Dosing

[Guest guest]

My son was GFCF when he first started the Houston enzymes and he did

fine with one Peptizyde and one Zyme Prime. I occasionally give two

Peptizydes if I think he is eating a huge amount of casein or gluten,

but typically he gets one capsule. For snacks I give my son a 1/2

capsule.

> What is the " normal " dose for a meal that contains Gluten and

Casein

> for a child that used to be GFCF but is coming off the diet? Should

I

> give 1 or 2 pep with meals/snacks. What do you do? Thanks!

[Guest guest]

>

>

> TD-DMPS - OK so it's not the greatest. I won't argue about that.

>

> Dosing - doc says 28 drops once every other day for our boy. Somebody

> mentioned the 3/4 schedule is more effective. Please elaborate. 10

> drops 10 times a day for 3 days then nothing for 4 days, or what?

> Please help. I don't know what the fudge I'm doing and I'm more apt

> to just follow the doctor's orders. I'm not an expert and don't claim

> to be so please thanks for not insulting me because I already admit

> I'm not as smart as you. Just want to help my boy as safely and

> quickly as possible to get his brain back. Thank you very much.

>

> Mark

>

The how often part is easy enough for me to answer:

use DMPS every EIGHT hours. More often is okay,

LESS OFTEN IS NOT OKAY. If you are not familiar with

it, please read the following file **carefully**

http://home.earthlink.net/~moriam/Andy_dose_sched.html

(It is short amount of info, but it is JUST the " real

stuff " -- amounts and times and whatnot.)

So: every EIGHT HOURS for AT LEAST 3 days in a row.

Got it?

More days than 3 is okay, up to 14 days maximum.

Then NONE for at least as many days off as you had on.

That part is all stuff I'm sure about, and that I could

tell you in my sleep. (That is only because I've said

it several zillion times.)

Okay, the " iffy " part is HOW MUCH for each dose. This

is not clear. You'll get lots of different GUESSES.

Andy doesn't have a recommended amount for transdermal,

and no one knows quite how it compares to oral.

Some people have divided the prescribed amount by 3

(figuring 3 doses a day); others have divided by 6

(figuring it is 2 days worth). Both of those may be

too little or too much. Too little is okay, you can

increase it later. Too much is not good.

Pick something to start with, and adjust next round.

(If it is causing bad side effects, adjust right away.)

Moria

[Guest guest]

>

> The how often part is easy enough for me to answer:

> use DMPS every EIGHT hours. More often is okay,

> LESS OFTEN IS NOT OKAY. If you are not familiar with

> it, please read the following file **carefully**

> http://home.earthlink.net/~moriam/Andy_dose_sched.html

> (It is short amount of info, but it is JUST the " real

> stuff " -- amounts and times and whatnot.)

>

> So: every EIGHT HOURS for AT LEAST 3 days in a row.

> Got it?

> More days than 3 is okay, up to 14 days maximum.

>

> Then NONE for at least as many days off as you had on.

>

> That part is all stuff I'm sure about, and that I could

> tell you in my sleep. (That is only because I've said

> it several zillion times.)

>

> Okay, the " iffy " part is HOW MUCH for each dose. This

> is not clear. You'll get lots of different GUESSES.

> Andy doesn't have a recommended amount for transdermal,

> and no one knows quite how it compares to oral.

> Some people have divided the prescribed amount by 3

> (figuring 3 doses a day); others have divided by 6

> (figuring it is 2 days worth). Both of those may be

> too little or too much. Too little is okay, you can

> increase it later. Too much is not good.

> Pick something to start with, and adjust next round.

> (If it is causing bad side effects, adjust right away.)

>

> Moria

>

Thank you, Moria;

Divide by 3 is 9.333. Divide by is 4.666. So I'll start out

conservatively w/ 5 drops every 8 hours. Not sure - should I

suppliment iron during the on days? Or just dose suppliments on the

off days?

Thanks,

Mark

[Guest guest]

1 pro-EFA is 1/4 tsp. 2 pro-EFA = 1/2 tsp

[ ] Dosing

Can anyone tell me how much of a teaspoon is one 1000mg pro-efa?

[Guest guest]

We still have to tell my husband`s neuro after FIVE YEARS of prescribing!

