Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Leonie, You raise many issues. My personal take is that while the prolonged use of antibiotics is not without possible side effects, it is safer than the prolonged use of most other drugs for RA, in particular steroids and non-steroidal anti-inflammatory drugs (NSAIDS), such as Naproxen. Antibiotics do not cause many illnesses in the person taking them, but the overuse of antibiotics has been blamed for fostering the growth of antibiotic resistant bacteria, which can bring illnesses to entire populations. If patients do not take antibiotics long enough to kill all bacteria causing a specific infection, the most drug resistant bacteria will survive. These will multiply and strive under the law of survival of the fittest. If you personally take antibiotics for a long time, all of your infectious bacteria will die. There a many web pages with list side effects of minocycline, such as www.rxlist.com/cgi/generic/minocycline_ad.htm. When given over prolonged periods, tetracyclines (which include Minocin) have been reported to produce brown-black microscopic discoloration of the thyroid gland. Cases of abnormal thyroid function have been reported. There has been evidence of oncogenic activity in rats in studies with a related antibiotic, oxytetracycline (ie, adrenal and pituitary tumors). See www.rxlist.com/cgi/generic/minocin_wcp.htm. I can really relate to your email. Minocin worked for me for five years, and then ceased working. Then I was diagnosed with a torn meniscus in both knees and as really having polymyalgia rheumatica, not RA. Following arthroscopic knee and shoulder surgery, plus treatment with Prednisone, I am now better than ever since catching RA almost nine years ago. If I were you, I would give it a go and enjoy the health that I do have. Sincerely, Harald At 09:49 PM 4/9/2008, you wrote: >... What I want to know is why many people on the AP get relief for >a period of time, say several years, and then find that the RA >returns full force ? If the AP was any good, this wouldn't happen. >They then have to take different/stronger antibiotics. It seems that >the AP is not a cure, but a measure to control the mycoplasma or >inflammation, which I'm not saying is a bad thing, but why do the >effects wane in the long term ? Of course, any relief for any period >of time is of great value, but it makes me doubt it's true >effectiveness - is it just another drug like the DMARDS ? I realise >that auto-immune conditions are not diseases that just go away, and >that any sort of therapy to bring relief is better than nothing - >it's an awful disease. It's just that I am feeling uncertain about >antibiotics and am stalling on taking my prescription. It's not that >I have much choice anyway - the disease is taking it's toll on me >and I'm not getting any better when left to my own device s. I am so >worried that antibiotics will cause more damage to me than good - >don't they say that many illnesses result from the use of >antibiotics ? How can AP be of any good to me then ? I guess if I do >all the right things like take pro-biotics and supps etc, I can >counter the side effects. I know all these things and have mulled it >around in my head endlessly, but it's hard to take the leap of faith >and give it a go. > >Thanks for listening... > >Leonie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Leonie, That's the beauty of antibiotics. When they work for you ,you will not get any worse. Some of your problems or symptoms actually go back and get better. Like minor deformaties. My left pointer started drifting especially under stress or when I got tired. It has not done that for years. I truly believe antibiotics do not cause any other problems except yeast. I believe GENERICS cause the problems they are saying are from antibiotics. Generics are not strong enough and do not get absorbed in the same way so they only work partially. I hate generics of all kinds. The longer you take to do this the worse you are getting. While you wait your body is starteing to make deformaties that will not go away. Your body is starting to wear away in places and you have no idea of how disabling you can get. While you wait you are wallowing in pain. GET with the program!!! :-) <soft pleading smile> I would not be so adamant if I had problems caused by antibiotics being on them 10 years. YES 10 YEARS. 's client is more lucky than you or she knows. Most people believe their " quacks " that say antibiotics are quackery. is open minded and a true practicing doctor. Ge to your doc and get on antibiotics. I do not want to hear you say in 2 or 3 years " I wish I had done this sooner " > Hugs, Cooky Thanks for the update , The results are encouraging and your client is lucky to have you on her side. What I want to know is why many people on the AP get relief for a period of time, say several years, and then find that the RA returns full force ? If the AP was any good, this wouldn't happen. They then have to take different/stronger antibiotics. It seems that the AP is not a cure, but a measure to control the mycoplasma or inflammation, which I'm not saying is a bad thing, but why do the effects wane in the long term ? Of course, any relief for any period of time is of great value, but it makes me doubt it's true effectiveness - is it just another drug like the DMARDS ? I realise that auto-immune conditions are not diseases that just go away, and that any sort of therapy to bring relief is better than nothing - it's an awful disease. It's just that I am feeling uncertain about antibiotics and am stalling on taking my prescription. It's not that I have much choice anyway - the disease is taking it's toll on me and I'm not getting any better when left to my own devices. I am so worried that antibiotics will cause more damage to me than good - don't they say that many illnesses result from the use of antibiotics ? How can AP be of any good to me then ? I guess if I do all the right things like take pro-biotics and supps etc, I can counter the side effects. I know all these things and have mulled it around in my head endlessly, but it's hard to take the leap of faith and give it a go. Thanks for listening... Leonie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 What if your doc will only prescribe the generic??? -------------- Original message ---------------------- From: " C Stonkey " <cookee1@...