HLBA 27 positive

[Guest guest]

Hello,

 

I am a second time poster. I have been quiet reading all the advice given and

want to thank everyone who is offering me hope.  I had never heard of AP but am

interested. I have ankylosing spondylitis, as did my dad. I was told this is a

genetic illness and don't understand how a microbe caused  illness could have

genetic tendencies.  Can anyone help me understand this?

 

I had made the decision several years ago to stop all the toxic meds recommended

by my specialist.   I fought taking the immunosuppresive drugs for years but

eventually, with hope on the horizon, I tried methotrexate after trying all

other meds recommended: being a nurse I understood the side effects. I followed

all the suggested protocols and did find some relief, but my SED rates were

still off the charts, never coming down.  I then got sick with a simple

infection while on methotrexate and nearly died, took me a year to recover. I

was raising a young son and had a sick husband and was terrified.  I said never

again. I've had to give up my career as a nurse and have somewhat withdrawn from

anything but a simple life. I am careful with diet, do warm water range of

motion, try to avoid stress and it has helped tremendously. But, I have to

admit, I got burned out following such a strict routine and became depressed and

seem to feel hopeless. I have a

referral to another specialist that I am going to see if he will approach my

treatment with the AP. 

 

 I had mentioned to my Dr. for years that when I am on antibiotics for what ever

infection my arthritis seems to improve.  She said that's simply because they

have immunosupressive qualities (didn't understand that).  Is that true?

 

Thank you all for your encouraging information and all the time you've willing

to share.

 

Deb