It`s really best to use a compounding pharmacy that does it all the time, that

way they`ll be no way for error. Where are you located? In the US? If so

then many people use Skip`s Pharmacy in Florida and they mail it all across the

country for very reasonable rates. We`ve used them for years.

Depending on your disease you may like to start with the first batch in 1.5mg

caps? That way you can start off low and double and/or triple the dose when you

feel comfortable. Once you settle in at your comfortable dose then you can

just get the next script in that form.

Our neuro just writes - LDN 4.5mg, one per night - or something to that effect.

[Guest guest]

I'm sure most people use capsule form. If you're just starting the

current recommendation is to get 1.5mg capsules so that you can start at

1.5mg (1 cap), then go to 3.0mg (2 caps) when ready, then finally the

recommended 4.5mg (3 caps) dose. If too late, don't worry as you can

still easily do it by emptying a 4.5mg capsule into water or other drink

and then just take the fraction you want. Also make sure you get a FAST

RELEASE FILLER.

pipp1969 wrote:

> I am seeing my neurologist tomorrow and he has told me that he will write me a

script for LDN. I called the pharmacy for the correct info for the RX, as the

MD said he didn't know what it. They gave me information for capsule form.

Just wondering what form do most people take for MS, capsule or liquid LDN?

[Guest guest]

I would say capsule.

Art

--

>

> I am seeing my neurologist tomorrow and he has told me that he will write me a

script for LDN. I called the pharmacy for the correct info for the RX, as the

MD said he didn't know what it. They gave me information for capsule form.

Just wondering what form do most people take for MS, capsule or liquid LDN?

>

[Guest guest]

Hi everyone,

I am confused!! Are we saying that 200mg of Minocin a day to (5 days on two day

off) start with is a good protocal or MWF 200mg?

I lost you guys on what you were trying to state would be better to start with.

Val

[Guest guest]

MWF 100MGM for 2 weeks then MWF 200 MGMS AFTER 2 WEEKS. This is my opinion.

Cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Val Armienti

Sent: Friday, April 23, 2010 11:53 AM

rheumatic

Subject: rheumatic Dosing

Hi everyone,

I am confused!! Are we saying that 200mg of Minocin a day to (5 days on two

day off) start with is a good protocal or MWF 200mg?

I lost you guys on what you were trying to state would be better to start

with.

Val

[Guest guest]

I was on 100 mg MWF for about three months, then went to 200 mg MWF, and finally

200mg daily.  I saw no improvement in my symptoms until I started daily.  I'm

seeing some results now!  Had I known this, I would have risked the herx and

started off on the daily regimen.

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic Dosing

rheumatic

Date: Friday, April 23, 2010, 11:58 AM

MWF 100MGM for 2 weeks then MWF 200 MGMS AFTER 2 WEEKS. This is my opinion.

Cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Val Armienti

Sent: Friday, April 23, 2010 11:53 AM

rheumatic

Subject: rheumatic Dosing

 

Hi everyone,

I am confused!! Are we saying that 200mg of Minocin a day to (5 days on two

day off) start with is a good protocal or MWF 200mg?

I lost you guys on what you were trying to state would be better to start

with.

Val

[Guest guest]

Itching can be a Jarisch Herxheimer reaction to the antibiotics. Here us

how the FAQ on www.rheumatic.org explains the JH:

6. EXPLAIN THE JARISCH HERXHEIMER REACTION.

This drug-induced flare reaction may occur within hours, the next day or

within the first weeks after the patient starts the antibiotics - or any

time there is a change in antibiotic or dosage. It is caused by a die-off of

organisms, which in turn create toxins that circulate in the body. This will

often cause a temporary worsening of symptoms. Patients may experience a

range of symptoms from mild fatigue and sleepiness to flu-like symptoms -

chills, low grade fever, night sweats, muscle aches, aching and swollen

joints, nausea, hives, skin rashes, depression and short term memory loss.

Hives and rash are sometimes mistaken for an allergic reaction.

If the Herxheimer reaction is severe, the medication may be stopped and a

small dose of prednisone (no more than 10 mg.) may be prescribed. When the

flare subsides, the medication is re-introduced at a slow rate.

When this Herxheimer reaction occurs, it is a good indicator that the

antibiotic is reaching its target - a very positive sign. The length of time

for this reaction varies from patient to patient. About twenty percent of

patients do not experience the Herxheimer reaction. Scleroderma patients

seem to experience the Herxheimer reaction less often than RA patients.

