Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 I have some stores there too.. And I will take requests.. If you want a specific design I Can custom make one for you! I love cafe press! for AWESOME Autism gear look here! http://www.cafepress.com/autismawarenes http://www.cafepress.com/wonderfulautism for some strong attitude gear look here! http://www.cafepress.com/stronggear -- ( ) FYI For all of us who have always wanted a great retort for people who are critical of us and our kids and grandkids, check out www.cafepress.com search under autism and there are pages and pages of products, including t-shirts that say it all !!!!!! hugs Wags! Wags! Wags! Lowry "There is no psychiatrist in the world like a puppy licking your face." Author Ben Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I was wondering why y'all hadn't posted about this!! I am just getting caught up and then I was going to post it. I was out of town when this whole thing happened. My best friend (her child is autistic) called me to tell me all about it. I think the tide is starting to turn. I hope one day parents, regardless of what state they live in, can decide what vaccines they want and what vaccines they don't want and have those decisions respected. In an age where we have all these candidates talking about personal responsibility when it comes to healthcare, I'd like to see a time when parents can research the ins and outs of each vaccine and be able, via personal responsibility, to make choices regarding how their child is vaccinated. In truth, I never thought I'd see anything come out of vaccine court like this ruling at any point in my lifetime. I really didn't. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 In a message dated 2/27/2008 9:05:56 A.M. Eastern Standard Time, catnip9@... writes: I hope one day parents, regardless of what state they live in, can decide what vaccines they want and what vaccines they don't want and have those decisions respected. Actually-- This is already posssible to do, but most people are not aware of their rights. There are exemptions that all the states have where the parents can choose not to vaccinate their children. Becky **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 I would like to send this out to families in the program I oversee. This sounds like a much needed act, and I hope I can expand the " army " to get it passed. Is there someone who can keep me informed of the progress on this bill and when legislators should be contacted? Thanks, _____ From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of Marie Grass Amenta Sent: Monday, March 17, 2008 10:34 PM IPADDUnite Subject: FYI 10) Dodd Anounces The Disability Savings Act Of 2008 By JESSE A. HAMILTON |Washington Bureau Chief WASHINGTON - Sen. Dodd announced significant new legislation today that would allow families of people with disabilities to save money in tax-advantaged accounts. The Disability Savings Act of 2008 would allow savings similar to college 529 plans, so families could put aside money for care without jeopardizing their access to existing government assistance. Dodd said it would give relief to families asking the stressful question: When we're gone, who will take care of our loved one with a disability? The announcement, in a room of the Capitol, was before a friendly crowd, mostly from Autism Speaks, an organization founded by Connecticut residents Bob and Suzanne , who have an autistic grandson. When using money from the accounts, which would be capped at $1 million each, certain things would be tax free, including education, medical services, job training and transportation. Dodd didn't downplay the difficulty of passing a bill during a tumultuous election year. He told the crowd that he needed an influential co-sponsor from the other side of the aisle. And he said he would need an army of supporters, to which he added: " And you're my army. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Thanks Marie! Marie Grass Amenta <teteme@...> wrote: 10) Dodd Anounces The Disability Savings Act Of 2008 By JESSE A. HAMILTON |Washington Bureau Chief WASHINGTON - Sen. Dodd announced significant new legislation today that would allow families of people with disabilities to save money in tax-advantaged accounts. The Disability Savings Act of 2008 would allow savings similar to college 529 plans, so families could put aside money for care without jeopardizing their access to existing government assistance. Dodd said it would give relief to families asking the stressful question: When we're gone, who will take care of our loved one with a disability? The announcement, in a room of the Capitol, was before a friendly crowd, mostly from Autism Speaks, an organization founded by Connecticut residents Bob and Suzanne , who have an autistic grandson. When using money from the accounts, which would be capped at $1 million each, certain things would be tax free, including education, medical services, job training and transportation. Dodd didn't downplay the difficulty of passing a bill during a tumultuous election year. He told the crowd that he needed an influential co-sponsor from the other side of the aisle. And he said he would need an army of supporters, to which he added: " And you're my army. " Finato www.AngelSpeaks.com www.wegrowdreams.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 I am currently getting some info on the Dodd bill. It appears it may have some flaws, so, before anyone goes making any phone calls, I would recommend you wait. I will have more info shortly. Ellen Ellen Garber Bronfeld egskb@... FYI 10) Dodd Anounces The Disability Savings Act Of 2008 By JESSE A. HAMILTON |Washington Bureau Chief WASHINGTON - Sen. Dodd announced significant new legislation today that would allow families of people with disabilities to save money in tax-advantaged accounts. The Disability Savings Act of 2008 would allow savings similar to college 529 plans, so families could put aside money for care without jeopardizing their access to existing government assistance. Dodd said it would give relief to families asking the stressful question: When we're gone, who will take care of our loved one with a disability? The announcement, in a room of the Capitol, was before a friendly crowd, mostly from Autism Speaks, an organization founded by Connecticut residents Bob and Suzanne , who have an autistic grandson. When using money from the accounts, which would be capped at $1 million each, certain things would be tax free, including education, medical services, job training and transportation. Dodd didn't downplay the difficulty of passing a bill during a tumultuous election year. He told the crowd that he needed an influential co-sponsor from the other side of the aisle. And he said he would need an army of supporters, to which he added: " And you're my army. