rheumatic Re:Methotraxate and hair loss

rheumatic <mailto:rheumatic%40>

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way

worse in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the

mthetrexate and started on humira, which did help but I was afraid to stay

on it since i work for a school district. Started AP and within weeks was

feeling MUCH better. My hair contiuned to shed however, and also break off

(hair can break off at the point where it was growing when you took a

medicine.. so if your hair is long..it can be breaking off for years) When I

added LDN my hair and nails started to grow back again!!!! I am very happy

to have a new hair style and polish on my nails again!! Kathy

[Guest guest]

Ana, are you on hormones? Did you just go thru menopause? Have a baby or

surgery? These things cause hair loss. I have been on antibiotics since 97 and

my hair has always been very thin and strands fine. So no I don’t think

antibiotics can do that… but stranger things have happened (smiling).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Ana Willson

Hi Kathy,

I haven't posted to this group in a long time - since I've been in remission for

RA for about 8 years now - I have experienced some hair loss lately, and of

course, vanity being my middle name, I worry about that. Can you tell me what

LDN is and where I can buy it?l

I never did take any of the hard drugs out there, only antibiotics and

supplements recommended by my doctor. I have wondered whether taking

antibiotics long-term may cause hair loss. Any ideas out there?

Ana in Alaska

---

[Guest guest]

Hi Cooky,

Yep,  I'm smack in the middle of menopause, and I was doing bio-identical

hormones, for about a year and a half, but gave up on them when the cost became

prohibitive.  My insurance does not cover them, so that was that.    Maybe

it's time to revisit them ,eh?

 

Ana

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic Re:Methotraxate and hair loss

rheumatic

Date: Sunday, October 3, 2010, 11:51 AM

 

Ana, are you on hormones? Did you just go thru menopause? Have a baby or

surgery? These things cause hair loss. I have been on antibiotics since 97 and

my hair has always been very thin and strands fine. So no I don’t think

antibiotics can do that… but stranger things have happened (smiling).

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Ana Willson

Hi Kathy,

I haven't posted to this group in a long time - since I've been in remission for

RA for about 8 years now - I have experienced some hair loss lately, and of

course, vanity being my middle name, I worry about that. Can you tell me what

LDN is and where I can buy it?l

I never did take any of the hard drugs out there, only antibiotics and

supplements recommended by my doctor. I have wondered whether taking antibiotics

long-term may cause hair loss. Any ideas out there?

Ana in Alaska

---

[Guest guest]

Hi El,

I do have hypothyroidism, and have had it since I was diagnosed with RA, about

11 years ago -  I take a thyroid replacement, and also take Vitamin D

supplements.    The dose of the thyroid replacement was just recently revised

down, since I have lost about 55 pounds in the past year, so I guess I was

taking too much.    Guess a lot of things can cause hair loss, wish I could

figure out exactly what is causing it and then fix it.

 

Ana

From: Kathy <sunbriar@... <mailto:sunbriar%40wv.net> >

Subject: rheumatic Re:Methotraxate and hair loss

rheumatic <mailto:rheumatic%40>

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way

worse in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the

mthetrexate and started on humira, which did help but I was afraid to stay

on it since i work for a school district. Started AP and within weeks was

feeling MUCH better. My hair contiuned to shed however, and also break off

(hair can break off at the point where it was growing when you took a

medicine.. so if your hair is long..it can be breaking off for years) When I

added LDN my hair and nails started to grow back again!!!! I am very happy

to have a new hair style and polish on my nails again!! Kathy

[Guest guest]

Hi Sally, 

 

Don't think I don't thank God every single day for this.  I spent a few years

of hell, but thanks to getting on the antibiotic protocol early enough, I

achieved remission in 2 years.   I still take my maintenance dose of

antibiotic, and plan to continue taking it til I die.

 

Ana 

From: Kathy <sunbriar@...>

Subject: rheumatic Re:Methotraxate and hair loss

rheumatic

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way worse

in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the mthetrexate

and started on humira, which did help but I was afraid to stay on it since i

work for a school district. Started AP and within weeks was feeling MUCH better.

My hair contiuned to shed however, and also break off (hair can break off at the

point where it was growing when you took a medicine.. so if your hair is

long..it can be breaking off for years) When I added LDN my hair and nails

started to grow back again!!!! I am very happy to have a new hair style and

polish on my nails again!! Kathy

[Guest guest]

Ana,

Are you taking Armour Thyroid? El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Ana Willson

Sent: Sunday, October 03, 2010 4:42 PM

rheumatic

Subject: RE: rheumatic Re:Methotraxate and hair loss

Hi El,

I do have hypothyroidism, and have had it since I was diagnosed with RA,

about 11 years ago - I take a thyroid replacement, and also take Vitamin D

supplements. The dose of the thyroid replacement was just recently

revised down, since I have lost about 55 pounds in the past year, so I guess

I was taking too much. Guess a lot of things can cause hair loss, wish I

could figure out exactly what is causing it and then fix it.

