Guest guest Posted December 15, 2010 Report Share Posted December 15, 2010 I think all of us who deal with doctors (ugh) know all to well how rare it is to find a good one, even though he is far he is worth it. The only thing I can say about the rheumy not thinking $300.00 is expensive is because to him, prescribing Enbrel etc at $1850.00 a pop, $300.00 does seem cheap. Sue ---- DEBBIE GIBSON <Debbullwinkle@...> wrote: > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2010 Report Share Posted December 15, 2010 For any doctor (and as a human) to say that's not expensive, is arrogant and has no compassion. sally Re: rheumatic Some thoughts on Drs I think all of us who deal with doctors (ugh) know all to well how rare it is to find a good one, even though he is far he is worth it. The only thing I can say about the rheumy not thinking $300.00 is expensive is because to him, prescribing Enbrel etc at $1850.00 a pop, $300.00 does seem cheap. Sue ---- DEBBIE GIBSON <Debbullwinkle@...> wrote: > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2010 Report Share Posted December 15, 2010 You are so right, Debbie. But that is the nature of human beings. Some are wonderful and some are despicable. After waiting a few hours this morning, I demandeed my records and left quite angry. You know I live in Puerto Rico and for the second time I was going to see this Internal medicine doc hoping he would be the coordinator of all the records, x-rays & labs I have from all the specialists I see. Am in the midst of having a complete physical done.. Something I neglected to do while I was taking care of my mom. Since she passed, I decided to do this workup to see where I stand. Well, this morning I get to the doctors'd offfice on time. There are two men ahead of me and I am third. Several women walk in after me who are obviously Puerto Rican and i am obviously an American. Well, the second gentleman comes out and the secretary sends in one of the women who came after me. So, I ask why when I am next. Suddenly she has a hoarse voice and can't speak, so I relax a bit. Then she sends in another lady and completely ignores me and says I am next. Well, I lost my cool and accused her of discrimination. Demanded my records and left. As far as I am concerned this woman had no respect for my time and was just being spiteful by making me wait and letting in the people she knows. Mike was glad. He said, I showed that I have respect for myself and that I stood up for my rights. Maybe he doesn't need my money, but he lost a chance at finding out more about A/P. Last visit he said he had never heard of it but was going to google it and I went with an entire packet  to give to him. I am sorry for the peole he takes care of that will never know about A/P, but you can't win them all. Mike says, he would probably have scoffed at the protocol to begin with and not to fret. I have other doctore who know Rheumatologists and they are interested in my story and history. Can't win them all. I am so glad for you Debbie that Dr. Whitman has been such a help to you. Consider yourself fortunate. The docs who think that money grows on trees are the ones who are in the medical field only for the profits and are not healers. You get to the point where you learn to read most of them at first meeting. Mike did. He didn't like this guy from the get go. To all of you seeking doctors who care, that is half the battle of having these diseases. When you find a decent one, stick with him/her. They could be your best friend or worst enemy and they are worth traveling toif they care. For my first rheumy, we flew to see Dr Trentham and I am alive and thriving because of him starting me on A/P immediately. Best to you all, Dolores > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 Goodness Delores, we sure get hit with some doozies of DRs! Jeez....I am glad you walked, I would have done the same...except, with my mouth I probably would have LOUDLY and vehemently told them off...so happy you left, not meant to me...been there too my dear....seems we all have. I too saw Dr. Trentham in Boston when I was sick. DR W had already put me on the AP tho...I would still be on it today if I had not developed that lung condition....since minocin can cause it...as well as RA....DR. W wanted me off...since the photopheresis my lungs are fine..ok, damaged from the battle with OB but the disease itself stopped...so I am veryyyyyy leery of using minocin again...I don't want that OB to return and me have to do photopheresis again...while not toxic, it is grueling...I am going to ask DR. W about LDN at our next appt...or via email possibly...I KNOW the DRs here will not write me a script... Have a good holiday Delores...be well....enjoy your family...Hugs, Debb Re: rheumatic Some thoughts on Drs You are so right, Debbie. But that is the nature of human beings. Some are wonderful and some are despicable. After waiting a few hours this morning, I demandeed my records and left quite angry. You know I live in Puerto Rico and for the second time I was going to see this Internal medicine doc hoping he would be the coordinator of all the records, x-rays & labs I have from all the specialists I see. Am in the midst of having a complete physical done.. Something I neglected to do while I was taking care of my mom. Since she passed, I decided to do this workup to see where I stand. Well, this morning I get to the doctors'd offfice on time. There are two men ahead of me and I am third. Several women walk in after me who are obviously Puerto Rican and i am obviously an American. Well, the second gentleman comes out and the secretary sends in one of the women who came after me. So, I ask why when I am next. Suddenly she has a hoarse voice and can't speak, so I relax a bit. Then she sends in another lady and completely ignores me and says I am next. Well, I lost my cool and accused her of discrimination. Demanded my records and left. As far as I am concerned this woman had no respect for my time and was just being spiteful by making me wait and letting in the people she knows. Mike was glad. He said, I showed that I have respect for myself and that I stood up for my rights. Maybe he doesn't need my money, but he lost a chance at finding out more about A/P. Last visit he said he had never