Guest guest Posted December 31, 1998 Report Share Posted December 31, 1998 Hi .... enjoyed reading your story and I would love to put it on my page!! Please e-mail me so we can chat about this. Thanks! jeand@... Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 1999 Report Share Posted January 1, 1999 , Your story touched me and brought tears to my eyes, how sad that in this day and age we have to go through such heartache and pain to be properly diagnosed. I cannot believe the neurologist who diagnosed you with ALS after a short exam. I am just thrilled that you are finally being treated for Lyme disease, and praying that it helps you. So far it appears the IV treatment has helped you immensely since you were able to relate your story so well. I sure do identify with your Lyme fog and memory problems, I have really been dealing with that lately myself and that is one of the reasons I have not been active on this list for awhile. I think it is starting to lift, I sure hope so, it really is scary not to be able to think properly and to be so confused. I wish you and yours as well as all on this list a wonderful 1999. This has to be our year. Yesterday, I went to the UPROAR web pages to answer the trivia questions, if you enter once a week, you may win $25, anyway, I hadn't been on it a long time...but thought the mental exercise would do me good. Ironically, one of the questions was: Which deadly disease had a vaccine approved just this past week? a) chickenpox Lyme disease c) malaria d) small pox Of course we all know the answer is " B " . How ironic that this so-called easily cured disease, now has become deadly once a vaccine is available....Amazing. Hugs to all, Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 1999 Report Share Posted January 1, 1999 : Thank you for sharing. You have had a very difficult time, and I pray that in 1999 the fog will begin to lift, and you will begin to heal. It seems that the healing is indeed coming for you. God bless. Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 1999 Report Share Posted January 4, 1999 , nice letter, good luck in 99......you deserve it!! Hugs Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 1999 Report Share Posted October 6, 1999 Hi, This is remarkable! I do hope follows up with the MRI! Does anyone here have similar symtpoms? Take care, CHrisite >From: NeffysMom@... > >Hi, Everyone - > >The message below was distributed to members of my local, Northern Virginia >CFIDS support group. was a member of the group prior to moving out of >the area a couple of years ago, and wanted to share her remarkable and very >helpful discovery with the group. It's incredibly simple, and may be of help >to a number of others with CFIDS. > >I asked if I could share her story with you, and she happily agreed. >If you have questions, please be in touch with directly at >susauntry@... > >I hope you find this helpful! > > Conner > >------------------------ > >I am a 54-year-old female who has had Chronic Fatigue Syndrome for 6 years. I >was diagnosed with Fibromyalgia about 10 years ago. Because of my CFS, I >retired (was able to get an early retirement) from my job with the U.S. >Government 3 years ago. > >For the last month, I have felt remarkably better, and this seems to be a >direct result of a change in my nighttime routine, which came about just by a >fluke. > >The fortuitous change in my routine was this: On September 4 my husband and I >went out of town to visit relatives. On their guest bed, they had big, fat >sleeping pillows. I NEVER sleep on a big, fat pillow. In fact, for the past >year I had been sleeping on one of those foam-wave things. Usually I take my >pillow with me when I travel, but I didn't this time. > >Anyway, I slept (1) on the fat pillow, (2) on my back (I NEVER sleep on my >back, either, because my head seems to be " pointy " in the back and wants to >roll to the side.), (3) with my head tipped forward, chin toward chest. While >I thought I wouldn't be able to sleep that odd position, I awoke the next >morning feeling quite good, peaceful, breathing slowly and deeply instead of >the usual shallow breaths. And the mind fog was gone. I felt energetic. My >head felt " good, " and I had a feeling that it was because my head was up on >that fat pillow. Every morning since then, I have had the same result. > >Of course, I purchased the fattest pillow I could find when I returned home. >I have been sleeping on this pillow ever since, with another pillow for under >my knees (when I am on my back) or between my knees (when I am on my side). I >am doing quite a bit of back sleeping, which I never did before. Sleeping on >a big, fluffy pillow cradles my head and holds it upright, and with the >pillow under my knees I am quite comfortable on my back. > >I continue to feel much more " alive. " That's the best way to explain it. I >can THINK, I feel like DOING THINGS, COOKING, GOING PLACES, LAUGHING. Like my >personality has come back. Like I am no longer half dead. > >I remembered reading in the CFIDS Chronicle something about a spinal problem >that some PWCs have, so I got on the web to research it. After reading >Hoh's article in the May/June Chronicle about Chiari malformation and >cervical stenosis (and visiting some Chiari sites on the web), I think there >is a very good chance I have that. > >My neck has bothered me for a long time, and I can't stand to tip it back. My >work as a typesetter required me to sit at a computer keyboard all day. I had >to get bifocals several years ago, and this created some problems with having >to tip my head back to see the monitor. I eventually got " computer " glasses, >which were made especially for my computer work, but there was still a lot of >head tipping. > >For a long time I have used a straw when drinking from a glass in order to >avoid the discomfort of tipping my head back. I have always thought the neck >problems were in the bones (arthritis or something) and were complicated by >my head tremor (Essential Tremor, which runs in my mother's family). > >I have recently returned home after spending three and a half weeks in >Indiana where my father had a stroke. I contacted my CFIDS doctor yesterday >with news of my improvement, and I am waiting for a response as to where to >go from here. An MRI would be the obvious next step, I think. > >susauntry@... > >>This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Thought you might enjoy this one too > On Wed, 9 Feb 2000 15:58:26 EST LmcCoc@... writes: > > Hi ...YAY!!!! You are getting that junk out of your mouth!!! > > > YAY!!! I > > felt so much better after I did...I had it all done at one > > time...there's > > been some controversy or questions, i should say, about having it > > done that > > way but I think it was the best for me...anyway, GOOD LUCK! with > it > > and let > > us all know how it goes and how you're feeling...here's a copy of > my > > > > story.... > > > > Subj: My story: Mercury vs. Multiple Sclerosis > > Date: 2/3/00 > > LISTSERV@... > > > > Hello all, > > > > Now that I have acces to be able to post...Here's a summary of my > > story: > > > > In 1982 I, suddenly had a bad pain in my left eye and went blind > in > > that eye; > > the opthalmologist (graduate of s Hopkins) diagnosed it as > > retrobuldar > > neuritis. He told me it could be Multple Sclerosis. I rejected > that > > diagnosis. Steroids were my only option of treatment, which I also > > > rejected. > > After approx. 2 months of complete blindness, in that eye, pain > had > > subsided > > as the inflammation subsided, but nerve damage was not correctable > > > (so they > > said) After using visualization techniques, it started to clear > up. > > (I read > > many books on these techniques, and other books, like Norman > > Cousins, > > " Anatomy of an Illness. " ) The doctors were amazed that I gained > > sight back. > > (My theory was, if my brain could tell my hand, for instance, to > > pick > > something up, and it would respond, then why couldn't my brain > tell > > my body, > > internally, to do things, as well. So, I used visualization > > techniques to > > tell my brain to send things to blast away the scarred tissue on > my > > optic > > nerve, so the electrical impulses which allowed me to see, could > get > > > > transmitted down the nerve, once more. This did indeed work and > > although I > > doubt I will ever get full vision back in that eye (I don't do > those > > > > techniques anymore) I can see out of my left eye, although it is > > like looking > > through a screen, there are holes in my vision field, and colors > > don't look > > the same anymore. > > > > The following year, the double vision abruptly interrupted my life > > > and spinal > > taps, MRI's, and a barrage of nuerological tests " confirmed " the > > diagnosis of > > MS. This time I endured the steroids (and the side effects.) The > > spinal fluid > > did not show MS, but the " confirmation " was made by the double > > vision and the > > plaque or scarring on my brain shown by the MRI's. The steroids, > it > > is said, > > do not work for everyone, but I could see the two separate images > > gradually > > coming together as one over a period of 3 months, so the doctors > > claimed I > > was steroid sensitive and so they did indeed work for me. > > Next year, my balance was affected and rotary nystgmus (eyes move > on > > their > > own and shake constantly) set in. Again, steroids, visualization > (my > > idea > > again, doctors, of course, poo-poo'd that idea) and 2 months of > time > > made it > > go away. > > Through the next few years, I endured depression (attributed to > the > > diagnosis) fatique, blurred vision, nervousness, anxiety, weakness > > > in my > > limbs, tingling sensations, burning sensations and various pain. > > (All > > attributed to the MS, but I rejected steroid treatment and opted > for > > just my > > own method of treatment: distraction in the form of reckless > > behavior, ie, > > sky diving, impulsive behavior, drinking to excess, manic > behavior, > > etc. > > It was around that time, 60 Minutes reported the amalgam/mercury > > story. I had > > 11 large amalgam fillings. My cousin was a dentist and removed all > > > of them, > > at one time, and replaced them with gold (now I wish I had opted > for > > > > composite material, but the gold doesn't seem to cause me all that > > > many > > problems). Within 10 days, I had NO more symptoms of MS! Very few > > people, > > including my doctors and my cousin, the dentist, believed me. I > > didn't care, > > I KNEW it was from the mercury!! (Thank God for that TV report!) > > MS is said to exacerbate with stress. Well, I have endured much > > stress since > > having my fillings replaced: the birth of my son too early, my > > husband of 15 > > years being suddenly and tragically decapitated in a car accident, > > > losing all > > my money and assets to a con artist, to name a few. These > stressors > > did not > > bring on any symptoms, as surely would have if the diagnosis of MS > > > were > > correct. However, the medical profession will not see it's way > clear > > to > > UNdiagnose the MS; making health insurance exhorbitant, for one > > thing. > > This has been a long, but educational trek. I HAVE NO DOUBT I was > > mercury > > poisoned and still endure some after effects. I did not do any > > chelation, I > > didn't know about it back then. > > I feel extremely strong about getting the message out and making > > " whom ever > > it is " that approves mercury use to STOP! > > I would like to go back to school to become whatever I need to to > > get the > > necessary credentials (not sure what they are, though) to do > > research, > > writing, etc. to get paid for a working against this practice of > > using > > mercury, about which I am so passionate, interested and directly > > affected by. > > I wish everyone affected by mercury all the best of luck in > beating > > this > > thing If there are any questions about my experiences, please send > > > me an > > email or posting and I will be glad to answer. > > Sincerely, > > Cochran (lisalmccoc@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2000 Report Share Posted March 13, 2000 Hi June, What a story, you have been through hell with the system, I have no experience with this kind of problem so cannot offer any advice, I can only tell you that is one lucky boy to have you for a grandmother. They do TV movies about just this kind of thing, maybe you should try to sell the story, may make some money that would allow poor to get some decent medical treatment. That is, if there is any available. I don't have any legal expertise, but I sure hope you hear from one of our lawyers on the list, Lovette is busy with G-burg, but maybe you could grab her at the rally and seek her advice. What an awful ordeal you and your family have been through. I hope somehow, some way this resolves favorably for you and continues to improve,. God Bless, Marta - >From: June <CADDEPT@...> > > >* * * * * * > Your mentioning his mood swings, especially the extreme ends and no >in-betweens, the depressions and psychotic things, encouraged me to tell >the story of late of my grandson, ... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 > On Wed, 9 Feb 2000 15:58:26 EST LmcCoc@... writes: > > Hi ...YAY!!!! You are getting that junk out of your mouth!!! > > > YAY!!! I > > felt so much better after I did...I had it all done at one > > time...there's > > been some controversy or questions, i should say, about having it > > done that > > way but I think it was the best for me...anyway, GOOD LUCK! with > it > > and let > > us all know how it goes and how you're feeling...here's a copy of > my > > > > story.... > > > > Subj: My story: Mercury vs. Multiple Sclerosis > > Date: 2/3/00 > > LISTSERV@... > > > > Hello all, > > > > Now that I have acces to be able to post...Here's a summary of my > > story: > > > > In 1982 I, suddenly had a bad pain in my left eye and went blind > in > > that eye; > > the opthalmologist (graduate of s Hopkins) diagnosed it as > > retrobuldar > > neuritis. He told me it could be Multple Sclerosis. I rejected > that > > diagnosis. Steroids were my only option of treatment, which I also > > > rejected. > > After approx. 