FYI

[Guest guest]

Will do.

Hugs back to you,

beth

> HI beth & Larry too,

> This is great, would you mind very much when posting these articles

to

> the list, also sending a copy to:

> Lyme-documentsegroups ?? This way we are killing two birds with one

> stone and will save Kay, Robynn and I lots of extra work in reposting to

> that list. Lucky you getting into Nexus!

> Hugs,

> Marta

> ---

[Guest guest]

This was the response I received from truthorfiction.com

Just incase anyone wants to know.

[Guest guest]

Sure thing, here you go!!

Just resending truthorfiction.com's response-

Wow.

What a misguided attempt at analogy.

If you are a part of the community of little people, you ought to spread the

word to have people write to this fellow and tell him how offensive his article

is.

It's easy to see what he was trying to do...to use pictures or symbols for

making his point. He obviously didn't have any idea how that would come across

to the people he was describing.

Technically, by the way, he's guilty of ignorance and insensitivity, not slander

or defamation of character. Those are legal terms that describe the intentional

spreading of misinformation about a person in particular and which causes

measurable harm to the person. I'm not an attorney, but I would guess that his

in-bad-taste article is not anything illegal.

Blessings...

[Guest guest]

Is there more to this article??? very interested in the vaccine info - have

too many friends who r thinking about or already have taken it -

<<<<<WCBS 5/28/00 - 6:16:40 PM ..... smithkline- beecham, charging that

lymerix isn't safe. Lyme disease is transmitted to humans by deer ticks.

kline insists their tests show the vaccine does not cause any harmful

side effects. >> We're absolutely convinced that the vaccine does not cause

arthritis. All the data have been submitted to the f.D.A.. They deemed that

the vaccine is safe and effective. >> But dr. Charlene demarco, a lyme

disease specialist, will not prescribe lymerix. She worries about the

long-term impact as more patients take lymerix. >> By using this vaccine,

we are creating a monster. We're creating an auto-immune lyme disease

that's untreatable. >> Whatever happens in court, zelma johnson fears the

vaccine has changed her life forever. >> What is it that you used to do

that you can't do anymore? >> I think the hardest thing that i can't do is

hold my grandchildren because i don't have the strength to give them a hug

and make them secure. >> But for thousands of americans concerned about

lym>>>>

[Guest guest]

Is there more to this article??? very interested in the vaccine info - have

too many friends who r thinking about or already have taken it -

<<<<<WCBS 5/28/00 - 6:16:40 PM ..... smithkline- beecham, charging that

lymerix isn't safe. Lyme disease is transmitted to humans by deer ticks.

kline insists their tests show the vaccine does not cause any harmful

side effects. >> We're absolutely convinced that the vaccine does not cause

arthritis. All the data have been submitted to the f.D.A.. They deemed that

the vaccine is safe and effective. >> But dr. Charlene demarco, a lyme

disease specialist, will not prescribe lymerix. She worries about the

long-term impact as more patients take lymerix. >> By using this vaccine,

we are creating a monster. We're creating an auto-immune lyme disease

that's untreatable. >> Whatever happens in court, zelma johnson fears the

vaccine has changed her life forever. >> What is it that you used to do

that you can't do anymore? >> I think the hardest thing that i can't do is

hold my grandchildren because i don't have the strength to give them a hug

and make them secure. >> But for thousands of americans concerned about

lym>>>>

[Guest guest]

Concerning phage research, I have contacted a number of research sites to

determine feasibility of developing a phage which would go after the ketes.

Basically, I was told that at this time, it is very difficult because of the

nature of the kete, however the hope is that one day they will be able to do

it. Personally, I felt this was the way to go for this disease. Perhaps if

others write to some of the phage research orgs. we can peek their interest.

Renie

[Guest guest]

I just want to keep all of you updated on what's going on with eGroups and

. This is a message I received today. (I thought it was suppose to be

a " merger " not an acquisition.)

Robynn

welcomes eGroups Moderators

>

> has completed its acquisition of eGroups, and we're happy to

> officially welcome you to the family. You can learn more about

> the completion of the deal by reading our press release

> (local/pr/pr083100.html). There is a great deal

> of work ahead as we work to bring eGroups into the network of

> services, but we're very excited about the future.