heard of it but was going to google it and I went with an entire packet to give to him. I am sorry for the peole he takes care of that will never know about A/P, but you can't win them all. Mike says, he would probably have scoffed at the protocol to begin with and not to fret. I have other doctore who know Rheumatologists and they are interested in my story and history. Can't win them all. I am so glad for you Debbie that Dr. Whitman has been such a help to you. Consider yourself fortunate. The docs who think that money grows on trees are the ones who are in the medical field only for the profits and are not healers. You get to the point where you learn to read most of them at first meeting. Mike did. He didn't like this guy from the get go. To all of you seeking doctors who care, that is half the battle of having these diseases. When you find a decent one, stick with him/her. They could be your best friend or worst enemy and they are worth traveling toif they care. For my first rheumy, we flew to see Dr Trentham and I am alive and thriving because of him starting me on A/P immediately. Best to you all, Dolores > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 Does anyone know a good AP doctor in the upstate NY or NYC area in addition to Dr. Whitman? Many thanks, June On Dec 15, 2010, at 7:10 PM, mannasal@... wrote: > For any doctor (and as a human) to say that's not expensive, is > arrogant and has no compassion. sally > > Re: rheumatic Some thoughts on Drs > > I think all of us who deal with doctors (ugh) know all to well how > rare it is to find a good one, even though he is far he is worth it. > > The only thing I can say about the rheumy not thinking $300.00 is > expensive is because to him, prescribing Enbrel etc at $1850.00 a > pop, $300.00 does seem cheap. > > Sue > ---- DEBBIE GIBSON <Debbullwinkle@...> wrote: > > I woke up this morning thinking about the differences in my Drs > here in town and my rheumatologist, Dr. Whitman in NJ. (I have been > seeing him for about 10 yrs now, since I was first diagnosed) > > > > I do have a local rheumy, because Dr. W insisted I do...as he is > toooo far away for emergencies, my local rheumy diagnosed Sjogrens > Syndrome ( I have RA and SD as well) and wrote me out a script for > Evoxac. I asked if it was expensive as we have no prescription > coverage, he replied no...I went to fill it...UH YEAH IT IS...unless > you don't think about $300 a month is expensive! I will contact the > company or try and get it another way...my point is...he writes out > the script and is on his way. > > > > Ok, my local eye Dr....he writes out a script for Restasis...I > ask, is it expensive, explaining we have a $10,000 deductible with > my husbands health ins and that Medicare does not cover scripts. He > says no, not really bad....I call around, for one month of Restasis, > it is $288! Hello? Thats not expensive? In what world???? > > > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung > disease, Obliterative Bronchiolitis that I developed...he advises me > that it is going to be a battle with the ins company to get the tx > approved and that he will help. Dr. Whitman sends me studies and > writes letters to ins company on my behalf. Dr. Whitman sends me to > Yale, (where Dr. Girardi and the physician who developed > photopheresis practice) They both write letters to the insurance > company as well as Dr. Girardi spoke, via telephone at my hearing > for approval with our insurance. > > > > And that is why I travel to NJ at least once a year to see DR. > Whitman. He is not especially warm and fuzzy...but he is brilliant > and he works hard for his patients. Some DRs just write scripts and > think they are done...he wants to be sure you can get what you need > to battle your disease. > > > > I am not saying that all DRs practice that way.....just that the > difference from my recent experiences was sooo magnified and it is > sooo clear to me why I adore Dr. Whitman. Having said that, I have > to add that I also have the best Internist in town! Shes great, she > follows my case and its not easy with these diseases as you all well > know. So, not all local Drs are like the above...just some...Dr. W > just goes above and beyond for his patients. > > > > Debbie in Cincinnati > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 Does anyone know a good AP doctor in the upstate NY or NYC area in addition to Dr. Whitman? Many thanks, June On Dec 15, 2010, at 7:10 PM, mannasal@... wrote: > For any doctor (and as a human) to say that's not expensive, is > arrogant and has no compassion. sally > > Re: rheumatic Some thoughts on Drs > > I think all of us who deal with doctors (ugh) know all to well how > rare it is to find a good one, even though he is far he is worth it. > > The only thing I can say about the rheumy not thinking $300.00 is > expensive is because to him, prescribing Enbrel etc at $1850.00 a > pop, $300.00 does seem cheap. > > Sue > ---- DEBBIE GIBSON <Debbullwinkle@...> wrote: > > I woke up this morning thinking about the differences in my Drs > here in town and my rheumatologist, Dr. Whitman in NJ. (I have been > seeing him for about 10 yrs now, since I was first diagnosed) > > > > I do have a local rheumy, because Dr. W insisted I do...as he is > toooo far away for emergencies, my local rheumy diagnosed Sjogrens > Syndrome ( I have RA and SD as well) and wrote me out a script for > Evoxac. I asked if it was expensive as we have no prescription > coverage, he replied no...I went to fill it...UH YEAH IT IS...unless > you don't think about $300 a month is expensive! I will contact the > company or try and get it another way...my point is...he writes out > the script and is on his way. > > > > Ok, my local eye Dr....he writes out a script for Restasis...I > ask, is it expensive, explaining we have a $10,000 deductible with > my husbands health ins and that Medicare does not cover scripts. He > says no, not really bad....I call around, for one month of Restasis, > it is $288! Hello? Thats not expensive? In what world???? > > > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung > disease, Obliterative Bronchiolitis that I developed...he advises me > that it is going to be a battle with the ins company to get the tx > approved and that he will