Guest guest Posted June 5, 2000 Report Share Posted June 5, 2000 ---------- > > To: Hob@... > Subject: Polychondritis > Date: June 5, 2000 8:28 PM > > > Thanks for all the information. I also have Fibromyalgia, it was diagnosed > about a year and a half before the RP. I am going back to the > Rheumatologist on July 26th. Right now I'm on Prednisone, they started me > off on 50 mg, then 30 mg and on Friday I went down to 15mg. Saturday night > I was up twice with severe leg cramps and on Sunday my arms and hands > cramped up so much I had to pry my hands open. By reading the emails it > looks like alot of us get this. It also used to happen before they gave me > the Fibromyalgia diagnosis as well. My GP and the Internist have both run > lots of blood tests including vaculitis, rheumatoid arthritis, double DNA > strand test, ANA, and a lot more that I can't remember. That's what sent me > to the internet looking for what they were testing for and how I found out > about RP. The Internist I see is a young doctor and seems to know about RP > and my GP is researching it so I can be treated properly. These guys take > me seriously. I complained about the last doctor I had at that office, he > told me to loose weight and get unstressed and I'd be fine. He committed > suicide not long after that. He actually had me thinking it was all in my > head. This was a common complaint from this guys patients so when I say I > hurt the new GP believes me. In my community it is almost impossible to > change doctors, other doctors wont take on other doctors patients. The new > GP thought I had Vasculitis because my finger and thumb tip swoll up and I > had blood under my nail, that's why he sent me to the Internist. Has anyone > else out there had finger tip swelling. I read somewhere on the Internet > that a lady with RP had the same thing. He is also sending me back to the > Rheumatologist. One of the reasons I wanted to know about the demographics > is because I live in such a small city (20,000) and I'm concerned about > emergency medical treatment if it ever becomes necessary. > Thanks again for the information it really helps to know that there are > others out there for support. > Elaine Quote Link to comment Share on other sites More sharing options...
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