Re: Need guidance for RA

[Guest guest]

Welcome to the group!  Ask for a copy of the faq. titled " The most frequently

asked questions about A/P " .  Someone on this site posts them from time to time. 

Print it and digest it thoroughly.  As for finding the right doctor, ask for a

list of A/P docs in your area.  A few people on this site have those lists.  You

may also try the Roadback.org site.  They also have lots of information.  Become

a regular member.  If you live anywhere near Boston, go to Dr. Trentham on the

Harvard campus. He is the Chief of the Rheumatologist department at the Medical

School. He is and has been involved with research there and published the MIRA

studies.  He will put you on Brand name Minocin immediately.  There is also a

Dr. Franco in California who does a lot of publishing re: A/P.  Others may be

able to steer you to a place near you.  The important thing is to get tested and

start the antibiotics asap. I gave up on rheumatologists and now see an

Infectious Disease doctor.  Getting a doctor to be compliant with the

Antibiotic Protocol is the most difficult and you may have to see a few docs

before getting the right one for you.  This therapy is not readily accepted by

the Rheumatology people yet because they claim that there aren't enough studies

to accept it. Also, they are married to Big Pharm who keep making toxic drugs to

put down the immune system.  You need your immune system intact in order to

fight off the offending microrganisms.  The few studies done were of short

duration and this therapy is for long term low dose antibiotics.  I have been on

them for 4+ years and am alive because of them.  Back in December of 2005, I was

given about 5 months to live.  I am in remission!  My blood work has converted

to normal.  Good luck to you.  Accept no less!  Insist on doing the protocol. 

It is your life.  Good luck and stay with the groups. The best to you, Dolores &

Mike

From: mallway.perkins <mallway.perkins@...>

Subject: rheumatic Need guidance for RA

rheumatic

Date: Monday, September 14, 2009, 12:42 PM

 

I've just read " The Road Back " . I have AR and have been miserable for the past 4

years. My Rheumatologist is arrogant and is not open to any other ideas to treat

me, so basically I've stopped seeing him.Should I ask my family doctor to try

this protacol? or find another doctor? ....I need to hear your stories, plus I

am new to and I'm not real sure how to navigate...any shared experiences

helps me have hope.

Thanks,

[Guest guest]

Go to http://rheumatic.org/support.htm there are lots of info and

stories.

Cooky

Subject: rheumatic Need guidance for RA

I've just read " The Road Back " . I have AR and have been miserable for the

past 4 years. My Rheumatologist is arrogant and is not open to any other

ideas to treat me, so basically I've stopped seeing him.Should I ask my

family doctor to try this protacol? or find another doctor? ....I need to

hear your stories, plus I am new to and I'm not real sure how to

navigate...any shared experiences helps me have hope.

Thanks,

[Guest guest]

I have a case of Neaurapathy as it was diagnosed by a M.D.   My feet are burning

all the time it think it was brought on by alcohol,that was one of the symtoms

conveyed on the WebMD  website,  who knows .Any way what I am  going through is

not as bad or sad as what some members of this group is experiencing.It is not

life threatening,Praise YAH.However I can tell anyone that if your M.d .Does not

care sincerely about your well being or welfare as a HUMAN BEING and not a

number/$  then one  should definate seek a second opinion from a another 

DR.Anyway if anyone needs help with FREE Anti-Virus or  on using  computers.I

offer free WILL services superc_1969@...  RESPECT...

Nigel Francois

________________________________

From: mallway.perkins <mallway.perkins@...>

rheumatic

Sent: Monday, September 14, 2009 12:42:45 PM

Subject: rheumatic Need guidance for RA

 

I've just read " The Road Back " . I have AR and have been miserable for the past 4

years. My Rheumatologist is arrogant and is not open to any other ideas to treat

me, so basically I've stopped seeing him.Should I ask my family doctor to try

this protacol? or find another doctor? ....I need to hear your stories, plus I

am new to and I'm not real sure how to navigate...any shared experiences

helps me have hope.

Thanks,

__________________________________________________________________

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[Guest guest]

I saw Dr. A. Franco in Riverside California.  He is very knowledgable

about AP therapy for rheumatic diseases. Also recommends supplements to counter

some of the side-effects I've read about.   I was recently dx w/ DM and live in

Colorado.  I felt it was worth it to travel to see someone w/ experience. 

Something to consider if you're able.

 

Also - read the book, The New Arthritis Breakthrough by Henry Scammell.  It's

easy to read and very informative - a must read!

 

Best of Luck to You, Charlene

From: mallway.perkins <mallway.perkins@ gmail.com>

Subject: rheumatic Need guidance for RA

rheumatic@grou ps.com

Date: Monday, September 14, 2009, 12:42 PM

 

I've just read " The Road Back " . I have AR and have been miserable for the past 4

years. My Rheumatologist is arrogant and is not open to any other ideas to treat

me, so basically I've stopped seeing him.Should I ask my family doctor to try

this protacol? or find another doctor? ....I need to hear your stories, plus I

am new to and I'm not real sure how to navigate...any shared experiences

helps me have hope.

Thanks,