RE: In Need Of Opinion

January 17, 2008

I am willing to bet you are running on adrenaline not cortisol. A

recheck of thyroid hormones and estrogen will tell the story. How did

they diagnose your 's? Do you have adrenal; antibodies? Had

pituitary testing? Acth Stiom?

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

January 18, 2008

's were diagnosed per blood test, imaging and then 24 hour

saliva test was done per my request. at that time doctor suggested

cortef but i tried isocort first for 4 weeks with no results, then

thats when i went ahead and did cortef for a few weeks, felt great

immedietely then had to start dosing down as i became over stimulated

on the dose. i dont think he checked for adrenal antibodies though.

>

> I am willing to bet you are running on adrenaline not cortisol. A

> recheck of thyroid hormones and estrogen will tell the story. How

did

> they diagnose your 's? Do you have adrenal; antibodies? Had

> pituitary testing? Acth Stiom?

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

>

January 18, 2008

I cannot imagine that anyone with actual 's disease could get by on

Isocort. There isn't a doctor with half a brain that wouldn't tell a patient

they need HC replacement for life or they could die. Are you sure you have

's and not just adrenal insufficiency? There is a difference.

Re: In Need Of Opinion

's were diagnosed per blood test, imaging and then 24 hour

saliva test was done per my request. at that time doctor suggested

cortef but i tried isocort first for 4 weeks with no results, then

thats when i went ahead and did cortef for a few weeks, felt great

immedietely then had to start dosing down as i became over stimulated

on the dose. i dont think he checked for adrenal antibodies though.

>

> I am willing to bet you are running on adrenaline not cortisol. A

> recheck of thyroid hormones and estrogen will tell the story. How

did

> they diagnose your 's? Do you have adrenal; antibodies? Had

> pituitary testing? Acth Stiom?

>

> --

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

>

January 18, 2008

I think in the early stages of 's a person can do a lot to regenerate

their cortex. I read some study a few weeks ago, where the adrenal cortex

was restored. I know in my early stages I still had healing responses, but

now I am too far gone.

Isocort can help even with 's...you just have to take a much larger

dose than you would with HC. I also think how much cholesterol and

progesterone and the condition of the cells all are factors in how a person

will respond. I think I have pretty bad cells because of my high level of

mercury toxicity, and with low cholesterol and progesterone, it isn't

helping.

The more I read the more I am realizing there is so much even the " experts "

do not understand about this condition.

Cheri

Re: In Need Of Opinion

I cannot imagine that anyone with actual 's disease could get by on

Isocort. There isn't a doctor with half a brain that wouldn't tell a patient

they need HC replacement for life or they could die. Are you sure you have

's and not just adrenal insufficiency? There is a difference.

Re: In Need Of Opinion

's were diagnosed per blood test, imaging and then 24 hour

saliva test was done per my request. at that time doctor suggested

cortef but i tried isocort first for 4 weeks with no results, then

thats when i went ahead and did cortef for a few weeks, felt great

immedietely then had to start dosing down as i became over stimulated

on the dose. i dont think he checked for adrenal antibodies though.

.

January 18, 2008

Cheri,

What are your cholesterol levels? Is your total cholesterol less than mine?

Mine's 123.

Re: In Need Of Opinion

's were diagnosed per blood test, imaging and then 24 hour

saliva test was done per my request. at that time doctor suggested

cortef but i tried isocort first for 4 weeks with no results, then

thats when i went ahead and did cortef for a few weeks, felt great

immedietely then had to start dosing down as i became over stimulated

on the dose. i dont think he checked for adrenal antibodies though.

.

January 18, 2008

I agree. We have to be avid researchers and medical experts and private

investigators to figure all this out. I am determined to heal and even heal my

adrenals. I've got to take care of thyroid first and meanwhile I've got the

DHEA cream in vials (from compounding pharmacy) 5 mgs. each so I use one

everyday and at that low dose I don't get side effects like I did when I tried

to take it orally. Then I am going to work on going back on progesterone since

my estrogen is very high and then when I have the money, I am going to order the

adrenal liquid cortex vials that Dr. recomends from cocoon nutrition

(very expensive) that are supposed to rebuild the adrenals. I'm so glad we're

all in this together to share and learn from one another and all be involved in

our healing process.

Re: In Need Of Opinion

's were diagnosed per blood test, imaging and then 24 hour

saliva test was done per my request. at that time doctor suggested

cortef but i tried isocort first for 4 weeks with no results, then

thats when i went ahead and did cortef for a few weeks, felt great

immedietely then had to start dosing down as i became over stimulated

on the dose. i dont think he checked for adrenal antibodies though.

.

January 18, 2008

I think I am going to try the DHEA cream too. I noticed Vitacost has a

cream. I had some side effects from DHEA too but I really want to supplement

because I am so dangerously low. My last labs it was not even at 1. It

seemed to make my estrogen dominance symptoms worse though. I also had some

skin breakouts.