Oxidative therapy may be useful in reducing these symptoms. Garth Nicholson,

M.D., director of The Institute for Molecular Medicine in Huntington Beach,

California recommends peroxide baths (four 16 oz. bottles of 3% hydrogen

peroxide in 20 inch bath or Jacuzzi, with 2 cups of Epsom salt. Patients

soak in hot water plus the Epsom salt for five minutes until pores are open,

then add the peroxide solution. This should be repeated three times a week

at bedtime. No vitamins should be taken 8 hours before bath. The peroxide

can also be directly applied to the skin after a hot shower/tub. The

peroxide should be left on for 5 minutes and then washed off.

Another useful suggestion from Dr. Nicholson - blend one whole lemon, then

add 1 cup fruit juice or water and 1 tablespoon of olive oil. Strain and

drink liquid.

Far-infrared saunas have also been found helpful in removing toxins from the

body. Instructions for building an inexpensive far-infrared sauna can be

found at www.mercola.com or www.drlwilson.com.

It is very important to drink adequate amounts of water to flush the toxins

from the body - no less than two quarts a day. Water not only flushes the

toxins out of the system, but lubricates the joints and carries nutrients to

the cells. You also need to make sure you have two to three good size bowel

movements daily. Should constipation be a problem, try taking a rounded

teaspoon of pysillium (Metamucil or a generic) in 8 ounces of water, one to

three times daily. Drinking warm prune juice on first arising in the morning

is also helpful. If necessary, you may also add powdered vitamin C (to

tolerance) to the prune juice.

Note: Scleroderma patients may have intestinal problems that involve lack of

motility in the colon. If they need a fiber supplement for stool

irregularities, they might do better with a product like Citrucel

(methylcellulose). They should avoid products with the active ingredient

pysillium.

You can find any number of sites on the web explaining this phenomenon.

Here are two -

www.earthtym.net/ref-herxheimer.htm

http://www.silver-colloids.com/Pubs/herxheimer.html

rheumatic Dosing

Hi everyone,

I am confused!! Are we saying that 200mg of Minocin a day to (5 days on two

day off) start with is a good protocal or MWF 200mg?

I lost you guys on what you were trying to state would be better to start

with.

Val

[Guest guest]

Hi Racquel,

Sounds like you had an allergic reaction. Were you taking any other new

drugs…medicines or soaps at this time? If not you probably should go to

another drug that will work just as well like zithromax. Hopefully someone will

post the directions for this. I am sorry I don’t have them.

Sounds also like you have a good mindset for staying away from the immune

killing meds. We all feel that way here. I’m sure you will get more responses

to your problem.

Hugs,

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

racquel rowe

Sent: Friday, April 23, 2010 3:32 PM

rheumatic

Subject: Re: rheumatic Dosing

Hi All,

I am totally new to this site and learning about the AP treatment. I've only

recently discovered this treatment in Canada. I am curious if anyone has

experienced skin irritations when taking Minocin 100mg 3 times per day MWF (

thought I would scratch my skin off...even the bottom of my feet itched).

Needless to say I stopped taking it because it was driving me crazy....yikes!

I want to stay with the AP program because I absolutely refused to take the

other drugs.

Thanks

[Guest guest]

Beth, Hopefully this will continue to work for you. I'm not trying to rain

on your parade but a lot of times when you take it daily you will still have

a herx or will start to go downhill. If this happens change back to MWF

asap. The reason why it did not seem to work until you started the higher

dose is because this is a slow working protocol. While waiting you did not

incur any physical damage because the antibiotic was still working.just not

fast.

Best of luck

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Beth Fletcher

Sent: Friday, April 23, 2010 2:30 PM

rheumatic

Subject: RE: rheumatic Dosing

I was on 100 mg MWF for about three months, then went to 200 mg MWF, and

finally 200mg daily. I saw no improvement in my symptoms until I started

daily. I'm seeing some results now! Had I known this, I would have risked

the herx and started off on the daily regimen.

---

[Guest guest]

Thank you Ethel and Cooky, I was thinking this might be the Herx  or an

allergic reaction. I havent introduced any new soaps or new drugs, I do not take

any vitamins the day Iam taking Minocin. I will take a look at the Herx reaction

information and determine if I will continue or change as Cooky suggested. I

will ask my doctor about Zithromax. I really appreciate all your help...this is

a really cool site..great information. It also gives me hope that I can recover

from RA and perhaps not get my old life back but appreciate a new kind of

healthy normal...

