edema

[Guest guest]

Andi,

Please read the info that I sent today. There is a lot of discussion on

edema and other symptoms and their causes in the articles. Are you on meds?

GINGER

[Guest guest]

Cutting your sodium intake is usually the 1st thing you`re told to do. i

have had edema and ascites and was placed on strong diuretics, and

eventually had to have perisynteses -sp.? (4 times) performed

these are signs of advanced liver disease. you really should be under a

doctors care self diagnosis and self medication are very dangerous. I

again urge you to read Gingers excellent pages but you need a

gastroentrologist or hepatologist .

jerry

[Guest guest]

I was taking PAXIL, for about 4 years. I have numerous psych

disorders. OCD, PTSD, Panic disorder, and Neurotic Depression. 4

years ago I was a 103 pound basket case who turned herself in to the

Palo Alto VA mental health clinic. They diagnosed me then admitted me

to the psych ward to get me started on PAXIL. That is when they found

out my LFTs were out of wack(before getting on PAXIL). I stopped

taking the Paxil about 1 year ago, and am doing OK, although the OCD

is still a nightmare to deal with. Iam trying to beat this without

meds. Hope my honesty has not scared you all away. In fact if any of

you have questions about SSRIs like Paxil, Prozac, Serzone, or any of

the others, dont hesitate to reach out. I know very well the side

effects as well as the withdrawl effects of some of them.

Andi

> Andi,

> Please read the info that I sent today. There is a lot of

discussion on

> edema and other symptoms and their causes in the articles. Are you

on meds?

>

> GINGER

[Guest guest]

Andi,

What is OCD? My daughter takes paxil. I take Wellbutrin. No, depression is

not a closet subject anymore, infact, a lot of people with liver disease also

experience depression.

Take care Andi,

[Guest guest]

Andi, my daughter Jodi (AIH) has quite a problem with the swelling also even

though she takes three diuretics a day. Biggest thing I have heard is to

stay away from sodium (salt) as much as possible. Also when you are sitting

have your feet elevated and exercise, even if its only a few minutes a day.

Hope this helps a little. Genny/Jodi's Mom

Florida

[Guest guest]

Andi,

You need to talk to Geri, but alas she has left us. She was the expert on

the edema.

Shireen

>From: bluupoint@...

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>Subject: [ ] edema

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>Would any of you like to share your thoughts on edema, in conjunction

>with liver disease?. Sometimes my legs swell up, my ankles and the

>tops of my feet. My hands sometimes swell also. When I lay down it

>goes away after awhile. Is there anything I should be doing diet wise

>to avoid this?.

>

>Thank you

>

>Andi

>

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[Guest guest]

Futuro Support Hosiery Knee Highs seem to give me some comfort and

reduce the edema somewhat. I assume that the same diuretics that

help ascites are equally good for edema and of course YOU MUST STOP

THE SODIUM.

> Would any of you like to share your thoughts on edema, in

conjunction

> with liver disease?. Sometimes my legs swell up, my ankles and the

> tops of my feet. My hands sometimes swell also. When I lay down it

> goes away after awhile. Is there anything I should be doing diet

wise

> to avoid this?.

>

> Thank you

>

> Andi

[Guest guest]

hello Esther,

Yes , I am not on any med but blood pressure and diuretics but I also have the

pitting edema and discoloration and bloating..I am 43. It can be quite

uncomfortable when the itching starts...I have Hep C..and to let my good friend

here know..my appointment with the new doctor is tomorrow! It's scary to say " I

can't wait! " Who likes to go to the doctor..? Might be co mplicated since now my

husband isn't paying the insurance bill and is filing for divorce...Things will

get better.

[ ] edema

> I'm new to posting, but have read the other postings quite

> regularly.First at my daughter's, now on my own. Diagnosed about 3

> years ago with AIH - Age 69 now - Present meds 5 mg. pred. and 50 mg.

