Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Hi all, I would love to get in touch with anyone who had their first symptoms or flare of RA and was diagnosed soon after pregnancy. I am interested in Antibiotic Therapy, but have yet to run across a case where the RA was triggered by Pregnancy and then they had success with Antibiotics. I can't wait to hear from you! Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Hello Carey, I got my first major symptom 4 months after the birth of my first child, almost 27 years ago. During my following 2 pregnancies I had my only times of true remission - I felt totally well. I have been diagnosed as having RA and later 2 different Drs diagnosed AS, and a 4th (Dr Franco) didn't say too much about which but inplied RA. I seem to have something inbetween the 2! I was on antibiotics for 10 years starting in '97 and was definately helped tho not cured. Instead of gradually getting steadily worse I started getting steadily better and less fatigued. I have since gone off of wheat, potatoes, & corn and been helped by that change in diet tho not cured. I was off ALL starch except beans for the first year of the diet - '07. I think I would have done better to eliminate beans as well and have since done that, but do eat some rice and sweet potatoes. I also do better w/o sugar tho I have a hard time eliminating everything for a long period of time! I have had some more damage to my hands recently and am thinking of adding antibiotics or LDN back, and/or going off of all starch including beans. I only take a anti inflamitory every few days now intead of having to take 2 /day, like I used to - my overall inflamation level is much lower than it used to be, and the overall feeling of fatigue -weighted down w/ no energy- is usually very low or gone. Ask me any more questions if you want. Cari RA/AS '83 AP '97 Diet '07 On Fri, Apr 23, 2010 at 1:43 PM, carey largent <careylargent@...>wrote: > > > Hi all, > > I would love to get in touch with anyone who had their first symptoms > or flare of RA and was diagnosed soon after pregnancy. I am > interested in Antibiotic Therapy, but have yet to run across a case > where the RA was triggered by Pregnancy and then they had success with > Antibiotics. > > I can't wait to hear from you! > > Carey > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 you may want to get tested for Lymes. Re: rheumatic RA after pregnancy > Hello Carey, > > I got my first major symptom 4 months after the birth of my first child, > almost 27 years ago. During my following 2 pregnancies I had my only > times > of true remission - I felt totally well. I have been diagnosed as having > RA > and later 2 different Drs diagnosed AS, and a 4th (Dr Franco) didn't say > too much about which but inplied RA. I seem to have something inbetween > the > 2! > > I was on antibiotics for 10 years starting in '97 and was definately > helped > tho not cured. Instead of gradually getting steadily worse I started > getting steadily better and less fatigued. I have since gone off of > wheat, > potatoes, & corn and been helped by that change in diet tho not cured. I > was > off ALL starch except beans for the first year of the diet - '07. I think > I > would have done better to eliminate beans as well and have since done > that, > but do eat some rice and sweet potatoes. I also do better w/o sugar tho I > have a hard time eliminating everything for a long period of time! I have > had some more damage to my hands recently and am thinking of adding > antibiotics or LDN back, and/or going off of all starch including beans. > I > only take a anti inflamitory every few days now intead of having to take 2 > /day, like I used to - my overall inflamation level is much lower than it > used to be, and the overall feeling of fatigue -weighted down w/ no > energy- is usually very low or gone. > > Ask me any more questions if you want. > > Cari > RA/AS '83 > AP '97 > Diet '07 > > On Fri, Apr 23, 2010 at 1:43 PM, carey largent > <careylargent@...