Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 Hi Gwen, Did you need the IV antibiotics initially, or just the tablets 3 times a week ? I am confused about whether I will need IV therapy in the beginning or not. Thanks... Leonie rheumatic from North Coast Hello Leonie, Please allow me to introduce myself my name is and I live near Byron Bay in the North Coast. Like yourself I have been trying natural remedies to treat my RA. When diagnosed in Oct'05 my RF reading was considered high at 38 by my doctor. With my refusal to take all the toxic meds that the Rheumy suggested I take to myself and my doctor. My latest reading in Oct'07 was 515 as you can imagine the pain and loss of mobility that I am currently experiencing. I receive all latest e-mails from the group but for some reason cannot post anything for myself. Your e-mail has caught my eye for the following reasons. After 3 months of continually calling Dr. Mouroukas. He finally rang and explained what his approach was with this AP therapy. Like you I also am apprehensive of taking any more drugs that I have too. In speaking with the doctor he has informed me that the distance between the North Coast and Sydney would prove to be difficult in doing this AP therapy. What I would like to know if you do not mind if you do decide to do his treatment could you advise how the you find the therapy with living in Canberra, how sick you actually get. I know you haven't started yet he sounded really nice and for myself I'm quite interested in starting as I want to get better. Thank you e-mail tuffys@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 Hi everyone and Happy New Year. Your stories all sound like mine. I was at Death's door for most of the yr. 2005. In October of 2005, I was told that I had, not long to live. I looked the part of a dying person. Started Minocin 2 months later and exactly 18 months later in May of 2007, I went into remission. To look at me now, you would never guess that I literally came back from the grasp of the grim reaper. Your doc on one side of Australia is saying he can't treat you is just stringing you along. All he/she has to do is write the script for Minocin and fax it to the pharmacy, then mail the original. I see my Rheumy in Boston once a yr. My Primary Care Physician nearby does all the necessary blood work and the Rheumy gets the results. Find yourself another Rheumy and if you can't, then print out lots of material on A/P and bring it with you to your next appt. with your family doc. You've got to convince them. They don't turn easily. But if you show them that that's the only way you will do business with them, then rather than lose you altogether as a patient, they will write the script. Don't accept less than 100mg, twice a day every day for at least two years, then re-evaluate the situation. Make sure it is the brand name by Triax and it is the pelleted kind and not the powder. Some people do well on the powder, some don't. I never used the generic, so I don't know. Take it on an empty stomach. Do not eat solids two hours prior or two hours after taking the Minocin dose.. Foods will hamper the ability for Minocin to work to it's full potential. Minocin will irritate your esophagus especially if you lay down to sleep right after taking it. So, drink it with lots of water and sit upright at least 30 minutes or longer. Best to take it and watch a good hour long TV show to take your mind off it. You may have to resort to taking some Acidophillus or Lactobacillus tablets to replace the good bacteria in your stomach. Do this at least and hour or half hour before taking the minocin dosage. If you still continue with the Reflux problems, then have your doc prescribe something stronger for your stomach. You may also develop problems with yeast infections. Remember antibiotics kills good bacteria also. You may need to take an antifungal sometimes. I never did, but others, do. Try to live thru the adjustment period, which may be bumpy at first, but will reap great rewards later. Brace yourself and go for the ride. Write often, we will support you and help you. Try the libraries for your copy of Henry Scammells books. I don't know many patients who would give up their copy of the book. The main thing is to get started on the Minocin as soon as possible and read the books when it shows up. God Bless~~~~~~~Dolores leonie cent <leoniecent@...> wrote: Hi Gwen, Did you need the IV antibiotics initially, or just the tablets 3 times a week ? I am confused about whether I will need IV therapy in the beginning or not. Thanks... Leonie rheumatic from North Coast Hello Leonie, Please allow me to introduce myself my name is and I live near Byron Bay in the North Coast. Like yourself I have been trying natural remedies to treat my RA. When diagnosed in Oct'05 my RF reading was considered high at 38 by my doctor. With my refusal to take all the toxic meds that the Rheumy suggested I take to myself and my doctor. My latest reading in Oct'07 was 515 as you can imagine the pain and loss of mobility that I am currently experiencing. I receive all latest e-mails from the group but for some reason cannot post anything for myself. Your e-mail has caught my eye for the following reasons. After 3 months of continually calling Dr. Mouroukas. He finally rang and explained what his approach was with this AP therapy. Like you I also am apprehensive of taking any more drugs that I have too. In speaking with the doctor he has informed me that the distance between the North Coast and Sydney would prove to be difficult in doing this AP therapy. What I would like to know if you do not mind if you do decide to do his treatment could you advise how the you find the therapy with living in Canberra, how sick you actually get. I know you haven't started yet he sounded really nice and for myself I'm quite interested in starting as I want to get better. Thank you e-mail tuffys@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Hi Gwen I am going to try 200 mg of Minocin per day to fight a flair which seems to be persistent. I was on 100 mg 3x a week. RA involves the tendons I am finding out with one behind my knee and one attached to my thumb aching. Any suggestions?I will see my rheumy in March 2008 and he may suggest MTX and Humira? Have you any experience of these? Take Care. Ken. Gwen <gmartin4@...> wrote: Hi Leonie, I did not have IV antibiotics, only tablets. My dose to start was, 200 mg per day for four months, and when things improved, I went to 100mg per day,stay on that, for about three months,then when my life seem normal again, I went to 100mgs Monday,Wednesday,Saturday.This keeps all the pain away I have been on AP for about 14 months now. This worked wonders for me Regards Gwen rheumatic from North Coast Hello Leonie, Please allow me to introduce myself my name is and I live near Byron Bay in the North Coast. Like yourself I have been trying natural remedies to treat my RA. When diagnosed in Oct'05 my RF reading was considered high at 38 by my doctor. With my refusal to take all the toxic meds that the Rheumy suggested I take to myself and my doctor. My latest reading in Oct'07 was 515 as you can imagine the pain and loss of mobility that I am currently experiencing. I receive all latest e-mails from the group but for some reason cannot post anything for myself. Your e-mail has caught my eye for the following reasons. After 3 months of continually calling Dr. Mouroukas. He finally rang and explained what his approach was with this AP therapy. Like you I also am apprehensive of taking any more drugs that I have too. In speaking with the doctor he has informed me that the distance between the North Coast and Sydney would prove to be difficult in doing this AP therapy. What I would like to know if you do not mind if you do decide to do his treatment could you advise how the you find the therapy with living in Canberra, how sick you actually get. I know you haven't started yet he sounded really nice and for myself I'm quite interested in starting as I want to get better. Thank you e-mail tuffys@... Quote Link to comment Share on other sites More sharing options...
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