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Gee, and Dick Durbin is in my school today. Should I print this out and hand it to him anyway?? > > 10) Dodd Anounces The Disability Savings Act Of 2008 > > By JESSE A. HAMILTON |Washington Bureau > Chief > > > WASHINGTON - Sen. Dodd announced significant new > legislation today that would allow families of people with > disabilities to save money in tax-advantaged accounts. The > Disability Savings Act of 2008 would allow savings similar to > college 529 plans, so families could put aside money for care > without jeopardizing their access to existing government assistance. > > Dodd said it would give relief to families asking the stressful > question: When we're gone, who will take care of our loved one with > a disability? > > The announcement, in a room of the Capitol, was before a friendly > crowd, mostly from Autism Speaks, an organization founded by > Connecticut residents Bob and Suzanne , who have an autistic > grandson. > > When using money from the accounts, which would be capped at $1 > million each, certain things would be tax free, including education, > medical services, job training and transportation. > > Dodd didn't downplay the difficulty of passing a bill during a > tumultuous election year. He told the crowd that he needed an > influential co-sponsor from the other side of the aisle. And he said > he would need an army of supporters, to which he added: " And you're > my army. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Here is a link to information about this bill. I think we should ask Rubin to give us his opinion. http://www.autism-society.org/site/DocServer/FSAID.pdf?docID=7521 Charlotte FYI 10) Dodd Anounces The Disability Savings Act Of 2008 By JESSE A. HAMILTON |Washington Bureau Chief WASHINGTON - Sen. Dodd announced significant new legislation today that would allow families of people with disabilities to save money in tax-advantaged accounts. The Disability Savings Act of 2008 would allow savings similar to college 529 plans, so families could put aside money for care without jeopardizing their access to existing government assistance. Dodd said it would give relief to families asking the stressful question: When we're gone, who will take care of our loved one with a disability? The announcement, in a room of the Capitol, was before a friendly crowd, mostly from Autism Speaks, an organization founded by Connecticut residents Bob and Suzanne , who have an autistic grandson. When using money from the accounts, which would be capped at $1 million each, certain things would be tax free, including education, medical services, job training and transportation. Dodd didn't downplay the difficulty of passing a bill during a tumultuous election year. He told the crowd that he needed an influential co-sponsor from the other side of the aisle. And he said he would need an army of supporters, to which he added: " And you're my army. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Thanks for doing the " legwork " . I got the info about this from a autism newsletter from Tennessee--it sounds promising, even if it is flawed. Will have to read it in depth. I have met Dodd and my son, , has actually shaken his hand. We were visiting our Congressman, Jr. in D.C., and he introduced us. Senator Dodd shook all our hands and when he came to Russ, we told him he has autism--the Senator looked at him and said, " well, he can still shake my hand " and Russ did and was perfectly behaved. At least he realises the need for something! Marie > > Here is a link to information about this bill. I think we should ask Rubin to give us his opinion. > http://www.autism-society.org/site/DocServer/FSAID.pdf?docID=7521 > > Charlotte > > > > FYI > > 10) Dodd Anounces The Disability Savings Act Of 2008 > > By JESSE A. HAMILTON |Washington Bureau > Chief > > WASHINGTON - Sen. Dodd announced significant new > legislation today that would allow families of people with > disabilities to save money in tax-advantaged accounts. The > Disability Savings Act of 2008 would allow savings similar to > college 529 plans, so families could put aside money for care > without jeopardizing their access to existing government assistance. > > Dodd said it would give relief to families asking the stressful > question: When we're gone, who will take care of our loved one with > a disability? > > The announcement, in a room of the Capitol, was before a friendly > crowd, mostly from Autism Speaks, an organization founded by > Connecticut residents Bob and Suzanne , who have an autistic > grandson. > > When using money from the accounts, which would be capped at $1 > million each, certain things would be tax free, including education, > medical services, job training and transportation. > > Dodd didn't downplay the difficulty of passing a bill during a > tumultuous election year. He told the crowd that he needed an > influential co-sponsor from the other side of the aisle. And he said > he would need an army of supporters, to which he added: " And you're > my army. " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 I would be curious to see how it would essentially be different from a Special Needs Trust?? Almost sounds like they are similar in the thought process of putting away money for someone that the government cannot touch? The only major differences is that one is private and other one the government would know about and of course one you would need an attorney such as and the, just your accountant once a year for reporting. --------- FYI > > 10) Dodd Anounces The Disability Savings Act Of 2008 > > By JESSE A. HAMILTON |Washington Bureau > Chief > > WASHINGTON - Sen. Dodd announced significant new > legislation today that would allow families of people with > disabilities to save money in tax-advantaged accounts. The > Disability Savings Act of 2008 would allow savings similar to > college 529 plans, so families could put