Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 Thanks for the info. Hope I can tolerate it. So far I've had very little side effects with any of the meds I've been put on. I don't get stomsch problems or anything. Thanks again Elaine ---------- > From: RCColloran@... > To: Rpolychondritisegroups > Subject: Re: My Rheumy visit. > Date: July 27, 2000 10:21 AM > > Elaine, I have been on metho since Jan of this year. I did have problems in > the beginning. I was started on 3 tabs weekly and was suppost to increase > one each week until I got to 6 tabs. My body for some reason wouldn't > tolerate this. I got severe headaches, severe leg pain (my rheummy said > these weren't common side effects) I did feel achey and flu like symptoms > and nausea (these were common) He (rheummy ) felt the metho was triggering > fibro flares (since many fibro patients cant tolerate medication well) I > tried to split the doses of metho (2 in am and 2 in pm.) This just made > matters worse. So I just increased slowly. Stayed at 4 tablets for a few > weeks and went to 5 and stayed there for a few weeks, etc. Seemed to work > for me. I have been on 6 tablets for over 4 months now and it seems to be > working ( they told me it would take 3-4 months for it to kick in). I was > able to decrease my pred slowly down to 9 mg without a flare. I just had a > flare this week and had to increase my pred to 15mg. I think the stress I > had this week set off the flare, I don't know, just guessing. I see my > rheummy in 2 weeks and at my last visit he said he might increase the metho > to 7 tabs a week. The only side effect that I have now is that I feel achey > and really tired the first few days after taking it. Lately I've been > getting more pain when it is getting closer to the time to take it. (Pain on > Sat and Sun, I take metho on Sunday nite. ) Wonder if anyone else has this > problem. I have monthly blood work done for liver and kidney function and > CBC, sed rate and C-reactive protein test. All have been normal so far > (except an occasional high sed rate reading) > > Hope this made sense. Feel like I'm just rambling this am. Maybe someone > else can explain it better or their side effects. > > Please take care. > Love > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 Carmela, I also wonder about enviromental factors as I live in a town with a paper mill that spews out what's supposed to be non-toxic steam. Yeah right. I'm glad I now live up the mountian but I used to live very close to it for many years. Makes you wonder. Elaine ---------- > > To: Rpolychondritisegroups > Subject: Re: My Rheumy visit. > Date: July 27, 2000 12:02 PM > > > Hi Elaine and everyone > > I'm glad that you will start tapering off and i hope the metho with also > help you... had you asked for your medical records to be transferred to > your rheumy in writing? it may be a good idea, as there will be a record of > it, should you need it. > > i found it interesting when you mentioned that your doctor has been seeing > more and more ppl with RP... as i was thinking just the other day as to why > i flared... it all started with renovating the bathroom all the old tiles > and wood and stuff came off (it's an older house) and new tiles and stuff > back on... there was a lot of dust and fumes for grout, cement, silicone > caulking etc. and i can't help but wonder if some of the RP cases can be > environmental?... not all allergy tests can reveal what we may be allergic > to or not, as we breathe in dust and fumes... i can't help but think this is > a great possibility... > > are there any studies which cover this aspect of RP? if so, i'd like to > hear about it and perhaps bring it up to my rheumy in case there are > specific allergy tests that can be conducted vis-a-vis environment and RP... > > love > Carmela ) > ******************************************* > > > > >Reply-To: Rpolychondritisegroups > >To: <Rpolychondritisegroups> > >Subject: My Rheumy visit. > >Date: Thu, 27 Jul 2000 08:55:19 -0700 > > > >Hi all, > >Went to the Rheumy yesterday. He wants me to start tapering my prednisone > >and if I flare I'm to see him right away. Being I have to drive an hour to > >get to his office that should be interesting. Anyhow he confirmed it was > >Rp. I was the second one in his office that day with it. He said he hardly > >ever saw it before but he's seen 5 people this year with it. Strange hey! > >Maybe it's being diagnosed better now. Anyhow he says that I will probably > >have to go on methotrexate. Can anyone tell me the side effects of this > >drug. It was an interesting visit. He never even asked me if I was > >depressed this time. He also said that my doctor didn't send him any info > >on me. Strange, I wonder why. I'll have to talk to the doc about that. > >Elaine > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
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