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Re: Update hospital denying tx/Debbie

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First, congratulations,  You are very brave and a leader amongst us.  Second,

why not bring a criminal charge against them for attempting to defraud you. That

is larceny. And third a civil suit for all the pain and suffering they caused

you.  Don't all doctors say to relax and not get stressed?  Doesn't Big Pharm

make millions on pills that relax us? You certainly should be compensated for

all the stress you went through.  I am surprised that lawyers have not yet

contacted you.  I think this would set a great example for all big business out

there where CEO's watch porn on their government paid for monitors while we

sweat out the exhorbitant bills and they steal from Medicare and Medicaid.  This

should somehow get to the President.  He is trying to make an honest nation out

of corporate corruption, I hope!  Dolores

From: DEBBIE GIBSON <Debbullwinkle@...>

Subject: rheumatic Update hospital denying tx/Debbie

" support group " <rheumatic >

Cc: " socjog " <socjog@...>, " Ellen McCool " <ellenmccool@...>

Date: Friday, January 30, 2009, 10:49 PM

HI all, just got a letter today regarding the battle we have been having with

the hospital billing incorrectly and forcing me...defrauding me...by telling me

they could not bill Medicare without that form being signed, hospital sent me a

letter, telling me that my photopheresis tx for next Mon and Tue, I will need to

schedule at another facility. The story will be in this weeks local paper and

the tv news reporter that filmed my meeting with the hospital billing dept over

a year ago...where they kept insisting I sign that form..or they could not bill

Medicare.... .he is running the story on the Monday evening news...I have also

let Mr. Ross of 20/20 know that I received the letter....In addition I have been

in contact with ARRP the Magazine.... about doing a story, so this will not

happen to others....

It is all good, I will find another facility that can hopefully give me this

life saving treatment and further, I don't have to go to Indiana on Mon and Tues

now....After 3 yrs I am tired...but I know what happens when I don't get

it...the SD brings on the lung disease and then I start suffocating.

...ugh...hate that...so I will get to work next week finding another facility to

treat me...nice huh...AND this hospital is a non-profit.. .but the DRs have the

right to not treat a patient AND the letter expressly stated that the hospital

spoke with my Drs and they agreed I should go elsewhere...

Hope everyone is doing well....Have a great weekend...stay warm if you live in

the Midwest!!

Debbie

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Thank you Delores....once the story goes public here and in Indy...I am hopeful

that the attys will be more receptive to taking the case on a

contingency...since we have so much proof what they put me thru...and the fact

that they lied...on camera too!! about the form being needed and then using it

to balance bill me....and I have emails that I forwarded to the tv

stations...the word is getting out...the DRs, by refusing to treat me now...have

opened themselves up....we will see what an atty has to say...I know they are

only doing what the hospital made them do...I filed a complaint with the board

where the hospital is accredited as well...and with Med and my secondary and

with the State of IN AG office....It has been exhausting...I am bound and

determined that they will NOT ever be able to do that to another ill

patient....fortunately, the God's were looking out for me...when I called the

TV reporter in Indy, where I get my chemo, he answered his phone...sent out his

cameraman and we have it on tape the very first meeting with the billing dept

where I was refusing to sign the form....and with the emails additionally

backing me up...saying the same thing...we are pretty well documented...If Mr.

Ross does indeed do the story and he has indicated he is interested....it will

be National and then 2 good things will happen....1) no provider will hopefully

be able to tell a Medicare patient they have to sign that form and then use it

to balance bill them...and 2) my photopheresis tx will be on tv and explained as

a very viable tx for SD lung disease...I just found out yesterday from

Yale...OMG this is big news...I fought my insurance in 2005...fought them for

over a year to get the photopheresis for my SD lung disease....Anthem denied and

denied....well, they told me yesterday that Yale has 3 SD patients getting

photopheresis for their lung disease and GUESS WHAT !!! Anthem gave them

approval!!!!!! YAYYYYYYYY!!

It is all good Delores....all good....there is a reason why this happened to

me...I apparently am supposed to fight this battle....I just am so thankful that

I had the presence of mind to call the local TV station and get a cameraman sent

out to document and that I refused to sign the form outright, only signing it

when they said I had to....they cannot submit a claim to Medicare without

it...only signing it with the amended...I am NOT agreeing to pay for anything

other than deductible and out of pocket from Anthem...whew...

Things happen for a reason...I would prefer to NOT be on National TV but if that

is what it takes...so be it! If Mr. Ross does go with the story I will make sure

I post on the board...