> Imuran. Troublesome problem for me is edema, pitting edema and

> always bloated and uncomfortable. Had cellulitis in Mar., 2000 which

> is again showing some early signs on left leg. Discoloration and

> swelling. Anyone had trouble with this? Esther, AIH-Iowa

>

>

>

>

[Guest guest]

I have edema in my lower legs and feet. What is pitting edema? I'd like

to know so that I can watch out for it.

-Clyde

[Guest guest]

C C McPherson wrote:

> I have edema in my lower legs and feet. What is pitting edema? I'd like

> to know so that I can watch out for it.

>

> -Clyde

>

Clyde,

I get pitting edema regularly. It's when you push in on your swollen leg and

it stays in for several seconds after. The more swollen, the longer the pit.

Doctor doesn't get too excited about it. Stay on low salt, get a diruetic, try

to stay off your feet, and take time to put your feet up. Good luck, Cheryl ID

42, PSC, UC

[Guest guest]

I think she has asciite. To be sure she might want to have a blood

test checking her liver enzymes and albumin level.

Song

> My partner has cancer of the liver and pancreas. She is suffering

> from water buildup from her waist to her feet. Anyone have the same

> problem or know of a treatment? She is taking water pills but they

> don't seem to be doing much. She has only had 3 chemo treatments so

> far.

>

> Thanks

[Guest guest]

Artemisinin may be helpful in conjunction with the chemo.

Check out http://www.danieljosiah.com

" song5748 "

<song@...

et> cc:

Subject: [ ] Re: Edema

11/13/2002 04:58

PM

Please respond to

I think she has asciite. To be sure she might want to have a blood

test checking her liver enzymes and albumin level.

Song

> My partner has cancer of the liver and pancreas. She is suffering

> from water buildup from her waist to her feet. Anyone have the same

> problem or know of a treatment? She is taking water pills but they

> don't seem to be doing much. She has only had 3 chemo treatments so

> far.

>

> Thanks

[Guest guest]

Artemisinin may be helpful to " avoid " chemo.

Regards

At 0:33 Uhr +0100 14.11.2002, Olson wrote:

>Artemisinin may be helpful in conjunction with the chemo.

>Check out http://www.danieljosiah.com

[Guest guest]

My Lyme Dr. always checks for that.............always..... even today when I

went to my apt......must be from always checking for it.......since I am

lyme symptom free....and my very thick personal health folder has been put

to the middle shelves...........until my visit this summer.......hopefully,

it will be moved at that time to the dusty shelves (inactive).

Of course I have never had that problem, but I know others have.......and

she always checks for it........I think it was even listed in some new Lyme

Pamphlets she gave me to take to school (I'm a Health and PE educator).

Let me go

check.......................................................................

...

Stated as swelling in toes, balls of feet, ankle pain, burning in feet,

joint pain or swelling. (they don't actually call it edema)

Conniek nwnj

When our bodies & minds are out of balance...........we suffer!

[Guest guest]

> Stated as swelling in toes, balls of feet, ankle pain, burning in feet,

> joint pain or swelling. (they don't actually call it edema)

thanks for your response connie.

I get weird sensations on the bottoms of my feet.

first time i expereinced it was two years ago when I was experienceing

serious depression and anxiety.

When I was diagnosed with lyme, and realized the depression was lyme, i came

to recognize that sole of the foot sensation (hot burning tingly) paired as

a symptom to intense brain fog. now i call it " can't think my way out of a

paper bag. " Two years ago I called it depression.