I believe once one is faced with fighting for their health you can't help but

be changed somehow.

Thank you.

________________________________

From: Cooky Stonkey <cookee1@...>

rheumatic

Sent: Fri, April 23, 2010 3:54:32 PM

Subject: RE: rheumatic Dosing

 

Hi Racquel,

Sounds like you had an allergic reaction. Were you taking any other new

drugs…medicines or soaps at this time? If not you probably should go to

another drug that will work just as well like zithromax. Hopefully someone will

post the directions for this. I am sorry I don’t have them.

Sounds also like you have a good mindset for staying away from the immune

killing meds. We all feel that way here. I’m sure you will get more responses

to your problem.

Hugs,

cooky

From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf

Of racquel rowe

Sent: Friday, April 23, 2010 3:32 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Hi All,

I am totally new to this site and learning about the AP treatment. I've only

recently discovered this treatment in Canada. I am curious if anyone has

experienced skin irritations when taking Minocin 100mg 3 times per day MWF (

thought I would scratch my skin off...even the bottom of my feet itched).

Needless to say I stopped taking it because it was driving me crazy....yikes!

I want to stay with the AP program because I absolutely refused to take the

other drugs.

Thanks

[Guest guest]

Hi Racquel,

I took Minocin for RA for almost three years. I took 100 mg daily for my

first prescription from Dr. Levin. I got a second prescription from Dr.

Mirken and he changed it to 100 mg twice a day. He didn't tell me about the

dosage change and I didn't read the new RX label (my bad!) so I ended up

continuing on 100 mg a day for a good year. Since it worked so well for me

(I noticed lots of changes within three months; i.e., no more Raynaud's, no

more sausage fingers, more energy, etc.) I never changed the dose until a

few years later when I started taking AP every other day. El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of racquel rowe

Sent: Friday, April 23, 2010 4:36 PM

rheumatic

Subject: Re: rheumatic Dosing

Thank you Ethel and Cooky, I was thinking this might be the Herx or an

allergic reaction. I havent introduced any new soaps or new drugs, I do not

take any vitamins the day Iam taking Minocin. I will take a look at the Herx

reaction information and determine if I will continue or change as Cooky

suggested. I will ask my doctor about Zithromax. I really appreciate all

your help...this is a really cool site..great information. It also gives me

hope that I can recover from RA and perhaps not get my old life back but

appreciate a new kind of healthy normal...

I believe once one is faced with fighting for their health you can't help

but be changed somehow.

Thank you.

________________________________

From: Cooky Stonkey <cookee1comcast (DOT) <mailto:cookee1%40comcast.net> net>

rheumatic@grou <mailto:rheumatic%40> ps.com

Sent: Fri, April 23, 2010 3:54:32 PM

Subject: RE: rheumatic Dosing

Hi Racquel,

Sounds like you had an allergic reaction. Were you taking any other new

drugs.medicines or soaps at this time? If not you probably should go to

another drug that will work just as well like zithromax. Hopefully someone

will post the directions for this. I am sorry I don't have them.

Sounds also like you have a good mindset for staying away from the immune

killing meds. We all feel that way here. I'm sure you will get more

responses to your problem.

Hugs,

cooky

From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On

Behalf Of racquel rowe

Sent: Friday, April 23, 2010 3:32 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Hi All,

I am totally new to this site and learning about the AP treatment. I've only

recently discovered this treatment in Canada. I am curious if anyone has

experienced skin irritations when taking Minocin 100mg 3 times per day MWF (

thought I would scratch my skin off...even the bottom of my feet itched).

Needless to say I stopped taking it because it was driving me

crazy....yikes!

I want to stay with the AP program because I absolutely refused to take the

other drugs.

Thanks

[Guest guest]

Thank you. I will definatley talk to my doctor about the dosage. I don't want to

give up on the Minocin just yet. I will try making some adjustments to see how

it works. Also, do you take it with meals or without. I've read on some sites

that you take it on an empty stomach, but my RX label says to take it with

meals.