Ana

From: Kathy <sunbriar@... <mailto:sunbriar%40wv.net>

<mailto:sunbriar%40wv.net> >

Subject: rheumatic Re:Methotraxate and hair loss

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way

worse in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the

mthetrexate and started on humira, which did help but I was afraid to stay

on it since i work for a school district. Started AP and within weeks was

feeling MUCH better. My hair contiuned to shed however, and also break off

(hair can break off at the point where it was growing when you took a

medicine.. so if your hair is long..it can be breaking off for years) When I

added LDN my hair and nails started to grow back again!!!! I am very happy

to have a new hair style and polish on my nails again!! Kathy

[Guest guest]

Ana,

right now i only relate to the years (4) of hell.....but i can relate to you

constantly thanking God for remission, as that is where I am headed. This

disease, loss of your life, finances, dignity, etc.....can only now take me into

one direction....on my knees (which I have to do mentally, can't do physically)

the direction of the Divine. sally

rheumatic Re:Methotraxate and hair loss

rheumatic

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way worse

in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the mthetrexate

and started on humira, which did help but I was afraid to stay on it since i

work for a school district. Started AP and within weeks was feeling MUCH better.

My hair contiuned to shed however, and also break off (hair can break off at the

point where it was growing when you took a medicine.. so if your hair is

long..it can be breaking off for years) When I added LDN my hair and nails

started to grow back again!!!! I am very happy to have a new hair style and

polish on my nails again!! Kathy

[Guest guest]

I rephrase that Ana.....4 years of pain, not hell. There have been miracles and

grace along the way. sally

rheumatic Re:Methotraxate and hair loss

rheumatic

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way worse

in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the mthetrexate

and started on humira, which did help but I was afraid to stay on it since i

work for a school district. Started AP and within weeks was feeling MUCH better.

My hair contiuned to shed however, and also break off (hair can break off at the

point where it was growing when you took a medicine.. so if your hair is

long..it can be breaking off for years) When I added LDN my hair and nails

started to grow back again!!!! I am very happy to have a new hair style and

polish on my nails again!! Kathy

[Guest guest]

I pay out of pocket for my hormones..ins only pays for prescription that

approved and cause blood clots!

Menopause can cause hair loss….check it out on google. I can’t say for sure

the hormones will help grow your hair back….sorry.

Hairs to you!!

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Ana Willson

Sent: Sunday, October 03, 2010 4:36 PM

rheumatic

Subject: RE: rheumatic Re:Methotraxate and hair loss

Hi Cooky,

Yep, I'm smack in the middle of menopause, and I was doing bio-identical

hormones, for about a year and a half, but gave up on them when the cost became

prohibitive. My insurance does not cover them, so that was that. Maybe it's

time to revisit them ,eh?

Ana

[Guest guest]

Hi El,

Yes, that is what I'm taking....

 

Ana

From: Kathy <sunbriar@... <mailto:sunbriar%40wv.net>

<mailto:sunbriar%40wv.net> >

Subject: rheumatic Re:Methotraxate and hair loss

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way

worse in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the

mthetrexate and started on humira, which did help but I was afraid to stay

on it since i work for a school district. Started AP and within weeks was

feeling MUCH better. My hair contiuned to shed however, and also break off

(hair can break off at the point where it was growing when you took a

medicine.. so if your hair is long..it can be breaking off for years) When I

added LDN my hair and nails started to grow back again!!!! I am very happy

to have a new hair style and polish on my nails again!! Kathy

[Guest guest]

Good!

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Ana Willson

Sent: Sunday, October 03, 2010 7:55 PM

rheumatic

Subject: RE: rheumatic Re:Methotraxate and hair loss

Hi El,

Yes, that is what I'm taking....

Ana

From: Kathy <sunbriar@... <mailto:sunbriar%40wv.net>

<mailto:sunbriar%40wv.net>

<mailto:sunbriar%40wv.net> >

Subject: rheumatic Re:Methotraxate and hair loss

rheumatic <mailto:rheumatic%40>

<mailto:rheumatic%40>

<mailto:rheumatic%40>

Date: Friday, September 24, 2010, 5:46 AM

I started on methetrexate for 12 weeks, had lair loss and became way way

worse in all ways (joint pain , bone pain, nausea, dizzy etc) stopped the

mthetrexate and started on humira, which did help but I was afraid to stay

on it since i work for a school district. Started AP and within weeks was

feeling MUCH better. My hair contiuned to shed however, and also break off

(hair can break off at the point where it was growing when you took a

medicine.. so if your hair is long..it can be breaking off for years) When I

added LDN my hair and nails started to grow back again!!!! I am very happy

to have a new hair style and polish on my nails again!! Kathy