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  • 4 years later...
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> Did a new test on my T total. I went down from 2 Testim to 1 Testim

> and my T total came down from 830 to 256. I retested yesterday and

> the test came back as 398. Both were before putting on the gel.

>

> How much more do you think the levels go up after the gel is put on. I

> would like to get to about 550, where I have done well in the past.

>

> Thanks

> Greg

Try looking at the prescribing info:

http://www.auxilium.com/PrescribingInformation-04Sep2003.pdf

Have you considered 1/2 tube in the morning and 1/2 at night? Not too

convenient I would suppose.

Brad

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  • 3 years later...

Hi Cec,

I wonder if you have a Thyroid Hormone receptor problem?

The paper by Panicker VJ, et al, 2008 may also be relevant ~ it's

about the varying T3:T4 ratio seen in people with different versions

of the de-iodinase (I) enzyme.

If both you and your daughter have a similar source of thyroid

malfunction ~ one or other of the above factors may be important

(else, something not mentioned above).

best wishes

Bob

>

> Hi all

>

> diagnosed December 07

>

> TSH 75.13 (0.5-5.6)

> T4 6.5 (7.5-21.1)

> put on 100mcg levo by GP although I put myself on 150 and cut back

to

> 100mcg 6 weeks before new bloods

>

> July 08

> TSH 3.33 (0.5-5.6)

> T4 9.2 (7.5-21.1)

>

> still being prescribed 100mcg levo by GP again put myself on 150

and

> cut back to 100mcg 6 weeks before new bloods

>

> November 08

>

> TSH 16.70 (0.5-5.6)

> T4 9.1 (7.5-21.1)

>

> My GP has upped me to 125mcg

>

> I'm not sure whats going on with these results is it common to

> fluctuate in this way

> can anyone give me any advice on what to do.

>

>

> I also got my daughter tested as she has hypo symptoms

> she is 16 years old

> TSH 1.30 (0.5-5.6)

> T4 9.4 (7.5-21.1)

>

> GP said she is normal so no treatment

> would i be right in saying that her T4 could be a lot higher???

>

> again any help would be appreciated

>

> Cec

>

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Hello

Cec

I think

what you are doing wrong is cutting back your T4 by 50 mcgs for 6 weeks. You

are basically putting yourself back to what you were like before the increase

and what your doctor needs to know is whether the increase is working. We only

recommend stopping your thyroxine for at least 24 hours before you have your

blood drawn for a test. If your GP did not know you had increased your dose by

50 mcgs, then she will be thinking that the 100 mcgs is working OK for you and

see no reason for an increase. What matters now is how do you feel - or should

I say, how DID you feel on the 150 mcgs T4 before cutting back to 100mcgs 6

weeks ago?

I

should imagine your TSH has shot up again because you lowered your T4 by 50

mcgs for 6 weeks. You really must not do this in the future and I would come

absolutely clean with your GP and tell her what you have done as she needs to

be kept fully in the picture if she is to understand what is causing your rise

in TSH. On treatment, your Free T4 needs to be in the upper third of the

reference range and yours is too low. It is a shame your Free T3 was not tested.

Your

daughter's FT4 could be higher. How is she feeling now and has your GP

suggested further testing for her or giving her a referral to an

endocrinologist?

Luv -

Sheila

November 08

TSH 16.70 (0.5-5.6)

T4 9.1 (7.5-21.1)

My GP has upped me to 125mcg

I'm not sure whats going on with these results is it common to

fluctuate in this way

can anyone give me any advice on what to do.

I also got my daughter tested as she has hypo symptoms

she is 16 years old

TSH 1.30 (0.5-5.6)

T4 9.4 (7.5-21.1)

GP said she is normal so no treatment

would i be right in saying that her T4 could be a lot higher???

again any help would be appreciated

Cec

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Hi Cec,

I believe that the FT4 on someone who is not on replacement thyroid is lower than someone who is on it, so this test alone does not show the full picture.

I would suggest more blood tests, the FT3 also repeating the ones taken, also ferritin as this alone if it needs to be higher (70-90) could mess us her thyroid. If she needs to raise her iron levels then this corrected could help her thyroid & then she may not need to take any replacement thyroid.

Val

I also got my daughter tested as she has hypo symptomsshe is 16 years oldTSH 1.30 (0.5-5.6)T4 9.4 (7.5-21.1)GP said she is normal so no treatmentwould i be right in saying that her T4 could be a lot higher???

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Hi bob,

my mother,grandmother and great grandmother all had thyroid problems

my sister is OK, she does however suffer from RA and sever metal

allergies

Cec

> >

> > Hi all

> >

> > diagnosed December 07

> >

> > TSH 75.13 (0.5-5.6)

> > T4 6.5 (7.5-21.1)

> > put on 100mcg levo by GP although I put myself on 150 and cut

back

> to

> > 100mcg 6 weeks before new bloods

> >

> > July 08

> > TSH 3.33 (0.5-5.6)

> > T4 9.2 (7.5-21.1)

> >

> > still being prescribed 100mcg levo by GP again put myself on 150

> and

> > cut back to 100mcg 6 weeks before new bloods

> >

> > November 08

> >

> > TSH 16.70 (0.5-5.6)

> > T4 9.1 (7.5-21.1)

> >

> > My GP has upped me to 125mcg

> >

> > I'm not sure whats going on with these results is it common to

> > fluctuate in this way

> > can anyone give me any advice on what to do.