Bluesky

[Guest guest]

Hi Bluesky,

I am experiencing swelling on my right knee and ankle. It goes away

after two days in bed. But I am also fighting a losing battle with a

rash which I have had on my arms many times, very itchy, and took

prednisone the first three times to help it go away because of the

extreme itch. I finally went to a dermatologist who took biopsies and

could only trace it to medical eruptions and going thru my list of meds

said that Celexa was the only one that would cause it. I did not take

it or any other medicine today except for my Klonopin since I know you

cant just get off some meds, Celexa included, and my nurse daughter

freaked. I guess I will go back on tomorrow and wait till Monday to

call my Lyme doctor who is not local and get his opinion before dropping

meds. I have tried everything from generic benadryl cream to two

creams the dermatologist told me to use at the same time, cost me $30 a

tube, and nothing has taken away the itch, even took darvocet to lessen

the itch when I go to bed and it has worked the best but it still

itches. I am pretty much staying in bed (tired) and keeping my feet up

to keep the swelling down. I hope my Lyme doctor can help me Monday.

Also, the dermatologist is looking for my latest ANA antibody titers for

Lupus because it could be a rash type of Lupus and I cannot even

remember which doctor took the latest test, my PCP, Eye doc,

endocrinologist, dermatologist, or any other I forgot, on, Lyme doctor,

hehe, have yet to see a cardiologist, he is next.

Hugs, Michele

-----Original Message-----

From: bluesky Sent: Monday, April 21, 2003 10:11 PM

Has anyone had edema as a symptom of the Lyme or co-infections?

I have increasingly growing edema. It seems like something that gets

worse

over time, although it comes and goes.

My allergy doctor says that he thinks the weight of gained is actually

water

weight from food allegies.

I'm wondering if some of it is Lyme arthritis related. My arthritic

knees

sometimes swell up, almost like gout. This weekend my ankles were

swollen

like balloons. When I wear socks, even those without elastic, there's a

huge indentation circling my lower leg.

Months ago I had several tests to rule out congestive heart failure, and

some other heart tests too. All normal.

Ideas anyone?

[Guest guest]

In a message dated 4/26/2003 5:28:31 PM Eastern Standard Time,

mtownsend29@... writes:

> Also, the dermatologist is looking for my latest ANA antibody titers for

> Lupus because it could be a rash type of Lupus and I cannot even

> remember which doctor took the latest test, my PCP, Eye doc,

> endocrinologist, dermatologist, or any other I forgot, on, Lyme doctor,

> hehe, have yet to see a cardiologist, he is next.

> Hugs, Michele

>

Michele-

Please send me your phone # and I will call you, I can help.

Bluesky-

PLEASE send me your phone # as well again.... my daughter wrote it down and

lost it when you called!!! I can't find it.... I will call you.

sue in nj

sue massie

[Guest guest]

In a message dated 10/9/03 7:37:45 PM Eastern Daylight Time,

yairharu@... writes:

<< I shan't go into the scientific statistics, which are probably freely

available and easy to get hold of. The only thing that has hit me hard is

the anecdotal facts that I personally know five people who have died in the

last four years of Osteoparosis. Two had received cortisone for the

treatment of Non-Hodgkins Lymphoma- these two at least had not died 15 years

earlier from the NHL

The other three had sufffered from P and PA. If their doctors had found

other forms of treatment for P and Pa, they might still be alive and well

today! As all of you know, there are many potential forms of treatment for

psoriasis-related diseases with widely varying rates of effectiveness and

side effects. >>

Are you talking oral steroids (Prednisone) or just a few shots each year in

specific joints? If it was just a few shots each year in specific joints,

that's scary! I think it's odd my Dr. gave me shots in my ankle (2-3 now I

think)

to make the swelling go down, and from what you are saying it can actually make

the swelling worse!

Ugh!

[Editor's Note: , Distal site (i.e., hands, ankles, feet, etc.)

injections of Dexamethasone (or some other popular corticosteroid),

particularly where is structural, physiological encapsulization of the joint or

locale, just really isn't something most people should be scared of. It is

certainly preferable to oral steroids, which indiscriminately go everywhere in

the body and can cause the worrisome effects we're concerned about. And cases of

cortisone injections aggravating (rather than ameliorating) inflammation must be

rather rare.

