Re: for those considering taking low dose naltrexone

[Guest guest]

I have been on AP for two years and half. Found about low dose naltrexone (LDN)

benefits for autoimmune diseases through LDN group. I ask my doctor

(Rheumatologist) to prescribed it for me. He did. I have been taking LDN for

more than a year , it gives me lots of energy and lowered my ESR somehow.

I saw my docrtor today. He told me that he prescribed LDN for some of his

patients and they are happy with the result.  I guess it is worthy to give LDN a

try while you are on AP.

soheila

 

[Guest guest]

Soheila,

Where do you get your LDN? Does a local pharmacy compound it for you? How

much does it cost?

Thanks,

Ute

[Guest guest]

soheila, do you have any problems with insomnia because of LDN? I would love to

try LDN but I am not happy about insomnia. Sleep deprivation makes the pain of

RA unmanageable.

Ash

From: soheila A <soadl80@...>

Subject: Re: rheumatic for those considering taking low dose naltrexone

rheumatic

Date: Wednesday, September 2, 2009, 2:05 PM

 

I have been on AP for two years and half. Found about low dose naltrexone (LDN)

benefits for autoimmune diseases through LDN group. I ask my doctor

(Rheumatologist) to prescribed it for me. He did. I have been taking LDN for

more than a year , it gives me lots of energy and lowered my ESR somehow.

I saw my docrtor today. He told me that he prescribed LDN for some of his

patients and they are happy with the result.  I guess it is worthy to give LDN a

try while you are on AP.

soheila

 

[Guest guest]

>

>

> From: soheila A <soadl80@...>

> Subject: Re: rheumatic for those considering taking low dose naltrexone

> rheumatic

> Date: Wednesday, September 2, 2009, 2:05 PM

>

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>

> I have been on AP for two years and half. Found about low dose naltrexone

(LDN) benefits for autoimmune diseases through LDN group. I ask my doctor

(Rheumatologist) to prescribed it for me. He did. I have been taking LDN for

more than a year , it gives me lots of energy and lowered my ESR somehow.

> I saw my docrtor today. He told me that he prescribed LDN for some of his

patients and they are happy with the result.  I guess it is worthy to give LDN a

try while you are on AP.

> soheila

>

>  

>

>

[Guest guest]

Hi

Yes my wife kathryn is taking LDN (Low Dose Naltrexone) at 4 mg per night for

Dermatomyositis (DM), and yes it has helped her muscle strength and mobility and

energy (while reducing pain and inflamation), and she continues to improve. A

wonderful and safe drug for DM.

Jim and kathryn

> >

> >

> > From: soheila A <soadl80@ >

> > Subject: Re: rheumatic for those considering taking low dose naltrexone

> > rheumatic@grou ps.com

> > Date: Wednesday, September 2, 2009, 2:05 PM

> >

> >

> >

> >

> >

> >

> >

> > I have been on AP for two years and half. Found about low dose naltrexone

(LDN) benefits for autoimmune diseases through LDN group. I ask my doctor

(Rheumatologist) to prescribed it for me. He did. I have been taking LDN for

more than a year , it gives me lots of energy and lowered my ESR somehow.

> > I saw my docrtor today. He told me that he prescribed LDN for some of his

patients and they are happy with the result. I guess it is worthy to give LDN a

try while you are on AP.

> > soheila

> >

> >

> >

> >

[Guest guest]

Hi Char,

LDN has helped with the inflammation, as her bloodwork shows that both her

E.S.R.(Sed rate)and C.R.P.have been falling; however, her CK(CPK)has been rising

lately although she is now much more active and taking physio which can raise CK

levels (also she has weened off prednisone).At least two out of three aint bad.

Her rash however has not improved, but her muscle strength and mobility have

greatly improved. I would strongly recommend LDN ASAP as it does work faster

than Minocin. Both drugs compliment each other well.

As far as looking at the cause of DM, I suggest you also do some mycoplasma

(cell wall deficient bacteria) testing.

To gain perspective ,this is my wifes DM story....

We chose the LDN Minocin path because my wife

already taken 8 doses of chemo and 33 days of radiation to treat her breast

cancer in 2007, and her immune system was already severly depressed as result,

and all this did not stop the DM from progressing, only delayed it a few months.

She then went on 60 mg of Prednisone daily, and dropped gradually down to 10 mg

daily over about 8 weeks.It helped at first but every time she dropped the dose

she got weeker (note: she is now off Pred.completely).

She got worse fast, and by mid Jan2008 she was hospitalized, and four hospitals

latter, she finally came home Nov 2/08. It was very rough, as her heart and

lungs were affected. They tried many IVIG's with really no success. She at the

point where she could not move her arms and legs, could barely swallow/eat.

After she refused all immunosuppressant drugs, which really frustrated the

hospital docs,then one of said OK we will try it your way, and started 50 mg

Minocin every 2nd night on April 7/08. She got worse for about 2-3 months, but

slowly improved, but titrated up to 200 mg every 2nd night. It was the miracle

that we prayed for, and very slowly her muscles got stronger, and she began to

swallow. Then no more heart/lung involvement(then Carol who you know from this

site, flew in from Manitoba, who is another DM patient who had recovered using

Minocin, visited my wife in the hospital last October here in about one

year ago, which really inspired my wife ).