>wrote: > >> >> >> Hi all, >> >> I would love to get in touch with anyone who had their first symptoms >> or flare of RA and was diagnosed soon after pregnancy. I am >> interested in Antibiotic Therapy, but have yet to run across a case >> where the RA was triggered by Pregnancy and then they had success with >> Antibiotics. >> >> I can't wait to hear from you! >> >> Carey >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Hi Cari! First of all, thank you so much for taking the time to respond. I am so happy to read about someone's experience that is similar to my own. My first major symptoms occured about 6 months after the birth of my 1st child. I have been on Plaquenil and mobic, but have since dropped the mobic and now take 2.5 mg of prednisone daily. I am currently pregnant with my 2nd child (10 weeks) and feeling slightly better. I do NOT want to go on Methotrexate or the other heavy hitter drugs. I plan to try AP once I am done breastfeeding or perhaps once I get my flare after birth...whichever comes first. I do have some questions if you don't mind: -What joints were first affected...what are your worst? Mine began in my right elbow and neck and then progressed over the course of 5 months to both knees and my ankles and I have some initial pain in my right wrist and fingers. -Do you have the RheumatoidFactor? I am sero negative and I also tested negative for the HLA-b27 -How far apart were your pregnancies? Did you do treatment inbetween? If so, what? -Did your symptoms become incrementally worse after each pregnancy? Did it attack the same joints or move on to different joints after giving birth? -After pregnancies 2 & 3 how long did it take you to flare? -After the 10 years of AP, why did you stop? You've been off of it for 3 years and just managing on anti-inflammatories? -How long did it take for the AP to start working? Did you Herx? -What does it mean for you to be feeling good? How active are you able to be? -How long did it take for you to notice a difference when on the diet? I did gluten free for 2 months in the winter, but then i got pregnant and just need to eat what I can stomach, so haven't been strict about it. I didn't notice a huge difference though. Is this something a Dr. recommended or something you read about and self prescribed? I've read a lot about dietary changes for inflammation. -do you have lower back pain? Mine has just recently started to hurt ( in the past 2 weeks) and I wonder if it's associated with my RA That's a lot of questions! I am sure I have more too:) I so appreciate your willingness to communicate with me. It's very helpful! I look forward to hearing from you. Good night, carey On Wed, Apr 28, 2010 at 2:58 PM, Cari D <carilynd@...> wrote: > Hello Carey, > > I got my first major symptom 4 months after the birth of my first child, > almost 27 years ago. During my following 2 pregnancies I had my only times > of true remission - I felt totally well. I have been diagnosed as having RA > and later 2 different Drs diagnosed AS, and a 4th (Dr Franco) didn't say > too much about which but inplied RA. I seem to have something inbetween the > 2! > > I was on antibiotics for 10 years starting in '97 and was definately helped > tho not cured. Instead of gradually getting steadily worse I started > getting steadily better and less fatigued. I have since gone off of wheat, > potatoes, & corn and been helped by that change in diet tho not cured. I was > off ALL starch except beans for the first year of the diet - '07. I think I > would have done better to eliminate beans as well and have since done that, > but do eat some rice and sweet potatoes. I also do better w/o sugar tho I > have a hard time eliminating everything for a long period of time! I have > had some more damage to my hands recently and am thinking of adding > antibiotics or LDN back, and/or going off of all starch including beans. I > only take a anti inflamitory every few days now intead of having to take 2 > /day, like I used to - my overall inflamation level is much lower than it > used to be, and the overall feeling of fatigue -weighted down w/ no > energy- is usually very low or gone. > > Ask me any more questions if you want. > > Cari > RA/AS '83 > AP '97 > Diet '07 > > On Fri, Apr 23, 2010 at 1:43 PM, carey largent <careylargent@...>wrote: > >> >> >> Hi all, >> >> I would love to get in touch with anyone who had their first symptoms >> or flare of RA and was diagnosed soon after pregnancy. I am >> interested in Antibiotic Therapy, but have yet to run across a case >> where the RA was triggered by Pregnancy and then they had success with >> Antibiotics. >> >> I can't wait to hear from you! >> >> Carey >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 My grandma's half sister developed a very sever rheumatide arthritise after giving birth to her last child. She was under stress during her pregrancy and giving birth due to the some family problem. She is still alive and suffering (I guess for more than 30 years). I don't know what medications she has taken. I heard it from my mum. I have heard of many cases of rheumatide arthritise after giving birth. soheila Quote Link to comment Share on other sites More sharing options...
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