Thanks for writing, always good to hear from you...Debbie

rheumatic Update hospital denying tx/Debbie

" support group " <rheumatic >

Cc: " socjog " <socjog@...>, " Ellen McCool "

<ellenmccool@...>

Date: Friday, January 30, 2009, 10:49 PM

HI all, just got a letter today regarding the battle we have been having with

the hospital billing incorrectly and forcing me...defrauding me...by telling me

they could not bill Medicare without that form being signed, hospital sent me a

letter, telling me that my photopheresis tx for next Mon and Tue, I will need to

schedule at another facility. The story will be in this weeks local paper and

the tv news reporter that filmed my meeting with the hospital billing dept over

a year ago...where they kept insisting I sign that form..or they could not bill

Medicare.... .he is running the story on the Monday evening news...I have also

let Mr. Ross of 20/20 know that I received the letter....In addition I have been

in contact with ARRP the Magazine.... about doing a story, so this will not

happen to others....

It is all good, I will find another facility that can hopefully give me this

life saving treatment and further, I don't have to go to Indiana on Mon and Tues

now....After 3 yrs I am tired...but I know what happens when I don't get

it...the SD brings on the lung disease and then I start suffocating.

...ugh...hate that...so I will get to work next week finding another facility to

treat me...nice huh...AND this hospital is a non-profit.. .but the DRs have the

right to not treat a patient AND the letter expressly stated that the hospital

spoke with my Drs and they agreed I should go elsewhere...

Hope everyone is doing well....Have a great weekend...stay warm if you live in

the Midwest!!

Debbie

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Hi Debbie, this is so fantastic!  You are doing this for all of us and I feel

for your pain and struggle.  I can't wait!  Let me know when it goes national. 

I'll have Mike record it.  I also will want to put the story into my book, with

your permission, of course.  This is monumental.  I also have pulmonary

fibrosis.  Last exam was a year ago.  I have an appointment next week with a new

pulmonologist. ( You know after 12 years in the same spot, we moved twice this

year)---Thus the new doc.  Last time, it was good news.  The fibrosis did not

advance and even showed signs of regression.  Don't know what will happen this

time.  Am keeping my fingers crossed.  I have been under a lot of stress with

the moves and moving my 94 year old mom with Alzheimer's.  She forgets she has

just eaten and starts giving me hell about an hour after meals saying she is

hungry.  Then I put food in front of her, she picks a little, leaves the rest

and two hours

later she is yelling that she hasn't eaten all day.  My husband and I are

taking turns feeding her every two hours, tidbits of food. She wants complete

meals from soup to dessert.  And then she picks a bit on everything and won't

eat lefovers.   It's like having a newborn crying for food every two hours. 

Well, thank God she sleeps through the night. I hope I will never need

photophoresis, but I thank you from the bottom of my heart for paving the way

should I ever have to have it.  I don't know where you got the strength to fight

them.  But you go girl!  Take them for all you can and then make a movie out of

it.  We are keeping an eye on you!  Hooray, for you,  Love to you from all of

us, Dolores & Mike

From: DEBBIE GIBSON <Debbullwinkle@ fuse.net>

Subject: rheumatic Update hospital denying tx/Debbie

" support group " <rheumatic@grou ps.com>

Cc: " socjog " <socjogoptonline (DOT) net>, " Ellen McCool " <ellenmccool@ bellsouth.

net>

Date: Friday, January 30, 2009, 10:49 PM

HI all, just got a letter today regarding the battle we have been having with

the hospital billing incorrectly and forcing me...defrauding me...by telling me

they could not bill Medicare without that form being signed, hospital sent me a

letter, telling me that my photopheresis tx for next Mon and Tue, I will need to

schedule at another facility. The story will be in this weeks local paper and

the tv news reporter that filmed my meeting with the hospital billing dept over

a year ago...where they kept insisting I sign that form..or they could not bill

Medicare.... .he is running the story on the Monday evening news...I have also

let Mr. Ross of 20/20 know that I received the letter....In addition I have been

in contact with ARRP the Magazine.... about doing a story, so this will not

happen to others....

It is all good, I will find another facility that can hopefully give me this

life saving treatment and further, I don't have to go to Indiana on Mon and Tues

now....After 3 yrs I am tired...but I know what happens when I don't get

it...the SD brings on the lung disease and then I start suffocating.

...ugh...hate that...so I will get to work next week finding another facility to

treat me...nice huh...AND this hospital is a non-profit.. .but the DRs have the

right to not treat a patient AND the letter expressly stated that the hospital

spoke with my Drs and they agreed I should go elsewhere...

Hope everyone is doing well....Have a great weekend...stay warm if you live in

the Midwest!!

Debbie

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