help. Dr. Whitman sends me studies and > writes letters to ins company on my behalf. Dr. Whitman sends me to > Yale, (where Dr. Girardi and the physician who developed > photopheresis practice) They both write letters to the insurance > company as well as Dr. Girardi spoke, via telephone at my hearing > for approval with our insurance. > > > > And that is why I travel to NJ at least once a year to see DR. > Whitman. He is not especially warm and fuzzy...but he is brilliant > and he works hard for his patients. Some DRs just write scripts and > think they are done...he wants to be sure you can get what you need > to battle your disease. > > > > I am not saying that all DRs practice that way.....just that the > difference from my recent experiences was sooo magnified and it is > sooo clear to me why I adore Dr. Whitman. Having said that, I have > to add that I also have the best Internist in town! Shes great, she > follows my case and its not easy with these diseases as you all well > know. So, not all local Drs are like the above...just some...Dr. W > just goes above and beyond for his patients. > > > > Debbie in Cincinnati > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 Hello Debb, What is OB lung disease??? You mention caused by mino? Curious, thanks mickie On Thu, Dec 16, 2010 at 5:29 AM, DEBBIE GIBSON <Debbullwinkle@...>wrote: > > > Goodness Delores, we sure get hit with some doozies of DRs! Jeez....I am > glad you walked, I would have done the same...except, with my mouth I > probably would have LOUDLY and vehemently told them off...so happy you left, > not meant to me...been there too my dear....seems we all have. > I too saw Dr. Trentham in Boston when I was sick. DR W had already put me > on the AP tho...I would still be on it today if I had not developed that > lung condition....since minocin can cause it...as well as RA....DR. W wanted > me off...since the photopheresis my lungs are fine..ok, damaged from the > battle with OB but the disease itself stopped...so I am veryyyyyy leery of > using minocin again...I don't want that OB to return and me have to do > photopheresis again...while not toxic, it is grueling...I am going to ask > DR. W about LDN at our next appt...or via email possibly...I KNOW the DRs > here will not write me a script... > Have a good holiday Delores...be well....enjoy your family...Hugs, Debb > Re: rheumatic Some thoughts on Drs > > You are so right, Debbie. But that is the nature of human beings. Some are > wonderful and some are despicable. After waiting a few hours this morning, I > demandeed my records and left quite angry. You know I live in Puerto Rico > and for the second time I was going to see this Internal medicine doc hoping > he would be the coordinator of all the records, x-rays & labs I have from > all the specialists I see. Am in the midst of having a complete physical > done.. Something I neglected to do while I was taking care of my mom. Since > she passed, I decided to do this workup to see where I stand. Well, this > morning I get to the doctors'd offfice on time. There are two men ahead of > me and I am third. Several women walk in after me who are obviously Puerto > Rican and i am obviously an American. Well, the second gentleman comes out > and the secretary sends in one of the women who came after me. So, I ask why > when I am next. Suddenly she has a hoarse > voice and can't speak, so I relax a bit. Then she sends in another lady and > completely ignores me and says I am next. Well, I lost my cool and accused > her of discrimination. Demanded my records and left. As far as I am > concerned this woman had no respect for my time and was just being spiteful > by making me wait and letting in the people she knows. Mike was glad. He > said, I showed that I have respect for myself and that I stood up for my > rights. Maybe he doesn't need my money, but he lost a chance at finding out > more about A/P. Last visit he said he had never heard of it but was going to > google it and I went with an entire packet to give to him. I am sorry for > the peole he takes care of that will never know about A/P, but you can't win > them all. Mike says, he would probably have scoffed at the protocol to begin > with and not to fret. I have other doctore who know Rheumatologists and they > are interested in my story and history. > Can't win them all. I am so glad for you Debbie that Dr. Whitman has been > such a help to you. Consider yourself fortunate. The docs who think that > money grows on trees are the ones who are in the medical field only for the > profits and are not healers. You get to the point where you learn to read > most of them at first meeting. Mike did. He didn't like this guy from the > get go. To all of you seeking doctors who care, that is half the battle of > having these diseases. When you find a decent one, stick with him/her. They > could be your best friend or worst enemy and they are worth traveling toif > they care. For my first rheumy, we flew to see Dr Trentham and I am alive > and thriving because of him starting me on A/P immediately. Best to you all, > Dolores > > > > I woke up this morning thinking about the differences in my Drs here in > town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for > about 10 yrs now, since I was first diagnosed) > > > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo > far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I > have RA and SD as well) and wrote me out a script for Evoxac. I asked if it > was expensive as we have no prescription coverage, he replied no...I went to > fill it...UH YEAH IT IS...unless you don't think about $300 a month is > expensive! I will contact the company or try and get it another way...my > point is...he writes out the script and is on his way. > > > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it > expensive, explaining we have a $10,000 deductible with my husbands health > ins and that Medicare does not cover scripts. He says no, not really > bad....I call around, for one month of Restasis, it is $288! Hello? Thats > not expensive? In what world???? > > > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung > disease, Obliterative Bronchiolitis that I developed...he advises me that it > is going to be a battle with the ins company to get the tx approved