aside money for care > without jeopardizing their access to existing government assistance. > > Dodd said it would give relief to families asking the stressful > question: When we're gone, who will take care of our loved one with > a disability? > > The announcement, in a room of the Capitol, was before a friendly > crowd, mostly from Autism Speaks, an organization founded by > Connecticut residents Bob and Suzanne , who have an autistic > grandson. > > When using money from the accounts, which would be capped at $1 > million each, certain things would be tax free, including education, > medical services, job training and transportation. > > Dodd didn't downplay the difficulty of passing a bill during a > tumultuous election year. He told the crowd that he needed an > influential co-sponsor from the other side of the aisle. And he said > he would need an army of supporters, to which he added: " And you're > my army. " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Folks, this is what e-mailed me a little bit ago regarding the legislation: " Charlotte, the link you put on Ellen’s Blog is not the Dodd bill but the House Crenshaw bill – the original of the four bills pending.. There are four Bills in Washington on the same topic. The oldest is Crenshaw’s in the House (the one you linked to). The newest is Dodd’s in the Senate. They all have issues. Great ideas but not Benefit Friendly as drafted. I am chairing a Special Needs Alliance (national association of special needs planning attorneys throughout the 50 states) Committee to review all four bills pending (2 in Senate and 2 in House) and work with " Hill Staff " to arrive at a version that is benefit friendly. The " devil is in the details " and whomever drafted these bills addressed parents’ desires without realizing that they don’t work as drafted due to State Medicaid rules as well as current SSI Poms. Hopefully in the next few months The Arc of the US, ASA, UCP will educate the " Hill " and a decent bill will be the result. " FYI > > 10) Dodd Anounces The Disability Savings Act Of 2008 > > By JESSE A. HAMILTON |Washington Bureau > Chief > > WASHINGTON - Sen. Dodd announced significant new > legislation today that would allow families of people with > disabilities to save money in tax-advantaged accounts. The > Disability Savings Act of 2008 would allow savings similar to > college 529 plans, so families could put aside money for care > without jeopardizing their access to existing government assistance. > > Dodd said it would give relief to families asking the stressful > question: When we're gone, who will take care of our loved one with > a disability? > > The announcement, in a room of the Capitol, was before a friendly > crowd, mostly from Autism Speaks, an organization founded by > Connecticut residents Bob and Suzanne , who have an autistic > grandson. > > When using money from the accounts, which would be capped at $1 > million each, certain things would be tax free, including education, > medical services, job training and transportation. > > Dodd didn't downplay the difficulty of passing a bill during a > tumultuous election year. He told the crowd that he needed an > influential co-sponsor from the other side of the aisle. And he said > he would need an army of supporters, to which he added: " And you're > my army. " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 This is probably too late getting to you but in my opinion...sure hand it to him and then tell him that it is a good idea but that in it's present form this and the other similar bills will do much harm to people with disabilities and will in fact cause people to lose their entitlement benefits. Let him know that the Arc U.S. is one good resource to help fix the problems in the bill. Ellen Ellen Garber Bronfeld egskb@... Re: FYI Gee, and Dick Durbin is in my school today. Should I print this out and hand it to him anyway?? > > 10) Dodd Anounces The Disability Savings Act Of 2008 > > By JESSE A. HAMILTON |Washington Bureau > Chief > > > WASHINGTON - Sen. Dodd announced significant new > legislation today that would allow families of people with > disabilities to save money in tax-advantaged accounts. The > Disability Savings Act of 2008 would allow savings similar to > college 529 plans, so families could put aside money for care > without jeopardizing their access to existing government assistance. > > Dodd said it would give relief to families asking the stressful > question: When we're gone, who will take care of our loved one with > a disability? > > The announcement, in a room of the Capitol, was before a friendly > crowd, mostly from Autism Speaks, an organization founded by > Connecticut residents Bob and Suzanne , who have an autistic > grandson. > > When using money from the accounts, which would be capped at $1 > million each, certain things would be tax free, including education, > medical services, job training and transportation. > > Dodd didn't downplay the difficulty of passing a bill during a > tumultuous election year. He told the crowd that he needed an > influential co-sponsor from the other side of the aisle. And he said > he would need an army of supporters, to which he added: " And you're > my army. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2008 Report Share Posted April 8, 2008 This is fantastic. I can see the potential for replicability and, with additional supports, applicability for individuals with more moderate disabilities. Congratulations to Ficker Terrill and her vision to serve people in their own communities! Ellen Ellen Garber Bronfeld egskb@... FYI Ray Graham Association for People with Disabilities April 7, 2008 Message from the President nEw program at rga Monarch Living. This year RGA will open a new door to opportunity for young adults with developmental disabilities! I am happy to tell you about an innovative new support and living program we are starting for young adults with mild developmental disabilities. Later this summer, we will be opening the Monarch Support Program in Elmhurst. This program will offer 8 young adults with mild disabilities a unique and exciting opportunity to live in a supported apartment setting and receive community-based training geared toward enhancing skills needed to live independently in the community. The program features several unique components including a " Safety Net " of support and