Gwen

[Guest guest]

Hi Gwen,

Did you need the IV antibiotics initially, or just the tablets 3 times a week ?

I am confused about whether I will need IV therapy in the beginning or not.

Thanks...

Leonie

rheumatic from North Coast

Hello Leonie,

Please allow me to introduce myself my name is and I live near Byron

Bay in the North Coast. Like yourself I have been trying natural remedies to

treat my RA. When diagnosed in Oct'05 my RF reading was considered high at 38 by

my doctor. With my refusal to take all the toxic meds that the Rheumy suggested

I take to myself and my doctor. My latest reading in Oct'07 was 515 as you can

imagine the pain and loss of mobility that I am currently experiencing.

I receive all latest e-mails from the group but for some reason cannot post

anything for myself.

Your e-mail has caught my eye for the following reasons. After 3 months of

continually calling Dr. Mouroukas. He finally rang and explained what his

approach was with this AP therapy. Like you I also am apprehensive of taking any

more drugs that I have too.

In speaking with the doctor he has informed me that the distance between the

North Coast and Sydney would prove to be difficult in doing this AP therapy.

What I would like to know if you do not mind if you do decide to do his

treatment could you advise how the you find the therapy with living in Canberra,

how sick you actually get.

I know you haven't started yet he sounded really nice and for myself I'm quite

interested in starting as I want to get better.

Thank you

e-mail

tuffys@...

[Guest guest]

Hi everyone and Happy New Year. Your stories all sound like mine. I was at

Death's door for most of the yr. 2005. In October of 2005, I was told that I

had, not long to live. I looked the part of a dying person. Started Minocin 2

months later and exactly 18 months later in May of 2007, I went into remission.

To look at me now, you would never guess that I literally came back from the

grasp of the grim reaper. Your doc on one side of Australia is saying he can't

treat you is just stringing you along. All he/she has to do is write the script

for Minocin and fax it to the pharmacy, then mail the original. I see my Rheumy

in Boston once a yr. My Primary Care Physician nearby does all the necessary

blood work and the Rheumy gets the results. Find yourself another Rheumy and if

you can't, then print out lots of material on A/P and bring it with you to your

next appt. with your family doc. You've got to convince them. They don't turn

easily. But if you show them that

that's the only way you will do business with them, then rather than lose you

altogether as a patient, they will write the script. Don't accept less than

100mg, twice a day every day for at least two years, then re-evaluate the

situation. Make sure it is the brand name by Triax and it is the pelleted kind

and not the powder. Some people do well on the powder, some don't. I never

used the generic, so I don't know. Take it on an empty stomach. Do not eat

solids two hours prior or two hours after taking the Minocin dose.. Foods will

hamper the ability for Minocin to work to it's full potential. Minocin will

irritate your esophagus especially if you lay down to sleep right after taking

it. So, drink it with lots of water and sit upright at least 30 minutes or

longer. Best to take it and watch a good hour long TV show to take your mind

off it. You may have to resort to taking some Acidophillus or Lactobacillus

tablets to replace the good bacteria in your stomach. Do

this at least and hour or half hour before taking the minocin dosage. If you

still continue with the Reflux problems, then have your doc prescribe something

stronger for your stomach. You may also develop problems with yeast infections.

Remember antibiotics kills good bacteria also. You may need to take an

antifungal sometimes. I never did, but others, do. Try to live thru the

adjustment period, which may be bumpy at first, but will reap great rewards

later. Brace yourself and go for the ride. Write often, we will support you

and help you. Try the libraries for your copy of Henry Scammells books. I

don't know many patients who would give up their copy of the book. The main

thing is to get started on the Minocin as soon as possible and read the books

when it shows up. God Bless~~~~~~~Dolores

leonie cent <leoniecent@...> wrote:

Hi Gwen,

Did you need the IV antibiotics initially, or just the tablets 3 times a week ?

I am confused about whether I will need IV therapy in the beginning or not.

Thanks...

Leonie

rheumatic from North Coast

Hello Leonie,

Please allow me to introduce myself my name is and I live near Byron Bay

in the North Coast. Like yourself I have been trying natural remedies to treat

my RA. When diagnosed in Oct'05 my RF reading was considered high at 38 by my

doctor. With my refusal to take all the toxic meds that the Rheumy suggested I

take to myself and my doctor. My latest reading in Oct'07 was 515 as you can

imagine the pain and loss of mobility that I am currently experiencing.

I receive all latest e-mails from the group but for some reason cannot post

anything for myself.

Your e-mail has caught my eye for the following reasons. After 3 months of

continually calling Dr. Mouroukas. He finally rang and explained what his

approach was with this AP therapy. Like you I also am apprehensive of taking any

more drugs that I have too.

In speaking with the doctor he has informed me that the distance between the

North Coast and Sydney would prove to be difficult in doing this AP therapy.

What I would like to know if you do not mind if you do decide to do his

treatment could you advise how the you find the therapy with living in Canberra,

how sick you actually get.

I know you haven't started yet he sounded really nice and for myself I'm quite

interested in starting as I want to get better.

Thank you

e-mail

tuffys@...

[Guest guest]

Hi Gwen

I am going to try 200 mg of Minocin per day to fight a flair which seems to be

persistent. I was on 100 mg 3x a week. RA involves the tendons I am finding out

with one behind my knee and one attached to my thumb aching. Any suggestions?I

will see my rheumy in March 2008 and he may suggest MTX and Humira? Have you any

experience of these?

Take Care.

Ken.

Gwen <gmartin4@...> wrote:

Hi Leonie,

I did not have IV antibiotics, only tablets.

My dose to start was, 200 mg per day for four months, and when things improved,

I went to 100mg per day,stay on that, for about three months,then when my life

seem normal again, I went to 100mgs Monday,Wednesday,Saturday.This keeps all the

pain away

I have been on AP for about 14 months now.

This worked wonders for me

Regards Gwen

rheumatic from North Coast

Hello Leonie,

Please allow me to introduce myself my name is and I live near Byron Bay

in the North Coast. Like yourself I have been trying natural remedies to treat

my RA. When diagnosed in Oct'05 my RF reading was considered high at 38 by my

doctor. With my refusal to take all the toxic meds that the Rheumy suggested I

take to myself and my doctor. My latest reading in Oct'07 was 515 as you can

imagine the pain and loss of mobility that I am currently experiencing.

I receive all latest e-mails from the group but for some reason cannot post

anything for myself.

Your e-mail has caught my eye for the following reasons. After 3 months of

continually calling Dr. Mouroukas. He finally rang and explained what his

approach was with this AP therapy. Like you I also am apprehensive of taking any

more drugs that I have too.

In speaking with the doctor he has informed me that the distance between the

North Coast and Sydney would prove to be difficult in doing this AP therapy.

What I would like to know if you do not mind if you do decide to do his

treatment could you advise how the you find the therapy with living in Canberra,

how sick you actually get.

I know you haven't started yet he sounded really nice and for myself I'm quite

interested in starting as I want to get better.

Thank you

e-mail

tuffys@...