On a personal note, at this point in my life, I imagine my total number of hip,

S.I., shoulder, metatarsal, ankle, heel, finger (etc.) cortisone injections must

be approaching 250. I have experienced nothing as a result, except relief from

inflammation and pain, and increased range of motion.

D.]

[Guest guest]

I got off prednizone about 7 weeks ago and for the last two weeks my feet

and legs have been awful. Like Fran who wrote today, the Lasix does not

seem to do anything either. I'm on Diovan HCT which is a form of lasix as

well and have seen some improvement. I'm not sure what is going on but this

has been excruciatingly painful. I'm waiting to see a new rheumy and can't

get in until Nov. 20th which sucks. However, I may have to go to the GP

here in town before then cause this is getting to me. My feet and legs are

extremely red as well and today they are itching. I'm wondering if this is

the beginning of the shingles again. Last time it was only in one large

patch above the ankle on my right leg. I'm waiting and wondering here in

Woodland today. I'm glad that someone else posted this to list but I'm

terribly sorry that you are having this problem too. No one can touch my

feet or legs cause they hurt so bad. I tried the " gout " medicine but it

just put me into the bathroom 24/7 and I can't go there. Besides, there was

no change in my feet and legs so I decided this was not gout. I finally

decided to take 5 days off work to keep them propped up and get some much

needed rest. I too have a very stressful job and am on my feet a lot at

work on concrete floors. Not a good combination for a PA/PS sufferer. My

boss is quite helpful and has transferred a lot of my duties to the computer

work which he cannot do anyway. So maybe 3/4 of my shift is spent at his

desk doing his work for him which helps a lot.

Well, I have to go. Thanks Fran for bringing this up. If it's any comfort

to you, I'm in the same boat and I'll put you on my prayer list if that's

okay with you.

Peace

Phoenix

PS Anybody got a update?

[Guest guest]

Dear Helen,

I'm so sorry to hear you have the same problems I do. My legs are beat red

too from my ankles up to almost my knees and they itch as well. I also have

little spots on them that scab over...sounds beautiful I know...but I'm sure

the skin condition is from the guttate psoriasis I have. It is so strange

that this is happening after you got off the prednisone. I mean prednisone

is suppose to cause swelling and you would think not taking it would have

the opposite effect. I'm almost tempted to increase mine back up to 20mg

and see if that helps. I've been taking 10 mg in hopes it will help, but

nothing seems to help right now. Even lying down my feet swell.

Well thanks for writing Helen and for adding me to your prayer group. We

need all the help we can get and you will be in my thoughts and prayers as

well. Take care and hopefully this is a temporary problem. Mine has been

going on and off now for over a month and I'm really getting sick of it.

Love, Fran

[ ] RE: Edema

I got off prednizone about 7 weeks ago and for the last two weeks my feet

and legs have been awful. Like Fran who wrote today, the Lasix does not

seem to do anything either. I'm on Diovan HCT which is a form of lasix as

well and have seen some improvement. I'm not sure what is going on but

this

has been excruciatingly painful. I'm waiting to see a new rheumy and

can't

get in until Nov. 20th which sucks. However, I may have to go to the GP

here in town before then cause this is getting to me. My feet and legs

are

extremely red as well and today they are itching. I'm wondering if this

is

the beginning of the shingles again. Last time it was only in one large

patch above the ankle on my right leg. I'm waiting and wondering here in

Woodland today. I'm glad that someone else posted this to list but I'm

terribly sorry that you are having this problem too. No one can touch my

feet or legs cause they hurt so bad. I tried the " gout " medicine but it

just put me into the bathroom 24/7 and I can't go there. Besides, there

was

no change in my feet and legs so I decided this was not gout. I finally

decided to take 5 days off work to keep them propped up and get some much

needed rest. I too have a very stressful job and am on my feet a lot at

work on concrete floors. Not a good combination for a PA/PS sufferer. My

boss is quite helpful and has transferred a lot of my duties to the

computer

work which he cannot do anyway. So maybe 3/4 of my shift is spent at his

desk doing his work for him which helps a lot.