well-being services; a customized skill development plan focusing on specific interests and needs of each participant; week-end recreational and social opportunities; training and support provided by a " Life Coach " (Life Coaches are professional level staff with a college degree); a 1:4 staff to participant ratio; and opportunities to participate in other skill development and support programs offered by Ray Graham Association, such as Pathways Transition program, classes at one of our 7 Community Learning Centers and employment training and support. Another unique feature of the Monarch Support Program is that families do not have to be " awarded " funding by the state in order to participate. Rather, the program is designed so that both public and private resources can be used to purchase services. Participants pay monthly rent for their apartment and a separate monthly support payment for program services. Flexible public funding such as Home Based Services may be used to purchase program services. Families may also use private resources to purchase program services. For more information please call Kathleen Bragg at 630-628-7163. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 This sounds like something that a lot of people here would like to have their doctors consider. Has Dr. Podell published these ideas in the medical journals? > > fyi > <hypothyroidism/message/37924;_ylc=X3oDMTJxaTU1Z2V\ jBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzc5MjQEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwOTEyMDAyNw--> > > > > Posted by: " nancie barnett " deifspirit@... > <mailto:deifspirit@...?Subject=%20Re%3Afyi> aspenfairy1 > <aspenfairy1> > > > Fri Apr 25, 2008 1:31 am (PDT) > > Should Doctors Treat With T3 Thyroid Drugs Even When Thyroid Blood > Tests are Normal? > Wednesday April 23, 2008 > Podell, MD is an integrative physician with expertise in > working with thyroid patients, as well as people with fibromyalgia, > chronic fatigue syndrome and other immune-related diseases. Dr. Podell > has put together an informative article discussing the difference > between the conventional/ > mainstream view of thyroid diagnosis and treatment, and the more > holistic, integrative approach he and some other practitioners espouse. > According to Dr. Podell: > > " Many holistic, integrative and complementary alternative medicine > physicians believe that many people are effectively hypothyroid > (thyroid deficient) because they are unable to make the main active > thyroid hormone - which is not T4 but the form found in Cytomel and > Armour Thyroid, that is, T3. " > Why would you need T3 treatment? Dr. Podell has some theories. > According to him, some people are deficient in selenium, zinc, Vitamin > A and/or Vitamin D, which can impair T4 to T3 conversion. He > identifies a number of factors he feels can block T3 formation or > aggravate thyroid dysfunction, including acute illness, excess > cortisol due to physical and emotional stress, anxiety and chronic > depression, goitrogenic vegetables, and foods high in iodine. > Dr. Podell explains some of the key signs that tell integrative > practitioners a patient may need treatment: classic hyothyroidism > symptoms; low basal body temperature; slow ankle reflexes; TSH level > above 3; low free T4 or free T3 tests; and high Reverse T3. > > Overall, the article is a helpful look at the approach that innovative > thyroid doctors are taking to diagnosing and treating thyroid > conditions. Well worth a read, if this is a direction you're > interested in pursuing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 He also reminds me of Dr. C. Lowe, to some extent. Oh, only if there could be more doctors like these two.! Venizia -- In hypothyroidism , <res075oh@...> wrote: > > This sounds like something that a lot of people here would like to have > their doctors consider. Has Dr. Podell published these ideas in the > medical journals? > > > > > > > fyi > > <hypothyroidism/message/37924;_ylc=X3oDMTJxaTU1Z2V\ jBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzc5MjQEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwOTEyMDAyNw--> > > > > > > > > Posted by: " nancie barnett " deifspirit@... > > <mailto:deifspirit@...?Subject=%20Re%3Afyi> aspenfairy1 > > <aspenfairy1> > > > > > > Fri Apr 25, 2008 1:31 am (PDT) > > > > Should Doctors Treat With T3 Thyroid Drugs Even When Thyroid Blood > > Tests are Normal? > > Wednesday April 23, 2008 > > Podell, MD is an integrative physician with expertise in > > working with thyroid patients, as well as people with fibromyalgia, > > chronic fatigue syndrome and other immune-related diseases. Dr. Podell > > has put together an informative article discussing the difference > > between the conventional/ > > mainstream view of thyroid diagnosis and treatment, and the more > > holistic, integrative approach he and some other practitioners espouse. > > According to Dr. Podell: > > > > " Many holistic, integrative and complementary alternative medicine > > physicians believe that many people are effectively hypothyroid > > (thyroid deficient) because they are unable to make the main active > > thyroid hormone - which is not T4 but the form found in Cytomel and > > Armour Thyroid, that is, T3. " > > Why would you need T3 treatment? Dr. Podell has some theories. > > According to him, some people are deficient in selenium, zinc, Vitamin > > A and/or Vitamin D, which can impair T4 to T3 conversion. He > > identifies a number of factors he feels can block T3 formation or > > aggravate thyroid dysfunction, including acute illness, excess > > cortisol due to physical and emotional stress, anxiety and chronic > > depression, goitrogenic vegetables, and foods high in iodine. > > Dr. Podell explains some of the key signs that tell integrative > > practitioners a patient may need treatment: classic hyothyroidism > > symptoms; low basal body temperature; slow ankle reflexes; TSH level > > above 3; low free T4 or free T3 tests; and high Reverse T3. > > > > Overall, the article is a helpful look at the approach that innovative > > thyroid doctors are taking to diagnosing and treating thyroid > > conditions. Well worth a read, if this is a direction you're > > interested in pursuing. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 http://www.drpodell.org/natural_hypothyroid_therapies.shtml N. Podell, M.D., M.P.H., Medical Director and Clinical Professor, Department of Family Medicine, UMDNJ- Wood Medical School. Dr. Podell is one of the nation's leading experts on the scientific integration of complementary and alternative therapies with conventional medicine. He also has special interest and expertise in clinical nutrition, behavioral medicine, and the diseases of Chronic Fatigue Syndrome and Fibromyalgia. A graduate of Harvard Medical School and the Harvard School of Public Health, Dr. Podell is Board Certified in Internal Medicine and in Family Medicine. A Clinical Professor at New Jersey's Wood Medical School, Dr. Podell serves as co-host of the Willner's Window Health and Nutrition Show on New York City's WOR Radio (710 AM). The New Jersey Chronic Fatigue Syndrome Association presented Dr. Podell with their outstanding Achievement Award for the year 2002. Dr. Podell serves as Principal Investigator of a Food and Drug Administration approved Phase III clinical trial on the use of Ampligen, an investigational drug for the treatment of Chronic Fatigue Syndrome. He is a member of the expert panel on Chronic Fatigue Syndrome for the New Jersey State Department of Health and the New Jersey Academy of Medicine. He is a member of the Chronic Fatigue Syndrome Association, the International Myopain Society, the American College of Nutrition and the American Medical Association. Dr. Podell has been an invited author for Fibromyalgia Network, a major patient-advocacy support group. Dr. Podell has served as one of the main preceptors for Wood Medical School's required third year course on nutritional and holistic medicine. Dr. Podell has received teaching awards from the family practice residents at Overlook Hospital and from the medical student organization at New Jersey Medical School. Dr. Podell is on the scientific advisory board of Healthnotes, one of the leading educational resources for the scientific evaluation of nutrition and herbal therapies. He was contributing editor for Nutrition Science News, and was the regular columnist on nutrition for the journal Postgraduate Medicine. Dr. Podell has published 45 peer-review journal articles, and patient education essays in Bottom Line Personal, Bottom Line Health, Redbook, Good Housekeeping, Men's Health and other magazines. He has appeared as a medical expert on Good Morning America, the Today Show and CBS' Morning Show. Dr. Podell is an attending physician at Overlook Hospital, Summit, NJ. a.. Books written by Dr. Podell Skiba-King, Ph.D., APN, BC (Board Certified Advanced Practice Nurse) is director of behavioral medicine and clinical research. Dr. King is an expert in a broad range of health areas including Chronic Fatigue Syndrome, Fibromyalgia, preventive nutrition, and bio-behavioral medicine. A certified psychotherapist, Dr. King combines natural healing therapies and psychotherapy in treating stress related disorders. Dr. King directs our Chronic Fatigue Syndrome research trials (Ampligen) in a Food and Drug Administration approved study. Dr. King also serves as director of behavioral medicine and of our Autism Spectrum Therapy program. Her expertise includes Autism Spectrum Disorder (Pervasive Developmental Disorder-PDD, Autism, Asperger's Syndrome) and Attention Deficit Hyperactivity Disorder-ADHD. Highly-experienced holistically-oriented, Dr. King has a background in both education and clinical practice. She has held faculty positions at both the graduate and undergraduate level. Areas of instruction have included Psychopharmacology, Alternative Health Care Practices, and Family Systems Theory. Her doctoral degree is in communication with an emphasis on interpersonal and health communication, which makes Dr. King a unique resource for patients. She specializes in effectively clarifying the often confusing and contradictory information on herbs, supplements, and natural therapies. Her recent publication, " Vitamins, Herbs, and Supplements: Tools of Empowerment " was featured in the Alternative and Complementary Therapies special issue of The Journal of Psychosocial Nursing (Volume 39, Number 4, April 2001, pp 35-41). Please note: Dr. King is an Advanced Practice Nurse, not a physician. Her doctoral degree is a Ph.D. In the state of New Jersey, APNs collaborate with physicians to provide patient care, including ordering laboratory tests and writing prescriptions. Beverly LaCotta, R.N., our adult health educator has twenty years of experience in patient education. is our health educator for the Autism Spectrum and Pediatric Behavioral Science Program. Our autism staff was originally trained at the DAN! national conference and attend training twice a year to stay current on all protocol changes and research. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 HI, I am just new to this site and just dx with hypothyroidism. Great article! Thanks! So what shouldn't I eat? cabbage? should I take iodine? The left side of my body has the sensation of internal trembling. Has anyone ever heard of that before as a possible symptom? Thanks! --- nancie barnett <deifspirit@...> wrote: > http://www.drpodell.org/natural_hypothyroid_therapies.shtml > > N. Podell, M.D., M.P.H., Medical Director > and Clinical Professor, Department of Family > Medicine, UMDNJ- Wood Medical School. > Dr. Podell is one of the nation's leading experts on > the scientific integration of complementary and > alternative therapies with conventional medicine. > He also has special interest and expertise in > clinical nutrition, behavioral medicine, and the > diseases of Chronic Fatigue Syndrome and > Fibromyalgia. > > A graduate of Harvard Medical School and the Harvard > School of Public Health, Dr. Podell is Board > Certified in Internal Medicine and in Family > Medicine. A Clinical Professor at New Jersey's > Wood Medical School, Dr. Podell > serves as co-host of the Willner's Window Health and > Nutrition Show on New York City's WOR Radio (710 > AM). > > The New Jersey Chronic Fatigue Syndrome Association > presented Dr. Podell with their outstanding > Achievement Award for the year 2002. Dr. Podell > serves as Principal Investigator of a Food and Drug > Administration approved Phase III clinical trial on > the use of Ampligen, an investigational drug for the > treatment of Chronic Fatigue Syndrome. He is a > member of the expert panel on Chronic Fatigue > Syndrome for the New Jersey State Department of > Health and the New