2 months of complete blindness, in that eye, pain > had > > subsided > > as the inflammation subsided, but nerve damage was not correctable > > > (so they > > said) After using visualization techniques, it started to clear > up. > > (I read > > many books on these techniques, and other books, like Norman > > Cousins, > > " Anatomy of an Illness. " ) The doctors were amazed that I gained > > sight back. > > (My theory was, if my brain could tell my hand, for instance, to > > pick > > something up, and it would respond, then why couldn't my brain > tell > > my body, > > internally, to do things, as well. So, I used visualization > > techniques to > > tell my brain to send things to blast away the scarred tissue on > my > > optic > > nerve, so the electrical impulses which allowed me to see, could > get > > > > transmitted down the nerve, once more. This did indeed work and > > although I > > doubt I will ever get full vision back in that eye (I don't do > those > > > > techniques anymore) I can see out of my left eye, although it is > > like looking > > through a screen, there are holes in my vision field, and colors > > don't look > > the same anymore. > > > > The following year, the double vision abruptly interrupted my life > > > and spinal > > taps, MRI's, and a barrage of nuerological tests " confirmed " the > > diagnosis of > > MS. This time I endured the steroids (and the side effects.) The > > spinal fluid > > did not show MS, but the " confirmation " was made by the double > > vision and the > > plaque or scarring on my brain shown by the MRI's. The steroids, > it > > is said, > > do not work for everyone, but I could see the two separate images > > gradually > > coming together as one over a period of 3 months, so the doctors > > claimed I > > was steroid sensitive and so they did indeed work for me. > > Next year, my balance was affected and rotary nystgmus (eyes move > on > > their > > own and shake constantly) set in. Again, steroids, visualization > (my > > idea > > again, doctors, of course, poo-poo'd that idea) and 2 months of > time > > made it > > go away. > > Through the next few years, I endured depression (attributed to > the > > diagnosis) fatique, blurred vision, nervousness, anxiety, weakness > > > in my > > limbs, tingling sensations, burning sensations and various pain. > > (All > > attributed to the MS, but I rejected steroid treatment and opted > for > > just my > > own method of treatment: distraction in the form of reckless > > behavior, ie, > > sky diving, impulsive behavior, drinking to excess, manic > behavior, > > etc. > > It was around that time, 60 Minutes reported the amalgam/mercury > > story. I had > > 11 large amalgam fillings. My cousin was a dentist and removed all > > > of them, > > at one time, and replaced them with gold (now I wish I had opted > for > > > > composite material, but the gold doesn't seem to cause me all that > > > many > > problems). Within 10 days, I had NO more symptoms of MS! Very few > > people, > > including my doctors and my cousin, the dentist, believed me. I > > didn't care, > > I KNEW it was from the mercury!! (Thank God for that TV report!) > > MS is said to exacerbate with stress. Well, I have endured much > > stress since > > having my fillings replaced: the birth of my son too early, my > > husband of 15 > > years being suddenly and tragically decapitated in a car accident, > > > losing all > > my money and assets to a con artist, to name a few. These > stressors > > did not > > bring on any symptoms, as surely would have if the diagnosis of MS > > > were > > correct. However, the medical profession will not see it's way > clear > > to > > UNdiagnose the MS; making health insurance exhorbitant, for one > > thing. > > This has been a long, but educational trek. I HAVE NO DOUBT I was > > mercury > > poisoned and still endure some after effects. I did not do any > > chelation, I > > didn't know about it back then. > > I feel extremely strong about getting the message out and making > > " whom ever > > it is " that approves mercury use to STOP! > > I would like to go back to school to become whatever I need to to > > get the > > necessary credentials (not sure what they are, though) to do > > research, > > writing, etc. to get paid for a working against this practice of > > using > > mercury, about which I am so passionate, interested and directly > > affected by. > > I wish everyone affected by mercury all the best of luck in > beating > > this > > thing If there are any questions about my experiences, please send > > > me an > > email or posting and I will be glad to answer. > > Sincerely, > > Cochran (lisalmccoc@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 > On Wed, 9 Feb 2000 15:58:26 EST LmcCoc@... writes: > > Hi ...YAY!!!! You are getting that junk out of your mouth!!! > > > YAY!!! I > > felt so much better after I did...I had it all done at one > > time...there's > > been some controversy or questions, i should say, about having it > > done that > > way but I think it was the best for me...anyway, GOOD LUCK! with > it > > and let > > us all know how it goes and how you're feeling...here's a copy of > my > > > > story.... > > > > Subj: My story: Mercury vs. Multiple Sclerosis > > Date: 2/3/00 > > LISTSERV@... > > > > Hello all, > > > > Now that I have acces to be able to post...Here's a summary of my > > story: > > > > In 1982 I, suddenly had a bad pain in my left eye and went blind > in > > that eye; > > the opthalmologist (graduate of s Hopkins) diagnosed it as > > retrobuldar > > neuritis. He told me it could be Multple Sclerosis. I rejected > that > > diagnosis. Steroids were my only option of treatment, which I also > > > rejected. > > After approx. 2 months of complete blindness, in that eye, pain > had > > subsided > > as the inflammation subsided, but nerve damage was not correctable > > > (so they > > said) After using visualization techniques, it started to clear > up. > > (I read > > many books on these techniques, and other books, like Norman > > Cousins, > > " Anatomy of an Illness. " ) The doctors were amazed that I gained > > sight back. > > (My theory was, if my brain could tell my hand, for instance, to > > pick > > something up, and it would respond, then why couldn't my brain > tell > > my body, > > internally, to do things, as well. So, I used visualization > > techniques to > > tell my brain to send things to blast away the scarred tissue on > my > > optic > > nerve, so the electrical impulses which allowed me to see, could > get > > > > transmitted down the nerve, once more. This did indeed work and > > although I > > doubt I will ever get full vision back in that eye (I don't do > those > > > > techniques anymore) I can see out of my left eye, although it is > > like looking > > through a screen, there are holes in my vision field, and colors > > don't look > > the same anymore. > > > > The following year, the double vision abruptly interrupted my life > > > and spinal > > taps, MRI's, and a barrage of nuerological tests " confirmed " the > > diagnosis of > > MS. This time I endured the steroids (and the side effects.) The > > spinal fluid > > did not show MS, but the " confirmation " was made by the double > > vision and the > > plaque or scarring on my brain shown by the MRI's. The steroids, > it > > is said, > > do not work for everyone, but I could see the two separate images > > gradually > > coming together as one over a period of 3 months, so the doctors > > claimed I > > was steroid sensitive and so they did indeed work for me. > > Next year, my balance was affected and rotary nystgmus (eyes move > on > > their > > own and shake constantly) set in. Again, steroids, visualization > (my > > idea > > again, doctors, of course, poo-poo'd that idea) and 2 months of > time > > made it > > go away. > > Through the next few years, I endured depression (attributed to > the > > diagnosis) fatique, blurred vision, nervousness, anxiety, weakness > > > in my > > limbs, tingling sensations, burning sensations and various pain. > > (All > > attributed to the MS, but I rejected steroid treatment and opted > for > > just my > > own method of treatment: distraction in the form of reckless > > behavior, ie, > > sky diving, impulsive behavior, drinking to excess, manic > behavior, > > etc. > > It was around that time, 60 Minutes reported the amalgam/mercury > > story. I had > > 11 large amalgam fillings. My cousin was a dentist and removed all > > > of them, > > at one time, and replaced them with gold (now I wish I had opted > for > > > > composite material, but the gold doesn't seem to cause me all that > > > many > > problems). Within 10 days, I had NO more symptoms of MS! Very few > > people, > > including my doctors and my cousin, the dentist, believed me. I > > didn't care, > > I KNEW it was from the mercury!! (Thank God for that TV report!) > > MS is said to exacerbate with stress. Well, I have endured much > > stress since > > having my fillings replaced: the birth of my son too early, my > > husband of 15 > > years being suddenly and tragically decapitated in a car accident, > > > losing all > > my money and assets to a con artist, to name a few. These > stressors > > did not > > bring on any symptoms, as surely would have if the diagnosis of MS > > > were > > correct. However, the medical profession will not see it's way > clear > > to > > UNdiagnose the MS; making health insurance exhorbitant, for one > > thing. > > This has been a long, but educational trek. I HAVE NO DOUBT I was > > mercury > > poisoned and still endure some after effects. I did not do any > > chelation, I > > didn't know about it back then. > > I feel extremely strong about getting the message out and making > > " whom ever > > it is " that approves mercury use to STOP! > > I would like to go back to school to become whatever I need to to > > get the > > necessary credentials (not sure what they are, though) to do > > research, > > writing, etc. to get paid for a working against this practice of > > using > > mercury, about which I am so passionate, interested and directly > > affected by. > > I wish everyone affected by mercury all the best of luck in > beating > > this > > thing If there are any questions about my experiences, please send > > > me an > > email or posting and I will be glad to answer. > > Sincerely, > > Cochran (lisalmccoc@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Aisha, I was going over old mail, and read 's story, which i didn't read the first time around. I cried a lot, too! I just wanted to ask you if this is your own personal story, I mean, is your son? vanessa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 " I just wanted to ask you if this is your own personal story, I mean, is your son? " No sweetie, it was passed on from my mother who is on a list with the father who wrote that. I not going to be a mother this time around..... *HUGS* Aisha.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 I have been reading the archives and WOW, this is beautiful. -- In egroups, " Aisha Elderwyn " <aisha@e...> wrote: > On July 22nd I was enroute to Washington, DC for a business trip. It was > all so very ordinary, until we landed in Denver for a plane change. As I > collected my belongings from the overhead bin, an announcement was made for > Mr. Lloyd Glenn to see the United Customer Service Representative > immediately. I thought nothing of it until I reached the door to leave the > plane, and I heard a gentleman asking every male if they were Mr.Glenn. At > this point I knew something was wrong and my heart sunk. When I got off the > plane a solemn-faced young man came toward me and said, " Mr. Glenn, there is > an emergency at your home. I do not know what the emergency is, or who is > involved, but I will take you to the phone so you can call the hospital. " > > My heart was now pounding, but the will to be calm took over. Woodenly, I > followed this stranger to the distant telephone where I called the number he > gave me for the Mission Hospital. My call was put through to the trauma > center where I learned that my three-year-old son had been trapped > underneath the automatic garage door for several minutes, and that when my > wife had found him he was dead. CPR had been performed by a neighbor, who is > a doctor, and the paramedics had continued the treatment as was > transported to the hospital. By the time of my call, was revived and > they believed he would live, but they did not know how much damage had been > done to his brain, nor to his heart. They explained that the door had > completely closed on his little sternum right over his heart. He had been > severely crushed. After speaking with the medical staff, my wife sounded > worried but not hysterical, and I took comfort in her calmness. > > The return flight seemed to last forever, but finally I arrived at the > hospital six hours after the garage door had come down. > When I walked into the intensive care unit, nothing could have prepared me > to see my little son laying so still on a great big > bed with tubes and monitors everywhere. He was on a respirator. I glanced > at my wife who stood and tried to give me a reassuring smile. It all seemed > like a terrible dream. I was filled-in with the details and given a guarded > prognosis. was going to live, and the preliminary tests indicated that > his heart was OK, two miracles in and of themselves. But only time would > tell if his brain received any damage. > > Throughout the seemingly endless hours, my wife was calm. She felt that > would eventually be all right. I hung on toher words and faith like a > lifeline. > > All that night and the next day remained unconscious. It