and that > he will help. Dr. Whitman sends me studies and writes letters to ins company > on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the > physician who developed photopheresis practice) They both write letters to > the insurance company as well as Dr. Girardi spoke, via telephone at my > hearing for approval with our insurance. > > > > And that is why I travel to NJ at least once a year to see DR. Whitman. > He is not especially warm and fuzzy...but he is brilliant and he works hard > for his patients. Some DRs just write scripts and think they are done...he > wants to be sure you can get what you need to battle your disease. > > > > I am not saying that all DRs practice that way.....just that the > difference from my recent experiences was sooo magnified and it is sooo > clear to me why I adore Dr. Whitman. Having said that, I have to add that I > also have the best Internist in town! Shes great, she follows my case and > its not easy with these diseases as you all well know. So, not all local Drs > are like the above...just some...Dr. W just goes above and beyond for his > patients. > > > > Debbie in Cincinnati > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 Obliterative Bronchiolitis...the bronchioles were being obliterated, they carry oxygen to your lungs...it can be caused by minocin use, as documented in some patients taking minocin for acne..and it also occurs in RA...so DRs are not sure what caused mine. You are welcome. Debb Re: rheumatic Some thoughts on Drs > > > > You are so right, Debbie. But that is the nature of human beings. Some are > > wonderful and some are despicable. After waiting a few hours this morning, I > > demandeed my records and left quite angry. You know I live in Puerto Rico > > and for the second time I was going to see this Internal medicine doc hoping > > he would be the coordinator of all the records, x-rays & labs I have from > > all the specialists I see. Am in the midst of having a complete physical > > done.. Something I neglected to do while I was taking care of my mom. Since > > she passed, I decided to do this workup to see where I stand. Well, this > > morning I get to the doctors'd offfice on time. There are two men ahead of > > me and I am third. Several women walk in after me who are obviously Puerto > > Rican and i am obviously an American. Well, the second gentleman comes out > > and the secretary sends in one of the women who came after me. So, I ask why > > when I am next. Suddenly she has a hoarse > > voice and can't speak, so I relax a bit. Then she sends in another lady and > > completely ignores me and says I am next. Well, I lost my cool and accused > > her of discrimination. Demanded my records and left. As far as I am > > concerned this woman had no respect for my time and was just being spiteful > > by making me wait and letting in the people she knows. Mike was glad. He > > said, I showed that I have respect for myself and that I stood up for my > > rights. Maybe he doesn't need my money, but he lost a chance at finding out > > more about A/P. Last visit he said he had never heard of it but was going to > > google it and I went with an entire packet to give to him. I am sorry for > > the peole he takes care of that will never know about A/P, but you can't win > > them all. Mike says, he would probably have scoffed at the protocol to begin > > with and not to fret. I have other doctore who know Rheumatologists and they > > are interested in my story and history. > > Can't win them all. I am so glad for you Debbie that Dr. Whitman has been > > such a help to you. Consider yourself fortunate. The docs who think that > > money grows on trees are the ones who are in the medical field only for the > > profits and are not healers. You get to the point where you learn to read > > most of them at first meeting. Mike did. He didn't like this guy from the > > get go. To all of you seeking doctors who care, that is half the battle of > > having these diseases. When you find a decent one, stick with him/her. They > > could be your best friend or worst enemy and they are worth traveling toif > > they care. For my first rheumy, we flew to see Dr Trentham and I am alive > > and thriving because of him starting me on A/P immediately. Best to you all, > > Dolores > > > > > > > I woke up this morning thinking about the differences in my Drs here in > > town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for > > about 10 yrs now, since I was first diagnosed) > > > > > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo > > far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I > > have RA and SD as well) and wrote me out a script for Evoxac. I asked if it > > was expensive as we have no prescription coverage, he replied no...I went to > > fill it...UH YEAH IT IS...unless you don't think about $300 a month is > > expensive! I will contact the company or try and get it another way...my > > point is...he writes out the script and is on his way. > > > > > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it > > expensive, explaining we have a $10,000 deductible with my husbands health > > ins and that Medicare does not cover scripts. He says no, not really > > bad....I call around, for one month of Restasis, it is $288! Hello? Thats > > not expensive? In what world???? > > > > > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung > > disease, Obliterative Bronchiolitis that I developed...he advises me that it > > is going to be a battle with the ins company to get the tx approved and that > > he will help. Dr. Whitman sends me studies and writes letters to ins company > > on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the > > physician who developed photopheresis practice) They both write letters to > > the insurance company as well as Dr. Girardi spoke, via telephone at my > > hearing for approval with our insurance. > > > > > > And that is why I travel to NJ at least once a year to see DR. Whitman. > > He is not especially warm and fuzzy...but he is brilliant and he works hard > > for his patients. Some DRs just write scripts and think they are done...he > > wants to be sure you can get what you need to battle your disease. > > > > > > I am not saying that all DRs practice that way.....just that the > > difference