Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Hi everyone, My name is Suzanne and I have dermatomyositis. I found a doctor who is willing to prescribe minocin for me. I am not new to the antibiotic protocol. I used it before with much success. He is also prescribing Nystatin because I have a yeast issue, surprise, surprise. I am just looking for some support here. I really hate pharmaceutical drugs but I know this will help. I am just struggling with flaring again. I actually flared two years ago and have been suffering because my doc wouldn't prescribe minocin. I stuck with him because I wanted to find a natural cure. What a mistake! Anyway, I am looking for encouragement and support and I know I came to the right place. Thank you. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Welcome aboard! We can use all the help we can get with all the exchange information. thank you for introducing yourself. Support is just as healing or more than all the medicines out there. Welcom back!~~~Dolores From: Zannie <zannie68@...> Subject: rheumatic starting minocin rheumatic Date: Saturday, November 6, 2010, 7:39 PM  Hi everyone, My name is Suzanne and I have dermatomyositis. I found a doctor who is willing to prescribe minocin for me. I am not new to the antibiotic protocol. I used it before with much success. He is also prescribing Nystatin because I have a yeast issue, surprise, surprise. I am just looking for some support here. I really hate pharmaceutical drugs but I know this will help. I am just struggling with flaring again. I actually flared two years ago and have been suffering because my doc wouldn't prescribe minocin. I stuck with him because I wanted to find a natural cure. What a mistake! Anyway, I am looking for encouragement and support and I know I came to the right place. Thank you. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Hello Suzanne, Welcome to this wonderful, supportive group. I'm fairly new here (RA 4yrs...AP 18 weeks) It has given me back HOPE being here. Stay with us and keep us informed of your journey! Sally rheumatic starting minocin Hi everyone, My name is Suzanne and I have dermatomyositis. I found a doctor who is willing to prescribe minocin for me. I am not new to the antibiotic protocol. I used it before with much success. He is also prescribing Nystatin because I have a yeast issue, surprise, surprise. I am just looking for some support here. I really hate pharmaceutical drugs but I know this will help. I am just struggling with flaring again. I actually flared two years ago and have been suffering because my doc wouldn't prescribe minocin. I stuck with him because I wanted to find a natural cure. What a mistake! Anyway, I am looking for encouragement and support and I know I came to the right place. Thank you. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Hello Suzanne, welcome to this group. I too have DM and was not treated properly for over three years and my health went down the hill. In January it will be 3 years that I will be on the antibiotic protocol and now I am doing well, not in remission as I would like to be but closer to it than I was last year. I had the muscle weakness and walked very bend over, now I am almost upright, never will be straight because I lean to the right side but that is less a problem then being bend over to the front. We have a lot of great people in this group with lots of help and knowledge, Eva From: mannasal@... <mannasal@...> Subject: Re: rheumatic starting minocin rheumatic Date: Sunday, November 7, 2010, 11:03 AM Â Hello Suzanne, Welcome to this wonderful, supportive group. I'm fairly new here (RA 4yrs...AP 18 weeks) It has given me back HOPE being here. Stay with us and keep us informed of your journey! Sally rheumatic starting minocin Hi everyone, My name is Suzanne and I have dermatomyositis. I found a doctor who is willing to prescribe minocin for me. I am not new to the antibiotic protocol. I used it before with much success. He is also prescribing Nystatin because I have a yeast issue, surprise, surprise. I am just looking for some support here. I really hate pharmaceutical drugs but I know this will help. I am just struggling with flaring again. I actually flared two years ago and have been suffering because my doc wouldn't prescribe minocin. I stuck with him because I wanted to find a natural cure. What a mistake! Anyway, I am looking for encouragement and support and I know I came to the right place. Thank you. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Hi Suzanne, I had dermatomyositis; My CK was almost 17,000 at its highest. It ranged from 8,000-17,000 untreated. I used only antibiotics and now have normal labs. I still remain on a low dose. I had to use Flagyl (metronidazole) and Diflucan (flucanazole) as well, because my DM ended up being Lyme related, so I needed other antibiotcs beside Minocin. It worked beautifully for me, and I am now at the best university in the world, studying to be a physician and public health official. All will be well, I hope AP works again for you. On Sun, Nov 7, 2010 at 1:17 PM, Eva Holloway <holloway-eva@...>wrote: > > > Hello Suzanne, > welcome to this group. I too have DM and was not treated properly for over > three years and my health went down the hill. In January it will be 3 years > that I will be on the antibiotic protocol and now I am doing well, not in > remission as I would like to be but closer to it than I was last year. I had > the muscle weakness and walked very bend over, now I am almost upright, > never will be straight because I lean to the right side but that is less a > problem then being bend over to the front. We have a lot of great people in > this group with lots of help and knowledge, > Eva > > > > From: mannasal@... <mannasal%40aim.com> <mannasal@...<mannasal%40aim.com> > > > Subject: Re: rheumatic starting minocin > rheumatic <rheumatic%40> > Date: Sunday, November 7, 2010, 11:03 AM > > > > > Hello Suzanne, > > Welcome to this wonderful, supportive group. I'm fairly new here (RA > 4yrs...AP 18 weeks) It has given me back HOPE being here. Stay with us and > keep us informed of your journey! Sally > > rheumatic starting minocin > > Hi everyone, > > My name is Suzanne and I have dermatomyositis. I found a doctor who is > willing to prescribe minocin for me. I am not new to the antibiotic > protocol. I used it before with much success. > > He is also prescribing Nystatin because I have a yeast issue, surprise, > surprise. > > I am just looking for some support here. I really hate pharmaceutical drugs > but I know this will help. I am just struggling with flaring again. I > actually flared two years ago and have been suffering because my doc > wouldn't prescribe minocin. I stuck with him because I wanted to find a > natural cure. What a mistake! > > Anyway, I am looking for encouragement and support and I know I came to the > right place. > > Thank you. > > Suzanne > > Quote Link to comment Share on other sites More sharing options...
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