seemed like > forever since I had left for my business trip the day before. Finally at two > o'clock that afternoon, our son regained consciousness and sat up uttering > the most beautiful words I have ever heard spoken. He said, " Daddy hold me " > and he reached for me with his little arms. [TEAR BREAK...smile] > > By the next day he was pronounced as having no neurological or physical > deficits, and the story of his miraculous survival spread throughout the > hospital. You cannot imagine our gratitude and joy. As we took home, > we felt a unique reverence for the life and love of our Beliefs that comes > to those who brush death so closely.. > > In the days that followed there was a special spirit about our home. Our > two older children were much closer to their little brother. My wife and I > were much closer to each other, and all of us were very close as a whole > family. Life took on a less stressful pace. Perspective seemed to be more > focused, and balance much easier to gain and maintain. We felt deeply > blessed. Our gratitude was truly profound. > > The story is not over (smile)! > > Almost a month later to the day of the accident, awoke from his > afternoon nap and said, " Sit down mommy. I have something to tell you. " At > this time in his life, usually spoke in small phrases, so to say a > large sentence surprised my wife. She sat down with him on his bed, and he > began his sacred and remarkable story. > > " Do you remember when I got stuck under the garage door? Well, it was so > heavy and it hurt really bad. I called to you, but you couldn't hear me. I > started to cry, but then it hurt too bad. And then the 'birdies' came. " > " The birdies? " my wife asked puzzled. > " Yes, " he replied. " The birdies made a whooshing sound and flew into the > garage. They took care of me. " > " They did? " > " Yes, " he said. " 0ne of the birdies came and got you. She came to tell you > I got stuck under the door. " > > A sweet reverent feeling filled the room. The spirit was so strong and yet > lighter than air. My wife realized that a three year-old had no concept of > death and spirits, so he was referring to the beings who came to him from > beyond as " birdies " because they were up in the air like birds that fly. > > " What did the birdies look like? " she asked. > answered, " They were so beautiful. They were dressed in white, all > white. Some of them had green and white. But some of them had on just > white. " > " Did they say anything? " > " Yes, " he answered. " They told me the baby would be all right. " > " The baby? " my wife asked confused. > answered. " The baby laying on the garage floor. " He went on, " You came > out and opened the garage door and ran to the baby. You told the baby to > stay and not leave. " > > My wife nearly collapsed upon hearing this, for she had indeed gone and > knelt beside 's body and seeing his crushed chest whispered, " Don't > leave us , please stay if you can. " As she listened to telling > her the words she had spoken, she realized that the spirit had left his body > and was looking down from above on this little lifeless form. > > " Then what happened? " she asked. > " We went on a trip. " He said, " Far, far away. " > > He grew agitated trying to say the things he didn't seem to have the words > for. My wife tried to calm and comfort him, and let him know it would be > okay. He struggled with wanting to tell something that obviously was very > important to him, but finding the words was difficult. > > " We flew so fast up in the air. They're so pretty Mommy, " he added. " And > there are lots and lots of birdies. " > > My wife was stunned. Into her mind the sweet comforting spirit enveloped > her more soundly, but with an urgency she had never before known. went > on to tell her that the " birdies " had told him that he had to come back and > tell everyone about the " birdies. " He said they brought him back to the > house and that a big fire truck, and an ambulance were there. A man was > bringing the baby out on a white bed and he tried to tell the man that the > baby would be okay, but the man couldn't hear him. He said the birdies told > him he had to go with the ambulance, but they would be near him. He said > they were so pretty and so peaceful, and he didn't want to come back. Then > the bright light came. He said that the light was so bright and so warm, > and he loved the bright light so much. Someone was in the bright light and > put their arms around him, and told him, " I love you but you have to go > back. You have to play baseball, and tell everyone about the birdies. " Then > the person in the bright light kissed him and waved bye-bye. Then whoosh, > the big sound came and they went into the clouds. > > The story went on for an hour. He taught us that " birdies " were always with > us, but we don't see them because we look with our eyes and we don't hear > them because we listen with our ears. But they are always there, you can > only see them in here (he put his hand over his heart). They whisper the > things to help us to do what is right because they love us so much. > continued, stating, " I have a plan, Mommy. You have a plan. Daddy has a > plan. Everyone has a plan. We must all live our plan and keep our > promises. The birdies help us to do that cause they love us so much. " > > In the weeks that followed, he often came to us and told all, or part of it, > again and again. Always the story remained the same. The details were never > changed or out of order. A few times he added further bits of information > and clarified the message he had already delivered. It never ceased to > amaze us how he could tell such detail and speak beyond his ability when he > talked about his birdies. Everywhere he went, he told strangers about the > " birdies. " Surprisingly, no one ever looked at him strangely when he did > this. Rather, they always got a softened look on their face and smiled. > > Needless to say, we have not been the same ever since that day, and I pray > we never will be. > > Yesterday is history.. > Tomorrow a mystery.. > Today is a gift.. > That's why it's called the present! > Live and savor every moment.....this is not a dress rehearsal! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 I have been reading the archives and WOW, this is beautiful. -- In egroups, " Aisha Elderwyn " <aisha@e...> wrote: > On July 22nd I was enroute to Washington, DC for a business trip. It was > all so very ordinary, until we landed in Denver for a plane change. As I > collected my belongings from the overhead bin, an announcement was made for > Mr. Lloyd Glenn to see the United Customer Service Representative > immediately. I thought nothing of it until I reached the door to leave the > plane, and I heard a gentleman asking every male if they were Mr.Glenn. At > this point I knew something was wrong and my heart sunk. When I got off the > plane a solemn-faced young man came toward me and said, " Mr. Glenn, there is > an emergency at your home. I do not know what the emergency is, or who is > involved, but I will take you to the phone so you can call the hospital. " > > My heart was now pounding, but the will to be calm took over. Woodenly, I > followed this stranger to the distant telephone where I called the number he > gave me for the Mission Hospital. My call was put through to the trauma > center where I learned that my three-year-old son had been trapped > underneath the automatic garage door for several minutes, and that when my > wife had found him he was dead. CPR had been performed by a neighbor, who is > a doctor, and the paramedics had continued the treatment as was > transported to the hospital. By the time of my call, was revived and > they believed he would live, but they did not know how much damage had been > done to his brain, nor to his heart. They explained that the door had > completely closed on his little sternum right over his heart. He had been > severely crushed. After speaking with the medical staff, my wife sounded > worried but not hysterical, and I took comfort in her calmness. > > The return flight seemed to last forever, but finally I arrived at the > hospital six hours after the garage door had come down. > When I walked into the intensive care unit, nothing could have prepared me > to see my little son laying so still on a great big > bed with tubes and monitors everywhere. He was on a respirator. I glanced > at my wife who stood and tried to give me a reassuring smile. It all seemed > like a terrible dream. I was filled-in with the details and given a guarded > prognosis. was going to live, and the preliminary tests indicated that > his heart was OK, two miracles in and of themselves. But only time would > tell if his brain received any damage. > > Throughout the seemingly endless hours, my wife was calm. She felt that > would eventually be all right. I hung on toher words and faith like a > lifeline. > > All that night and the next day remained unconscious. It seemed like > forever since I had left for my business trip the day before. Finally at two > o'clock that afternoon, our son regained consciousness and sat up uttering > the most beautiful words I have ever heard spoken. He said, " Daddy hold me " > and he reached for me with his little arms. [TEAR BREAK...smile] > > By the next day he was pronounced as having no neurological or physical > deficits, and the story of his miraculous survival spread throughout the > hospital. You cannot imagine our gratitude and joy. As we took home, > we felt a unique reverence for the life and love of our Beliefs that comes > to those who brush death so closely.. > > In the days that followed there was a special spirit about our home. Our > two older children were much closer to their little brother. My wife and I > were much closer to each other, and all of us were very close as a whole > family. Life took on a less stressful pace. Perspective seemed to be more > focused, and balance much easier to gain and maintain. We felt deeply > blessed. Our gratitude was truly profound. > > The story is not over (smile)! > > Almost a month later to the day of the accident, awoke from his > afternoon nap and said, " Sit down mommy. I have something to tell you. " At > this time in his life, usually spoke in small phrases, so to say a > large sentence surprised my wife. She sat down with him on his bed, and he > began his sacred and remarkable story. > > " Do you remember when I got stuck under the garage door? Well, it was so > heavy and it hurt really bad. I called to you, but you couldn't hear me. I > started to cry, but then it hurt too bad. And then the 'birdies' came. " > " The birdies? " my wife asked puzzled. > " Yes, " he replied. " The birdies made a whooshing sound and flew into the > garage. They took care of me. " > " They did? " > " Yes, " he said. " 0ne of the birdies came and got you. She came to tell you > I got stuck under the door. " > > A sweet reverent feeling filled the room. The spirit was so strong and yet > lighter than air. My wife realized that a three year-old had no concept of > death and spirits, so he was referring to the beings who came to him from > beyond as " birdies " because they were up in the air like birds that fly. > > " What did the birdies look like? " she asked. > answered, " They were so beautiful. They were dressed in white, all > white. Some of them had green and white. But some of them had on just > white. " > " Did they say anything? " > " Yes, " he answered. " They told me the baby would be all right. " > " The baby? " my wife asked confused. > answered. " The baby laying on the garage floor. " He went on, " You came > out and opened the garage door and ran to the baby. You told the baby to > stay and not leave. " > > My wife nearly collapsed upon hearing this, for she had indeed gone and > knelt beside 's body and seeing his crushed chest whispered, " Don't > leave us , please stay if you can. " As she listened to telling > her the words she had spoken, she realized that the spirit had left his body > and was looking down from above on this little lifeless form. > > " Then what happened? " she asked. > " We went on a trip. " He said, " Far, far away. " > > He grew agitated trying to say the things he didn't seem to have the words > for. My wife tried to calm and comfort him, and let him know it would be > okay. He struggled with wanting to tell something that obviously was very > important to him, but finding the words was difficult. > > " We flew so fast up in the air. They're so pretty Mommy, " he added. " And > there are lots and lots of birdies. " > > My wife was stunned. Into her mind the sweet comforting spirit enveloped > her more soundly, but with an urgency she had never before known. went > on to tell her that the " birdies " had told him that he had to come back and > tell everyone about the " birdies. " He said they brought him back to the > house and that a big fire truck, and an ambulance were there. A man was > bringing the baby out on a white bed and he tried to tell the man that the > baby would be okay, but the man couldn't hear him. He said the birdies told > him he had to go with the ambulance, but they would be near him. He said > they were so pretty and so peaceful, and he didn't want to come back. Then > the bright light came. He said that the light was so bright and so warm, > and he loved the bright light so much. Someone was in the bright light and > put their arms around him, and told him, " I love you but you have to go > back. You have to play baseball, and tell everyone about the birdies. " Then > the person in the bright light kissed him and waved bye-bye. Then whoosh, > the big sound came and they went into the clouds. > > The story went on for an hour. He taught us that " birdies " were always with > us, but we don't see them because we look with our eyes and we don't hear > them because we listen with our ears. But they are always there, you can > only see them in here (he put his hand over his heart). They whisper the > things to help us to do what is right because they love us so much. > continued, stating, " I have a plan, Mommy. You have a plan. Daddy has a > plan. Everyone has a plan. We must all live our plan and keep our > promises. The birdies help us to do that cause they love us so much. " > > In the weeks that followed, he often came to us and told all, or part of it, > again and again. Always the story remained the same. The details were never > changed or out of order. A few times he added further bits of information > and clarified the message he had already delivered. It never ceased to > amaze us how he could tell such detail and speak beyond his ability when he > talked about his birdies. Everywhere he went, he told strangers about the > " birdies. " Surprisingly, no one ever looked at him strangely when he did > this. Rather, they always got a softened look on their face and smiled. > > Needless to say, we have not been the same ever since that day, and I pray > we never will be. > > Yesterday is history.. > Tomorrow a mystery.. > Today is a gift.. > That's why it's called the present! > Live and savor every moment.....this is not a dress rehearsal! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 I have been reading the archives and WOW, this is beautiful. -- In egroups, " Aisha Elderwyn " <aisha@e...> wrote: > On July 22nd I was enroute to Washington, DC for a business trip. It was > all so very ordinary, until we landed in Denver for a plane change. As I > collected my belongings from the overhead bin, an announcement was made for > Mr. Lloyd Glenn to see the United Customer Service Representative > immediately. I thought nothing of it until I reached the door to leave the > plane, and I heard a gentleman asking every male if they were Mr.Glenn. At > this point I knew something was wrong and my heart sunk. When I got off the > plane a solemn-faced young man came toward me and said, " Mr. Glenn, there is > an emergency at your home. I do not know what the emergency is, or who is > involved, but I will take you to the phone so you can call the hospital. " > > My heart was now pounding, but the will to be calm took over. Woodenly, I > followed this stranger to the distant telephone where I called the number he > gave me for the Mission Hospital. My call was put through to the trauma > center where I learned that my three-year-old son had been trapped > underneath the automatic garage door for several minutes, and that when my > wife had found him he was dead. CPR had been performed by a neighbor, who is > a doctor, and the paramedics had continued the treatment as was > transported to the hospital. By the time of my call, was revived and > they believed he would live, but they did not know how much damage had been > done to his brain, nor to his heart. They explained that the door had > completely closed on his little sternum right over his heart. He had been > severely crushed. After speaking with the medical staff, my wife sounded > worried but not hysterical, and I took comfort in her calmness. > > The return flight seemed to last forever, but finally I arrived at the > hospital six hours after the garage door had come down. > When I walked into the intensive care unit, nothing could have prepared me > to see my little son laying so still on a great big > bed with tubes and monitors everywhere. He was on a respirator. I glanced > at my wife who stood and tried to give me a reassuring smile. It all seemed > like a terrible dream. I was filled-in with the details and given a guarded > prognosis. was going to live, and the preliminary tests indicated that > his heart was OK, two miracles in and of themselves. But only time would > tell if his brain received any damage. > > Throughout the seemingly endless hours, my wife was calm. She felt that > would eventually be all right. I hung on toher words and faith like a > lifeline. > > All that night and the next day remained unconscious. It seemed like > forever since I had left for my business trip the day before. Finally at two > o'clock that afternoon, our son regained consciousness and sat up uttering > the most beautiful words I have ever heard spoken. He said, " Daddy hold me " > and he reached for me with his little arms. [TEAR BREAK...smile] > > By the next day he was pronounced as having no neurological or physical > deficits, and the story of his miraculous survival spread throughout the > hospital. You cannot imagine our gratitude and joy. As we took home, > we felt a unique reverence for the life and love of our Beliefs that comes > to those who brush death so closely.. > > In the days that followed there was a special spirit about our home. Our > two older children were much closer to their little brother. My wife and I > were much closer to each other, and all of us were very close as a whole > family. Life took on a less stressful pace. Perspective seemed to be more > focused, and balance much easier to gain and maintain. We felt deeply > blessed. Our gratitude was truly profound. > > The story is not over (smile)! > > Almost a month later to the day of the accident, awoke from his > afternoon nap and said, " Sit down mommy. I have something to tell you. " At > this time in his life, usually spoke in small phrases, so to say a > large sentence surprised my wife. She sat down with him on his bed, and he > began his sacred and remarkable story. > > " Do you remember when I got stuck under the garage door? Well, it was so > heavy and it hurt really bad. I called to you, but you couldn't hear me. I > started to cry, but then it hurt too bad. And then the 'birdies' came. " > " The birdies? " my wife asked puzzled. > " Yes, " he replied. " The birdies made a whooshing sound and flew into the > garage. They took care of me. " > " They did? " > " Yes, " he said. " 0ne of the birdies came and got you. She came to tell you > I got stuck under the door. " > > A sweet reverent feeling filled the room. The spirit was so strong and yet > lighter than air. My wife realized that a three year-old had no concept of > death and spirits, so he was referring to the beings who came to him from > beyond as " birdies " because they were up in the air like birds that fly. > > " What did the birdies look like? " she asked. > answered, " They were so beautiful. They were dressed in white, all > white. Some of them had green and white. But some of them had on just > white. " > " Did they say anything? " > " Yes, " he answered. " They told me the baby would be all right. " > " The baby? " my wife asked confused. > answered. " The baby laying on the garage floor. " He went on, " You came > out and opened the garage door and ran to the baby. You told the baby to > stay and not leave. " > > My wife nearly collapsed upon hearing this, for she had indeed gone and > knelt beside 's body and seeing his crushed chest whispered, " Don't > leave us , please stay if you can. " As she listened to telling > her the words she had spoken, she realized that the spirit had left his body > and was looking down from above on this little lifeless form. > > " Then what happened? " she asked. > " We went on a trip. " He said, " Far, far away. " > > He grew agitated trying to say the things he didn't seem to have the words > for. My wife tried to calm and comfort him, and let him know it would be > okay. He struggled with wanting to tell something that obviously was very > important to him, but finding the words was difficult. > > " We flew so fast up in the air. They're so pretty Mommy, " he added. " And > there are lots and lots of birdies. " > > My wife was stunned. Into her mind the sweet comforting spirit enveloped > her more soundly, but with an urgency she had never before known. went > on to tell her that the " birdies " had told him that he had to come back and > tell everyone about the " birdies. " He said they brought him back to the > house and that a big fire truck, and an ambulance were there. A man was > bringing the baby out on a white bed and he tried to tell the man that the > baby would be okay, but the man couldn't hear him. He said the birdies told > him he had to go with the ambulance, but they would be near him. He said > they were so pretty and so peaceful, and he didn't want to come back. Then > the bright light came. He said that the light was so bright and so warm, > and he loved the bright light so much. Someone was in the bright light and > put their arms around him, and told him, " I love you but you have to go > back. You have to play baseball, and tell everyone about the birdies. " Then > the person in the bright light kissed him and waved bye-bye. Then whoosh, > the big sound came and they went into the clouds. > > The story went on for an hour. He taught us that " birdies " were always with > us, but we don't see them because we look with our eyes and we don't hear > them because we listen with our ears. But they are always there, you can > only see them in here (he put his hand over his heart). They whisper the > things to help us to do what is right because they love us so much. > continued, stating, " I have a plan, Mommy. You have a plan. Daddy has a > plan. Everyone has a plan. We must all live our plan and keep our > promises. The birdies help us to do that cause they love us so much. " > > In the weeks that followed, he often came to us and told all, or part of it, > again and again. Always the story remained the same. The details were never > changed or out of order. A few times he added further bits of information > and clarified the message he had already delivered. It never ceased to > amaze us how he could tell such detail and speak beyond his ability when he > talked about his birdies. Everywhere he went, he told strangers about the > " birdies. " Surprisingly, no one ever looked at him strangely when he did > this. Rather, they always got a softened look on their face and smiled. > > Needless to say, we have not been the same ever since that day, and I pray > we never will be. > > Yesterday is history.. > Tomorrow a mystery.. > Today is a gift.. > That's why it's called the present! > Live and savor every moment.....this is not a dress rehearsal! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 I have been reading the archives and WOW, this is beautiful. -- In egroups, " Aisha Elderwyn " <aisha@e...> wrote: > On July 22nd I was enroute to Washington, DC for a business trip. It was > all so very ordinary, until we landed in Denver for a plane change. As I > collected my belongings from the overhead bin, an announcement was made for > Mr. Lloyd Glenn to see the United Customer Service Representative > immediately. I thought nothing of it until I reached the door to leave the > plane, and I heard a gentleman asking every male if they were Mr.Glenn. At > this point I knew something was wrong and my heart sunk. When I got off the > plane a solemn-faced young man came toward me and said, " Mr. Glenn, there is > an emergency at your home. I do not know what the emergency is, or who is > involved, but I will take you to the phone so you can call the hospital. " > > My heart was now pounding, but the will to be calm took over. Woodenly, I > followed this stranger to the distant telephone where I called the number he > gave me for the Mission Hospital. My call was put through to the trauma > center where I learned that my three-year-old son had been trapped > underneath the automatic garage door for several minutes, and that when my > wife had found him he was dead. CPR had been performed by a neighbor, who is > a doctor, and the paramedics had continued the treatment as was > transported to the hospital. By the time of my call, was revived and > they believed he would live, but they did not know how much damage had been > done to his brain, nor to his heart. They explained that the door had > completely closed on his little sternum right over his heart. He had been > severely crushed. After speaking with the medical staff, my wife sounded > worried but not hysterical, and I took comfort in her calmness. > > The return flight seemed to last forever, but finally I arrived at the > hospital six hours after the garage door had come down. > When I walked into the intensive care unit, nothing could have prepared me > to see my little son laying so still on a great big > bed with tubes and monitors everywhere. He was on a respirator. I glanced > at my wife who stood and tried to give me a reassuring smile. It all seemed > like a terrible dream. I was filled-in with the details and given a guarded > prognosis. was going to live, and the preliminary tests indicated that > his heart was OK, two miracles in and of themselves. But only time would > tell if his brain received any damage. > > Throughout the seemingly endless hours, my wife was calm. She felt that > would eventually be all right. I hung on toher words and faith like a > lifeline. > > All that night and the next day remained unconscious. It seemed like > forever since I had left for my business trip the day before. Finally at two > o'clock that afternoon, our son regained consciousness and sat up uttering > the most beautiful words I have ever heard spoken. He said, " Daddy hold me " > and he reached for me with his little arms. [TEAR BREAK...smile] > > By the next day he was pronounced as having no neurological or physical > deficits, and the story of his miraculous survival spread throughout the > hospital. You cannot imagine our gratitude and joy. As we took home, > we felt a unique reverence for the life and love of our Beliefs that comes > to those who brush death so closely.. > > In the days that followed there was a special spirit about our home. Our > two older children were much closer to their little brother. My wife and I > were much closer to each other, and all of us were very close as a whole > family. Life took on a less stressful pace. Perspective seemed to be more > focused, and balance