from my recent experiences was sooo magnified and it is sooo > > clear to me why I adore Dr. Whitman. Having said that, I have to add that I > > also have the best Internist in town! Shes great, she follows my case and > > its not easy with these diseases as you all well know. So, not all local Drs > > are like the above...just some...Dr. W just goes above and beyond for his > > patients. > > > > > > Debbie in Cincinnati > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 Debbie. What sort of dosage. For. Hjpow long ? Sent on the Sprint® Now Network from my BlackBerry® Re: rheumatic Some thoughts on Drs Obliterative Bronchiolitis...the bronchioles were being obliterated, they carry oxygen to your lungs...it can be caused by minocin use, as documented in some patients taking minocin for acne..and it also occurs in RA...so DRs are not sure what caused mine. You are welcome. Debb Re: rheumatic Some thoughts on Drs > > > > You are so right, Debbie. But that is the nature of human beings. Some are > > wonderful and some are despicable. After waiting a few hours this morning, I > > demandeed my records and left quite angry. You know I live in Puerto Rico > > and for the second time I was going to see this Internal medicine doc hoping > > he would be the coordinator of all the records, x-rays & labs I have from > > all the specialists I see. Am in the midst of having a complete physical > > done.. Something I neglected to do while I was taking care of my mom. Since > > she passed, I decided to do this workup to see where I stand. Well, this > > morning I get to the doctors'd offfice on time. There are two men ahead of > > me and I am third. Several women walk in after me who are obviously Puerto > > Rican and i am obviously an American. Well, the second gentleman comes out > > and the secretary sends in one of the women who came after me. So, I ask why > > when I am next. Suddenly she has a hoarse > > voice and can't speak, so I relax a bit. Then she sends in another lady and > > completely ignores me and says I am next. Well, I lost my cool and accused > > her of discrimination. Demanded my records and left. As far as I am > > concerned this woman had no respect for my time and was just being spiteful > > by making me wait and letting in the people she knows. Mike was glad. He > > said, I showed that I have respect for myself and that I stood up for my > > rights. Maybe he doesn't need my money, but he lost a chance at finding out > > more about A/P. Last visit he said he had never heard of it but was going to > > google it and I went with an entire packet to give to him. I am sorry for > > the peole he takes care of that will never know about A/P, but you can't win > > them all. Mike says, he would probably have scoffed at the protocol to begin > > with and not to fret. I have other doctore who know Rheumatologists and they > > are interested in my story and history. > > Can't win them all. I am so glad for you Debbie that Dr. Whitman has been > > such a help to you. Consider yourself fortunate. The docs who think that > > money grows on trees are the ones who are in the medical field only for the > > profits and are not healers. You get to the point where you learn to read > > most of them at first meeting. Mike did. He didn't like this guy from the > > get go. To all of you seeking doctors who care, that is half the battle of > > having these diseases. When you find a decent one, stick with him/her. They > > could be your best friend or worst enemy and they are worth traveling toif > > they care. For my first rheumy, we flew to see Dr Trentham and I am alive > > and thriving because of him starting me on A/P immediately. Best to you all, > > Dolores > > > > > > > I woke up this morning thinking about the differences in my Drs here in > > town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for > > about 10 yrs now, since I was first diagnosed) > > > > > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo > > far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I > > have RA and SD as well) and wrote me out a script for Evoxac. I asked if it > > was expensive as we have no prescription coverage, he replied no...I went to > > fill it...UH YEAH IT IS...unless you don't think about $300 a month is > > expensive! I will contact the company or try and get it another way...my > > point is...he writes out the script and is on his way. > > > > > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it > > expensive, explaining we have a $10,000 deductible with my husbands health > > ins and that Medicare does not cover scripts. He says no, not really > > bad....I call around, for one month of Restasis, it is $288! Hello? Thats > > not expensive? In what world???? > > > > > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung > > disease, Obliterative Bronchiolitis that I developed...he advises me that it > > is going to be a battle with the ins company to get the tx approved and that > > he will help. Dr. Whitman sends me studies and writes letters to ins company > > on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the > > physician who developed photopheresis practice) They both write letters to > > the insurance company as well as Dr. Girardi spoke, via telephone at my > > hearing for approval with our insurance. > > > > > > And that is why I travel to NJ at least once a year to see DR. Whitman. > > He is not especially warm and fuzzy...but he is brilliant and he works hard > > for his patients. Some DRs just write scripts and think they are done...he > > wants to be sure you can get what you need to battle your disease. > > > > > > I am not saying that all DRs practice that way.....just that the > > difference from my recent experiences was sooo magnified and it is sooo > > clear to me why I adore Dr. Whitman. Having said that, I have to add that I > > also have the best Internist in town! Shes great, she follows my case and > > its not easy with these diseases as you all well know. So, not all local Drs > > are like the above...just some...Dr. W just goes above and beyond for his > > patients. > > > > > > Debbie in Cincinnati > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 and also Deb, did you mean that minocin can also cause RA??? sally Re: rheumatic Some thoughts on Drs Hello Debb, What is OB lung disease??? You mention caused by mino? urious, thanks mickie On Thu, Dec 16, 2010 at 5:29 AM, DEBBIE GIBSON <Debbullwinkle@...