> >

> >

> > I also got my daughter tested as she has hypo symptoms

> > she is 16 years old

> > TSH 1.30 (0.5-5.6)

> > T4 9.4 (7.5-21.1)

> >

> > GP said she is normal so no treatment

> > would i be right in saying that her T4 could be a lot higher???

> >

> > again any help would be appreciated

> >

> > Cec

> >

>

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  • 1 year later...

Hi All,

Did you see the recent article in the New York Times about

the new test now available to determine, in children, whether their scoliosis

will become progressive or not? Here’s the link: http://www.nytimes.com/2010/08/10/health/10brod.html

And here’s an excerpt:

“In

addition to eliminating braces for children whose scoliosis is unlikely to

become a serious medical problem, the test can reduce the need for frequent

doctor follow-ups with multiple spinal X-rays and extensive radiation exposure.

Marissa scored so low on the test that she won’t need another X-ray

for six months, and she should no longer have to worry about scoliosis as her

bones stop growing.

“There’s

a fair amount of anxiety

associated with a diagnosis of scoliosis,” Dr. Lonner said. “If we

can predict whether it will get worse, we can take away years of uncertainty

and provide great relief to children and their families.”

Andy Stanton

Boulder CO

www.pilatesforfragilebacks.com

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How very interesting! I hope that turns out to be accurate. It would save some

people needless difficulty with bracing if it works well. I wonder if people

would choose to just go for surgery if their test showed that they would likely

progress - therefore skipping years of dealing with the psychology of wearing

the brace.

>

> Hi All,

>

>

>

> Did you see the recent article in the New York Times about the new test now

> available to determine, in children, whether their scoliosis will become

> progressive or not? Here's the link:

> http://www.nytimes.com/2010/08/10/health/10brod.html

>

>

>

> And here's an excerpt:

>

> " In addition to eliminating braces for children whose scoliosis is unlikely

> to become a serious medical problem, the test can reduce the need for

> frequent doctor follow-ups with multiple spinal X-rays and extensive

> radiation exposure. Marissa scored so low on the test that she won't need

> another X-ray

> <http://health.nytimes.com/health/guides/test/x-ray-skeleton/overview.html?i

> nline=nyt-classifier> for six months, and she should no longer have to

> worry about scoliosis as her bones stop growing.

>

> " There's a fair amount of anxiety

> <http://health.nytimes.com/health/guides/symptoms/stress-and-anxiety/overvie

> w.html?inline=nyt-classifier> associated with a diagnosis of scoliosis, "

> Dr. Lonner said. " If we can predict whether it will get worse, we can take

> away years of uncertainty and provide great relief to children and their

> families. "

>

> Andy Stanton

>

> Boulder CO

>

> www.pilatesforfragilebacks.com <http://www.pilatesforfragilebacks.com/>

>

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  • 4 weeks later...

OK I googled anti CCP.

According to my lab test paper anything > 60 is a strong positive mine was

>250 yikes

I would loved to have had this test done when my RF was 0 keep reading

folks

Answer:

What is anti-CCP?

Anti-CCP, which stands for anti-cyclic citrullinated peptide antibody, is a

new and exciting blood test to help doctors confirm a diagnosis of

rheumatoid arthritis <http://arthritis.about.com/od/rheumatoidarthritis/> .

.. Guide

<http://arthritis.about.com/od/rheumatoidarthritis/a/rheumatoidguide.htm>

To Rheumatoid Arthritis

When is it appropriate to have this test? Does anti-CCP determine if a

patient has rheumatoid arthritis?

Anti-CCP is a very useful test to order during the diagnostic

<http://arthritis.about.com/od/radiagnosis/> evaluation of a person who may

have rheumatoid arthritis. If present in such a patient at a moderate to

high level, it not only confirms the diagnosis but also may indicate that

the patient is at increased risk for damage to the joints. (Low levels of

this antibody are less significant.) In the past, doctors relied on another

antibody, the rheumatoid

<http://arthritis.about.com/od/radiagnosis/a/rheumfactor.htm> factor (RF)

to help confirm a diagnosis.

.. What is <http://arthritis.about.com/od/radiagnosis/a/rheumfactor.htm>

Rheumatoid Factor?

What does anti-CCP indicate?

While the rheumatoid factor is more common in rheumatoid arthritis patients,

many patients with a positive test do not have rheumatoid arthritis.

Furthermore, the presence of the rheumatoid factor has less prognostic

significance than the CCP. Of interest is that if your rheumatoid factor is

negative, you are less likely to have a positive CCP. Both blood tests are

recommended in the initial evaluation of a patient with suspected rheumatoid

arthritis.

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