Thanks again

________________________________

From: ehgooding <ehgooding@...>

rheumatic

Sent: Fri, April 23, 2010 5:16:52 PM

Subject: RE: rheumatic Dosing

 

Hi Racquel,

I took Minocin for RA for almost three years. I took 100 mg daily for my

first prescription from Dr. Levin. I got a second prescription from Dr.

Mirken and he changed it to 100 mg twice a day. He didn't tell me about the

dosage change and I didn't read the new RX label (my bad!) so I ended up

continuing on 100 mg a day for a good year. Since it worked so well for me

(I noticed lots of changes within three months; i.e., no more Raynaud's, no

more sausage fingers, more energy, etc.) I never changed the dose until a

few years later when I started taking AP every other day. El

_____

From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf

Of racquel rowe

Sent: Friday, April 23, 2010 4:36 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Thank you Ethel and Cooky, I was thinking this might be the Herx or an

allergic reaction. I havent introduced any new soaps or new drugs, I do not

take any vitamins the day Iam taking Minocin. I will take a look at the Herx

reaction information and determine if I will continue or change as Cooky

suggested. I will ask my doctor about Zithromax. I really appreciate all

your help...this is a really cool site..great information. It also gives me

hope that I can recover from RA and perhaps not get my old life back but

appreciate a new kind of healthy normal...

I believe once one is faced with fighting for their health you can't help

but be changed somehow.

Thank you.

____________ _________ _________ __

From: Cooky Stonkey <cookee1comcast (DOT) <mailto:cookee1% 40comcast. net> net>

rheumatic@grou <mailto:rheumatic% 40groups. com> ps.com

Sent: Fri, April 23, 2010 3:54:32 PM

Subject: RE: rheumatic Dosing

Hi Racquel,

Sounds like you had an allergic reaction. Were you taking any other new

drugs.medicines or soaps at this time? If not you probably should go to

another drug that will work just as well like zithromax. Hopefully someone

will post the directions for this. I am sorry I don't have them.

Sounds also like you have a good mindset for staying away from the immune

killing meds. We all feel that way here. I'm sure you will get more

responses to your problem.

Hugs,

cooky

From: rheumatic@grou ps.com [mailto:rheumatic@ grou ps.com] On

Behalf Of racquel rowe

Sent: Friday, April 23, 2010 3:32 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Hi All,

I am totally new to this site and learning about the AP treatment. I've only

recently discovered this treatment in Canada. I am curious if anyone has

experienced skin irritations when taking Minocin 100mg 3 times per day MWF (

thought I would scratch my skin off...even the bottom of my feet itched).

Needless to say I stopped taking it because it was driving me

crazy....yikes!

I want to stay with the AP program because I absolutely refused to take the

other drugs.

Thanks

[Guest guest]

I check in periodically and am concerned for you. I took minocin 100 mg. MWF

then increased it. I suffered acute renal failure - dialysis for just a couple

weeks after going off it altogether. My kidney function returned. Kay

(kaylap2@...<mailto:kaylap2@...>)

rheumatic Dosing

Hi everyone,

I am confused!! Are we saying that 200mg of Minocin a day to (5 days on two

day off) start with is a good protocal or MWF 200mg?

I lost you guys on what you were trying to state would be better to start

with.

Val

[Guest guest]

If you are able to take it on an empty stomach that is good and generally

recommended. However, if you cannot tolerate the med on an empty stomach

you will still get benefits should you take it with food. I do think it's

important to avoid taking iron and calcium (I think those are the two to

avoid) around the same time. I tried to take Minocin an hour before

bedtime; away from my vitamins/supplements, and enough time after dinner.

There was also a time I took it first thing in the a.m. You just have to

play with it and find the time that works best for you.

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of racquel rowe

Sent: Friday, April 23, 2010 9:48 PM

rheumatic

Subject: Re: rheumatic Dosing

Thank you. I will definatley talk to my doctor about the dosage. I don't

want to give up on the Minocin just yet. I will try making some adjustments

to see how it works. Also, do you take it with meals or without. I've read

on some sites that you take it on an empty stomach, but my RX label says to

take it with meals.

Thanks again

________________________________

From: ehgooding <ehgoodingcox (DOT) <mailto:ehgooding%40cox.net> net>

rheumatic@grou <mailto:rheumatic%40> ps.com

Sent: Fri, April 23, 2010 5:16:52 PM

Subject: RE: rheumatic Dosing

Hi Racquel,

I took Minocin for RA for almost three years. I took 100 mg daily for my

first prescription from Dr. Levin. I got a second prescription from Dr.