>wrote: > Goodness Delores, we sure get hit with some doozies of DRs! Jeez....I am glad you walked, I would have done the same...except, with my mouth I probably would have LOUDLY and vehemently told them off...so happy you left, not meant to me...been there too my dear....seems we all have. I too saw Dr. Trentham in Boston when I was sick. DR W had already put me on the AP tho...I would still be on it today if I had not developed that lung condition....since minocin can cause it...as well as RA....DR. W wanted me off...since the photopheresis my lungs are fine..ok, damaged from the battle with OB but the disease itself stopped...so I am veryyyyyy leery of using minocin again...I don't want that OB to return and me have to do photopheresis again...while not toxic, it is grueling...I am going to ask DR. W about LDN at our next appt...or via email possibly...I KNOW the DRs here will not write me a script... Have a good holiday Delores...be well....enjoy your family...Hugs, Debb Re: rheumatic Some thoughts on Drs You are so right, Debbie. But that is the nature of human beings. Some are wonderful and some are despicable. After waiting a few hours this morning, I demandeed my records and left quite angry. You know I live in Puerto Rico and for the second time I was going to see this Internal medicine doc hoping he would be the coordinator of all the records, x-rays & labs I have from all the specialists I see. Am in the midst of having a complete physical done.. Something I neglected to do while I was taking care of my mom. Since she passed, I decided to do this workup to see where I stand. Well, this morning I get to the doctors'd offfice on time. There are two men ahead of me and I am third. Several women walk in after me who are obviously Puerto Rican and i am obviously an American. Well, the second gentleman comes out and the secretary sends in one of the women who came after me. So, I ask why when I am next. Suddenly she has a hoarse voice and can't speak, so I relax a bit. Then she sends in another lady and completely ignores me and says I am next. Well, I lost my cool and accused her of discrimination. Demanded my records and left. As far as I am concerned this woman had no respect for my time and was just being spiteful by making me wait and letting in the people she knows. Mike was glad. He said, I showed that I have respect for myself and that I stood up for my rights. Maybe he doesn't need my money, but he lost a chance at finding out more about A/P. Last visit he said he had never heard of it but was going to google it and I went with an entire packet to give to him. I am sorry for the peole he takes care of that will never know about A/P, but you can't win them all. Mike says, he would probably have scoffed at the protocol to begin with and not to fret. I have other doctore who know Rheumatologists and they are interested in my story and history. Can't win them all. I am so glad for you Debbie that Dr. Whitman has been such a help to you. Consider yourself fortunate. The docs who think that money grows on trees are the ones who are in the medical field only for the profits and are not healers. You get to the point where you learn to read most of them at first meeting. Mike did. He didn't like this guy from the get go. To all of you seeking doctors who care, that is half the battle of having these diseases. When you find a decent one, stick with him/her. They could be your best friend or worst enemy and they are worth traveling toif they care. For my first rheumy, we flew to see Dr Trentham and I am alive and thriving because of him starting me on A/P immediately. Best to you all, Dolores > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 I was on minocin for about 2 yrs...100 mg, BID, twice daily...the same dosage as for minocin use in acne. I did quite well before I developed the OB, most of my symptoms disappeared. Re: rheumatic Some thoughts on Drs > > > > You are so right, Debbie. But that is the nature of human beings. Some are > > wonderful and some are despicable. After waiting a few hours this morning, I > > demandeed my records and left quite angry. You know I live in Puerto Rico > > and for the second time I was going to see this Internal medicine doc hoping > > he would be the coordinator of all the records, x-rays & labs I have from > > all the specialists I see. Am in the midst of having a complete physical > > done.. Something I neglected to do while I was taking care of my mom. Since > > she passed, I decided to do this workup to see where I stand. Well, this > > morning I get to the doctors'd offfice on time. There are two men ahead of > > me and I am third. Several women walk in after me who are obviously Puerto > > Rican and i am obviously an American. Well, the second gentleman comes out > > and the secretary sends in one of the women who came after me. So, I ask why > > when I am next. Suddenly she has a hoarse > > voice and can't speak, so I relax a bit. Then she sends in another lady and > > completely ignores me and says I am next. Well, I lost my cool and accused > > her of discrimination. Demanded my records and left. As far as I am > > concerned this woman had no respect for my time and was just being spiteful > > by making me wait and letting in the people she knows. Mike was glad. He > > said, I showed that I have respect for myself and that I stood up for my > > rights. Maybe he doesn't need my money, but he lost a chance at finding out > > more about A/P. Last visit he said he had never heard of it but was going to > > google it and I went with an entire packet to give to him. I am sorry for > > the peole he takes care of that will never know about A/P, but you can't win > > them all. Mike says, he would probably have scoffed at the protocol to begin > > with and not to fret. I have other doctore who know Rheumatologists and they > > are interested in my story and history. > > Can't win them all. I am so glad for you Debbie that Dr. Whitman has been > > such a help to you. Consider yourself fortunate. The docs who think that > > money grows on trees are the ones who are in the medical field only for the > > profits