much easier to gain and maintain. We felt deeply > blessed. Our gratitude was truly profound. > > The story is not over (smile)! > > Almost a month later to the day of the accident, awoke from his > afternoon nap and said, " Sit down mommy. I have something to tell you. " At > this time in his life, usually spoke in small phrases, so to say a > large sentence surprised my wife. She sat down with him on his bed, and he > began his sacred and remarkable story. > > " Do you remember when I got stuck under the garage door? Well, it was so > heavy and it hurt really bad. I called to you, but you couldn't hear me. I > started to cry, but then it hurt too bad. And then the 'birdies' came. " > " The birdies? " my wife asked puzzled. > " Yes, " he replied. " The birdies made a whooshing sound and flew into the > garage. They took care of me. " > " They did? " > " Yes, " he said. " 0ne of the birdies came and got you. She came to tell you > I got stuck under the door. " > > A sweet reverent feeling filled the room. The spirit was so strong and yet > lighter than air. My wife realized that a three year-old had no concept of > death and spirits, so he was referring to the beings who came to him from > beyond as " birdies " because they were up in the air like birds that fly. > > " What did the birdies look like? " she asked. > answered, " They were so beautiful. They were dressed in white, all > white. Some of them had green and white. But some of them had on just > white. " > " Did they say anything? " > " Yes, " he answered. " They told me the baby would be all right. " > " The baby? " my wife asked confused. > answered. " The baby laying on the garage floor. " He went on, " You came > out and opened the garage door and ran to the baby. You told the baby to > stay and not leave. " > > My wife nearly collapsed upon hearing this, for she had indeed gone and > knelt beside 's body and seeing his crushed chest whispered, " Don't > leave us , please stay if you can. " As she listened to telling > her the words she had spoken, she realized that the spirit had left his body > and was looking down from above on this little lifeless form. > > " Then what happened? " she asked. > " We went on a trip. " He said, " Far, far away. " > > He grew agitated trying to say the things he didn't seem to have the words > for. My wife tried to calm and comfort him, and let him know it would be > okay. He struggled with wanting to tell something that obviously was very > important to him, but finding the words was difficult. > > " We flew so fast up in the air. They're so pretty Mommy, " he added. " And > there are lots and lots of birdies. " > > My wife was stunned. Into her mind the sweet comforting spirit enveloped > her more soundly, but with an urgency she had never before known. went > on to tell her that the " birdies " had told him that he had to come back and > tell everyone about the " birdies. " He said they brought him back to the > house and that a big fire truck, and an ambulance were there. A man was > bringing the baby out on a white bed and he tried to tell the man that the > baby would be okay, but the man couldn't hear him. He said the birdies told > him he had to go with the ambulance, but they would be near him. He said > they were so pretty and so peaceful, and he didn't want to come back. Then > the bright light came. He said that the light was so bright and so warm, > and he loved the bright light so much. Someone was in the bright light and > put their arms around him, and told him, " I love you but you have to go > back. You have to play baseball, and tell everyone about the birdies. " Then > the person in the bright light kissed him and waved bye-bye. Then whoosh, > the big sound came and they went into the clouds. > > The story went on for an hour. He taught us that " birdies " were always with > us, but we don't see them because we look with our eyes and we don't hear > them because we listen with our ears. But they are always there, you can > only see them in here (he put his hand over his heart). They whisper the > things to help us to do what is right because they love us so much. > continued, stating, " I have a plan, Mommy. You have a plan. Daddy has a > plan. Everyone has a plan. We must all live our plan and keep our > promises. The birdies help us to do that cause they love us so much. " > > In the weeks that followed, he often came to us and told all, or part of it, > again and again. Always the story remained the same. The details were never > changed or out of order. A few times he added further bits of information > and clarified the message he had already delivered. It never ceased to > amaze us how he could tell such detail and speak beyond his ability when he > talked about his birdies. Everywhere he went, he told strangers about the > " birdies. " Surprisingly, no one ever looked at him strangely when he did > this. Rather, they always got a softened look on their face and smiled. > > Needless to say, we have not been the same ever since that day, and I pray > we never will be. > > Yesterday is history.. > Tomorrow a mystery.. > Today is a gift.. > That's why it's called the present! > Live and savor every moment.....this is not a dress rehearsal! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Dear , What a story - your fortitude and sense of humour is humbling. I feel much less confident now that these myotomies will last for a lifetime, or even 10 years...... I guess we just have to get on with our lives while the going's good and not worry. Do they know what is causing your severe vomiting episodes? Are they related to eating or do the spasms begin 'out of the blue' so to speak?? My heart goes out to you - I hope they find a solution that works for you - life doesn't sound like too much fun right now. Thank goodness for loving and supportive families though - hope you can maintain that wonderful sense of humour. Keep posting. Regards Jeanne Re:> Date: Sun, 3 Jun 2001 11:42:20 -0400 > From: " A. & Mark S. Millett " <Millett@...> >Subject: Introduction > >Hello all, > I've been reading through the emails posted over the past 2-3 months and for the first time ever see other people who know and understand what this disease entails. I don't care for the phrase " misery loves company " but it is a comfort to know that this group exists and that there are other people who have a clue. > I'm a mother of 4 (ages 15, 13,10 & 8) and had my first sign of trouble Dec. 26, 1978. I was 18 and thought I was having a heart attack. Before I was diagnosed with Achalasia in 1982 the Drs were treating me as a nervous person, in your head-type problem. I live in New York and have seen many physicians here as well as Vermont and in Montreal, Canada. I've undergone a few bougee (spelling?) dilatations which I deem my garden hose treatment and over the past 22+ years many balloon dilatations. My first thoracic myotomy was in Sept 1984 and the surgeon recommended a conservative approach to only cutting the sphincter muscle between the stomach and the esophagus. He told me that I could expect a good 10 years relief or possibly even a lifetime. I did manage the 10 years pretty well with only having more dilatations in the last 2-3 years. The second thoracic myotomy occurred in July 1994 and was considered a " long myotomy " , where the esophagus was cut from the top down to and including the sphincter muscle. Because of scar tissue from the first surgery they had to remove one of my ribs. Does that now make me Adam? We have got to hang on to what ever humor we have. Anyway, this time when I asked how long it would be good for this surgeon (different Dr from the first) said that if it didn't last a lifetime then he didn't do his job. *smile* I think back now, especially after reading all these emails, on how ridiculous his statement was. Maybe ridiculous is not the right word but I guess he felt he could cure all and I'm not sure that's even possible. > Well here I am 7 years later wondering how many more " lifetime " procedures a person can have. I am back on the dilatation treatment and have more medication than the pharmacy does. I sleep with blocks under the head of the bed (thank goodness my husband doesn't mind sleeping on a tilt) and I have numerous pillows to prop up with. Like so many of you eating is a chore or if you prefer a work of art. My biggest problem/complaint at the moment are the frequency of esoph spasms and pain. As of January of this year my symptoms took on a new twist. Shortly after the onset of an esoph spasm I started to vomit and couldn't stop. This occurred every 20-30 min until eventually I was throwing up blood. The first time it happened I thought I had the flu and after 9 hours went to a Dr. The second time my husband took me to the ER after about 4 hours and they were able to give me meds to stop and pain/muscle relaxants for the spasm. At that point I had created numerous sores and an ulcer in the esoph. I now carry injectable anti-nausea meds and tell my husband that if he snickers when he tells me to bend over for the shot, then I'll shoot him. I've had a few more trips to the ER for this but I do my best to inject myself or have my husband do so asap so I can avoid the hospital. Right now, my Dr is looking to send me to another specialist in Pennsylvania in hopes that there is something else that might be done for me. The only alternative otherwise, which he doesn't want to do, is yet another thoracic myotomy which would be hindered I imagine with even more scar tissue. I'm also looking into a research facility in Vermont that deals in pain management. > I can't believe I wrote as much as I have. I guess this is one of those " venting " moments. I better get going ... children and duties await. > >. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 {{{{{{ Cyndi }}}}}} A heart felt hug from me to you.....thanks! Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 Hi , I am doing the anti-candida diet with supplements right now and believe I too have CRC and it scares me immensely. Could you tell me specifically what supplements you were taking. I'm really scared. I'm rotating between capryllic acid, garlic, grapefruit seed extract, colloidal silver and just recently ordered Formula SF722. Thank you, sincerely, le > Following is the story of , from another list....Lynne > ************************ > > Candida - Toxins in the Tissues/my story > > I had been on penecillin (DRIP) when I was 7 1/2 yrs. old for an illness > called > 'osteomylitis' in my left leg for almost 4 months. My friendly flora/fauna > and > good bacteria in my body had been wiped out since I was that young. In my > teen > years I had been put on tetracycline for years for acne (the acne was from > NO > friendly flora/bacteria in my body, and the candida take-over).... and I ate > a > highly refined food diet. The only good thing is that I did play a lot of > sports and from the ages of about 18-22 was traveling and playing > racquetball > nationally and internationally. After I was married at 24 and had 3 > children > in a row (they are all almost 1 -1/2 years apart) my health started to not > be > so good. I didn't really *know* what was wrong with me but I would have > intermittent diarrhea, intestinal problems, PMS (severe) and irritated > behavior. It progressed more after each child. By the time I had three > little > ones,,, was struggling with stress/emotional and physical and had a bad > refined > foods diet. > > I name all these 'stressors' because usually for the immune system to 'break > down' there are many areas which play in. It is not just 'one'... and it > takes > 'all' of these together which will play a role in the person becoming > 'systemically' sick with candidiasis. My health condition was 'topped off' > in > 1993 with a car accident. Thankfully I was alone in the vehicle, and none > of > my family otherwise was hurt. I hit a truck that pulled right out in front > of > me loaded with firewood. He did not even see me and crossed in front of me > when I was going about 55 mph. I did not have time to stop. That afternoon > I > went to the hospital with my hubby and had x-rays, but they revealed that I > was > ok.... within 3 hours after the accident my entire body was in such pain. I > couldn't walk... or do much at all. Within 3 more days I was laying down > all > the time and could do nothing. It got worse and worse - pretty soon I could > not turn my neck at all (which lasted for 7 years). > > I saw naturopaths, chiropractors, doctors of every type. For 5 years I did > nothing else - I saw 24 doctors in a few years alone. They did 2 surgeries > (major ones) that I now know were unneeded... and they further SET ME BACK > in > my health. NOTHING would change the condition in my muscles... NOTHING. > This > is amazing because they did a zillion x-rays, and cat scans and MRI's and > NOTHING. > > 9 years later (after over 50,000 dollars in doctor's fees, surgeries which > hindered me greatly, and all the mental/emotional stresses - including Rx > drugs > that I should NEVER have been put on....) I now believe I know exactly what > happened to me that day in the accident - and I want to share with others - > so > that they will take this into consideration. > > I had done little cleansings for candida off and on but never realized how > DEEP > it can be in the body. As Dr. Truss mentions, Candida's presence is EASILY > detectable in superficial infections like diaper rash or thrush - or as a > complication in serious illnesses like cancer and AIDS. It is FAR HARDER to > pin > down Candida as a cause of chronic illness. As Dr. Truss notes: 'LESS WELL > RECOGNIZED HAS BEEN THE GREAT HARM THAT MAY BE DONE BY PRODUCTS (TOXINS FROM > CANDIDA) RELEASED CHRONICALLY INTO THE BLOODSTREAM WHEN THIS YEAST SUCCEEDS > IN > ESTABLISHING ITSELF IN THE TISSUES " . > > This is vital... because this is what had happened to me. Probably all my > life > ~ all those years of antibiotic