Mirken and he changed it to 100 mg twice a day. He didn't tell me about the

dosage change and I didn't read the new RX label (my bad!) so I ended up

continuing on 100 mg a day for a good year. Since it worked so well for me

(I noticed lots of changes within three months; i.e., no more Raynaud's, no

more sausage fingers, more energy, etc.) I never changed the dose until a

few years later when I started taking AP every other day. El

_____

From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On

Behalf

Of racquel rowe

Sent: Friday, April 23, 2010 4:36 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Thank you Ethel and Cooky, I was thinking this might be the Herx or an

allergic reaction. I havent introduced any new soaps or new drugs, I do not

take any vitamins the day Iam taking Minocin. I will take a look at the Herx

reaction information and determine if I will continue or change as Cooky

suggested. I will ask my doctor about Zithromax. I really appreciate all

your help...this is a really cool site..great information. It also gives me

hope that I can recover from RA and perhaps not get my old life back but

appreciate a new kind of healthy normal...

I believe once one is faced with fighting for their health you can't help

but be changed somehow.

Thank you.

____________ _________ _________ __

From: Cooky Stonkey <cookee1comcast (DOT) <mailto:cookee1% 40comcast. net> net>

rheumatic@grou <mailto:rheumatic% 40groups. com> ps.com

Sent: Fri, April 23, 2010 3:54:32 PM

Subject: RE: rheumatic Dosing

Hi Racquel,

Sounds like you had an allergic reaction. Were you taking any other new

drugs.medicines or soaps at this time? If not you probably should go to

another drug that will work just as well like zithromax. Hopefully someone

will post the directions for this. I am sorry I don't have them.

Sounds also like you have a good mindset for staying away from the immune

killing meds. We all feel that way here. I'm sure you will get more

responses to your problem.

Hugs,

cooky

From: rheumatic@grou ps.com [mailto:rheumatic@ grou ps.com] On

Behalf Of racquel rowe

Sent: Friday, April 23, 2010 3:32 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Hi All,

I am totally new to this site and learning about the AP treatment. I've only

recently discovered this treatment in Canada. I am curious if anyone has

experienced skin irritations when taking Minocin 100mg 3 times per day MWF (

thought I would scratch my skin off...even the bottom of my feet itched).

Needless to say I stopped taking it because it was driving me

crazy....yikes!

I want to stay with the AP program because I absolutely refused to take the

other drugs.

Thanks

[Guest guest]

Thank you ...I will play with the Minocin and if I still cannot tolerate it I

will make the change to another antibiotic.

Again thanks for everyones help.

________________________________

From: ehgooding <ehgooding@...>

rheumatic

Sent: Fri, April 23, 2010 10:37:39 PM

Subject: RE: rheumatic Dosing

 

If you are able to take it on an empty stomach that is good and generally

recommended. However, if you cannot tolerate the med on an empty stomach

you will still get benefits should you take it with food. I do think it's

important to avoid taking iron and calcium (I think those are the two to

avoid) around the same time. I tried to take Minocin an hour before

bedtime; away from my vitamins/supplement s, and enough time after dinner.

There was also a time I took it first thing in the a.m. You just have to

play with it and find the time that works best for you.

_____

From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf

Of racquel rowe

Sent: Friday, April 23, 2010 9:48 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Thank you. I will definatley talk to my doctor about the dosage. I don't

want to give up on the Minocin just yet. I will try making some adjustments

to see how it works. Also, do you take it with meals or without. I've read

on some sites that you take it on an empty stomach, but my RX label says to

take it with meals.

Thanks again

____________ _________ _________ __

From: ehgooding <ehgoodingcox (DOT) <mailto:ehgooding% 40cox.net> net>

rheumatic@grou <mailto:rheumatic% 40groups. com> ps.com

Sent: Fri, April 23, 2010 5:16:52 PM

Subject: RE: rheumatic Dosing

Hi Racquel,

I took Minocin for RA for almost three years. I took 100 mg daily for my

first prescription from Dr. Levin. I got a second prescription from Dr.