and are not healers. You get to the point where you learn to read > > most of them at first meeting. Mike did. He didn't like this guy from the > > get go. To all of you seeking doctors who care, that is half the battle of > > having these diseases. When you find a decent one, stick with him/her. They > > could be your best friend or worst enemy and they are worth traveling toif > > they care. For my first rheumy, we flew to see Dr Trentham and I am alive > > and thriving because of him starting me on A/P immediately. Best to you all, > > Dolores > > > > > > > I woke up this morning thinking about the differences in my Drs here in > > town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for > > about 10 yrs now, since I was first diagnosed) > > > > > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo > > far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I > > have RA and SD as well) and wrote me out a script for Evoxac. I asked if it > > was expensive as we have no prescription coverage, he replied no...I went to > > fill it...UH YEAH IT IS...unless you don't think about $300 a month is > > expensive! I will contact the company or try and get it another way...my > > point is...he writes out the script and is on his way. > > > > > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it > > expensive, explaining we have a $10,000 deductible with my husbands health > > ins and that Medicare does not cover scripts. He says no, not really > > bad....I call around, for one month of Restasis, it is $288! Hello? Thats > > not expensive? In what world???? > > > > > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung > > disease, Obliterative Bronchiolitis that I developed...he advises me that it > > is going to be a battle with the ins company to get the tx approved and that > > he will help. Dr. Whitman sends me studies and writes letters to ins company > > on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the > > physician who developed photopheresis practice) They both write letters to > > the insurance company as well as Dr. Girardi spoke, via telephone at my > > hearing for approval with our insurance. > > > > > > And that is why I travel to NJ at least once a year to see DR. Whitman. > > He is not especially warm and fuzzy...but he is brilliant and he works hard > > for his patients. Some DRs just write scripts and think they are done...he > > wants to be sure you can get what you need to battle your disease. > > > > > > I am not saying that all DRs practice that way.....just that the > > difference from my recent experiences was sooo magnified and it is sooo > > clear to me why I adore Dr. Whitman. Having said that, I have to add that I > > also have the best Internist in town! Shes great, she follows my case and > > its not easy with these diseases as you all well know. So, not all local Drs > > are like the above...just some...Dr. W just goes above and beyond for his > > patients. > > > > > > Debbie in Cincinnati > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2010 Report Share Posted December 16, 2010 No, minocin does not, as far as I have ever read...cause RA...no...minocin has in some instances, caused the lung disease I developed...the case studies were where minocin had been used in Acne patients on minocin, they developed OB Re: rheumatic Some thoughts on Drs You are so right, Debbie. But that is the nature of human beings. Some are wonderful and some are despicable. After waiting a few hours this morning, I demandeed my records and left quite angry. You know I live in Puerto Rico and for the second time I was going to see this Internal medicine doc hoping he would be the coordinator of all the records, x-rays & labs I have from all the specialists I see. Am in the midst of having a complete physical done.. Something I neglected to do while I was taking care of my mom. Since she passed, I decided to do this workup to see where I stand. Well, this morning I get to the doctors'd offfice on time. There are two men ahead of me and I am third. Several women walk in after me who are obviously Puerto Rican and i am obviously an American. Well, the second gentleman comes out and the secretary sends in one of the women who came after me. So, I ask why when I am next. Suddenly she has a hoarse voice and can't speak, so I relax a bit. Then she sends in another lady and completely ignores me and says I am next. Well, I lost my cool and accused her of discrimination. Demanded my records and left. As far as I am concerned this woman had no respect for my time and was just being spiteful by making me wait and letting in the people she knows. Mike was glad. He said, I showed that I have respect for myself and that I stood up for my rights. Maybe he doesn't need my money, but he lost a chance at finding out more about A/P. Last visit he said he had never heard of it but was going to google it and I went with an entire packet to give to him. I am sorry for the peole he takes care of that will never know about A/P, but you can't win them all. Mike says, he would probably have scoffed at the protocol to begin with and not to fret. I have other doctore who know Rheumatologists and they are interested in my story and history. Can't win them all. I am so glad for you Debbie that Dr. Whitman has been such a help to you. Consider yourself fortunate. The docs who think that money grows on trees are the ones who are in the medical field only for the profits and are not healers. You get to the point where you learn to read most of them at first meeting. Mike did. He didn't like this guy from the get go. To all of you seeking doctors who care, that is half the battle of having these diseases. When you find a decent one, stick with him/her. They could be your best friend or worst enemy and they are worth traveling toif they care. For my first rheumy, we flew to see Dr Trentham and I am alive and thriving because of him starting me on A/P immediately. Best to you all, Dolores > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2010 Report Share Posted December 17, 2010 Hi Debbie, I did tell her off in English and in Spanish. Don't know if she got it all, but she sure knew I was mad and what I was mad about. She said she made an error or a mistake. not sure what word describes it bes t in