use, poor diet,,,, and a colon loaded with > waste... my body was loaded with yeast. It was 'past' a localized infection > ~ > it had moved throughout my tissues and just *think* of the yeasts throughout > my > body all giving off at least 79 toxins each... > > When I had my car accident that is what happened - the yeast that was > throughout my muscles/tissues was hit hard. My whole body went into > shock/stress... and that was exactly why NO doctor could find what was wrong > with me OR help me. The CANDIDIASIS had become systemic with me - and was > throughout my body and in my bloodstream. No one looked at that... instead > my > life went careening downhill for lots of years. I believe the candida > condition was the starting point and also the whole basis of my > conglomeration > of 'illnesses'. Labelled with CFS/FM and LUPUS as well as a chronic neck > condition that would not change no matter what,,,, I found it highly amazing > when, after a few months of the products at whole approach - the CAndida > purge > - (colon cleansers and antifungals),,, a complete change in diet and > lifestyle > - that guess what???? > > For the first time in 7 years my neck was fully able to turn. And also most > of > my body pain disappeared. The fibromyalgia areas were basically gone. I > tested this by going back to the foods I had dumped ~ and sure enough within > 40 > minutes after eating them - the muscle pain returned with a vengeance/and > the > neck seized up. This was absolutely amazing to me and I wondered what would > happen if I continued??? I did continue... and all digestive problems > disappeared - no constipation/nodiarrhea - regular movements - up to 3x a > day. > But *best* of all - was that I was getting my BRAIN back. For years as a > child > on antibiotics for my sicknesses all my report cards said the same thing: > " she > needs to try harder " ... " has great capability but won't focus " ... etc. One > teacher in the 5th grade in front of the whole class took my desk and > everything and sat me outside the class window. She felt that because I > daydreamed so much I should 'sit out there'. The whole class watched me > sitting > in the playground in my desk for hours. These are the types of things that > happened often in my childhood... if ADHD or ADD had been a label used > then - > it would have been me. I am thoroughly convinced that this whole mental > condition was related to CANDIDA overgrowth. When I started major, > aggressive > treatment - my MIND WORKED. For the first time in my whole life in my 40's > I > could THINK!! - I could be SMART!! Amazing, I had been told all my life that > I > was dumb, and stupid. My sister told me I reminded her of an Irish setter > dog > ~ we were watching a couple of them one day just running, running and > running > everywhere - and going nowhere... my sister said - " you're just like those > dogs " ... I was chronically HYPER all my childhood - my parents almost put me > on > ritalin. I was the ONLY child like this out of 6 of us - and I was the ONLY > one > having been on the huge amounts of antibiotics... I was the only sickly > one - > the only one with glasses (to this day)... etc. > > This is a great quote from: Conquering Yeast Infections by Colet Lahoz > > " Any infection by candida is called candidiasis. Two types of candidiasis > have > been established and widely spoken of in medical journals: superficial > candidiasis and systemic candidiasis. In fact, thousands of medical journal > articles have been written about candida's unique effect on the body. All > types > of Candida infections occur when the patient's immune defenses have been > damaged by factors such as heavy use of antibiotics, environmental chemical > overload, HRT/the pill, corticosteroids (prednisone, cortisone), or a > serious > illness. An important point to keep in mind is that the Candida organism can > take advantage of only a body that has weakened immune defenses. > > Localized candida infections are easily treated ~ but Candida Related > Complex > (CRC) is not easily treated. It occurs when the living yeast gains entrance > to > the bloodstream and the lymphatics. > > They have 2 ways of gaining entrance: The first is by way of penetration of > their root like tentacles into the intestinal wall. This penetration > destroys > the mucous membrane system of the intestines. Some people call this leaking > of > toxins into the bloodstream - LEAKY GUT syndrome. > > The second way is by passing through the intestinal wall. If the CRC is > uncontrolled, it can cause new symptoms throughout the body and aggravate > already existing conditions. CRC (candida related syndrome) can produce a > weakening of the entire system and a lowering of resistance to other > diseases. > Candida Related complex is the most dreaded complication of fungal > infections, > because it is very hard to recognize and even harder to treat. This differs > from localized infections in that the fungi overgrowth predominates the > gastrointestinal tract, especially in the colon, and from there can > penetrate > other organs and systems. > > Ultimately, CRC is capable of causing serious disease and even death. The > balance between bacteria normally in the gut and/or vaginal flora and fungus > is > disrupted when the bacteria become weakened and the fungi become too strong. > As a result of this imbalance, the Candida albicans can rapidly multiply and > cause an overgrowth. > > In CRC, one of the first systems to be compromised is the immune system. It > forces the immune system to focus on the digestive tract., the source of > CRC. > As the immune system becomes overburdened, physical problems (caused by the > rampant spread of Candida albicans through the bloodstream) proliferate. > Thus, people with chronic lung problems such as asthma and bronchitis easily > develop Candida pneumonia as a complication. Premenstrual syndrome (PMS) > becomes even worse in women with candidiasis. In other words, any weak > system > becomes even weaker and more compromised after CRC. The result is a > persistent > condition that does not improve with conventional therapies and often gets > worse following drug therapy. > > This spread of Candida albicans has been described as the domino effect - > one > body system after another falls prey to CRC, unless it is stopped or > reversed. > > Pathologists studying disseminated candidiasis find tiny abscesses > throughout > the body. These consist of Candida albicans surrounded by a fibrin (a > protein > able to clot) and a connective tissue shell. This shell isolates Candida > from > elimination by the immune system. > > Another name for CRC is " mycotoxins " . The word is derived from the Greek > words > " myukes " , meaning fungus, and " toxicum " meaning toxin or poison. " Mycotoxin > is > the generic term used to describe a fungal-produced toxic or metabolic which > can cause disease leading to death " , says A.V. Constantini, MD, head of > World > Health Organization Collaborating Center for Mycotoxins in Food. > > CRC is also known as Candida, Candidiasis, Candidiasis Hypersensitivity, > Systemic Candidiasis, CASO (Candida Albicans Systemic Overgrowth), mold, > fungus, or intestinal yeast infection. " > > > ClearingCandida - List Owner > ClearingCandida-subscribe@y... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 Oh my God , Can you tell me how you got rid of this candida? I too feel I have it and my problem seems to be cysts, no period for 2-1/2 years, bloating in my stomach, headaches, no focus, yeast infection and yeast infections and my husband and I just keep giving them back and forth to each other. I'm on HRT because I haven't had a period in over 2 years and now I'm afraid that the HRT is going to cause more yeast. Help a fellow sufferer!!! I beg YOU!!!!!! >From: " i_dilly_dally " <i_dilly_dally@...> >Reply-candidiasis >candidiasis >Subject: Re: 's Story >Date: Wed, 19 Dec 2001 20:23:34 -0000 > >Hi , > > I am doing the anti-candida diet with supplements right now and >believe I too have CRC and it scares me immensely. Could you tell me >specifically what supplements you were taking. I'm really scared. >I'm rotating between capryllic acid, garlic, grapefruit seed extract, >colloidal silver and just recently ordered Formula SF722. Thank you, > > sincerely, le > > > > > Following is the story of , from another list....Lynne > > ************************ > > > > Candida - Toxins in the Tissues/my story > > > > I had been on penecillin (DRIP) when I was 7 1/2 yrs. old for an >illness > > called > > 'osteomylitis' in my left leg for almost 4 months. My friendly >flora/fauna > > and > > good bacteria in my body had been wiped out since I was that >young. In my > > teen > > years I had been put on tetracycline for years for acne (the acne >was from > > NO > > friendly flora/bacteria in my body, and the candida take-over).... >and I ate > > a > > highly refined food diet. The only good thing is that I did play a >lot of > > sports and from the ages of about 18-22 was traveling and playing > > racquetball > > nationally and internationally. After I was married at 24 and had 3 > > children > > in a row (they are all almost 1 -1/2 years apart) my health started >to not > > be > > so good. I didn't really *know* what was wrong with me but I would >have > > intermittent diarrhea, intestinal problems, PMS (severe) and >irritated > > behavior. It progressed more after each child. By the time I had >three > > little > > ones,,, was struggling with stress/emotional and physical and had a >bad > > refined > > foods diet. > > > > I name all these 'stressors' because usually for the immune system >to 'break > > down' there are many areas which play in. It is not just 'one'... >and it > > takes > > 'all' of these together which will play a role in the person >becoming > > 'systemically' sick with candidiasis. My health condition >was 'topped off' > > in > > 1993 with a car accident. Thankfully I was alone in the vehicle, >and none > > of > > my family otherwise was hurt. I hit a truck that pulled right out >in front > > of > > me loaded with firewood. He did not even see me and crossed in >front of me > > when I was going about 55 mph. I did not have time to stop. That >afternoon > > I > > went to the hospital with my hubby and had x-rays, but they >revealed that I > > was > > ok.... within 3 hours after the accident my entire body was in such >pain. I > > couldn't walk... or do much at all. Within 3 more days I was >laying down > > all > > the time and could do nothing. It got worse and worse - pretty >soon I could > > not turn my neck at all (which lasted for 7 years). > > > > I saw naturopaths, chiropractors, doctors of every type. For 5 >years I did > > nothing else - I saw 24 doctors in a few years alone. They did 2 >surgeries > > (major ones) that I now know were unneeded... and they further SET >ME BACK > > in > > my health. NOTHING would change the condition in my muscles... >NOTHING. > > This > > is amazing because they did a zillion x-rays, and cat scans and >MRI's and > > NOTHING. > > > > 9 years later (after over 50,000 dollars in doctor's fees, >surgeries which > > hindered me greatly, and all the mental/emotional stresses - >including Rx > > drugs > > that I should NEVER have been put on....) I now believe I know >exactly what > > happened to me that day in the accident - and I want to share with >others - > > so > > that they will take this into consideration. > > > > I had done little cleansings for candida off and on but never >realized how > > DEEP > > it can be in the body. As Dr. Truss mentions, Candida's presence >is EASILY > > detectable in superficial infections like diaper rash or thrush - >or as a > > complication in serious illnesses like cancer and AIDS. It is FAR >HARDER to > > pin > > down Candida as a cause of chronic illness. As Dr. Truss >notes: 'LESS WELL > > RECOGNIZED HAS BEEN THE GREAT HARM THAT MAY BE DONE BY PRODUCTS >(TOXINS FROM > > CANDIDA) RELEASED CHRONICALLY INTO THE BLOODSTREAM WHEN THIS YEAST >SUCCEEDS > > IN > > ESTABLISHING ITSELF IN THE TISSUES " . > > > > This is vital... because this is what had happened to me. Probably >all my > > life > > ~ all those years of antibiotic use, poor diet,,,, and a colon >loaded with > > waste... my body was loaded with yeast. It was 'past' a localized >infection > > ~ > > it had moved throughout my tissues and just *think* of the yeasts >throughout > > my > > body all giving off at least 79 toxins each... > > > > When I had my car accident that is what happened - the yeast that >was > > throughout my muscles/tissues was hit hard. My whole body went into > > shock/stress... and that was exactly why NO doctor could find what >was wrong > > with me OR help me. The CANDIDIASIS had become systemic with me - >and was > > throughout my body and in my bloodstream. No one looked at that... >instead > > my > > life went careening downhill for lots of years. I believe the >candida > > condition was the starting point and also the whole basis of my > > conglomeration > > of 'illnesses'. Labelled with CFS/FM and LUPUS as well as a chronic >neck > > condition that would not change no matter what,,,, I found it >highly amazing > > when, after a few months of the products at whole approach - the >CAndida > > purge > > - (colon cleansers and antifungals),,, a complete change in diet and > > lifestyle > > - that guess what???? > > > > For the first time in 7 years my neck was fully able to turn. And >also most > > of > > my body pain disappeared. The fibromyalgia areas were basically >gone. I > > tested this by going back to the foods I had dumped ~ and sure >enough within > > 40 > > minutes after eating them - the muscle pain returned with a >vengeance/and > > the > > neck seized up. This was absolutely amazing to me and I wondered >what would > > happen if I continued??? I did continue... and all digestive >problems > > disappeared - no constipation/nodiarrhea - regular movements - up >to 3x a > > day. > > But *best* of all - was that I was getting my BRAIN back. For >years as a > > child > > on antibiotics for my sicknesses all my report cards said the same >thing: > > " she > > needs to try harder " ... " has great capability but won't focus " ... >etc. One > > teacher in the 5th grade in front of the whole class took my desk >and > > everything and sat me outside the class window. She felt that >because I > > daydreamed so much I should 'sit out there'. The whole class >watched me > > sitting > > in the playground in my desk for hours. These are the types of >things that > > happened often in my childhood... if ADHD or ADD had been a label >used > > then - > > it would have been me. I am thoroughly convinced that this whole >mental > > condition was related to CANDIDA overgrowth. When I started major, > > aggressive > > treatment - my MIND WORKED. For the first time in my whole life in >my 40's > > I > > could THINK!! - I could be SMART!! Amazing, I had been told all my >life that > > I > > was dumb, and stupid. My sister told me I reminded her of an Irish >setter > > dog > > ~ we were watching a couple of them one day just running, running >and > > running > > everywhere - and going nowhere... my sister said - " you're just >like those > > dogs " ... I was chronically HYPER all my childhood - my parents >almost put me > > on > > ritalin. I was the ONLY child like this out of 6 of us - and I was >the ONLY > > one > > having been on the huge amounts of antibiotics... I was the only >sickly > > one - > > the only one with glasses (to this day)... etc. > > > > This is a great quote from: Conquering Yeast Infections by Colet >Lahoz > > > > " Any infection by candida is called candidiasis. Two types of >candidiasis > > have > > been established and widely spoken of in medical journals: >superficial > > candidiasis and systemic candidiasis. In fact, thousands of medical >journal > > articles have been written about candida's unique effect on the >body. All > > types > > of Candida infections occur when the patient's immune defenses have >been > > damaged by factors such as heavy use of antibiotics, environmental >chemical > > overload, HRT/the pill, corticosteroids (prednisone, cortisone), or >a > > serious > > illness. An important point to keep in mind is that the Candida >organism can > > take advantage of only a body that has weakened immune defenses. > > > > Localized candida infections are easily treated ~ but Candida >Related > > Complex > > (CRC) is not easily treated. It occurs when the living yeast gains >entrance > > to > > the bloodstream and the lymphatics. > > > > They have 2 ways of gaining entrance: The first is by way of >penetration of > > their root like tentacles into the intestinal wall. This penetration > > destroys > > the mucous membrane system of the intestines. Some people call >this leaking > > of > > toxins into the bloodstream - LEAKY GUT syndrome. > > > > The second way is by passing through the intestinal wall. If the >CRC is > > uncontrolled, it can cause new symptoms throughout the body and >aggravate > > already existing conditions. CRC (candida related syndrome) can >produce a > > weakening of the entire system and a lowering of resistance to other > > diseases. > > Candida Related complex is the most dreaded complication of fungal > > infections, > > because it is very hard to recognize and even harder to treat. This >differs > > from localized infections in that the fungi overgrowth predominates >the > > gastrointestinal tract, especially in the colon, and from there can > > penetrate > > other organs and systems. > > > > Ultimately, CRC is capable of causing serious disease and even >death. The > > balance between bacteria normally in the gut and/or vaginal flora >and fungus > > is > > disrupted when the bacteria become weakened and the fungi become >too strong. > > As a result of this imbalance, the Candida albicans can rapidly >multiply and > > cause an overgrowth. > > > > In CRC, one of the first systems to be compromised is the immune >system. It > > forces the immune system to focus on the digestive tract., the >source of > > CRC. > > As the immune system becomes overburdened, physical problems >(caused by the > > rampant spread of Candida albicans through the bloodstream) >proliferate. > > Thus, people with chronic lung problems such as asthma and >bronchitis easily > > develop Candida pneumonia as a complication. Premenstrual syndrome >(PMS) > > becomes even worse in women with candidiasis. In other words, any >weak > > system > > becomes even weaker and more compromised after CRC. The result is a > > persistent > > condition that does not improve with conventional therapies and >often gets > > worse following drug therapy. > > > > This spread of Candida albicans has been described as the domino >effect - > > one > > body system after another falls prey to CRC, unless it is stopped or > > reversed. > > > > Pathologists studying disseminated candidiasis find tiny abscesses > > throughout > > the body. These consist of Candida albicans surrounded by a fibrin >(a > > protein > > able to clot) and a connective tissue shell. This shell isolates >Candida > > from > > elimination by the immune system. > > > > Another name for CRC is " mycotoxins " . The word is derived from the >Greek > > words > > " myukes " , meaning fungus, and " toxicum " meaning toxin or >poison. " Mycotoxin > > is > > the generic term used to describe a fungal-produced toxic or >metabolic which > > can cause disease leading to death " , says A.V. Constantini, MD, >head of > > World > > Health Organization Collaborating Center for Mycotoxins in Food. > > > > CRC is also known as Candida, Candidiasis, Candidiasis >Hypersensitivity, > > Systemic Candidiasis, CASO (Candida Albicans Systemic Overgrowth), >mold, > > fungus, or intestinal yeast infection. " > > > > > > ClearingCandida - List Owner > > ClearingCandida-subscribe@y... > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 In a message dated 6/1/2003 6:12:37 AM Pacific Daylight Time, cadlard@... writes: > Thankyou for offering your story > for our web page which is now online on our " Medical Histories " page at > rheumatic.org. > Hi Thank you for the posting of it:-D What a wild journey it has been and I do not know if I could have made it without all of your encouragement and the love from the group. I am happy I can give back. Thanks for letting me tell my tale. All of you are the best! Ann Pritchard " Deep in the center of our beings is an infinite wealth of love " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 Hi and group, It was great to read 's story which is an inspiration to everybody to just hang in there but she is to be congratulated because it sounds like it was a long hard road and I sincerely hope too that she continues to improve. It would be great to be kept up-to-date with her progress over a period of time? Caroline Stronge. rheumatic 's story Hi group, has sent us her story which you can read below and on our web page at rheumatic.org/medhist.htm. Thankyou for sharing your story with us and with all those who will be helped by reading it. I hope your health continues to improve and that life stays good for you. Chris. _____________________________________________________ KAREN, lupus/dermatomyositis My purpose in writing this story is to discuss my autoimmune diseases and by telling my story hopefully offer you some inspiration. I am aware I can not use my doctor's name so I will refer to my antibiotic protocol Dr. as Dr. T. I was diagnosed with Lupus in 1995 at the age of 48, I had seen seven doctors before this was concluded. Lupus is an autoimmune disease, one of about 80 known to the medical community. My symptoms started with lower back pain and terrible rashes all over my body, the ones on my head neck and chest would ooze and bleed. I had severy gottrons papules on my hands my head itched so bad I thought I would go crazy. had difficulty swallowing and extreme sun sensitivity along with fatigue, sleep disturbances, dry eyes, hives, shingles, bronchitis, short term memory loss, flushing ears, leaky gut, fibromyalgia and sustained ventricular tachycardia (rapid heart beat) My CPK (inflammation of the muscles and skin) was elevated to the point where I couldn't dress myself or drive the car as a result I went on medical leave from work. you might not have all but you will have many of the symptoms to one degree or another. I have also learned that stress produces cortisol and cortisol causes TH-2 cell overactivation the body goes " wacko " . For some after a stressful situation an autoimmune disease may manifest. Now for my story. My name is Niedbalski at present I live in Summerfield, Fl. I had been working at an A.C.Delco General Motors facility in Elk Grove Village, Illinois for 29 years. Then I got seriously ill. Some comments need to be made about my work place, there were 55 employees working at the entire warehouse and office, four very healthy women came down with very rare autiommune diseases. My friend Carol died from Lou Gehrigs disease at age 48, another friend Shirley died from scleroderma at age 63, my boss Diane age 44 and I are now diagnosed with lupus-dermatomysoitis and polymositis, the odds of this occuring are three million to one, we wanted the EPA (environmental protection agency) to examine the building but it had closed in 2001. It is now known that a combination of genetic factors and some type of environmental " triggers " can activate an autoimmune disease. As I stated in 1995 I was diagnosed with lupus I had been on prednisone and plaquenil and within a year I was in remission and stayed on a maintenance dose. Then after retiring and moving to Florida in 2001 I had severe flaring, my symptoms were the same as the first flare only worse I wasn't responding to high doses of prednisone my rheumatologist incorporated imuran along with high doses of prednisone I would improve slightly but as soon as I started weening down on the prednisone my symptoms would worsen. This went on for a year and a half. My Rheumy suggested methotrexate and I flatly refused to take this drug. When I lived in Illinois I went to a support group and heard so many horror stories about this drug I couldn't make myself take it. My dermatologist suspected I had dermatomyositis and did extensive blood work to determine I had dermatomyositis along with the lupus. I continued to stay in touch with my boss Diane who was diagnosed with polymyositis in 1998. Her CPK was over 13,000 and she was in the hospital getting 1000mg. of I.V. Prednisone and sent home to take 80mg. of prednisone, methotrexate, imuran, arava you name it she tried it. After 2 years of toxic drugs her CPK was still 5,000. She was getting desperate a friend at work suggested antibiotic protocal and she tried it and with in 5 months her CPK was normal. Talk about a miracle! After my severe flaring and talking with Diane I decided to apply the antibiotic protocal to my own use. The book " The New Arthritis Breakthrough " by Henry Scammell was a life saver and became my Bible and Liesl a friend I met on the internet who was in remission from dermatomyositis through using antibiotic protocal helped me get started. The next step was to find a DR. willing to apply the A.P. I found a father and son team in Lakeland Fl. they were well versed in A.P. and put me on the Hallelujah diet (vegetarian diet) daily carrot juicing and chelation. Dr. T. said he had never treated anyone so steroid dependent as me and because I was so sick he recommended the diet, juicing and chelation, his theory was to rebuild my diseased body cell by cell. Because I was flaring when I began A.P. I had to increase my prednisone from 30mg. to 60mg. and did so for 5 months. The turning point for me was when Dr. T. switched me from 50mg. prednisone to 60mg. Cortef my improvement started and at present I am taking 40 mg. of Cortef (equivalent to 8mg. prednisone) and Minocin 100mg. twice a day every Mon. Wed. and Fri. since starting antibiotic protocal I have quit taking the following drugs-- Prednisone, Imuran, Plaquenil, Paxil, Desyrel, Premarin and Fosamax. I am so pleased with my remission and progress. Don't get discouraged it took me 11 months to achieve this remission by faithfully following the antibiotic protocol and diet. My boss Diane achieved remission without the diet or juicing she also used the generic minocycline. I am convinced we are dealing with an infection and that's why we can achieve remission on low dose antibiotics. I still follow a vegetarian diet, carrot juicing and maintenance chelation, because I was on such high doses of prednisone for so long the ween off steroids will be slow. I am now able to incorporate regular dietary foods several times a week I also follow a daily regime of walking for 45 minutes and am even back on the golf course and bowling again. After being house bound for over 2 years due to extreme sun sensitivity you can imagine how happy and pleased I am. I do religiously take a very sufficient amount of vitamins and supplements. So, to conclude my story I wish to express gratitude to Dr. Brown who set forth the theory and rationale which is a revolutionary procedure called antibiotic protocal, and to Henry Scammell for writing the book " The New Arthritis Breakthrough " . To Liesl my internet friend who was such an inspiration to me to start A.P. and mostly to Dr. T. for graciously and professionally leading me down the path to recovery and to my family and friends for their encouragement and support. And last but not least to my devoted husband Mike who has faithfully juiced my carrots every other day for over 2 years and never complained, he's always been there for me thru out this healing process. From the bottom of my heart thank you to everyone who had helped me get thru this difficult time. For those of you thinking about trying A.P. I hope this will inspire you. Feel free to ask questions. My