>

> We hope you'll be celebrating with us as we begin expanding our

> ability to help people collaborate, exchange ideas, and build

> relationships around the world.

>

> Although we're busy working on future plans, it's important to know

> that there will be no immediate changes to either the eGroups or

> Clubs services. All of the current features, policies, and

> services will continue to be supported.

>

> Users will continue to be governed by the Terms of Service they

> initially agreed to upon registering for either service. In other

> words, the eGroups Terms of Service will continue to apply to eGroups

> users.

>

> Short term, we'll continue planning for the integrated service, while

> trying our best to anticipate any major issues that might arise. We

> will share news on our progress in the merger discussion group

> (merger), and we encourage you to

> participate in the dialogue by voicing your concerns.

>

> We understand there will be a lot of questions regarding this

> integration and we'll try to answer them all as best we can. We've

> also created a Help Center (http://help./help/egroups) on

> to serve as a home for commonly asked questions.

>

> Thanks for your patience, encouragement, and feedback throughout this

> process.

>

> All the best,

>

> The folks from eGroups and

>

[Guest guest]

Where did you find the pretzels - in Seattle too? Can't wait to try them!

Tricia

In a message dated 11/15/00 11:05:46 AM, lescase@... writes:

<< Just tried Vita Spelt Pretzels and they are great! Also for those of you

in

the Seattle area there is a wonderful service PioneerOrganics.com they

deliver fresh organic fruits + vegetables to you --- Love it ,,, for $29/week

you get a nice sized box jam packed w/ good stuff ! here's to a healthy

day!,,,,

[Guest guest]

In a message dated 11/21/2000 12:27:06 PM Eastern Standard Time,

larryy@... writes:

<< FDA, NIH, CDC Reconsider System For Ensuring Vaccine Safety >>

Can you provide a URL to this story? I'd like to send portions to a vaccine

newsgroup I'm on, but we can't reprint whle stories- just snippets; I'd like

to be able to provide them a link to the full text. Thanks

-Jules

[Guest guest]

Larry-

These cases that you have cited sure do sound an awfully lot like lyme. Were

these patients tested properly for lyme? (rhetoric ?). (Sr.) and

Barbara Bush have been dxd w/ Graves disease and Barbara had a hip

replacement a few yrs ago and now had his done last week. My husband

was dxd w/ Graves too but it turned out to be almost lethal lyme. Too much of

a coincidence for me. SOOOoooo many have this. I have 2 people in my tiny,

1.6 sq. mile town, that were dxd w/ ALS/Lou Gehrigs. Kathleen, a 71yr old

woman, perfectly healthy this past August, fell and went downhill fast. I met

her the end of Sept. to do something personal for her. I asked her why she

could not walk and why she had a brace on her right arm. She looked at me w/

tears in her eyes and said " Lou Gehrigs " . I asked why the brace and she said

" Carpal tunnel " . My alarms went off (as they so often do). I asked her

gingerly if she ever had any ringing, buzzing in her ears and she replied

" all the time " . I asked about pain in the feet, she said " I have heel spurs " .

I KNEW IT WAS LYME---could also be ALS, but definitely lyme. I gave her the

symptom list and left. Two wks. later had a call from her for me to come

over. She took a lyme test with HER dr., he said " negative " -- only 3 positive

bands. I insisted she see my LLMD. She did, came up highly positive for lyme

and babesia!!!!!!! Got her started on bicillin shots. (could not get IV).

Ended up in ER, admitted, near death before T-giving. She started w/ Suprax

and continued bicillin shots and w/in 5 days, yes, 5 days, she went from a

terrible (lyme) cough, couldn't breath, couldn't move, to sitting up,

laughing, eating. WHAT A MIRACLE!!!! Moved her to nursing home. There 1 1/2

days, 1st night slept like a baby--which she hadn't done in a long time.

Second night rushed to ER cuz of chest pains/severe compression

(babesia!!!!), given nitro 2ce, admitted. Ended up w/ severe hiatel (sp?)

hernia and had surgery cuz it grew around the heart, esophogus, stomach.

Recovering beautifully now and out of intensive care. DR IS FINALL SAYING

" DONT THINK IT IS ALS " Put her on IV rocephin and flagyl--improving!!!!!!