Mirken and he changed it to 100 mg twice a day. He didn't tell me about the

dosage change and I didn't read the new RX label (my bad!) so I ended up

continuing on 100 mg a day for a good year. Since it worked so well for me

(I noticed lots of changes within three months; i.e., no more Raynaud's, no

more sausage fingers, more energy, etc.) I never changed the dose until a

few years later when I started taking AP every other day. El

_____

From: rheumatic@grou ps.com [mailto:rheumatic@ grou ps.com] On

Behalf

Of racquel rowe

Sent: Friday, April 23, 2010 4:36 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Thank you Ethel and Cooky, I was thinking this might be the Herx or an

allergic reaction. I havent introduced any new soaps or new drugs, I do not

take any vitamins the day Iam taking Minocin. I will take a look at the Herx

reaction information and determine if I will continue or change as Cooky

suggested. I will ask my doctor about Zithromax. I really appreciate all

your help...this is a really cool site..great information. It also gives me

hope that I can recover from RA and perhaps not get my old life back but

appreciate a new kind of healthy normal...

I believe once one is faced with fighting for their health you can't help

but be changed somehow.

Thank you.

____________ _________ _________ __

From: Cooky Stonkey <cookee1comcast (DOT) <mailto:cookee1% 40comcast. net> net>

rheumatic@grou <mailto:rheumatic% 40groups. com> ps.com

Sent: Fri, April 23, 2010 3:54:32 PM

Subject: RE: rheumatic Dosing

Hi Racquel,

Sounds like you had an allergic reaction. Were you taking any other new

drugs.medicines or soaps at this time? If not you probably should go to

another drug that will work just as well like zithromax. Hopefully someone

will post the directions for this. I am sorry I don't have them.

Sounds also like you have a good mindset for staying away from the immune

killing meds. We all feel that way here. I'm sure you will get more

responses to your problem.

Hugs,

cooky

From: rheumatic@grou ps.com [mailto:rheumatic@ grou ps.com] On

Behalf Of racquel rowe

Sent: Friday, April 23, 2010 3:32 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Dosing

Hi All,

I am totally new to this site and learning about the AP treatment. I've only

recently discovered this treatment in Canada. I am curious if anyone has

experienced skin irritations when taking Minocin 100mg 3 times per day MWF (

thought I would scratch my skin off...even the bottom of my feet itched).

Needless to say I stopped taking it because it was driving me

crazy....yikes!

I want to stay with the AP program because I absolutely refused to take the

other drugs.

Thanks

[Guest guest]

________________________________

From: Ethel Snooks <emsnooks@...>

rheumatic

Sent: Fri, April 23, 2010 3:51:13 PM

Subject: Re: rheumatic Dosing

 

Itching can be a Jarisch Herxheimer reaction to the antibiotics. Here us

how the FAQ on www.rheumatic. org explains the JH:

6. EXPLAIN THE JARISCH HERXHEIMER REACTION.

This drug-induced flare reaction may occur within hours, the next day or

within the first weeks after the patient starts the antibiotics - or any

time there is a change in antibiotic or dosage. It is caused by a die-off of

organisms, which in turn create toxins that circulate in the body. This will

often cause a temporary worsening of symptoms. Patients may experience a

range of symptoms from mild fatigue and sleepiness to flu-like symptoms -

chills, low grade fever, night sweats, muscle aches, aching and swollen

joints, nausea, hives, skin rashes, depression and short term memory loss.

Hives and rash are sometimes mistaken for an allergic reaction.

If the Herxheimer reaction is severe, the medication may be stopped and a

small dose of prednisone (no more than 10 mg.) may be prescribed. When the

flare subsides, the medication is re-introduced at a slow rate.

When this Herxheimer reaction occurs, it is a good indicator that the

antibiotic is reaching its target - a very positive sign. The length of time

for this reaction varies from patient to patient. About twenty percent of

patients do not experience the Herxheimer reaction. Scleroderma patients

seem to experience the Herxheimer reaction less often than RA patients.

Oxidative therapy may be useful in reducing these symptoms. Garth Nicholson,

M.D., director of The Institute for Molecular Medicine in Huntington Beach,

California recommends peroxide baths (four 16 oz. bottles of 3% hydrogen

peroxide in 20 inch bath or Jacuzzi, with 2 cups of Epsom salt. Patients

soak in hot water plus the Epsom salt for five minutes until pores are open,

then add the peroxide solution. This should be repeated three times a week

at bedtime. No vitamins should be taken 8 hours before bath. The peroxide

can also be directly applied to the skin after a hot shower/tub. The

peroxide should be left on for 5 minutes and then washed off.

