Re: RA and Dermatomyositis

[Guest guest]

Did the Cellcept cause the bad reaction? I ask because I am supposed to

start taking it soon.

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hi Eva. You are on the right track. I, too was diagnosed with IPF in 2005. I

started on antibiotics (Minocin) in January 2006 and in May of 2007, I went into

remission. The damage to my lungs was arrested almost immediately after

starting Minocin. I refused all the same drugs that were offered to you. I am

doing very well. My pulmonologist is thrilled with my progress and surprised

that I not only survived this long, but that I went into remission so fast. I

hope you have been introduced to the Scammell books and the Arthritis

Breakthrough by Dr. MacPherson Brown, a pioneer researcher in the

" Antibiotic Protocol " and the " Infectious Theory " . Stay in touch and let us

know how you are coming along. Do you live in the states? How did you hear

about this site? There is also the Road Back Foundation Bulletin Board site

where lots of info is exchanged and many questions answered. Good

Luck~~~~~~Dolores

Eva Holloway <holloway-eva@...> wrote: I am new to this group

and next week Monday I am going to a doctor that will treat me with antibiotics.

I became sick in 2005 with pneumonia, one pulmonary doctor gave me a five year

pneumonia shot and from then on it was downhill all the way and when they

couldn't get me well I had to have a lung biopsy done. I found out that I had

interstitial pulmonary fibrosis cause by the dermatomyositis.

The first year they treated my with cytoxen (chemo) and lots of prednisone. I

did okay, than my new pulmonary put me on antibiotics and I started to feel

better. My rhummy send me to Denver to see a specialist and he put me on

Cellcept (anti-rejection drug) in February. Well by the end of this year I had

more problems then I wished for. Such as: hemorrhage in my eyes, sores on my

hands and feet and being tired all the time. Then I started to get so weak that

after every 15 minutes doing something around the house, I had to sit down.

Please pray for me that I found the right doctor, I heard she has done this for

15 years already. I don't mind driving 191 miles to her office and my daughter

has to go too, she has osteoarthritis and inflammatory arthritis. (Ha ha, what a

pair)

thank you for listening to me.

Eva

[Guest guest]

Mike,

I joined the group several days ago. Yes, I did get both books and read them

in a few days. i found this doctor in east Texas and will be going to her on

Monday 1-21-08. I found the group through the book and read already many msgs.

I didn't know about the antibiotics or I would never taken all that garbage

they gave me.

Yes I will stay in touch and let you know how I am doing.

Take care and thanks,

Eva

mike rosner <martysfolks2004@...> wrote:

Hi Eva. You are on the right track. I, too was diagnosed with IPF in

2005. I started on antibiotics (Minocin) in January 2006 and in May of 2007, I

went into remission. The damage to my lungs was arrested almost immediately

after starting Minocin. I refused all the same drugs that were offered to you. I

am doing very well. My pulmonologist is thrilled with my progress and surprised

that I not only survived this long, but that I went into remission so fast. I

hope you have been introduced to the Scammell books and the Arthritis

Breakthrough by Dr. MacPherson Brown, a pioneer researcher in the

" Antibiotic Protocol " and the " Infectious Theory " . Stay in touch and let us know

how you are coming along. Do you live in the states? How did you hear about this

site? There is also the Road Back Foundation Bulletin Board site where lots of

info is exchanged and many questions answered. Good Luck~~~~~~Dolores

Eva Holloway <holloway-eva@...> wrote: I am new to this group and next

week Monday I am going to a doctor that will treat me with antibiotics.

I became sick in 2005 with pneumonia, one pulmonary doctor gave me a five year

pneumonia shot and from then on it was downhill all the way and when they

couldn't get me well I had to have a lung biopsy done. I found out that I had

interstitial pulmonary fibrosis cause by the dermatomyositis.

The first year they treated my with cytoxen (chemo) and lots of prednisone. I

did okay, than my new pulmonary put me on antibiotics and I started to feel

better. My rhummy send me to Denver to see a specialist and he put me on

Cellcept (anti-rejection drug) in February. Well by the end of this year I had

more problems then I wished for. Such as: hemorrhage in my eyes, sores on my

hands and feet and being tired all the time. Then I started to get so weak that

after every 15 minutes doing something around the house, I had to sit down.

Please pray for me that I found the right doctor, I heard she has done this for

15 years already. I don't mind driving 191 miles to her office and my daughter

has to go too, she has osteoarthritis and inflammatory arthritis. (Ha ha, what a

pair)

thank you for listening to me.

Eva

[Guest guest]

Eva,

It sounds as though your daugter has what i have--osteoarthritis

that is inflammatory for the most part (and in almost every joint).

But I also have antibodies to mycoplasma--does she? I have been

wondering if there are others like me on the AP and would like to

know what her doctor says.

On Jan 18, 2008, at 8:36 PM, Eva Holloway wrote:

> I am new to this group and next week Monday I am going to a doctor

> that will treat me with antibiotics.

> I became sick in 2005 with pneumonia, one pulmonary doctor gave me

> a five year pneumonia shot and from then on it was downhill all the

> way and when they couldn't get me well I had to have a lung biopsy

> done. I found out that I had interstitial pulmonary fibrosis cause

> by the dermatomyositis.

> The first year they treated my with cytoxen (chemo) and lots of

> prednisone. I did okay, than my new pulmonary put me on antibiotics

> and I started to feel better. My rhummy send me to Denver to see a

> specialist and he put me on Cellcept (anti-rejection drug) in

> February. Well by the end of this year I had more problems then I

> wished for. Such as: hemorrhage in my eyes, sores on my hands and

> feet and being tired all the time. Then I started to get so weak

> that after every 15 minutes doing something around the house, I had

> to sit down.