Well, I have to go. Thanks Fran for bringing this up. If it's any

comfort

to you, I'm in the same boat and I'll put you on my prayer list if that's

okay with you.

Peace

Phoenix

PS Anybody got a update?

[Guest guest]

Dear Fran, I noticed your comments about edema in your feet and ankles.

I have had severe episodes of this but have not been on prednisone. I

have noticed that an increase of salt in my diet will trigger this

sometimes, but I have noticed it happen at times when I am being more

careful of my salt intake as well. I have had my lower legs swell and

my feet feel like they were going to burst. It is quite painful, and

all I can do is lie down with my feet elevated above my heart level. I

also try to use ice packs on and off as that seems to help with the

hot and itchy feeling I get with the edema. If you find any other

things helpful with this problem, or find any other causes, please let

me know and I will do the same with you. Thanks, Jill B.

[Guest guest]

Peggy,

Check with your PCP to see if he wants to put you on a mild diuretic, etc. I had some problems with the swelling when I started being upright more. I'm on a low dose BP med & it helps.

Joyce T, RN Atlanta

[Guest guest]

I was on Hyzaar for blood pressure. But my pressures are running normal without it. I have Lasix 20 mg but I don't feel it does anything. But that could be my imagination too. I've been told the more water you drink the better the fluid comes off. Anyone else hear that?

Peggy

[ ] Re:edema

Peggy,

Check with your PCP to see if he wants to put you on a mild diuretic, etc. I had some problems with the swelling when I started being upright more. I'm on a low dose BP med & it helps.

Joyce T, RN Atlanta

[Guest guest]

>

> I have been on the diet for about 3 months and finally all the

> supplements. I am having a problem now with edema in my right ankle

> which I had in the past if I ate salt. I did not eat any salt until

> adding the Celtic Sea Salt to my diet.

==>The edema in your right ankle is most likely caused by your body re-

tracing previous episodes per Hering's Law of Cures.

> I have gained 6 pounds on this diet in 3 months. I do yoga and other

exercise daily. I still do not have any energy which I was hoping this

diet would do for me. Am I being impatient?

> Please offer suggestions.

==>Yes, it is important to be patient and allow your body time to heal

naturally. It takes 1 month of natural healing for every year you've

been unwell, which for most people has been since before birth. To

help with energy ensure you are eating the correct ratios of protein to

fats to carbs. Good saturated fats provide the very best and most

efficient energy source - see the article " Fatigue & Candida " in the

© Treatments " Folder in our files for more information. But again

remember that your body will re-trace previous episodes with fatigue as

well.

>

> Welcome back Bee and know our thoughts are with you.

==>Thanks Ellen

Luv, Bee

[Guest guest]

A TSH test is not going to give you the info you really need. You need to

have your T# and T4 tested. What meds do you take and how much? You are

probably depressed and fatigued as both of these are side effects of being

hypo. Once you get your thyroid taken care of your water tension will

probably be taken care of. You need to get on Armour to lose weight and

help you with your fatigue. You need a B-12 supplement from the health food

store for more energy. Go to www.stopthethyroidmadness.com

-- edema

Hi. I have been a member for a while but I did not post. I have been

taking my health for granted and I need to be more proactive

especially about thyroid issues.I have hypothyroidism. I went to my

primary care for TSH test. I have more water on my legs that I like.

My mother has edema but she has a bad heart. Does anyone else with

thyroid experience water in the lower ankles and legs?

Also what do you do for weight loss? I need to increase my muscle but

I am always taking a nap? I do not know if I am depressed or fatigued.

The test results may help? What do you do for more energy? I am

tempted to eat but I am just at the borderline for my height and do

not want to gain any more weight?