She was left for dead at T-giving. Thank you, God, for putting sweet Kathleen

in my path.

just wanted to share a wonderful lyme story.....

sue in nj

[Guest guest]

Hi everyone: I got the news from my llmd today that my pituitary is not

functioning properly. I am having wierder symptoms with each day even on

antibx for lyme. Ears growing more and more painful...sharp pain...half my

body as if one could draw a line from middle of my head down to my feet..cold

and fingers numb...ears are driving me crazy. Tried ms contin...made things

worse now on neurontin, klonapin, and others for nerve pain but still pain

remains. What a nightmare to go through. I use garlic and olive oil ear

drops with mullein in it with slight relief but temporary.

Anyone else go through these things?

Donna

[Guest guest]

In a message dated 4/11/01 8:32:37 AM, larryy@... writes:

<< New behavioral therapy helps treat insomnia

>>

***Try treating insomniacs (the lymie ones) with antibiotics and you will see

a big difference in their sleeping patterns. Before I was treated and even

while I was being treated I STILL had the 'wakes up early and cannot go back

to sleep, like 5am every day!!!!'.

Now, after being treated for 2 1/2 yrs., about 6mos ago I really have slept

soundly every night.

Spirochetes.

sue in nj

[Guest guest]

> In that vane, it seems to me that relapse with Lyme patients is

> consistent with relapsing-remitting MS.

I also feel this way, thats why so many people with MS are told they are

'allergic' to abx, can we say 'herx'? *-)

I also think that an MSer taking steroids when it could be Lyme, is a double

edged sword. They know that MS will progress, well, give a Lymie steroids

and they will get worse, the more steroids, the worse, etc etc.

[Guest guest]

Thanks Larry.

Someone else recently sent this article to me and it has me scared to

death. I am trying to get an appointment with my neurologist to discuss

this possibility. Someone suggested I contact Dr Bransfield at his website,

I did so on Sunday and was surprised to hear back from him in moments. He

told me it is quite common to have musical hallucinations in Lyme. I know

of only one other case personally, but maybe he would know better. He says

I should return to my neurologist or find a good LL Neuro.

There is one in NJ, but he is pretty far away from my home.

Referring to your prior post about MS, how did you learn that you had

demylination on your spinal cord? I have only had three brain MRI's and

they showed multiple lesions on my brain and the radiologists indicated MS

on all the reports. As I mentioned in another post, I have had much

difficulty urinating, and this is frightening, I hope they can treat this

with medication, I would hate to have to catheterize myself daily. Pardon

my asking, but has this been a problem for you as well? Good luck with the

Novantrone therapy, do keep us posted.

Marta

> To All (Marta),

> FYI.

> Larry NV

> Aneurysm brings on musical hallucinations

>

> April 20, 2001

>

> NEW YORK (Reuters Health) - Bulging blood vessels in the brain of a

> 61-year-old woman caused seizures that in turn brought on complex musical

> hallucinations, including Christmas songs during December and tunes with

> religious overtones at other times.

>

> Fixing the two bulges, or aneurysms, ended the woman's hallucinations, Dr.

> L. and colleagues from the Mayo Clinic in sdale,

> Arizona, report in the April issue of the journal Mayo Clinic Proceedings.

>

>

[Guest guest]

Marta,

I've have no urological problems. My major symptom is spastic

paraparsis (my left leg and arm are constantly in spasm, can't walk and left

hand is in a claw). My ears constantly scream, I have Bell's palsy on the

left side and my left eye waters constantly. Some symptoms are general

neurological problems but some are semi exclusive to Lyme (MS has ringing of

the ears but not screaming, tennitis is a definite symptom of Lyme, Bell's

palsy, eyewatering etc.).

My first MRI after symptoms manifested showed plaques in the brain. The

neurologist at the time thought they were artifacts. Follow up brain and

cervical MRIs were normal until a year ago. The cervical MRI showed a clear

plaque at C4. I've had 7 MRIs since the onset of symptoms. I think all

radiologist read plaques as MS. My last MRI was read as demyeliting

secondary to Lyme (by the radiologist) but the bozo neurologist said MS.

I do have poly neuropathy of both hands (probably carpal tunnel).

I'll keep you posted.

Larry NV

[Guest guest]

Larry,

I am so sorry to hear all the problems you are experiencing, you sure

have been put through the mill. I guess I shouldn't ask, but are you still

trying to work?

