Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Me too please. Thanks Maya mayalang@... On 12 Apr, 2008, at 9:56 PM, Moe wrote: > , > I would also like to see the spreadsheet, please. Could you > email it to me at moejonesy@... > > Blessings, Moe > > Proud Mommy of 5, > Moe > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Me too please. Thanks Maya mayalang@... On 12 Apr, 2008, at 9:56 PM, Moe wrote: > , > I would also like to see the spreadsheet, please. Could you > email it to me at moejonesy@... > > Blessings, Moe > > Proud Mommy of 5, > Moe > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Ditto! chobysauce@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 it might be easier for you to upload to the group files section. Save you sending to everyone separately. Whoever wants it can just download it then. Let me know if you need help. Fieldman Re: Re:'s story Me too please. Thanks Maya mayalang@... On 12 Apr, 2008, at 9:56 PM, Moe wrote: > , > I would also like to see the spreadsheet, please. Could you > email it to me at moejonesy@... > > Blessings, Moe > > Proud Mommy of 5, > Moe > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 At 03:07 AM 4/13/2008, you wrote: >Hello, > > Could I also ask for a copy, my email is ejandls@... > Thanks so very much, I am trying my luck with another doctor next > week and want to sound well informed just incase. > Thanks so much, > I encourage you to NOT even bother or try. You just say no - don't explain - don't even try. My advice Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 I second Sheri's advice! Just give and emphatic " NO " and leave it at that! If your husband or partner can go with you, the safety in numbers thing works well... but neither of you need to explain your stance. " JUST SAY NO " Personally, I'd question whether you even need to see an allopath altogether. On Sun, Apr 13, 2008 at 7:26 AM, Sheri Nakken <vaccineinfo@...> wrote: > At 03:07 AM 4/13/2008, you wrote: > >Hello, > > > > Could I also ask for a copy, my email is ejandls@... > > Thanks so very much, I am trying my luck with another doctor next > > week and want to sound well informed just incase. > > Thanks so much, > > > > I encourage you to NOT even bother or try. > > You just say no - don't explain - don't even try. > My advice > Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 I'm with Sheri, having tried myself with a couple of docs. If you sincerely want their opinions, fine, then discuss it with them--keeping in mind they are pressured to recommend vaccines if they value their jobs. But if you are firm that you don't want to vaccinate, then just tell them. You WILL NOT convince a pediatrician to agree with you. It's enough that you're not comfortable with it. Just say so. You're the customer declining a service, that's all. Winnie Re: Re:'s story Vaccinations > At 03:07 AM 4/13/2008, you wrote: > >Hello, > > > > Could I also ask for a copy, my email is ejandls@... > > Thanks so very much, I am trying my luck with another doctor > next > > week and want to sound well informed just incase. > > Thanks so much, > > > > > I encourage you to NOT even bother or try. > > You just say no - don't explain - don't even try. > My advice > Sheri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 THAT IS SO SAD, THAT GIRL BELEIVES THAT THERES NOTHING THEY CAN DO! I AM GOING WRITE HER AND ASK HAS SHEGIVEN ANY THOUGT TO A HOLISTIC VIEW OF THINGS?. From: karla walsh <faerie1952@...>no-forced-vaccination Sent: Friday, February 6, 2009 9:14:59 AMSubject: 's Story Girl crippled for life from Gadasil. http://www.rockymou ntainnews. com/videos/ detail/ashley- story/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 THAT IS SO SAD, THAT GIRL BELEIVES THAT THERES NOTHING THEY CAN DO! I AM GOING WRITE HER AND ASK HAS SHEGIVEN ANY THOUGT TO A HOLISTIC VIEW OF THINGS?. From: karla walsh <faerie1952@...>no-forced-vaccination Sent: Friday, February 6, 2009 9:14:59 AMSubject: 's Story Girl crippled for life from Gadasil. http://www.rockymou ntainnews. com/videos/ detail/ashley- story/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 THAT IS SO SAD, THAT GIRL BELEIVES THAT THERES NOTHING THEY CAN DO! I AM GOING WRITE HER AND ASK HAS SHEGIVEN ANY THOUGT TO A HOLISTIC VIEW OF THINGS?. From: karla walsh <faerie1952@...>no-forced-vaccination Sent: Friday, February 6, 2009 9:14:59 AMSubject: 's Story Girl crippled for life from Gadasil. http://www.rockymou ntainnews. com/videos/ detail/ashley- story/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 THAT IS SO SAD, THAT GIRL BELEIVES THAT THERES NOTHING THEY CAN DO! I AM GOING WRITE HER AND ASK HAS SHEGIVEN ANY THOUGT TO A HOLISTIC VIEW OF THINGS?. From: karla walsh <faerie1952@...>no-forced-vaccination Sent: Friday, February 6, 2009 9:14:59 AMSubject: 's Story Girl crippled for life from Gadasil. http://www.rockymou ntainnews. com/videos/ detail/ashley- story/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 > > Girl crippled for life from Gadasil. > http://www.rockymountainnews.com/videos/detail/ashley-story/ > > >This is horrible, Iwonder has she given thought to any holistic modalities? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 > > Girl crippled for life from Gadasil. > http://www.rockymountainnews.com/videos/detail/ashley-story/ > > >This is horrible, Iwonder has she given thought to any holistic modalities? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 > > Girl crippled for life from Gadasil. > http://www.rockymountainnews.com/videos/detail/ashley-story/ > > >This is horrible, Iwonder has she given thought to any holistic modalities? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 > > Girl crippled for life from Gadasil. > http://www.rockymountainnews.com/videos/detail/ashley-story/ > > >This is horrible, Iwonder has she given thought to any holistic modalities? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Hi group, Here is 's story which I have just put on our web page at rheumatic.org in the Medical Histories section. I'm sure you will be encouraged by 's improved health using antibiotic therapy. Chris. > From: " A Read " <rassoc@...> > Date: 30 January 2009 3:58:34 PM > <cadlard@...> > Subject: My Story > > > Scleraderma is a strange disease. It sort of creeps up on you over > time and you learn to live with the symptoms. I was 48, 4 years ago, > when I was diagnosed, rather fortunately by a talented doctor during a > routine medical. I had written off the stiffness in my hands as mild > arthritis and while I wasn’t feeling well, in general, thought that > age was catching up with me. After blood tests revealed the truth of > my condition, I was packed off to a rheumatologist. Then began the > conventional medical treatment plan, principally of methatrexate > injections as well as medication for ulcers and reflux. I must > confess, I didn’t take the condition very seriously at the time, > although my wife, who had researched the condition, was very > concerned. To me I had stiff hands and wrist joints and dry hard skin > on my forearms and too much work to really think too much about it. >  > A routine CT scan two years later revealed some lung involvement and > as a result, the rheumatologist suggested a course of chemotherapy to > start in November 2007. To this end I even had a port inserted in my > chest so that the treatment could be administered directly. After > endless rounds of blood tests, the sight of a needle heading for a > vein in my arms was something to be avoided. At this stage I was > feeling poorly, the skin on my arms was dry and hard and even started > to develop ‘scales’. We were planning a holiday trip to London and I > actually contemplated that I needed a walking stick to help me get > around. >  > Mentally I was grappling with the medical belief that my auto immune > system was damaged and was to blame for giving me this condition. I > was not happy with taking chemicals to suppress my immune system, > which in general seemed to me to be doing a great job of sorting out > the everyday scatches, colds and other minor ailments. It didn’t make > sense to suppress my immune system to supposedly slow down the > scleraderma, and then open myself up to any other infection that would > come my way which I could not then effectively fight off. I also felt > that two years of methatrexate had not relieved or improved my > condition, in fact I was progressively getting worse and feeling tired > and rundown. >  > In her research my wife came across your website and after reading the > testimonials and the research findings, everything made a lot more > sense to me. There was nothing wrong with my immune system, I just had > a microbial infection that it was not equipped to deal with. All it > needed was some help. I discussed my desire to attempt a new treatment > protocol based on a long term antibiotic with my rheumatologist. This > was a major mental leap for her as she was in the process of prepping > me for the chemotherapy. To her credit, while my strategy was against > her training and everything she believed in, she agreed to support me > in this new treatment plan. This was brave as she works at a > university hospital that has a special research programme treating > patients with auto-immune diseases. >  > The pulmonologist was very resistant, but conceded that medical > science had little to offer in the way of a proven treatment protocol > for scleraderma. My reasoning with the pulmonologist was based on > comparing the two alternatives. On the one hand medical science is > offering a chemical treatment programme that has no proven success > other than to hopefully slow down the progression of the disease by > what I considered was a strategy harmful to my body. This compared to > an antibiotic protocol that had a website with a whole bunch of > testimonials from people for whom the treatment had made a big > difference. He eventually also agreed to support my new treatment > strategy on the basis that should the treatment not work for me, my > lung condition was still a long way from being serious. >  > In January 2008, after a six week period to flush the methatrexate out > of my system, I commenced a low impact treatment of 100mg of > Cyclimycin per day. There were no intravenous infusions of large > ‘starter’ doses, and thinking back, I wonder sometimes whether the > doctors allowed me to start on this ‘slow’ basis thinking that the > lack of early results might convince me that the treatment did not > work. Just being off the methatrexate made a big difference. I was no > longer feeling tired and this was an immediate boost. >  > Over the past year, as the pains in my knee joints and hip joints > slowly disappeared. As the tightness in my back and the muscle > stiffness in my thighs relieved. As the skin on my neck and chest that > I had never really recognized as having limited my movements suddenly > reverted to what I now know as normal. As the skin on my arms regained > a measure of softness, but more importantly the hard scales > disappeared. As my lung function tests showed a significant > improvement. As I regained energy, along with improved movement in my > fingers and wrists, I have come to realise just how scleraderma had > crept up on me and had affected much more than just my hands and arms. > It had taken over my body. Happily I can say that after one year on