When she came home on Nov 2/08, she could barely walk, and could not do one

stair/step. in Feb2009 she started LDN, and has titrated up to 4 mg per night

(working up to the 4.5 mg per night max.)over several months. She remains on

both drugs, and probably will be on them for years. She can now walk for over

30-40 minutes, and can easily walk up/down all 28 stairs in our townhouse. She

can eat/drink/swallow anything. She started Physio/message in July2009, and most

of her pain results from exercise. She will continue physio for another 2 years.

Her rash remains a problem.

We were able to get the Minocin and LDN from her family doctor (not from the

specialists)because we were persistant and stubborn,and gave him written info.to

back our request. There is some research to suggest that both drugs not only

help with autoimmune diseases but also help with cancer.If you have DM, I think

you can safely assume that the pathegen (called a mycoplasma which is a cell

wall deficient bacteria)is there.

She is also taking 600 mg/day of Alpha Lipoic Acid, Allimax, Pro Biotics,

Quercitin, and more. She has no specific diet, but should be no sugar,no gluten,

no dairy, but just can't follow it. She intends to juice more.

These drugs have been a life saver. Our only regret was not starting them much

earlier. We are looking forward to the new drug, Lupuzor, being developed in

France which should be available by the end of next year (assuming the side

effects are tolerable). I have a hunch that it will not only cure Lupus, but

possibly DM as well.We will see.

Jim &

> > >

> > >

> > > From: soheila A <soadl80@ >

> > > Subject: Re: rheumatic for those considering taking low dose naltrexone

> > > rheumatic@grou ps.com

> > > Date: Wednesday, September 2, 2009, 2:05 PM

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > I have been on AP for two years and half. Found about low dose naltrexone

(LDN) benefits for autoimmune diseases through LDN group. I ask my doctor

(Rheumatologist) to prescribed it for me. He did. I have been taking LDN for

more than a year , it gives me lots of energy and lowered my ESR somehow.

> > > I saw my docrtor today. He told me that he prescribed LDN for some of his

patients and they are happy with the result. I guess it is worthy to give LDN a

try while you are on AP.

> > > soheila

> > >

> > >

> > >

> > >

[Guest guest]

Hi again Char

I am sorry you have to deal with this nasty disease. As far as I know LDN has

no side effects (other than stimulating thyroid, which is really a good thing,

but can complicate things if you are already taking thyroid medication-which

forces you to start at a lower dose of LDN, the work up slowly)Dreams are more

vivid(because you sleep deeper,and produce more endorphins) on LDN too. Do NOT

get the slow release form of LDN

Alpha Lipoic acid is great too, and you can buy ALA at a health food store, and

also for ALA (unlike LDN)the slow/sustained release is best.

-Jim and

> > > >

> > > >

> > > > From: soheila A <soadl80@ >

> > > > Subject: Re: rheumatic for those considering taking low dose

naltrexone

> > > > rheumatic@grou ps.com

> > > > Date: Wednesday, September 2, 2009, 2:05 PM

> > > >

> > > >

> > > >

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> > > >

> > > >

> > > > I have been on AP for two years and half. Found about low dose

naltrexone (LDN) benefits for autoimmune diseases through LDN group. I ask

my doctor (Rheumatologist) to prescribed it for me. He did. I have been taking

LDN for more than a year , it gives me lots of energy and lowered my ESR

somehow.

> > > > I saw my docrtor today. He told me that he prescribed LDN for some of

his patients and they are happy with the result. I guess it is worthy to give

LDN a try while you are on AP.

> > > > soheila

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Dolores,

NARCAN is not LDN, as it is given in IV form and is equivalent to high dose

Naltrexone-brand names like Revia are used to treat drug and alcohal additions

but in very large doses IE 50-300 mg per day.

In sharp contrast, " LDN " is LOW DOSE NALTREXONE, and is usually given at a dose

(pill form which has to be compounded)of between 3mg - 4.5 mg per night. LDN

only blocks endorphin production for about 4-6 hours, and then the human body

overcompensates for the other 18-20 hours and produces many more endorphins than

it would ordinarily. More endorphins regulate the immune system, and decrease

disease. NARCAN/REVIA in such high doses produce a 24 hour blockade(of Opiate

receptors), and as a result does NOT increase endorphin production, and

depresses the immune system.

Dr Ian Zagon at Penn.State University found this with his cancer research, and

used Naltraxone in lows doses ,and also in the same experiment, one hundred

times the low lose(high dose)with predictable results. Low dose lead to

reduction in cancer cells, and in high doses the opposite occured.

How Naltrexone affects the immune system is entirely dose dependant.

-Jim

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> > > > >

> > > > > From: soheila A <soadl80@ >

> > > > > Subject: Re: rheumatic for those considering taking low dose

naltrexone

> > > > > rheumatic@grou ps.com

> > > > > Date: Wednesday, September 2, 2009, 2:05 PM

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > I have been on AP for two years and half. Found about low dose

naltrexone (LDN) benefits for autoimmune diseases through LDN group. I ask

my doctor (Rheumatologist) to prescribed it for me. He did. I have been taking

LDN for more than a year , it gives me lots of energy and lowered my ESR

somehow.

> > > > > I saw my docrtor today. He told me that he prescribed LDN for some of

his patients and they are happy with the result. I guess it is worthy to give

LDN a try while you are on AP.

> > > > > soheila

> > > > >

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