Jersey Academy of Medicine. He > is a member of the Chronic Fatigue Syndrome > Association, the International Myopain Society, the > American College of Nutrition and the American > Medical Association. > > Dr. Podell has been an invited author for > Fibromyalgia Network, a major patient-advocacy > support group. Dr. Podell has served as one of the > main preceptors for Wood Medical > School's required third year course on nutritional > and holistic medicine. Dr. Podell has received > teaching awards from the family practice residents > at Overlook Hospital and from the medical student > organization at New Jersey Medical School. > > Dr. Podell is on the scientific advisory board of > Healthnotes, one of the leading educational > resources for the scientific evaluation of nutrition > and herbal therapies. He was contributing editor > for Nutrition Science News, and was the regular > columnist on nutrition for the journal Postgraduate > Medicine. Dr. Podell has published 45 peer-review > journal articles, and patient education essays in > Bottom Line Personal, Bottom Line Health, Redbook, > Good Housekeeping, Men's Health and other magazines. > He has appeared as a medical expert on Good Morning > America, the Today Show and CBS' Morning Show. Dr. > Podell is an attending physician at Overlook > Hospital, Summit, NJ. > > a.. Books written by Dr. Podell > > Skiba-King, Ph.D., APN, BC (Board Certified > Advanced Practice Nurse) is director of behavioral > medicine and clinical research. > > Dr. King is an expert in a broad range of health > areas including Chronic Fatigue Syndrome, > Fibromyalgia, preventive nutrition, and > bio-behavioral medicine. A certified > psychotherapist, Dr. King combines natural healing > therapies and psychotherapy in treating stress > related disorders. > > Dr. King directs our Chronic Fatigue Syndrome > research trials (Ampligen) in a Food and Drug > Administration approved study. Dr. King also serves > as director of behavioral medicine and of our Autism > Spectrum Therapy program. Her expertise includes > Autism Spectrum Disorder (Pervasive Developmental > Disorder-PDD, Autism, Asperger's Syndrome) and > Attention Deficit Hyperactivity Disorder-ADHD. > > Highly-experienced holistically-oriented, Dr. King > has a background in both education and clinical > practice. She has held faculty positions at both the > graduate and undergraduate level. Areas of > instruction have included Psychopharmacology, > Alternative Health Care Practices, and Family > Systems Theory. > > Her doctoral degree is in communication with an > emphasis on interpersonal and health communication, > which makes Dr. King a unique resource for patients. > She specializes in effectively clarifying the often > confusing and contradictory information on herbs, > supplements, and natural therapies. > > Her recent publication, " Vitamins, Herbs, and > Supplements: Tools of Empowerment " was featured in > the Alternative and Complementary Therapies special > issue of The Journal of Psychosocial Nursing (Volume > 39, Number 4, April 2001, pp 35-41). > > Please note: Dr. King is an Advanced Practice Nurse, > not a physician. Her doctoral degree is a Ph.D. In > the state of New Jersey, APNs collaborate with > physicians to provide patient care, including > ordering laboratory tests and writing prescriptions. > > Beverly LaCotta, R.N., our adult health educator has > twenty years of experience in patient education. > > is our health educator for the Autism > Spectrum and Pediatric Behavioral Science Program. > > Our autism staff was originally trained at the DAN! > national conference and attend training twice a year > to stay current on all protocol changes and > research. > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 internal shivers is associated with low adrenal function. Gracia HI, I am just new to this site and just dx with hypothyroidism. Great article! Thanks! So what shouldn't I eat? cabbage? should I take iodine? The left side of my body has the sensation of internal trembling. Has anyone ever heard of that before as a possible symptom? Thanks! --- nancie barnett <deifspirit@...> wrote: > http://www.drpodell.org/natural_hypothyroid_therapies.shtml > > N. Podell, M.D., M.P.H., Medical Director > and Clinical Professor, Department of Family > Medicine, UMDNJ- Wood Medical School. > Dr. Podell is one of the nation's leading experts on > the scientific integration of complementary and > alternative therapies with conventional medicine. > He also has special interest and expertise in > clinical nutrition, behavioral medicine, and the > diseases of Chronic Fatigue Syndrome and > Fibromyalgia. > > A graduate of Harvard Medical School and the Harvard > School of Public Health, Dr. Podell is Board > Certified in Internal Medicine and in Family > Medicine. A Clinical Professor at New Jersey's > Wood Medical School, Dr. Podell > serves as co-host of the Willner's Window Health and > Nutrition Show on New York City's WOR Radio (710 > AM). > > The New Jersey Chronic Fatigue Syndrome Association > presented Dr. Podell with their outstanding > Achievement Award for the year 2002. Dr. Podell > serves as Principal Investigator of a Food and Drug > Administration approved Phase III clinical trial on > the use of Ampligen, an investigational drug for the > treatment of Chronic Fatigue Syndrome. He is a > member of the expert panel on Chronic Fatigue > Syndrome for the New Jersey State Department of > Health and the New Jersey Academy of Medicine. He > is a member of the Chronic Fatigue Syndrome > Association, the International Myopain Society, the > American College of Nutrition and the American > Medical Association. > > Dr. Podell has been an invited author for > Fibromyalgia Network, a major patient-advocacy > support group. Dr. Podell has served as one of the > main preceptors for Wood Medical > School's required third year course on nutritional > and holistic medicine. Dr. Podell has received > teaching awards from the family practice residents > at Overlook Hospital and from the medical student > organization at New Jersey Medical School. > > Dr. Podell is on the scientific advisory board of > Healthnotes, one of the leading educational > resources for the scientific evaluation of nutrition > and herbal therapies. He was contributing editor > for Nutrition Science News, and was the regular > columnist on nutrition for