I will be praying for you and all of us who suffer from this terrible

disease.

Marta

----- Original Message -----

From: " larryyenko " <larryy@...>

> Marta,

> I've have no urological problems. My major symptom is spastic

> paraparsis (my left leg and arm are constantly in spasm, can't walk and

left

> hand is in a claw). My ears constantly scream, I have Bell's palsy on the

> left side and my left eye waters constantly. Some symptoms are general

> neurological problems but some are semi exclusive to Lyme (MS has ringing

of

> the ears but not screaming, tennitis is a definite symptom of Lyme, Bell's

> palsy, eyewatering etc.).

> My first MRI after symptoms manifested showed plaques in the brain.

The

> neurologist at the time thought they were artifacts. Follow up brain and

> cervical MRIs were normal until a year ago. The cervical MRI showed a

clear

> plaque at C4. I've had 7 MRIs since the onset of symptoms. I think all

> radiologist read plaques as MS. My last MRI was read as demyeliting

> secondary to Lyme (by the radiologist) but the bozo neurologist said MS.

> I do have poly neuropathy of both hands (probably carpal tunnel).

> I'll keep you posted.

> Larry NV

>

>

[Guest guest]

>From: " M.McCoy " <mlmccoy@...>

>Reply-

>< >

>Subject: Re: [ ] FYI

>Date: Tue, 24 Apr 2001 14:29:37 -0400

>After i had the flu like illness my bladder completely shut down.Had to

>have a catheter for 2 weeks,was told it was a spastic bladder.Had lesions

>on my spine,diagnoised as M.S.Had I.V.rocephin and other antibiotics in the

>hospital.Stayed 11 days and insisted they discharge me,couldnt take any

>more " whats wrong with you " and " why are you still here " questions.Looked

>fine on the outside ,sick on the inside dummies!!!!!!!!It finally cleared

>up and no more problems.Love ya all Janet

>

>. As I mentioned in another post, I have had much

>difficulty urinating, and this is frightening, I hope they can treat this

>with medication, I would hate to have to catheterize myself daily. Pardon

>my asking, but has this been a problem for you as well? Good luck with the

>Novantrone therapy, do keep us posted.

>Marta

>

>

>

> > To All (Marta),

> > FYI.

> > Larry NV

> > Aneurysm brings on musical hallucinations

> >

> > April 20, 2001

> >

> > NEW YORK (Reuters Health) - Bulging blood vessels in the brain of a

> > 61-year-old woman caused seizures that in turn brought on complex

>musical

> > hallucinations, including Christmas songs during December and tunes with

> > religious overtones at other times.

> >

> > Fixing the two bulges, or aneurysms, ended the woman's hallucinations,

>Dr.

> > L. and colleagues from the Mayo Clinic in sdale,

> > Arizona, report in the April issue of the journal Mayo Clinic

>Proceedings.

> >

> >

>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Marta,

I haven't worked since November 1999. I was lucky to this extent, I got

SSD without a problem right away.

Thanks for your concern and prayers.

Larry NV

[Guest guest]

Why is this important on the lyme board?

Just wondering

Patty

[Guest guest]

> Why is this important on the lyme board?

I believe it was posted because it showed that a disease that had been

thought of as non-transmittable sexually, was. 4 times I think. That is

relavant to our discussion about Lyme being or not, sexually transmittable.

[Guest guest]

In a message dated 4/12/2001 12:06:49 PM Eastern Daylight Time,

larryy@... writes:

> Typical pain medications do not work in chronic pain and so MS

> patients need to be treated with medications such as a class of

> antidepressants known as tricyclic antidepressants, and anticonvulsants.

> Typically, more than one medication or combination needs to be given in

> order to effectively tackle the pain, Rizzo pointed out.

>

> Some of the medications Rizzo finds to be effective are gabapentin

> (Neurontin), lamotrigine (Lamictal), amitriptyline, the broad-spectrum

> anticonvulsant (divalproex) Depakote, topirimate (Topamax) and baclofen.

> OxyContin, a new opiate, has shown no results in managing chronic MS pain,

> according to Rizzo.

>

I take most of these meds, but for Lyme, not for MS.