my > antibiotic I am today really well. I know I will never be cured, and > my crooked fingers are here to stay, but I am glad to be back. >  > Now my thoughts no longer are filled with how I can cope with a > debilitating disease. From time to time I spare a thought for my > doctors and wonder how they are coming to terms with the serious > challenge that I have presented to the protocols that they learnt > during their medical training. I wonder if they have had the courage > to try the antibiotic approach on their other patients suffering from > that faceless and undefined condition they call ‘auto immune disease’. >  >  > ANDREW READ >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 THIS MESSAGE IS FOR ANDREW. Thank you for your addition to the site. I am almost five years in remission (ALL tests negative and I am off the AP) for scleroderma. I would suggest to you, however, that the hands or curled fingers are the last to change and perhaps you should not give up hope that they will get better. At the health food store, pick up two items, both very inexpensive. Molybedeum (probably spelled wrong as I am sitting at work) and Vit. B6. Try taking one pill a day of these for a period of time and see if they don't help you. Best of luck. Fain In a message dated 2/21/2009 12:11:09 A.M. Mountain Standard Time, cadlard@... writes: Hi group, Here is 's story which I have just put on our web page at rheumatic.org in the Medical Histories section. I'm sure you will be encouraged by 's improved health using antibiotic therapy. Chris. > From: " A Read " <rassoc@...> > Date: 30 January 2009 3:58:34 PM > <cadlard@...> > Subject: My Story > > > Scleraderma is a strange disease. It sort of creeps up on you over > time and you learn to live with the symptoms. I was 48, 4 years ago, > when I was diagnosed, rather fortunately by a talented doctor during a > routine medical. I had written off the stiffness in my hands as mild > arthritis and while I wasn’t feeling well, in general, thought that > age was catching up with me. After blood tests revealed the truth of > my condition, I was packed off to a rheumatologist. Then began the > conventional medical treatment plan, principally of methatrexate > injections as well as medication for ulcers and reflux. I must > confess, I didn’t take the condition very seriously at the time, > although my wife, who had researched the condition, was very > concerned. To me I had stiff hands and wrist joints and dry hard skin > on my forearms and too much work to really think too much about it. > > A routine CT scan two years later revealed some lung involvement and > as a result, the rheumatologist suggested a course of chemotherapy to > start in November 2007. To this end I even had a port inserted in my > chest so that the treatment could be administered directly. After > endless rounds of blood tests, the sight of a needle heading for a > vein in my arms was something to be avoided. At this stage I was > feeling poorly, the skin on my arms was dry and hard and even started > to develop ‘scales’. We were planning a holiday trip to London and I > actually contemplated that I needed a walking stick to help me get > around. > > Mentally I was grappling with the medical belief that my auto immune > system was damaged and was to blame for giving me this condition. I > was not happy with taking chemicals to suppress my immune system, > which in general seemed to me to be doing a great job of sorting out > the everyday scatches, colds and other minor ailments. It didn’t make > sense to suppress my immune system to supposedly slow down the > scleraderma, and then open myself up to any other infection that would > come my way which I could not then effectively fight off. I also felt > that two years of methatrexate had not relieved or improved my > condition, in fact I was progressively getting worse and feeling tired > and rundown. > > In her research my wife came across your website and after reading the > testimonials and the research findings, everything made a lot more > sense to me. There was nothing wrong with my immune system, I just had > a microbial infection that it was not equipped to deal with. All it > needed was some help. I discussed my desire to attempt a new treatment > protocol based on a long term antibiotic with my rheumatologist. This > was a major mental leap for her as she was in the process of prepping > me for the chemotherapy. To her credit, while my strategy was against > her training and everything she believed in, she agreed to support me > in this new treatment plan. This was brave as she works at a > university hospital that has a special research programme treating > patients with auto-immune diseases. > > The pulmonologist was very resistant, but conceded that medical > science had little to offer in the way of a proven treatment protocol > for scleraderma. My reasoning with the pulmonologist was based on > comparing the two alternatives. On the one hand medical science is > offering a chemical treatment programme that has no proven success > other than to hopefully slow down the progression of the disease by > what I considered was a strategy harmful to my body. This compared to > an antibiotic protocol that had a website with a whole bunch of > testimonials from people for whom the treatment had made a big > difference. He eventually also agreed to support my new treatment > strategy on the basis that should the treatment not work for me, my > lung condition was still a long way from being serious. > > In January 2008, after a six week period to flush the methatrexate out > of my system, I commenced a low impact treatment of 100mg of > Cyclimycin per day. There