Progesterone is needed for the adrenals too. I read something last week that

I will post if I can find it. It has a greater role than I originally

thought.

Yes, I want to try those cocoon cortex vials too. I just cannot afford it

yet but once I get gainfully employed that is on my list to get. Let me know

how it works out for you once you start on it.

Cheri

Re: In Need Of Opinion

I agree. We have to be avid researchers and medical experts and private

investigators to figure all this out. I am determined to heal and even heal

my adrenals. I've got to take care of thyroid first and meanwhile I've got

the DHEA cream in vials (from compounding pharmacy) 5 mgs. each so I use one

everyday and at that low dose I don't get side effects like I did when I

tried to take it orally. Then I am going to work on going back on

progesterone since my estrogen is very high and then when I have the money,

I am going to order the adrenal liquid cortex vials that Dr.

recomends from cocoon nutrition (very expensive) that are supposed to

rebuild the adrenals. I'm so glad we're all in this together to share and

learn from one another and all be involved in our healing process.

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January 18, 2008

It was between 90-115 for a long time, so yes, much lower than yours. Yours

is too low though, based on that article I posted the other day.

However, last time I took it, it was up to 150. That was after about 20

years of it being super low. I have been adding a lot of saturated fats

because I have high HDL so I can afford to. I was a vegetarian for many

years so that didn't help my adrenals. My personal belief is someone with

adrenal problems should try to get their cholesterol up to at least 180.

Not sure what my levels are now since I haven't been tested in a few years.

I do know I feel so much better when I get more saturated fats. I went out

and bought some organic butter the other night to add that in too. I used

coconut daily also. I think what is happening is my adrenals use up whatever

cholesterol they can and then when there isn't enough I have more problems.

I also think this is related to my blood vessel issues and why they don't

" seal " and I keep having bleeding through the vessels.

That is why those standard symptoms lists can really hurt a patient getting

diagnosed. For example, I never had high blood pressure or high cholesterol

which are typical of hypothyroid (even though I had many of the other

symptoms). My theory is, in people with mixed adrenal and thyroid issues,

one tends to be more dominant of an issue and in me it is the adrenals so I

had low blood pressure and low cholesterol. If I had had a competent doctors

they could have seen the pattern in my symptoms and blood work that I now

can see and I should have been diagnosed with 's 7 years ago based on

my blood cortisol levels alone. Sigh. Not to mention the ian crises I

had where I nearly died more than once. I guess God had a purpose for me

afterall, lol.

Cheri

Re: In Need Of Opinion

Cheri,

What are your cholesterol levels? Is your total cholesterol less than

mine? Mine's 123.

.

January 18, 2008

The Doctor made clear that is lifethreatening. As I mentioned in the

initial post, I was diagnosed after i caught mono, was very sick and

lost consciousness, woke up in the hospital with an IV of cortisol.

Many people who have addison's may not be aware until they have an

addisonian crisis, as was the case with me. It has been diagnosed by

two seperate doctors and yes they made clear that it was life

threatening as cortisol is essential to sustain life. However, it has

been documented that in the early stages of addison's regeneration

may be possible. So I do believe strongly that HC replacement for

life depends greatly on the cause of the destruction of the gland, as

I believe mine to be caused by tb and fungal infection (secondary

's)as I tested positive for tb and a fungal infection. Anywho,

when I began to get treatment for those, that's when I needed to dose

down because it seemed as if my adrenals may be healing or at least,

not as strained.

> >

> > I am willing to bet you are running on adrenaline not cortisol.

A

> > recheck of thyroid hormones and estrogen will tell the story.

How

> did

> > they diagnose your 's? Do you have adrenal; antibodies?

Had

> > pituitary testing? Acth Stiom?

> >

> > --

> > Artistic Grooming- Hurricane WV

> >

> > http://www.stopthethyroidmadness.com/

> >

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> >

>

January 18, 2008

I had several bouts of losing consciousness that I now know were ian

crises but two in particular were bad because one I went into anaphylactic

shock and nearly died in both. I am really amazed I am alive. I was working

100 work weeks at a very stressful job when a couple of crises occurred and

kept working! I do remember for 8 moths I could not fly on business because

I had this horrible abdominal and back pain that no position seemed to

relieve but sitting made worse (classic symptom). I would close my door and

cry in my office a lot and had no idea what was wrong with me. I was also

dealing with a lot of parasite issues. I was totally living off adrenaline

during those years and interestingly enough, on the rare occasion I took a

vacation I got sicker. I remember being bed ridden for a week with a

pneumonia type thing went I went to visit my parents and it all makes so

much sense now.

I also started to have seizures which I still do occasionally. The worst was

I had over 20 one night in a span of just a few hours and they were not the

milder ones I normally have but pretty violent ones.

Yes, I do think some people can be healed. I am not holding out much hope

for me...if I can just function somewhat normal I will be happy even if I

have to be on meds for life (granted, hopefully I will have access to the

meds).