> Please pray for me that I found the right doctor, I heard she has

> done this for 15 years already. I don't mind driving 191 miles to

> her office and my daughter has to go too, she has osteoarthritis

> and inflammatory arthritis. (Ha ha, what a pair)

>

> thank you for listening to me.

> Eva

>

>

[Guest guest]

I don't think the Cellcept itself did this, I think the combination of Cellcept,

Enbrel and Prednisone. Cellcept is for people that have transplants, so it

should not by itself caused the weakness. I received an e-mail from Roche

(Pharmaceutical comp) they stated that Prednisone and Cellcept could cause the

eye problem. Cellcept supposed to help with the lung problem.

Hope this helps.

Eva

njteabag@... wrote:

Did the Cellcept cause the bad reaction? I ask because I am supposed

to

start taking it soon.

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Eva, perhaps if the doctors could learn about AP, they would have second

thoughts about prescribing all that other garbage. It's fantastic that

you found a doctor willing to give your AP. I am sending prayers your way.

Amy

(who knows something about taking garbage too)

Eva Holloway wrote:

>

> Mike,

> I joined the group several days ago. Yes, I did get both books and

> read them in a few days. i found this doctor in east Texas and will be

> going to her on Monday 1-21-08. I found the group through the book and

> read already many msgs.

> I didn't know about the antibiotics or I would never taken all that

> garbage they gave me.

> Yes I will stay in touch and let you know how I am doing.

> Take care and thanks,

> Eva

>

[Guest guest]

Hello Dolores,

Sorry it has been awhile since you send the MSG, but things have gone well. My

Rheumatologist was ticket of that my pulmonary doctor gave me Biaxin for the

sinus problems. I had to get off the Enbrel.

I went to see Dr. Rima Kittley and she told me that I need to eat gluten-free

foods and all the little sores on my hands and fee where a fungus. I thought

that stuff only grows on a Petrie dish (haha)

I told her that when I was a child I had an iodine problem and I had to take

iodine. When I became older the doctors told me I didn't need it and so I just

lived with a problem in my throat all this time. After two weeks on the iodine I

can tell the different, no more tight throat or feeling that I am choking.

I started to walk better already and the Dermatomyositis looks like is going

away. My face has less redness and my hands have at this time no sores.

I am taking a lot of minerals and herbs but the doctor things I am on

something good and that I had done some homework.

I read several articles on the rheumatic site about hormones. I have tried the

stuff the docs gave me and the natural one and every time I take the hormones I

get this severe headaches and had to stop.

I do take cal-mag, d3 (1000 mg ) twice a week, a & d3 (400 mg) every day,

b-12, iodine, folic acid, every day, Omega 3 (3 caps) daily and naturally

probiotics twice a day. and a few other things. I gave all this info to Dr.

Kittley and she didn't take me off anything I am already taking.

I took myself of Prednisone after I had tapered down to a very small amount.I

am still taking Cellcept, but working on that to get off to.

So hopefully after all the bad stuff is out of my system I will get even

better.

Yesterday I checked on the different symptoms of herx and belief it or not I

have that problem in my mouth. I couldn't figure out why all of a sudden I had a

tooth ache on a spot I didn't even have a tooth for years, and also I always

have this bitter taste in my mouth. Since it is only annoying I can stand it.

Well what along letter. Sorry to bend your ear that way, but sometimes it

helps to talk (write) to someone that understands your problem.

I have a friend she took my to all my chemo sessions and to the doctors at

times I couldn't drive myself. She is little angry at what the put me through.

She has known me for over ten years and seen what happened when they pumped me

full of all this good ( oh yea) medicine.

Take care. Hope you feeling well and stay that way.

Eva

mike rosner <martysfolks2004@...> wrote:

Hi Eva. You are on the right track. I, too was diagnosed with IPF in

2005. I started on antibiotics (Minocin) in January 2006 and in May of 2007, I

went into remission. The damage to my lungs was arrested almost immediately

after starting Minocin. I refused all the same drugs that were offered to you. I

am doing very well. My pulmonologist is thrilled with my progress and surprised

that I not only survived this long, but that I went into remission so fast. I

hope you have been introduced to the Scammell books and the Arthritis

Breakthrough by Dr. MacPherson Brown, a pioneer researcher in the

" Antibiotic Protocol " and the " Infectious Theory " . Stay in touch and let us know

how you are coming along. Do you live in the states? How did you hear about this

site? There is also the Road Back Foundation Bulletin Board site where lots of

info is exchanged and many questions answered. Good Luck~~~~~~Dolores

Eva Holloway <holloway-eva@...> wrote: I am new to this group and next

week Monday I am going to a doctor that will treat me with antibiotics.

I became sick in 2005 with pneumonia, one pulmonary doctor gave me a five year

pneumonia shot and from then on it was downhill all the way and when they

couldn't get me well I had to have a lung biopsy done. I found out that I had

interstitial pulmonary fibrosis cause by the dermatomyositis.

The first year they treated my with cytoxen (chemo) and lots of prednisone. I

did okay, than my new pulmonary put me on antibiotics and I started to feel

better. My rhummy send me to Denver to see a specialist and he put me on

Cellcept (anti-rejection drug) in February. Well by the end of this year I had

more problems then I wished for. Such as: hemorrhage in my eyes, sores on my

hands and feet and being tired all the time. Then I started to get so weak that

after every 15 minutes doing something around the house, I had to sit down.

Please pray for me that I found the right doctor, I heard she has done this for

15 years already. I don't mind driving 191 miles to her office and my daughter

has to go too, she has osteoarthritis and inflammatory arthritis. (Ha ha, what a

pair)

thank you for listening to me.

Eva