the journal Postgraduate > Medicine. Dr. Podell has published 45 peer-review > journal articles, and patient education essays in > Bottom Line Personal, Bottom Line Health, Redbook, > Good Housekeeping, Men's Health and other magazines. > He has appeared as a medical expert on Good Morning > America, the Today Show and CBS' Morning Show. Dr. > Podell is an attending physician at Overlook > Hospital, Summit, NJ. > > a.. Books written by Dr. Podell > > Skiba-King, Ph.D., APN, BC (Board Certified > Advanced Practice Nurse) is director of behavioral > medicine and clinical research. > > Dr. King is an expert in a broad range of health > areas including Chronic Fatigue Syndrome, > Fibromyalgia, preventive nutrition, and > bio-behavioral medicine. A certified > psychotherapist, Dr. King combines natural healing > therapies and psychotherapy in treating stress > related disorders. > > Dr. King directs our Chronic Fatigue Syndrome > research trials (Ampligen) in a Food and Drug > Administration approved study. Dr. King also serves > as director of behavioral medicine and of our Autism > Spectrum Therapy program. Her expertise includes > Autism Spectrum Disorder (Pervasive Developmental > Disorder-PDD, Autism, Asperger's Syndrome) and > Attention Deficit Hyperactivity Disorder-ADHD. > > Highly-experienced holistically-oriented, Dr. King > has a background in both education and clinical > practice. She has held faculty positions at both the > graduate and undergraduate level. Areas of > instruction have included Psychopharmacology, > Alternative Health Care Practices, and Family > Systems Theory. > > Her doctoral degree is in communication with an > emphasis on interpersonal and health communication, > which makes Dr. King a unique resource for patients. > She specializes in effectively clarifying the often > confusing and contradictory information on herbs, > supplements, and natural therapies. > > Her recent publication, " Vitamins, Herbs, and > Supplements: Tools of Empowerment " was featured in > the Alternative and Complementary Therapies special > issue of The Journal of Psychosocial Nursing (Volume > 39, Number 4, April 2001, pp 35-41). > > Please note: Dr. King is an Advanced Practice Nurse, > not a physician. Her doctoral degree is a Ph.D. In > the state of New Jersey, APNs collaborate with > physicians to provide patient care, including > ordering laboratory tests and writing prescriptions. > > Beverly LaCotta, R.N., our adult health educator has > twenty years of experience in patient education. > > is our health educator for the Autism > Spectrum and Pediatric Behavioral Science Program. > > Our autism staff was originally trained at the DAN! > national conference and attend training twice a year > to stay current on all protocol changes and > research. > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Group, Can't wait for LAQUIMOD!Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Art, I was also diagnosed  with MS in 1988. I have been on all of the injectable drugs, as well as Tysabri. I was on the double blind study, then on the one-year study with Ty alone. Just recently, it stopped working for me, like all the others. My choice from my doc was IVIG or chemo. I told him no more steroids, I was not interested in either, and I wanted a script for LDN. He called it "snake oil" chuckled, but gave it to me. I am still R/R. I had just found the site on the internet and thought I had nothing to lose. At this point I am tired of the the STUFF in my body, I just want to clean it all out. I am getting rid of my port-a cath, and ready for a complete change. I have always exercised, eaten healthy and well (Swank Diet). I actually took all bread and dairy out of my diet two weeks ago just to see how I would feel. It's been 6 weeks with no drugs and I really feel at peace for the first time. I am waiting for the LDN it should be coming this week. I'm scared, but the thought of nothing but a pill makes me so happy. There's too much stuff on this site I don't understand. Do I need to take supplements with this? What about sleep problems? I am starting on the lowest dose.Thanks....you're post was the only one I thought I could relate to. By the way my name is Ronna, I live in Atlanta. [low dose naltrexone] FYII have been using LDN since March 2005 and a member of this group for about the same amount of time. Although I urge everyone who wants to learn about LDN to read and study Dr. Gluck's LDN website thoroughly,http://www.lowdosen altrexone. org/ I, for one, do not mind answering the same questions over and over again. Asking questions is how one learns. I may not have all the answers, but I do know who to ask and where to go for them and I know there are many oldtimers here who feel the same. We are not here to entertain, only to help. -Art Diagnosed with MS April 1988 (and sick and tired of it) Using LDN since March 2005 (and I thank my lucky stars for it) My MS/LDN story:http://www.webspawn er.com/users/ artsmstestimony/ index.html My favorite LDN site, owned by someone I am very thankful to:http://ldn.proboard s3..com/index. cgi Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Regarding taking supplements with LDN my advice would be to keep things simple. Give LDN a good long try, like 6-9 months, without adding anything or at least too much. Remember, the main purpose of LDN is to slow/halt disease progression, symptom improvement is a bonus not everyone experience's. As someone with MS your diet change is a wise move, IMO. If you read my MS/LDN story you can see what vitamins and supplements I take. I am always adding/subtracting due to cost, failure to do anything positive for me and my desire to experiment and take an active role in my recovery. The longer you stay with this group the more you'll learn. Go slow, do the best you can and good luck with LDN. I hope it helps you. Art -- > > Art, > I was also diagnosed with MS in 1988. I have been on all of the injectable drugs, as well as Tysabri. I was on the double blind study, then on the one-year study with Ty alone. Just recently, it stopped working for me, like all the others. My choice from my doc was IVIG or chemo. I told him no more steroids, I was not interested in either, and I wanted a script for LDN. He called it " snake oil " chuckled, but gave it to me. I am still R/R. I had just found the site on the internet and thought I had nothing to lose. At this point I am tired of the the STUFF in my body, I just want to clean it all out. I am getting rid of my port-a cath, and ready for a complete change. I have always exercised, eaten healthy and well (Swank Diet). I actually took all bread and dairy out of my diet two weeks ago just to see how I would feel. It's been 6 weeks with no drugs and I really feel at peace for the first time. I am waiting for the LDN it should be coming this > week. I'm scared, but the thought of nothing but a pill makes me so happy. There's too much stuff on this site I don't understand. Do I need to take supplements with this? What about sleep problems? I am starting on the lowest dose. > > Thanks....you're post was the only one I thought I could relate to. By the way my name is Ronna, I live in Atlanta. