Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Hi I'm Ros from the rheumatoid group. I saw your email and thought I'd tell you that live in Byron Bay too. I haven't found any drs who are experienced in antibiotic therapy but my dr does what I ask him and he's quite interested in following my progress but too busy to investigate it himself. I've been on minocycline for about 15 months. I also take plaquenil. After 3 months of taking both these my RA improved dramatically. I plan to stop the plaquenil eventually but I do notice that when I stop the minocycline I get worse again. My rheumatoid reading was 37 two years ago and it's now 9. I've put all the info I can find onto a cd disc which I took to my dr along with some printed-out articles. My rheumatologist is Grey from Ballina but I haven't seen him for more than a year. He wasn't happy that I wanted to do antibiotics but he did print out some research studies which he said seemed to show that it works for some people. There is apparently a GP in Ballina who uses this therapy but he charges hundreds of dollars for the first few appointments so I couldn't afford to see him. If you want to chat, my phone number is 6685 8849. Best wishes Ros Quote Link to comment Share on other sites More sharing options...
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