Re: SD - Opinions Needed Please

[Guest guest]

Just returned from Boston for a second visit to my doctor. I have diffuse

systemic scleroderma. Unlike my first visit, which lasted about 45 minutes, and

was open to a lot of questions and answers, this one was anything but, and

lasted about 5 minutes. I felt so rushed and stifled, and could only get one of

my 10 - 12 questions and concerns out before having the door flung open and

my hand shook and escorted to the receptionist for my next appt.

Anyway, that having been said, I am experiencing so much pain, usually in the

shin area, and neck area, though it travels, thats for sure. I also have an

area to the base of my neck near my collar bone that has swollen and gives me

trouble for the last week or so. In addition, my eyes are so very light

sensitive, I am having much trouble walking, especially making turns, very

unsteady, gums and teeth sensitive, sense of smell seems unbelievable hightened,

and I

also have sjogrens, so of course the eternal dry mouth, eyes, etc.

Do you believe that all these above symptoms are either scleroderma or

sjogrens related, or do you believe there is yet other things going on. My

insurance is refusing to pay anything, saying pre-existing condition, even

though it

took 10 months to diagnose, my insurance had not kicked in until Jan. 1st of

this year, and frankly I am out of cash to see mega doctors.

Any ideas, thoughts, suggestions would be so appreciated. I'm going through

an incredibly rough time, with little answers of these branch off issues.

Thanks so much. Gail

The only thing I am taking at this time besides armour thyroid for my

underactive thyroid, is 100 mg. minocycline 2X daily.

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[Guest guest]

I have to ask, did you see Dr. T? I had a similar experience and am not very

happy at this

point.

>

> Just returned from Boston for a second visit to my doctor. I have diffuse

> systemic scleroderma. Unlike my first visit, which lasted about 45 minutes,

and

> was open to a lot of questions and answers, this one was anything but, and

> lasted about 5 minutes. I felt so rushed and stifled, and could only get one

of

> my 10 - 12 questions and concerns out before having the door flung open and

> my hand shook and escorted to the receptionist for my next appt.

>

> Anyway, that having been said, I am experiencing so much pain, usually in the

> shin area, and neck area, though it travels, thats for sure. I also have an

> area to the base of my neck near my collar bone that has swollen and gives me

> trouble for the last week or so. In addition, my eyes are so very light

> sensitive, I am having much trouble walking, especially making turns, very

> unsteady, gums and teeth sensitive, sense of smell seems unbelievable

hightened, and I

> also have sjogrens, so of course the eternal dry mouth, eyes, etc.

>

> Do you believe that all these above symptoms are either scleroderma or

> sjogrens related, or do you believe there is yet other things going on. My

> insurance is refusing to pay anything, saying pre-existing condition, even

though it

> took 10 months to diagnose, my insurance had not kicked in until Jan. 1st of

> this year, and frankly I am out of cash to see mega doctors.

>

> Any ideas, thoughts, suggestions would be so appreciated. I'm going through

> an incredibly rough time, with little answers of these branch off issues.

>

> Thanks so much. Gail

>

> The only thing I am taking at this time besides armour thyroid for my

> underactive thyroid, is 100 mg. minocycline 2X daily.

>

>

>

> **************Wondering what's for Dinner Tonight? Get new twists on family

> favorites at AOL Food.

> (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

>

>

>