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Forgot to address " the sleep problem " . Some have it and some don't. For me it was a non-issue. After using Avonex and Novantrone and the night-time discomfort involved with those meds (chills, muscle ache, fever, depression) a slightly restless few nights on LDN wasn't bad and the vivid dreaming was and still is quite interesting. I actually like it. Art -- > > Art, > I was also diagnosed with MS in 1988. I have been on all of the injectable drugs, as well as Tysabri. I was on the double blind study, then on the one-year study with Ty alone. Just recently, it stopped working for me, like all the others. My choice from my doc was IVIG or chemo. I told him no more steroids, I was not interested in either, and I wanted a script for LDN. He called it " snake oil " chuckled, but gave it to me. I am still R/R. I had just found the site on the internet and thought I had nothing to lose. At this point I am tired of the the STUFF in my body, I just want to clean it all out. I am getting rid of my port-a cath, and ready for a complete change. I have always exercised, eaten healthy and well (Swank Diet). I actually took all bread and dairy out of my diet two weeks ago just to see how I would feel. It's been 6 weeks with no drugs and I really feel at peace for the first time. I am waiting for the LDN it should be coming this > week. I'm scared, but the thought of nothing but a pill makes me so happy. There's too much stuff on this site I don't understand. Do I need to take supplements with this? What about sleep problems? I am starting on the lowest dose. > > Thanks....you're post was the only one I thought I could relate to. By the way my name is Ronna, I live in Atlanta. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 Yeeeeeeeeeeeeeeeeehaaaaaaaaaaaaaa! I'm thinking we might start planning another trip from Oz! Circumstances (and a car accident) look like preventing us making it to AJAO this year. But Texas? That I LOVE to see! JoBayly, 6, extended oligo >> > 2009 Juvenile Arthritis Conference - Save the Date!> > > Target Audience: Chapter Presidents, Program Directors> > We are excited to announce that the dates have been set for the 2009 JA> Conference in Houston, Texas. The conference will be held July 9-12 at> the Hilton Americas Houston and the R. Brown Convention Center.> Thank you to the Texas Chapter for hosting this event.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Getting those " ducks in a row " takes a while but it certainly is both empowering and liberating. Thanks for sharing this, Shirley. Ellen Ellen Garber Bronfeld egskb@... FYI For those of you with a mixed family of step parent/step children, make sure you get a good lawyer to help you write your wills the way you want them to be written. In our case I have 2 sons from a previous marriage (their father passed away when they were small). I remarried a wonder husband and father who was previously married and divorced with no children. Our wills will be a little different. If my husband passes, everything goes to me then to my children. If I pass, everything in our joint names goes to my husband and anything not in joint will go to a trust in my husband and sisters names so that he can not just take everything and run off with an 18 year old and leave my boys nothing. (LOL) But do not laugh as it could happen. (I do not think it would but you never know) This will not stop my husband from getting the funds he needs, they just have to be agreed on with my sister (or my other son if she passes). I put my life insurance and my pensions in that, not everything. It is always a personal choice but just to give you something to think about in case something happens. Also, if we both pass my DS son's money goes into a special needs trust or if anyone wants to leave him anything they have to make sure it goes into his special needs trust. I am so happy we did this. I feel like I am finally getting my ducks in a row. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Hi Cassie Sorry you feel like this and believe me I do not find it funny either, but if its any consolation I was diagnosed hypo 38 years ago at the age of 13. I was started on thyroxin and have been taking it all this time on its own completely. I was at deaths door, hardly any pulse severely anemic etc when they found it and was the size and maturation of an 8 year old. I have been hypo most of my 51 years. I have never been given or taken any supplements whatsoever, or seen a private doctor. What were your results by the way, are you feeling you werent hypo after all if they are through the roof? Chris > > I had Glandular Fever at the age of 13 which was misdiagnosed so many > times that I was ill for nearly 2 years. I have spent the rest of my > life being diagnosed as depressed...to the point of suicide several > times. 4 years ago I was diagnosed as borderline hypo and put on 50m > of levo increased last year to 75m. My doctor failed to tell me i > needed another blood test 6 months ago...in the meantime I have seen > him with everything from 'depression' to aching joints. Now I get > these latest test results and guess what? Through the roof! > > So, and do excuse me for not using the big words or abbreviations and > not having the money for private tests or treatments, I am **apping > myself because I cannot afford to stay off work any longer..even > though I feel like poo...and I don't find it funny. > > Bye bye. > Quote Link to comment Share on other sites More sharing options...
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