only regret is I didn't find the antibiotics sooner and I could have avoided taking all the toxic drugs that your rheumatologist will encourage you to take. Niedbalski Summerfield FL. You can reach me at Niedbalski1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 , if you would like I could call you and talk this over and give my perspective on what is going on and will in the future. You also may call me anytime and I will try and answer any questions you have. My home phone is 01638 533018. in Suffolk In a message dated 4/22/2006 9:35:22 PM GMT Standard Time, lawford@... writes: (the computer lost my first attempt so lets try again.I am a 34 yo male living near Bournemouth on the south coast of England.I was diagnosed last month with A but wonder how long I have had this condition.Today I learn that the chronic acid indigestion I have suffered for the past 14 years may actually be spasms. In the past I have had really bad chest pain that the doctor gave me antacids for but they did not touch the sides. The pain used to cause pains down my left arm during the day but more recently caused me to wake with aching throat and teeth (both with severe chest pain).3 or 4 years ago I began having problems getting food down and eating a lunchtime buffet would cause a tear and some panic trying to fight/keep the food down.18 months ago I had an gastroscopy but they found nothing ( I think this was due to the weight loss diet I was on - cambridge diet - i.e. no solids). The reason for the test was that I was finding it hard to swallow food.By Christmas 2005 I was having real difficulty eating, and on many occasions would not be able to east a meal. I had a barium test early 2006, the lady that performed the test was most surprised by the lack of any barium movement saying 'well that shouldn't be like that - not at your age'.A few weeks later I had another gastroscopy by the same doctor, this time he explained that he was now sure that I had A - but to be 100% he sent me for an manometry where the doctor commented that the doctor who sent me was not always correct in his assessment, but this time he was, there was no doubt I had A.I am now waiting to see a specialist/surgeon at the end of May.Reading these board there are many degrees of what A is and how it effects us.I currently have evenings that I find hard to get much food down. But other nights I can eat a whole meal with no problems.Breakfast (a small bowl of muesli) causes slight chest pain but goes down.I have a real bad problem with liquids (hot and cold).Having liquid with a meal just does not help, and just makes the fight worse.When fighting the swallowed food, most times I find it easier to regurgitate than continuing the fight (that can go on for 2 - 3 hours).So my questions are:1. Is this about as bad as it gets? although I do see reports on here of people who can not eat or drink at-all - can I expect this?2. Are these spasms? or indigestion? how to tell?3. in UK under NHS can we choose surgeon or just have to take what we are offered? ( If we can choose anybody have any suggestions (South UK)?4. I have tried to keep a perspective of this whole thing, A is not in itself life threatening/terminal, and I hope to lead a normal life after surgery. I suppose this question is, long term is it always on your mind/ in your head or can you just live life?5. With the problem of regurgitating food in your sleep (only done this a couple of times) would one of the adjustamatic beds help that can keep your top end raised? (for those in UK no VAT on adjustamatic for health)Thanks for any replies in advance.:oD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Hi and welcome to our group. Thank you for providing so much information about yourself in order that we can have the perspective to better answer your questions, see where you have been and make intelligent predictions about what you might expect in the future. You certainly have been around the block. However, from this point on, if you can have the surgery performed by a surgeon who has done many Heller Myotomies, I can almost promise you that the quality of your life will be vastly improved. Let me first try to address your questions. 1. Is this about as bad as it gets? although I do see reports on here of people who can not eat or drink at-all - can I expect this? If you have nothing done, as strange as it sounds, the condition might appear as if its improving as your esophagus continues to get stretched out of shape due to the food that occupies it rather than immediately going down to the stomach. If the esophagus is stretched out it can accommodate more food being "stored" there, and there might be less of a compulsion to regurgitate. This is not a good thing in the long run and I suggest you check out the posts of from NY should you want to pursue this line of thinking further. The people who are unable to eat and drink might be experiencing this state for a number of reasons. One might be a piece of food that is lodged in the LES (lower esophageal sphincter muscle blocking all food and liquid from going down, like a "stopper" in a sink or bath tub. Another reason might be the failure of the LES to relax. In other words it is shut tightly and no food or drink can make it through. Some people report that nitroglycerin or nifedipine taken under the tongue will relax the smooth tissue muscles, of this is one and permit the passage of the food and drink. Caution as to the possible side effects that some might experience. 2. Are these spasms? or indigestion? how to tell? Good question. One way might be to try all the medications for indigestion and if nothing works, considering all your other symptoms, then its spasms. Since it is so well documented here that some people get relief from the spasms from drinking cold water, warm water, popsicles, crackers, soda, or the same nifedipine mentioned above, then if those help you, then its spasms. Indigestion generally does not respond to these methods. The sooner you take the "cure" the faster it should work. You will read on these boards so many descriptions of the spasms that you begin to wonder if we are all experiencing different things, or the same thing with different symptoms. Know that different means of stopping spasms work with different people. I drink soda and take nifedipine, while some people cannot tolerate soda and nifedipine knocks them out. There was a time that the pain from the spasms would radiate to my teeth, and it became an "early warning system" to me that when my teeth started hurting the spasms would follow. You could be sure that I drank my can of soda immediately and the spasms were gone before they could begin. (Pretty cool!) 3. in UK under NHS can we choose surgeon or just have to take what we are offered? ( If we can choose anybody have any suggestions (South UK)? I would speak to who provided you with his phone number for starters, and I would try very hard to go to the next meet-up they are planning in the near future. You will see the world practically open up to you if you spent a couple of hours with all the exceptional people who have been living with Achalasia for years. 4. I have tried to keep a perspective of this whole thing, A is not in itself life threatening/ terminal, and I hope to lead a normal life after surgery. I suppose this question is, long term is it always on your mind/ in your head or can you just live life? You might get a lot of different answers from people on this one. I can only offer you my perspective. Before I was diagnosed I was game for every meal, even though with every meal I would end up running to the bathroom to regurgitate. When a month went by without a problem, I thought it went away due to my exercising. It returned. Each night I went to sleep fearing the worst, and each night I spent hours walking the hallway, after waking up choking or completely unable to breathe. Now, 14 year post Heller, my thinking has modified. I know I will get through each meal one way or the other. Sure I consume huge quanitites of soda, and I do sometimes have trouble sleeping, but I would still characterize my life as "normal." More to your point. Yes I just "live life." It is on my mind, but I don't dwell on it. I remain optimistic about life. If I ever let it get me down, all I have to do is walk through a cancer ward, or a children's hospital and I thank my lucky stars about what a stupid inconvenience this disease is compared to all the other diseases of the world. . Get the surgery done and free yourself. 5. With the problem of regurgitating food in your sleep (only done this a couple of times) would one of the adjustamatic beds help that can keep your top end raised? (for those in UK no VAT on adjustamatic for health) The night time reguritating is of course related to what is sitting in your esophagus when you go to sleep. Before you get involved with wedges and things, first try to get to the source of the problem. Try to clear your esophagus of its contents. Drink plenty of fluids, whatever works best for you. Try also eating early, but not too early since spasms have a tendency to kick in if you go too long without eating. Perhaps take a nifedipine before you go to sleep in conjunction to drinking your liquid of choice. The greater your elevation, the better your chance at not regurgitating. But, please keep in mind that when you eat a meal, you are sitting up at the time, and how many times have you been forced to regurgitate despite the fact that you were sitting up or standing? Best thing to do then? Clear before you go to sleep and then try to sleep in an elevated position for what works best for you. >I am a 34 yo male living near Bournemouth on the south coast of England.I was diagnosed last month with A but wonder how long I have had this condition.Today I learn that the chronic acid indigestion I have suffered for the past 14 years may actually be spasms. In the past I have had really bad chest pain that the doctor gave me antacids for but they did not touch the sides. The pain used to cause pains down my left arm during the day but more recently caused me to wake with aching throat and teeth (both with severe chest pain).3 or 4 years ago I began having problems getting food down and eating a lunchtime buffet would cause a tear and some panic trying to fight/keep the food down.18 months ago I had an gastroscopy but they found nothing ( I think this was due to the weight loss diet I was on - cambridge diet - i.e. no solids). The reason for the test was that I was finding it hard to swallow food.By Christmas 2005 I was having real difficulty eating, and on many occasions would not be able to east a meal. I had a barium test early 2006, the lady that performed the test was most surprised by the lack of any barium movement saying 'well that shouldn't be like that - not at your age'.A few weeks later I had another gastroscopy by the same doctor, this time he explained that he was now sure that I had A - but to be 100% he sent me for an manometry where the doctor commented that the doctor who sent me was not always correct in his assessment, but this time he was, there was no doubt I had A. I am now waiting to see a specialist/surgeon at the end of May.Reading these board there are many degrees of what A is and how it effects us.I currently have evenings that I find hard to get much food down. But other nights I can eat a whole meal with no problems.Breakfast (a small bowl of muesli) causes slight chest pain but goes down.I have a real bad problem with liquids (hot and cold).Having liquid with a meal just does not help, and just makes the fight worse.When fighting the swallowed food, most times I find it easier to regurgitate than continuing the fight (that can go on for 2 - 3 hours).So my questions are: 1. Is this about as bad as it gets? although I do see reports on here of people who can not eat or drink at-all - can I expect this?2. Are these spasms? or indigestion? how to tell? 3. in UK under NHS can we choose surgeon or just have to take what we are offered? ( If we can choose anybody have any suggestions (South UK)?4. I have tried to keep a perspective of this whole thing, A is not in itself life threatening/ terminal, and I hope to lead a normal life after surgery. I suppose this question is, long term is it always on your mind/ in your head or can you just live life?5. With the problem of regurgitating food in your sleep (only done this a couple of times) would one of the adjustamatic beds help that can keep your top end raised? (for those in UK no VAT on adjustamatic for health)Thanks for any replies in advance.> > > :oD> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 No problem . Hope to see you there. in Suffolk In a message dated 4/23/2006 7:58:39 AM GMT Standard Time, lawford@... writes: ,Thank you for a full and detailed answer to my questions it is greatly appreciated.I know that many of my questions will be answered when I finally get to see the specialist, but the end of May seems so far away, and at the moment A is affecting my life as I shy away from eating out or am late back from lunch at work due to spending an hour regurgitating/fighting with A, so any advice/information is appreciated.,Thanks for your number I will call you.I will also try and make your next meet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 , Thank you for a full and detailed answer to my questions it is greatly appreciated. I know that many of my questions will be answered when I finally get to see the specialist, but the end of May seems so far away, and at the moment A is affecting my life as I shy away from eating out or am late back from lunch at work due to spending an hour regurgitating/ fighting with A, so any advice/information is appreciated. , Thanks for your number I will call you. I will also try and make your next meet. Quote Link to comment Share on other sites More sharing options...
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