RA flare

[Guest guest]

you can print the info for your gp and if he does not want crystal has a list of

doctors also those that do telephone consult.

>

> I have had RA since 97 and have been on Dr Brown's antibiotic treatment, I've

done wonderfully on that, but this summer I really over worked and now I have

the flare from hell. I don't have any pain pills just asperin, but I never

needed alot. I have a rhematologist appt, but it's not until Nov 10th, I need

to feel better than this. I'm a widow and live on a farm with horses and I

really have to be able to do more. How can I get started on LDN, would a rural

gp be willing to give me some to try?. Thank you for any help.

>

>

[Guest guest]

You should be seen by a lyme literate doctor, lyme mimics RA and if you feel

better on antibiotic therapy you certainly need to pay a visit to a lyme

literate physician.

==================

>

> I have had RA since 97 and have been on Dr Brown's antibiotic treatment, I've

done wonderfully on that, but this summer I really over worked and now I have

the flare from hell. I don't have any pain pills just asperin, but I never

needed alot. I have a rhematologist appt, but it's not until Nov 10th, I need

to feel better than this. I'm a widow and live on a farm with horses and I

really have to be able to do more. How can I get started on LDN, would a rural

gp be willing to give me some to try?. Thank you for any help.

>

>

[Guest guest]

Can I suggest you get onto th e rheumatoidarthritis-low dose naltrexone

group where we have just been having numerous discussions. Also 'angelindisguiseldn@...'

will provide name sof available doctors in your area.

Dependin where you are you can get LDN

mailorder from Skips pharmacy in Florida

amongst others. Look up the links on this group and you will find a list.

Good luck getting on board.

Nuala

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of arjay47

Sent: 10 September 2009 14:56

To:

low dose naltrexone

Subject: [low dose naltrexone] RA

flare

I have had RA since 97 and have been on Dr Brown's

antibiotic treatment, I've done wonderfully on that, but this summer I really

over worked and now I have the flare from hell. I don't have any pain pills

just asperin, but I never needed alot. I have a rhematologist appt, but it's

not until Nov 10th, I need to feel better than this. I'm a widow and live on a

farm with horses and I really have to be able to do more. How can I get started

on LDN, would a rural gp be willing to give me some to try?. Thank you for any

help.

[Guest guest]

Since last January, a month after switching to doxycyline, I've had frequent

flares that involve swelling, redness, and pain. I tried to convince myself it

was FMS, because I have painful tendonitis flares with it. All my labs are

normal, despite the symptoms. I'm finally convinced it's my RA flaring!

Prior to going to doxy, due to blue fingernails, I was on Minocin 100 mg M,W,F

for months. Had been in remission 10 years! Normal lab work, no symptoms.

Yet, MRI's and x-rays done in 2009 and 2010 show mild bone erosion, so apprently

the 100 mg 3x/week wasn't sufficient.

I'd like to go back on Minocin. I think I wasn't careful enough to avoid

calcium, although in low doses, at the same time I took Minocin, and this

contributed to the blue fingernails.

I have a 6 mo. followup with her in March. She wants to start Plaquenil then if

I'm still flaring. I'm thinking of asking for Minocin instead? Or, maybe I can

try both and go off Plaquenil after I'm better.

Thots?

M.

[Guest guest]

, hi

I have shown mild bone erosion since 1997. Some xrays say no bone erosion. I

think they see dx of rheumatoid and need to write mild bone erosion. I also

think the erosion could have been done before minocin started to work.

Please have the xray done again in 6 months.

A friend that I got to do AP did the same thing. She went off minocin

because her tests came back lupus after being on 6 months of minocin. So she

switched to doxy and flared. She went back on minocin and did not start back

slowly and the flare would not go away to her satisfaction so she started on

the big drugs. She does not write anymore.

PLEASE if you start again with the minocin remember the doxy was not working

at all so you need to start minocin very slowly so to not inflame any

further. Also you may need to treat for yeast (fungus)even if you took

acidophilis. After being on antibiotics for 10 years you may have leaky gut

also. You need to treat for that. Sometimes all you need to do is treat for

leaky gut.

I flared last year due to stupidity.I stopped minocin after 12 yrs. I

started slowly but have had to increase minocin. I take MWF 200mgms and I

added 100mgm TTS. I take nothing on Sunday. It has taken a year but the

swelling in fingers is gone. Toes and feet bottoms are still hurting off and

on.

Good luck.

cooky

Subject: rheumatic RA flare

Since last January, a month after switching to doxycyline, I've had frequent

flares that involve swelling, redness, and pain. I tried to convince myself

it was FMS, because I have painful tendonitis flares with it. All my labs

are normal, despite the symptoms. I'm finally convinced it's my RA flaring!

Prior to going to doxy, due to blue fingernails, I was on Minocin 100 mg

M,W,F for months. Had been in remission 10 years! Normal lab work, no

symptoms. Yet, MRI's and x-rays done in 2009 and 2010 show mild bone

erosion, so apprently the 100 mg 3x/week wasn't sufficient.

I'd like to go back on Minocin. I think I wasn't careful enough to avoid

calcium, although in low doses, at the same time I took Minocin, and this

contributed to the blue fingernails.

I have a 6 mo. followup with her in March. She wants to start Plaquenil then

if I'm still flaring. I'm thinking of asking for Minocin instead? Or, maybe

I can try both and go off Plaquenil after I'm better.

Thots?

M.

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