were no intravenous infusions of large > ‘starter’ doses, and thinking back, I wonder sometimes whether the > doctors allowed me to start on this ‘slow’ basis thinking that the > lack of early results might convince me that the treatment did not > work. Just being off the methatrexate made a big difference. I was no > longer feeling tired and this was an immediate boost. > > Over the past year, as the pains in my knee joints and hip joints > slowly disappeared. As the tightness in my back and the muscle > stiffness in my thighs relieved. As the skin on my neck and chest that > I had never really recognized as having limited my movements suddenly > reverted to what I now know as normal. As the skin on my arms regained > a measure of softness, but more importantly the hard scales > disappeared. As my lung function tests showed a significant > improvement. As I regained energy, along with improved movement in my > fingers and wrists, I have come to realise just how scleraderma had > crept up on me and had affected much more than just my hands and arms. > It had taken over my body. Happily I can say that after one year on my > antibiotic I am today really well. I know I will never be cured, and > my crooked fingers are here to stay, but I am glad to be back. > > Now my thoughts no longer are filled with how I can cope with a > debilitating disease. From time to time I spare a thought for my > doctors and wonder how they are coming to terms with the serious > challenge that I have presented to the protocols that they learnt > during their medical training. I wonder if they have had the courage > to try the antibiotic approach on their other patients suffering from > that faceless and undefined condition they call ‘auto immune disease’. > > > ANDREW READ > [Non-text portions of this message have been removed] ------------------------------------ To unsubscribe, email: rheumatic-unsubscribe@...! Groups Links **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/prom oclk/100126575x1218822736x1201267884/aol?redir=http:%2F%2Fwww.freecreditreport.c\ om%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 This helps hands to operate better and with less pain. My hands were never completely curled in. They had begun to be curled and were " freezing " in place but as time went on, they straightened out completely and they NEVER hurt. They are writing new things now about the positive effects on the body of B6. I don't have those with me as am at work now. You might google it. In a message dated 2/25/2009 12:56:56 P.M. Mountain Standard Time, moniquesauve@... writes: hi sandra how do the molybednum and B6 help? thanks monique Molybedeum (probably spelled wrong as I am sitting at work) and Vit. B6. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Hi I am so VERY glad to hear you are in remission. It was a long and painful struggle for you that I remember. I have used B6 in the past for carpal tunnel and stiff fingers. I have told people without rheumatic problems about it and they praise it. About the Molybedium…I have never used it but will look it up. I know anything that comes from you must be good! I always tell people to double the dose for 5 days jus for a bolus dose. I hope you stay free from scleraderma and wish you all the best. Cooky THIS MESSAGE IS FOR ANDREW. Thank you for your addition to the site. I am almost five years in remission (ALL tests negative and I am off the AP) for scleroderma. I would suggest to you, however, that the hands or curled fingers are the last to change and perhaps you should not give up hope that they will get better. At the health food store, pick up two items, both very inexpensive. Molybedeum (probably spelled wrong as I am sitting at work) and Vit. B6. Try taking one pill a day of these for a period of time and see if they don't help you. Best of luck. Fain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Hi , how much B6 and how much Molybdenum are you taking? thanks, EMAILING FOR THE GREATER GOOD Join me rheumatic From: Sltfain@... Date: Wed, 25 Feb 2009 16:07:21 -0500 Subject: Re: rheumatic Re: 's story This helps hands to operate better and with less pain. My hands were never completely curled in. They had begun to be curled and were " freezing " in place but as time went on, they straightened out completely and they NEVER hurt. They are writing new things now about the positive effects on the body of B6. I don't have those with me as am at work now. You might google it. In a message dated 2/25/2009 12:56:56 P.M. Mountain Standard Time, moniquesauve@... writes: hi sandra how do the molybednum and B6 help? thanks monique Molybedeum (probably spelled wrong as I am sitting at work) and Vit. B6. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 I just go to the health food store and buy the only one they have in stock and take one a day.? Sometimes, it is nice not to have too many choices.?? ??? for your info both of them just happen to be 100 mg each., Re: rheumatic Re: 's story This helps hands to operate better and with less pain. My hands were never completely curled in. They had begun to be curled and were " freezing " in place but as time went on, they straightened out completely and they NEVER hurt. They are writing new things now about the positive effects on the body of B6. I don't have those with me as am at work now. You might google it. In a message dated 2/25/2009 12:56:56 P.M. Mountain Standard Time, moniquesauve@... writes: hi sandra how do the molybednum and B6 help? thanks monique Molybedeum (probably spelled wrong as I am sitting at work) and Vit. B6. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
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