Re: Dolores Re: My diet regime

[Guest guest]

oh carol, my heart goes out to you. Please have the strenght an courage to keep

moving forward, and know it now time to focus on you and take care of you.

This group continues to be such a blessing for me, Sally

rheumatic Dolores Re: My diet regime

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> Sorry to hear it Dolores. Hope you get feeling better very soon.

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> It's a tough road getting back to where I was. It took 5 years to get

> to remission and three months to fall out. Right now, I am tired all

> the time. And if I eat wrong, my stomach keeps me awake all night. The

> burning wakes me up. and then add sleep apnea to it and I am a mess

> again. Need to get the insurance company to issue me new tubing for the

> CPAP machine. But I have little fight left in me. Trying to hang in

> there is where I am at present. It is good to hear from you again. How

> are things at home. If you want to write to me personally go to my home

> e:mail site..... I just added it up in my head. My mom passed Oct. 21

> and then I ran out of Mino. the kids told me they were coming for

> Christmas and I ran around the stores a lot getting everything

> ready. At the same time I was settling my mom's estate and feeling out

> of sorts about the whole process of death and certainly was worn down

> taking care of her during her last

> days. So, everything sort of came crashing down. I loved having the

> kids, but breathed a sigh of relief when they went. By then I was

> exhausted and then my fight began with the Insurance & Pharmaceutical

> company and I had to visit three docs and convince them to write letters

> for me. Saw 6, but only three wrote, then I had surgery on my eye which

> I still can't see out of and in the middle of getting some more

> opinions. Waiting on my cousin to give me the name & number of his

> opthalmologist and then may fly to NYU Eye Instittute if I need further

> surgery. So, I'd say that since Sept or Oct. the stress has been

> mounting on me and no wonder I feel so shitty. But I am a fighter and

> I'll get back there hopefully by spring or summer and you'll all know

> about it as I will be my old self again. Take care and hugs all

> around. Dolores

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[Guest guest]

Carol hi!

OMG I was so sorry to read your note this morning. You have been thru so

much and now to have this happen. I hope they are at least giving you some

good pain medsJ

I can't believe they are making you stay in that awful hospital. You would

be so much better off at home. I have noticed hospital staff has become like

they were in the 40's and 50's...very snippy and not at all helpful. Seems

the more machines (as in computers) the worse they get personally. I'm

getting Clindy IV's in a local hospital and I would never treat a patient

like I am treated.

I hope you are feeling better soon. Use my email address if you want to

talk. How is your daughter?

Hugs and blessings.

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Carol Esposito

I am in the hospital with what looks schematic colitis of the descending

colon. That I got from the cat scan. Have to have a colonscopy on monday

I just want to get out of the hospital by tues! Been here since last tues

where the horrible ER drs and staff almost killed me. I was in secondary

adrenal crisis and it wasn't until my blood pressure was super low and I was

passing out that they realized I needed to be admitted. Severe gi

obstruction and 12 bloody diarrhea attacks, hx of other autoimmune problems,

didn't convince. One aide told me that it was improper to have diarrhea on

an ER bed! Once I was admitted on the 2nd floor of the hospital, the care

from most of the nurses and staff has helped a lot. Doctors though are

passive and not good at communicating.

Dolores, I too have been under a lot of stress. My mom died in Aug 2010 and

was sick on a feeding tube for three years. My father and mother lived with

me and now just my dad does Mom died at 88. My dad will be 88 in March. He

has slowed down a lot. And I was working part-time. Now I have to take time

off and focus on myself!

I hardly post. I got involved in this group back in approximate 1997. I

improved on doxy but stopped in around 2008, particular bec my good friend

treppel cantor from this group got sick with lung cancer so I had no

one to share the stress of driving to Nj with. Also I was busying returning

to work on a part time basis. And was stressed and overdoing too much. My

local drs wouldn't prescribe antibiotics and instead I ended up on too much

prednisone.

I had just started to see two alternative drs when I ended up I'm the

hospital.

I think of the strength that this people have in this group. I may not write

much but I read a lot and thank you for all your kindness and information.

Carol e from ny

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