R

[Guest guest]

In a message dated 4/24/2001 2:31:00 PM Eastern Daylight Time,

mlmccoy@... writes:

> As I mentioned in another post, I have had much

> difficulty urinating, and this is frightening, I hope they can treat this

> with medication, I would hate to have to catheterize myself daily

Hi Marta,

I can't remember if I posted an answer to this or not.

I have Interstitial Cystitis from Lyme, which has given me chronic bladder

problems.

If you want specific details, please email me directly or phone me at

973-228-3535.

I take a prescription med named Elmiron for the bladder problems.

Have you tried it? Maybe it's time we talked, but good luck either way.

Hugs,

a Aida in Caldwell, NJ

[Guest guest]

Hi a,

Thanks for the offer, I just think that my problem is more a

neurological thing, not IC. I suffer no pain in the bladder area, and I

have no urgency or frequency, just difficulty starting up and getting a good

stream going. Maybe it's my prostate? Only kidding.

Marta

----- Original Message -----

From: <GOODGIRL95@...>

>

> Hi Marta,

> I can't remember if I posted an answer to this or not.

> I have Interstitial Cystitis from Lyme, which has given me chronic bladder

> problems.

> If you want specific details, please email me directly or phone me at

> I take a prescription med named Elmiron for the bladder problems.

> Have you tried it? Maybe it's time we talked, but good luck either way.

>

> Hugs,

> a Aida in Caldwell, NJ

[Guest guest]

Surely you ALL know to be very careful when removing an attached

tick. There are tick removal kits that can be purchased. It is

important to NOT squeeze the tick when removing it with the small

pointed tweezers. Do nothing to alarm the tick! once the tick is

removed, DO NOT crush it between your finger/fingernails! Put it in

a container of some type, if possible, and keep it for testing in

case symptoms occur. The tick can be tested whether dead or alive.

(I suggest putting all the surviving live ticks in an envelope and

mailing them to St**re or Datwyler! ha.) Lovey

> To All,

> FYI.

> Larry NV

> What's The Best Way To Remove Ticks?

>

> May 29, 2001

> ine: My son is a caddy at a golf course and he's been getting a

lot of

> ticks that he's been brushing off; none have been embedded yet.

There is a

> lot of different information about how to effectively remove a tick

if it's

> embedded. Other caddies are telling him to take a match to the tick

and it

> will back out. I've heard also to take tweezers and pull it out.

>

> Dr. Dean: You are right. There is so much misinformation out there -

pour

> lighter fluid on them and they'll back out. But, they won't back-

out -- they

> 're tough! As a matter of fact, I found one crawling on my clothes

over the

> weekend. They're incredible creatures.

>

> There was a professor at Yale who was very involved in Lyme disease

> research, of course, with Lyme, Connecticut being where it all

began. He

> found that people in nudist colonies don't get Lyme disease because

they don

> 't get tick bites. The tick is so smart that it likes people with

clothing,

> so it can crawl under the clothing and hide.

>

> Don't believe the old tale that they screw-in clockwise, so you

want to

> unscrew them counterclockwise. Don't, because that's a quick way to

break

> off the head and get a real inflammation.

>

> The way to remove them is to simply grab them and pull straight and

steady.

> You probably should wear rubber gloves, but if you don't have

rubber gloves,

> wash your hands well afterwards. Do this and they will let go. All

these

> other things will kill them right there on the spot and then they

won't let

> go. You can pull their little heads off and they don't let go.

>

> So if you can pull a little critter's head off and it doesn't let

go, what

> good will putting Vaseline on it do? That won't do it. None of

those methods

> are approved. Yes, forceps are probably the best way to go, a

little pair of

> tweezers. And since he's on the golf course, maybe he should keep a

Swiss

> Army knife that contains little tweezers to pull off any embedded

ticks.

>

> ine: As far as insect repellant, is there any I can buy that

has the

> most DEET to provide complete protection?

>

> Dr. Dean: Most products will not have more than 30 percent DEET.

It's a

> matter of wearing long sleeves. Cuffs should be wrapped with

something. Many

> now on golf courses will tuck their pants into their socks. Even

fashion is

> going along with tick bite prevention. Check yourself afterwards,

and make

> certain to look in those little special dark places, because that's

where

> they also like to hide.

[Guest guest]

> What is a fart and why does it smell?

According to my deceased deaf uncle, farts smell so that the deaf can

enjoy them.

Anon