Another useful suggestion from Dr. Nicholson - blend one whole lemon, then

add 1 cup fruit juice or water and 1 tablespoon of olive oil. Strain and

drink liquid.

Far-infrared saunas have also been found helpful in removing toxins from the

body. Instructions for building an inexpensive far-infrared sauna can be

found at www.mercola. com or www.drlwilson. com.

It is very important to drink adequate amounts of water to flush the toxins

from the body - no less than two quarts a day. Water not only flushes the

toxins out of the system, but lubricates the joints and carries nutrients to

the cells. You also need to make sure you have two to three good size bowel

movements daily. Should constipation be a problem, try taking a rounded

teaspoon of pysillium (Metamucil or a generic) in 8 ounces of water, one to

three times daily. Drinking warm prune juice on first arising in the morning

is also helpful. If necessary, you may also add powdered vitamin C (to

tolerance) to the prune juice.

Note: Scleroderma patients may have intestinal problems that involve lack of

motility in the colon. If they need a fiber supplement for stool

irregularities, they might do better with a product like Citrucel

(methylcellulose) . They should avoid products with the active ingredient

pysillium.

You can find any number of sites on the web explaining this phenomenon.

Here are two -

www.earthtym. net/ref-herxheim er.htm

http://www.silver- colloids. com/Pubs/ herxheimer. html

rheumatic Dosing

Hi everyone,

I am confused!! Are we saying that 200mg of Minocin a day to (5 days on two

day off) start with is a good protocal or MWF 200mg?

I lost you guys on what you were trying to state would be better to start

with.

Val

[Guest guest]

I started at 3.0 in 2006 and got immediate benefits for MS and had no negative results other than some short-lived sleep disturbance at about 3 am after which I went right back to sleep. I know a lot of folks have recently advocated starting at a lower dosage, but I question whether that is necessary and whether it deprives the body of the LDN benefit that you get from the first "boost." 3.0 is still a very minute dose of LDN. In its original use it was prescribed in 50 to 150 mg doses.

And I am also very sensitive to medications. Just saying that if you are taking it for MS you might want to follow the Dr. Bihari prescription that has benefited so many of us.

Watch that the filler doesn't upset your stomach, and if it does, have the pharmacy switch fillers for you.

Good luck,

Joyce

[Guest guest]

I sort of want to second this idea of starting, under normal circumstances, as

originally suggested. Dr. Bihari used it on many, many people for many, many

years and found this to be a good way to do it.

Remember that we are already taking a minute dose compared to the safety and

efficacy studies done at 50-300 mg per day. To insist that we take a drug that

can help and then not want to feel any effects seems self defeating.

Jump in there and feel those endorphins flooding your body. It will be strange

perhaps and a bit unsettling for those of us who spent so many years nearly bed

bound and too miserable and depressed to appreciate the joys of life, but those

are exactly the feelings that you want. Don't be afraid to give it an honest

try.

If after a couple of weeks, you find that you simply cannot survive while taking

it, then lower the dose. Most people would be better served getting started at a

therapeutic dose, than spending so much energy trying to figure out how to take

it and not feel anything. That seems so backwards to me. Take it and let us know

all the exciting things that you might experience.

Francie

>

> I started at 3.0 in 2006 and got immediate benefits for MS and had no

negative results other than some short-lived sleep disturbance at about 3 am

after which I went right back to sleep. I know a lot of folks have recently

advocated starting at a lower dosage, but I question whether that is necessary

and whether it deprives the body of the LDN benefit that you get from the first

" boost. " 3.0 is still a very minute dose of LDN. In its original use it was

prescribed in 50 to 150 mg doses.

>

> And I am also very sensitive to medications. Just saying that if you are

taking it for MS you might want to follow the Dr. Bihari prescription that has

benefited so many of us.

>

> Watch that the filler doesn't upset your stomach, and if it does, have the

pharmacy switch fillers for you.

>

> Good luck,

> Joyce

[Guest guest]

You are talkin gabout ms people .

People with fibro,hashimoto,cfs are very much a different

story.

They should never start higher then 1.5 mg

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