Spanish.. What crap! she knew I was third in line. that was disrespectful of my time and that is thant. Like I said, Mikde was hoping I would walk and I did. I am asking my other specialists to find me an Internal medicine doc or a rheumatologist who will administer A/P. meanwhile the wod is getting out and I leave the FAQ sheet with a cover letter about me with it.I hope shepasses it around. Merry Christmas and happy New Year. Dolores > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 Dolores, I like to believe that everything happens for a reason. Perhaps because she did you wrong, this receptionist will feel remorse and it will motivate her to distribute the information you shared with her. Sometimes we don't know the results, but many times I have seen very positive results arise from negative situations. Amy > > Hi Debbie, I did tell her off in English and in Spanish. Don't know if she got it all, but she sure knew I was mad and what I was mad about. She said she made an error or a mistake. not sure what word describes it bes t in Spanish.. What crap! she knew I was third in line. that was disrespectful of my time and that is thant. Like I said, Mikde was hoping I would walk and I did. I am asking my other specialists to find me an Internal medicine doc or a rheumatologist who will administer A/P. meanwhile the wod is getting out and I leave the FAQ sheet with a cover letter about me with it.I hope shepasses it around. Merry Christmas and happy New Year. Dolores > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 Delores, good for you, I am glad you did. Some people always get away with bad behavior and I think they should always be called on it! More and more lately, I am speaking up...glad you did!! Some of your other Drs should be able to point you in a good direction....I hope that the word about AP continues to go around...its ridiculous that in this computer day and age...that some DRs still are not willing to even try it! ARGHHHH Have a wonderful holiday. Hugs, Debb Re: rheumatic Some thoughts on Drs Hi Debbie, I did tell her off in English and in Spanish. Don't know if she got it all, but she sure knew I was mad and what I was mad about. She said she made an error or a mistake. not sure what word describes it bes t in Spanish.. What crap! she knew I was third in line. that was disrespectful of my time and that is thant. Like I said, Mikde was hoping I would walk and I did. I am asking my other specialists to find me an Internal medicine doc or a rheumatologist who will administer A/P. meanwhile the wod is getting out and I leave the FAQ sheet with a cover letter about me with it.I hope shepasses it around. Merry Christmas and happy New Year. Dolores > I woke up this morning thinking about the differences in my Drs here in town and my rheumatologist, Dr. Whitman in NJ. (I have been seeing him for about 10 yrs now, since I was first diagnosed) > > I do have a local rheumy, because Dr. W insisted I do...as he is toooo far away for emergencies, my local rheumy diagnosed Sjogrens Syndrome ( I have RA and SD as well) and wrote me out a script for Evoxac. I asked if it was expensive as we have no prescription coverage, he replied no...I went to fill it...UH YEAH IT IS...unless you don't think about $300 a month is expensive! I will contact the company or try and get it another way...my point is...he writes out the script and is on his way. > > Ok, my local eye Dr....he writes out a script for Restasis...I ask, is it expensive, explaining we have a $10,000 deductible with my husbands health ins and that Medicare does not cover scripts. He says no, not really bad....I call around, for one month of Restasis, it is $288! Hello? Thats not expensive? In what world???? > > I see Dr. Whitman, he orders a treatment, Photopheresis for a lung disease, Obliterative Bronchiolitis that I developed...he advises me that it is going to be a battle with the ins company to get the tx approved and that he will help. Dr. Whitman sends me studies and writes letters to ins company on my behalf. Dr. Whitman sends me to Yale, (where Dr. Girardi and the physician who developed photopheresis practice) They both write letters to the insurance company as well as Dr. Girardi spoke, via telephone at my hearing for approval with our insurance. > > And that is why I travel to NJ at least once a year to see DR. Whitman. He is not especially warm and fuzzy...but he is brilliant and he works hard for his patients. Some DRs just write scripts and think they are done...he wants to be sure you can get what you need to battle your disease. > > I am not saying that all DRs practice that way.....just that the difference from my recent experiences was sooo magnified and it is sooo clear to me why I adore Dr. Whitman. Having said that, I have to add that I also have the best Internist in town! Shes great, she follows my case and its not easy with these diseases as you all well know. So, not all local Drs are like the above...just some...Dr. W just goes above and beyond for his patients. > > Debbie in Cincinnati > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 Debb, What were your symptoms of OB? I have chronic brochitis, but I think it was diagnosed before I ever got the RA. So long ago I don't remember! M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 , the OB initially presented with shortness of breath...because the bronchioles carry oxygen to your body, when they become inflamed and they obliterated...you lose ability to breathe...my lung function dropped from a great PFT high normal to a veryy low diffusion of 55...with the photopheresis, my lung function went back up to 77 or so...not good, but beats...the 55 diffusion...it is diagnosed by CT scan...which I avoid now like the plague because I had so many...and of course, by shortness of breath...pred worked but when I went off the pred...it came back...the long term solution for me was photopheresis. Let me know if you have any more questions, happy to help. Debbie rheumatic Re: Some thoughts on Drs Debb, What were your symptoms of OB? I have chronic brochitis, but I think it was diagnosed before I ever got the RA. So long ago I don't remember! M. Quote Link to comment Share on other sites More sharing options...
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