> > Leonie, > > > > That's the beauty of antibiotics. When they work for you ,you will not get > any worse. Some of your problems or symptoms actually go back and get > better. Like minor deformaties. My left pointer started drifting especially > under stress or when I got tired. It has not done that for years. > > > > I truly believe antibiotics do not cause any other problems except yeast. I > believe GENERICS cause the problems they are saying are from antibiotics. > Generics are not strong enough and do not get absorbed in the same way so > they only work partially. I hate generics of all kinds. > > > > The longer you take to do this the worse you are getting. While you wait > your body is starteing to make deformaties that will not go away. Your body > is starting to wear away in places and you have no idea of how disabling you > can get. While you wait you are wallowing in pain. GET with the program!!! > :-) <soft pleading smile> > > > > I would not be so adamant if I had problems caused by antibiotics being on > them 10 years. YES 10 YEARS. > > > > 's client is more lucky than you or she knows. Most people believe > their " quacks " that say antibiotics are quackery. is open minded and > a true practicing doctor. > > > > Ge to your doc and get on antibiotics. I do not want to hear you say in 2 or > 3 years " I wish I had done this sooner " > > > > > Hugs, > > > > Cooky > > > > > > Thanks for the update , > > The results are encouraging and your client is lucky to have you on her > side. > > What I want to know is why many people on the AP get relief for a period of > time, say several years, and then find that the RA returns full force ? If > the AP was any good, this wouldn't happen. They then have to take > different/stronger antibiotics. It seems that the AP is not a cure, but a > measure to control the mycoplasma or inflammation, which I'm not saying is a > bad thing, but why do the effects wane in the long term ? Of course, any > relief for any period of time is of great value, but it makes me doubt it's > true effectiveness - is it just another drug like the DMARDS ? I realise > that auto-immune conditions are not diseases that just go away, and that any > sort of therapy to bring relief is better than nothing - it's an awful > disease. It's just that I am feeling uncertain about antibiotics and am > stalling on taking my prescription. It's not that I have much choice anyway > - the disease is taking it's toll on me and I'm not getting any better when > left to my own devices. I am so worried that antibiotics will cause more > damage to me than good - don't they say that many illnesses result from the > use of antibiotics ? How can AP be of any good to me then ? I guess if I do > all the right things like take pro-biotics and supps etc, I can counter the > side effects. I know all these things and have mulled it around in my head > endlessly, but it's hard to take the leap of faith and give it a go. > > Thanks for listening... > > Leonie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Well you can do a couple of things.. Look on Harolds list for the generic that has worked for other people and see if your pharmacy will order that brand. Try the generic.you should know in a couple of weeks whether it is helping or hindering. BEG! :-))) Call Canada and see if they will substitute the brand for the generic your doctor ordered and then of course you must order from them and pay out of pocket. Ask your pharmacist if they will substitute the brand and you pay out of pocket. Hope this helps..just do it Leonie!!! OH and I was just talking about generics causing problems when they are used for things other than rheumatic problems. Some generics work for this. Hugs, Cooky -------------- Original message ---------------------- From: " C Stonkey " <cookee1comcast (DOT) <mailto:cookee1%40comcast.net> net> > Leonie, > > > > That's the beauty of antibiotics. When they work for you ,you will not get > any worse. Some of your problems or symptoms actually go back and get > better. Like minor deformaties. My left pointer started drifting especially > under stress or when I got tired. It has not done that for years. > > > > I truly believe antibiotics do not cause any other problems except yeast. I > believe GENERICS cause the problems they are saying are from antibiotics. > Generics are not strong enough and do not get absorbed in the same way so > they only work partially. I hate generics of all kinds. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 What is Harolds list? -------------- Original message ---------------------- From: " C Stonkey " <cookee1@...> > Well you can do a couple of things.. > > > > Look on Harolds list for the generic that has worked for other people and > see if your pharmacy will order that brand. > > > > Try the generic.you should know in a couple of weeks whether it is helping > or hindering. > > > > BEG! :-))) > > > > Call Canada and see if they will substitute the brand for the generic your > doctor ordered and then of course you must order from them and pay out of > pocket. > > > > Ask your pharmacist if they will substitute the brand and you pay out of > pocket. > > > > Hope this helps..just do it Leonie!!! > > > > OH and I was just talking about generics causing problems when they are used > for things other than rheumatic problems. Some generics work for this. > > > > > > Hugs, > > > > Cooky > > > > > > > > -------------- Original message ---------------------- > From: " C Stonkey " <cookee1comcast (DOT) <mailto:cookee1%40comcast.net> net> > > Leonie, > > > > > > > > That's the beauty of antibiotics. When they work for you ,you will not get > > any worse. Some of your problems or symptoms actually go back and get > > better. Like minor deformaties. My left pointer started drifting > especially > > under stress or when I got tired. It has not done that for years. > > > > > > > > I truly believe antibiotics do not cause any other problems except yeast. > I > > believe GENERICS cause the problems they are saying are from antibiotics. > > Generics are not strong enough and do not get absorbed in the same way so > > they only work partially. I hate generics of all kinds. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Harold is one of our members that maintains a web site that has a list of the names of generic minocin that has worked for other members. I for some reason, always have a hard time getting into it. Maybe he is reading this and will post the address. <please Harold?> What is Harolds list? -------------- Original message ---------------------- From: " C Stonkey " <cookee1comcast (DOT) <mailto:cookee1%40comcast.net> net> > Well you can do a couple of things.. > > > > Look on Harolds list for the generic that has worked for other people and > see if your pharmacy will order that brand. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 On Apr 10, 2008, at 7:04 PM, C Stonkey wrote: > Well you can do a couple of things.. > > Look on Harolds list for the generic that has worked for other > people and > see if your pharmacy will order that brand. > > Try the generic.you should know in a couple of weeks whether it is > helping > or hindering. > > BEG! :-))) > > Call Canada and see if they will substitute the brand for the > generic your > doctor ordered and then of course you must order from them and pay > out of > pocket. > > Ask your pharmacist if they will substitute the brand and you pay > out of > pocket. > > Hope this helps..just do it Leonie!!! > > OH and I was just talking about generics causing problems when they > are used > for things other than rheumatic problems. Some generics work for this. > > Hugs, > > Cooky > > -------------- Original message ---------------------- > From: " C Stonkey " <cookee1comcast (DOT) <mailto:cookee1%40comcast.net> > net> > > Leonie, > > > > > > > > That's the beauty of antibiotics. When they work for you ,you > will not get > > any worse. Some of your problems or symptoms actually go back and > get > > better. Like minor deformaties. My left pointer started drifting > especially > > under stress or when I got tired. It has not done that for years. > > > > > > > > I truly believe antibiotics do not cause any other problems > except yeast. > I > > believe GENERICS cause the problems they are saying are from > antibiotics. > > Generics are not strong enough and do not get absorbed in the > same way so > > they only work partially. I hate generics of all kinds. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 On 4/10/08 6:35 PM, " C Stonkey " <cookee1@...> wrote: > Harold is one of our members that maintains a web site that has a list of > the names of generic minocin that has worked for other members. I for some > reason, always have a hard time getting into it. Maybe he is reading this > and will post the address. <please Harold?> Here's the page. http://www.tmgp.com/minocin.htm It's worth a bookmark. -- Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Harald's list is at www.tmgp.com/minocin.htm Harald At 04:08 PM 4/10/2008, you wrote: >What is Harolds list? >-------------- Original message ---------------------- >From: " C Stonkey " <<mailto:cookee1%40comcast.net>cookee1@...> >Well you can do a couple of things.. > >Look on Harolds list for the generic that has worked for other people and >see if your pharmacy will order that brand. > >Try the generic.you should know in a couple of weeks whether it is helping >or hindering. > >BEG! :-))) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 As a newbie I can only guess based on what I've read about it. I particularly like the information and studies regarding Lyme disease, as it also causes RA and it's proven. So I can take those studies and apply them to Mr Perfect. The primary problem is the quiescence phase in the replication of the bacterium, and it's long life cycle. Absolutely none of the antibiotics, nor the bodies own immune system actually kills the mycoplasma bacteria. What they can do though, is prevent the bacteria from multipying until it eventually dies. The specific antibiotics used do this by preventing RNA replication. However, all the mycoplasma has to do to circumvent the treatment is to go into hibernation (it's quiescence stage) and wait it out. And it can wait for many years. Stopping the treatment allows the bacteria to begin replicting once it wakes up, and you have to start all over again. That is why it appears that the antibiotics have to be taken forever. Or at least for as long as the bacterium can hibernate. There are no studies that I have found that indicate exactly how long that is ... other than years. Blessings > > Thanks for the update , > > The results are encouraging and your client is lucky to have you on her side. > > What I want to know is why many people on the AP get relief for a period of time, say several years, and then find that the RA returns full force ? If the AP was any good, this wouldn't happen. They then have to take different/stronger antibiotics. It seems that the AP is not a cure, but a measure to control the mycoplasma or inflammation, which I'm not saying is a bad thing, but why do the effects wane in the long term ? Of course, any relief for any period of time is of great value, but it makes me doubt it's true effectiveness - is it just another drug like the DMARDS ? I realise that auto-immune conditions are not diseases that just go away, and that any sort of therapy to bring relief is better than nothing - it's an awful disease. It's just that I am feeling uncertain about antibiotics and am stalling on taking my prescription. It's not that I have much choice anyway - the disease is taking it's toll on me and I'm not getting any better when left to my own devices. I am so worried that antibiotics will cause more damage to me than good - don't they say that many illnesses result from the use of antibiotics ? How can AP be of any good to me then ? I guess if I do all the right things like take pro-biotics and supps etc, I can counter the side effects. I know all these things and have mulled it around in my head endlessly, but it's hard to take the leap of faith and give it a go. > > Thanks for listening... > > Leonie > > > > > Quote Link to comment Share on other sites More sharing options...
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