The Road Back Foundation Forum / Bluletin Board

[Guest guest]

Dolores, there are a lot of testimonials found on the road back forum and a

lot of great people that would be willing to share their experiences. I

recently found the forum and it's a great community of fellow RA / related

sufferers who are doing AP. I highly suggest everyone who receives this to

register and post there. It has helped me greatly with information and to

read others experiences.

http://www.rbfbb.org/view_forum.php?id=1

From: rheumatic [mailto:rheumatic ] On Behalf

Of mike rosner

Sent: Tuesday, November 11, 2008 11:14 PM

rheumatic

Subject: Re: rheumatic Re: Is Plaquenil making me worse? TOM

The broth sounds good. I make a similar broth only I heighten the taste up

with some onion, garlic, parsley and dill. I also like to add a pinch of

Kosher salt. It is coarser than table salt and has a better flavor. How was

your sencond day? If you are successful, I may just try the broth fast next

month after thanksgiving. But I would stay on my medication as I do not

want to interrupt the protocol I am on. I've come a long way on it and need

not mess it up now. My reason is to detox and lose a couple of lbs. I'm

seeing a gastroenterologist in my new city tomorrow. This is a yearly

follow up as I have had interrmittent gastric problems at times along the

way and want to make sure I don't develop a cancerous tumor or something

from the inflammation and also to check for an accumulation of fibrous

tissue. Keep up the good work and let us know how you are feeling. Dolores

& Mike

From: Petty <jamesapetty@... <mailto:jamesapetty%40att.net> >

Subject: rheumatic Re: Is Plaquenil making me worse? TOM

rheumatic <mailto:rheumatic%40>

Date: Tuesday, November 11, 2008, 1:31 PM

I made the broth from scratch. I used carrots, potatoes, and celery

with some miso, per the books suggestion. It's not to bad but I'm 29

and stay pretty active, or as much as I can with my hands jacked up.

So I like to eat Which makes it hard hehe

> >

> > Hi Tom, Let me clarify a bit. I was talking to someone who seems to

> not be able to make up it's mind on anything and this person has been

> jumping from one thing to another rather quickly and wonders why

> nothing is working. This person (to my knowledge) has been on this

> site for about two years saying the same thing. I was on Minocin for

> 18 months before I went into remission. I continued as my doctor, at

> that time had no other idea than to continue. But I felt I still

> needed to step up. So after several months of research I started on

> the Marshall Protocol and am still on it after 13 months and will

> continue until I am passed phase 3. Time line, I figure will be

> around year # 4. I have scleroderma. One Doctor said he thought I

> had R/A and/or MCTD in addition to S/D. Another said I had CREST.

> Only problem with these diagnosis is that I had some of the symptoms

> but not all. So, I decided that Scleroderma was what I should treat

> as they

> > all agreed on that. It was the deadliest and it definitely had

> attacked my lungs. I was in Pulmonary Fibrosis, and for a short time,

> Pulmonary Arterial Hypertension. My disease began regressing within 6

> weeks after starting the Minocin. (The Raynauds was the first to go)

> and this continued until all symptoms were stablized and began

> healing. That is when I decided to advance my treatment. I chose

> Marshall because it also included Minocin and added Clindamycin and

> Zithromycin at different levels and different dosages. Much more

> complicated, but with great explanation and follow up from the team at

> MP. I was warned that this protocol would make me feel worse at times

> and experience herxheimer symptoms. It did. But I treated the

> symptoms with info from the protocol and concentrated on wiping out

> the micoplasmas. To go on to this long term protocol, I had to stop

> the high doses of Minocin I was on and once free of the medication, my

> > body could then start the new protocol. Since micoplasmas are slow

> growing, I didn't feel that a 6 week absence would make a difference.

> And it didn't. It is the starting and stopping and jumping from one

> thing to another and not seeing any positive results that makes me

> think doing that is contrary to long term remission. People who jump

> around constantly are just looking for instant relief and not focusing

> on the cause. Maybe they don't believe in the Infectious Theory or

> maybe it doesn't apply to their disease. So, the answer is if you are

> not in immediate danger like I was with my lungs, go for the food

> process. A few weeks off will not make micoplasmas grow fast enough

> to cause further damage. After you have found out what foods work, you

> can go back on the Minocin and omit the foods that cause you

> problems. But never lose sight of the cure while treating the

> symptoms. Good luck with your food regimen and let us know how you

> > make out. I am writing a book on how people with these so-called

> auto immune diseases cope. I am one who does not believe that the body

> is programmed to attack itself. There has to be a cause of a foreign

> substance invading the immune cells to cause the healthy immune cells

> to attack the infected immune cells. That is their job! There are so

> many stories, I found so fascinating that I was prompted to start this

> book. I have been researching and writing for almost two years and

> have learned so much. I would like to put in a chapter about foods

> and how they react with and without medication. I would like to use

> your input and the story of others like you who are trying different

> diets. So far, I have noticed that Gluten free diets are the most

> successful. So now when I go to different supermarkets, I check out

> the shelves and notice more and more products being made are gluten

> free. So someone out there must be doing some research

> > as the gluten free foods are getting tastier and increasing in

> numbers. Starting a fast has been done for as long as there has been

> mankind. There are many references to fasting in the scriptures.

> Starting back on foods that are simple and one at a time is what we do

> with babies once they start weaning. Looking for foods that cause

> trouble that way is easy and not confusing. Once you can find and

> eliminate the foods that cause you trouble, I'm sure you will feel

> better, but to kill the toxic bacteria will take going back on the

> antibiotic. There is no reason why we can't eliminate foods that are

> harmful and continue taking the antibiotic. After all, we still must

> eat to remain alive. Thank you for the opportunity to clarify. Best

> to all of you who are fasting and or changing diets. And thank you to

> the moderators of this site for giving us all the opportunities to

> learn from each other. Our best, Dolores & Mike

> >

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