Re: maybe remission

[Guest guest]

Hello Eva,

it's good to hear success stories with the AP.

what did you take for pulmonary fibrosis?

thanks,

Ana

________________________________

From: magda1900 <holloway-eva@...>

rheumatic

Sent: Fri, March 25, 2011 6:13:36 AM

Subject: rheumatic maybe remission

 

Dolores,

I fired the rheumy just before we came to visit you in Corpus Christi. She had

told me that the chemo treatment I had taken for a year had not helped me, That

is why she put me on Cellcept and Enbrel. I was also taking Prednison. I had

been on the antibiotics for just 9 months and I had asked in January if she

would put me on the antibiotics and she told me " no way. it doesn't work " . I

still saw her because she did my blood work. I stopped Cellcept and Enbrel end

of March and the Prednison in May of that year. I finally told her I would not

be back since I was using the AP. I still think remission is a while off for me

because I took all this nasty drugs for over three years, almost four. Also I

had been very sick with interstitial pulmonary fibrosis and lost a lot of

weight.

I am now able to walk up and down the stairs again, slowly and with the

handrails and my cane. The weather still lets me know it is changing, specially

when it gets cold. Dr. K had put me on Pepsid AD twice daily after it helped me,

with my hands, when I was in the hospital. After 6 months it stopped so I tried

using it only the first three days of the month and that seems to do the trick.

My hands look a lot better. They are still dry but not as bad as when I saw you.

Sure seems to be a long time.

I read a log I kept when I was very sick and I couldn't believe how bad I felt.

I am able to do lots more now, very little pain, I have started to clean out

boxes and cabinets that have been left unattended for 6 years. my, my what a

mess, it will take me a long time to get this all cleaned up. LOL.

You take care and don't let any doctor mess with your eyes again. I had a friend

she had both of her eyes done and she was like you with your one eye being bad.

She had to get a magnifying glass to read. She dropped out of the German choir,

so sad.

Say HI to Mike and we hope when we have a chance we will come for a visit, We

have so many things going on with both the German choirs, trips, singing

festivals, meetings all over the US. Plus we have a few family visits planned.

So take care, Eva

[Guest guest]

Hi Eva dear.  You have come a long way since I met you and it sounds like you

have a full plate of activities.  I think being on all those immune

suppressants did set you back, but you are a fighter, like me. and so I have no

doubt that you will make it to remisssion soon.   Music gladdens the heart. 

I'll bet that you will come home from Germany like a new woman.  And, of course

seeing the kids is always uplifting.  Do you still have family in Gemany.? My

cousin lives in Manheim. She used to live in Sinsheim.  She is a pop singer

there and does concerts all over Europe.   I've been to Germany twice and have

friends in Bavaria south of Wurttsburg. Wish I were coming with you.  I loved

it there.  While I was there, my friend's sister-in-law had her baby christened

at the church and I wound up singing, " The Lord's Prayer in German. That was a

real treat.  Afterward, we went to this place to eat where we were the only

family.  Then we all

went outside by the Danube river visiting and talking.  They all spoke

English and German and I was picking up bits and pieces of conversation here and

there.  When the table was set with all the desserts, we went in again.  What

a lovely reception that was.  it was a real treat for us.  That was in 2002

when I was just beginning to feel like something wasn't working right for

me. It took more that two years to get diagnosed, but I am glad I didn't get on

prednisone or chemo.  I picked up my mino t oday and it was expensive.  $54

for 60 pills.That is the most I have ever paid.  They are going to put me in

the poor house yet!~~~~Say hello to Burl and maybe one day you will surprise

me.  Take care, Dolores & Mike 

From: magda1900 <holloway-eva@...>

Subject: rheumatic maybe remission

rheumatic

Date: Friday, March 25, 2011, 9:13 AM

 

Dolores,

I fired the rheumy just before we came to visit you in Corpus Christi. She had

told me that the chemo treatment I had taken for a year had not helped me, That

is why she put me on Cellcept and Enbrel. I was also taking Prednison. I had

been on the antibiotics for just 9 months and I had asked in January if she

would put me on the antibiotics and she told me " no way. it doesn't work " . I

still saw her because she did my blood work. I stopped Cellcept and Enbrel end

of March and the Prednison in May of that year. I finally told her I would not

be back since I was using the AP. I still think remission is a while off for me

because I took all this nasty drugs for over three years, almost four. Also I

had been very sick with interstitial pulmonary fibrosis and lost a lot of

weight.

I am now able to walk up and down the stairs again, slowly and with the

handrails and my cane. The weather still lets me know it is changing, specially

when it gets cold. Dr. K had put me on Pepsid AD twice daily after it helped me,

with my hands, when I was in the hospital. After 6 months it stopped so I tried

using it only the first three days of the month and that seems to do the trick.

My hands look a lot better. They are still dry but not as bad as when I saw you.

Sure seems to be a long time.

I read a log I kept when I was very sick and I couldn't believe how bad I felt.

I am able to do lots more now, very little pain, I have started to clean out

boxes and cabinets that have been left unattended for 6 years. my, my what a

mess, it will take me a long time to get this all cleaned up. LOL.

You take care and don't let any doctor mess with your eyes again. I had a friend

she had both of her eyes done and she was like you with your one eye being bad.

She had to get a magnifying glass to read. She dropped out of the German choir,

so sad.

Say HI to Mike and we hope when we have a chance we will come for a visit, We

have so many things going on with both the German choirs, trips, singing

festivals, meetings all over the US. Plus we have a few family visits planned.

So take care, Eva