Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 Hello, Did you have immediate results from the remicade? I've just had my 4th infusion yesterday and I've got a flare, always have a flare some where on my body. I'm not sure if I should be expecting more or if it takes time. Nurses from the infusion center tell me that many say that have instant results but don't know if they are PA or RA patients. Nanc WESTROXBURY2001@... wrote: > I HAVE BEEN TAKING REMICADE FOR MY TREATMENT OS PA. MY RHEUMATOLOGIST > HAS HAD ME ON IT FOR 1 1/2 YEARS. I AM 90% CLEAR AND AM NOT FLARING > UP. THIS HAS BEEN THE CLEAREST I HAVE BE IN 7 YRS.WOULD LIKE TO TALK > TO OTHERS WHO HAVE THIS PA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 " Hello everyone, my name is i'm 37 and live in Tasmania (Australia). I have been looking on the net for about 12 months for support or info on PA. My username is bentfeet because i have it in both of my feet and they are going thorugh a major shape change. " Hi ! I'm glad you found us in our little corner of the net. I noticed that you said you have it bad in your feet. I have a friend who recently underwent surgery to repair the RA damage to one of her feet. When they took her bandage off, she cried because her foot " hadn't looked that pretty in years! " . She is so pleased that she's going to have her other foot done, then have her hands repaired as well. I don't know what treatments are available in Australia, but that might be one option. Now you said you were looking for pain management options but you didn't say what you are taking. I'm 32 yrs old and I was diagnosed with PA when I was 25. I've tried just about everything available, and I've had some recent success with and Enbrel/Imuran/Feldene combo. I take Darvocet for pain. But that's what works for me, treatments are as individual as all of us. Don't let your Dr. limit you to just MTX as a choice, there's tons of stuff out there. Good luck and keep posting. Remember, we are all in this together. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Hi ...Look on the main website for Enbrel (http://www.enbrel.com/) Many of us have found it to be a miracle drug. I went from total pain and useless hands to playing guitar again. I don't know about the availability in Tasmania. RGDS R.E. [ ] New to this group Hello everyone, my name is i'm 37 and live in Tasmania (Australia) I have been looking on the net for about 12 months for support or info on PA. My username is bentfeet because i have it in both of my feet and they are going thorugh a major shape change. The thing is i was told that it would only effect one part of my body. But as i read all your e mails i realize how inaccurate that is. I have now refused to take methotrexate as it was posion to my body. So i'm looking at pain management. I think a chainsaw would be the best thing to solve my problem but my family and freinds keep telling not to do it. Hope to catch up with you all in the chat room some time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 - I understand how MTX is a poison. But I also understand that it can help. I've been on it for 2 years. I'm switching to Enbrel now because of liver problems causing by MTX. But the thing is - pain management is fine, but does nothing to protect your joints. Please find a good rheumatologist and make sure you discuss how to stop PA from progressing with DMARDS. I know some of the drugs are rough, but I think in the long run, we should all use whatever is available to cause minimal damage. FWIW, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 > Hi All, > > My nephew (5 years old) has been diagnosed with PDD, Asperger's > type. His stims once in a while and is not that great socially, but > otherwise very affectionate. He's smart, started reading at 4 years > old, and is a whiz at computer games. My main concern is that he is > very small and thin. He is only at the 5th percentile for height and > weight for his age. One question is, will the enzymes help him > digest his food better and would this in turn allow him to get more > nutrients from his diet and help him grow? For most kids yes. My sister has him on a > gfcf diet but, as I'm sure you all know, it's very hard to be totally > strict. She's thinking about the giving him the enzymes but is > worried about the initial " die-off " . Are you saying yeast die off, or withdrawal from other food intolerances? http://www.autismchannel.net/dana/yeast.htm Another question I have is, if > a child is " high-functioning " would the die-off be less severe? > Would there be less of a reaction to the enzymes (including the good > reactions)? Not necessarily. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 >> He is only at the 5th percentile for height and weight for his age. One question is, will the enzymes help him digest his food better and would this in turn allow him to get more nutrients from his diet and help him grow? For most people (autistic or not) digestive enzymes can help with this. >> My sister has him on a gfcf diet but, as I'm sure you all know, it's very hard to be totally strict. She's thinking about the giving him the enzymes but is worried about the initial " die-off " . You may see some " die-off " if there is a yeast or bacteria overgrowth problem, or a withdrawal reaction from peptides getting broken down that are slipping through as well as the peptides that are formed within the body. Also, many times the child is having a reaction to some other insufficiently digested food that you are not aware of. So enzymes take care of all of these at the same time. Your sister may want to consider enzymes just to support the diet too, as it sounds as if she is very stressed about the constant vigilance it requires. If you start enzymes slowly - like about 1/4 capsule for a couple days - and then work your way up to a full capsule over time, this may minimize the discomfort he may feel in the beginning. > > Another question I have is, if a child is " high-functioning " would the die-off be less severe? Not necessarily. It would depend on how bad a yeast/bacteria overgrowth was in relation to how well his immune system is functioning. The same with withdrawal. > Would there be less of a reaction to the enzymes (including the good > reactions)? Not necessarily either, but for a good reason. At least until the age of about 10-12, the " good " improvements with enzymes are seen equally quickly and appear to be equally as great for all ages. Then at the teenage level (perhaps has to do with puberty), it seems to take a little longer for that group in a general way, and the overall improvements are not generally as dramatic. (I have only monitored this specifically for Houston enzymes). Since your nephew is GFCF at the moment, yes, that should help with some of the withdrawal reactions, and then if he starts enzymes slowly, that should minimize the reaction. Best wishes for success, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 <I'm in australia> G'day ! Me too! We order direct from HNI. Here is the link: http://www.houstonni.com It takes about 10 days from order to delivery by post from US. <what can these enzymes do > A description of the various enzyme actions is on the HNI site. Perhaps if you read that first then read the messages you will have a good picture of what they can do overall. Any specific questions just ask the members here. They are an incredible resource!! Fran Melbourne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Hi Donna, Welcome to the group We have the following doctors listed in Georgia - hope this helps you. Chris. ph Sentif, M.D. (oral and IV) Sentef Medical Center PLLC 513 Way – Suite 200 Dalton, GA 30721 P: 706-217-1795 F: 706-217-1814 Marcia V. Byrd, M.D. – FP – ACAM Sept. 2002 11050 Crabapple Rd. Suite 105-B Roswell, GA 30075 P: 770-587-1711 Milton, M.D. – FP Sept. 2002-09-05 Advanced Medicine & Longevity Center 6030 Bethelview Rd. – Suite 403 (Uses Arthritis Research Center for testing) Cumming, GA 30040 P: 770-205-6068 M-TH – 9-12 & 2-5 Fr 9-2 B. Edelson, M.D. – FP - 1967 Environmental and Preventive Health Center of Atlanta, 3833 Roswell Rd., room 110 Atlanta, GA 30342. P: 404-841-0088. Oliver L. Gunter, M.D.,P.C. (GP - 1970) 24 N. Ellis St. P. O. Box 347 Camilla, GA 31730 P: 912-336-7343 C. , M.D. 100 Road Fort Oglethorpe, GA 30742 P : 706-861-7377 P : 888-291-4955 F : 706-861-7922 Gwinnett Arthritis Center – Dr. Elliott 600 Professional Dr. NW Lawrenceville, GA 30045 P : 770-822-1090 On Thursday, November 14, 2002, at 08:46 AM, donnavorpahl wrote: > Hi everyone! > > My name is Donna and I've been on the antibiotic therapy for > almost a year. I was fortunate enough to get up to Boston and now > seeing a doctor a little closer but still very frustrated and the > lack of regulation for what I am taking. I can go into more detail > later. I'm just trying to find a local doctor that will work with > me. I am also on a low dose of methotrexate which I think I need to > just stop and also 10mg of Prednisone a day plus celebrex, any > advice? Thanks so much for being here. I look forward to talking > with you all. God bless you, Donna in Atlanta > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Tina, I am new too and have a 10 month old who I just found a DAN doctor for as well. (I just filled out the intake form today and hope to get in to see her soon!) We are also about 3 hours from our DAN. I'll be interested in reading the responses from everyone. Nice to meet you, Terri > > My son is 3 1/2 and I'm just recently succeeding in changing his diet > and am hopefully soon gonna start him on some sort of chelating > therapy and I could really use some info on what it was like for all > of you, since I've only even just found a great sounding DAN doc in > the St. Louis area and I'm about 2 1/2 hours from there, I'd just like > some sort of support maybe on how it will go and how to know if this > doctor is right for my son, just about everything we've accomplished > so far has been from my sole research and a few experienced new > friends online, nothing hardly from our pediatrician ofcourse, whom I > still love and want to respect yet, how can a phisician be so > uninformed or so blind. Well anyhoo, hope to hear from ya'll soon. > Love one very determined mother with almost nothing but instinct to go > on. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Tina and Terri I am also new to this group. So I have no advice. However, I have a 3 1/2 year old son just diagnosed. I thik we have found a doctor as well. I also will be interested in your responses. Best of luck. > > > > My son is 3 1/2 and I'm just recently succeeding in changing his > diet > > and am hopefully soon gonna start him on some sort of chelating > > therapy and I could really use some info on what it was like for > all > > of you, since I've only even just found a great sounding DAN doc > in > > the St. Louis area and I'm about 2 1/2 hours from there, I'd just > like > > some sort of support maybe on how it will go and how to know if > this > > doctor is right for my son, just about everything we've > accomplished > > so far has been from my sole research and a few experienced new > > friends online, nothing hardly from our pediatrician ofcourse, > whom I > > still love and want to respect yet, how can a phisician be so > > uninformed or so blind. Well anyhoo, hope to hear from ya'll soon. > > Love one very determined mother with almost nothing but instinct > to go > > on. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Somewhat new as well, I can offer: I love my pediatrician too. After working in the medical field in the offices, I can tell you how they are so blind. Big Pharmaceuticals! They come in and buy everyone lunch, hand out tons of free merchandise with drug names on it. They offer samples of this wonderful new " whatever " . The doctors really go by what they are told as well. The only way they would be more informed is to do their own research just as you and I do. I am not sure they have a lot of time for that. I think it would help if these companies were NOT allowed to give perks to doctors. Essentially, they are saying " look, you use this drug, and I give you all this " . There is a lot of beauracratic bull behind it. We used to dread when the drug reps would show up. " oh, crap, here they come again " . Often times they poke around to find out how often it is being prescribed, is it working well for the doctor etc. Some of these companies I am told, offer trips and prepaid conference's equivalent to vactions to doctors as well. Keep in mind...they are only human too. Some doctors are also C students and some are A students. Then there is the guy/gal who made it through school with D's. > > > > > > My son is 3 1/2 and I'm just recently succeeding in changing his > > diet > > > and am hopefully soon gonna start him on some sort of chelating > > > therapy and I could really use some info on what it was like for > > all > > > of you, since I've only even just found a great sounding DAN doc > > in > > > the St. Louis area and I'm about 2 1/2 hours from there, I'd > just > > like > > > some sort of support maybe on how it will go and how to know if > > this > > > doctor is right for my son, just about everything we've > > accomplished > > > so far has been from my sole research and a few experienced new > > > friends online, nothing hardly from our pediatrician ofcourse, > > whom I > > > still love and want to respect yet, how can a phisician be so > > > uninformed or so blind. Well anyhoo, hope to hear from ya'll > soon. > > > Love one very determined mother with almost nothing but instinct > > to go > > > on. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Beleive me, Instinct is all you need. As mother's we have been taught to listen to " higher authority " , doctors etc. who all know best. In this process we have learned to supress our instinct for what is good or bad for our children. My instinct on vaccination day was to cancel the appointment. I should have listened to my instinct. Just read everything here in the files before your appointment. That will help you know if you are with a knowledgeable doctor. I did however, refuse the meningitis and flu vaccines. I told them a stay home child did not need all that. I have done tons of reading, research etc. That is all you will need to help your child. This message board has been great! They all help with advice and you won't feel alone! Above all, TRUST your instincts. If is does not feel right...maybe it isn't. > > <tt> > My son is 3 1/2 and I'm just recently succeeding in changing his diet <BR> > and am hopefully soon gonna start him on some sort of chelating <BR> > therapy and I could really use some info on what it was like for all <BR> > of you, since I've only even just found a great sounding DAN doc in <BR> > the St. Louis area and I'm about 2 1/2 hours from there, I'd just like <BR> > some sort of support maybe on how it will go and how to know if this <BR> > doctor is right for my son, just about everything we've accomplished <BR> > so far has been from my sole research and a few experienced new <BR> > friends online, nothing hardly from our pediatrician ofcourse, whom I <BR> > still love and want to respect yet, how can a phisician be so <BR> > uninformed or so blind. Well anyhoo, hope to hear from ya'll soon.<BR> > Love one very determined mother with almost nothing but instinct to go <BR> > on.<BR> > <BR> > <BR> > <BR> > <BR> > </tt> > > > <!-- |**|begin egp html banner|**| --> > > <br><br> > <tt> > =======================================================<BR> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 The drug reps who came to our office always knew with certainty just how many prescriptions were written for their particular drug. Always wanted to, but didn't, ask How they knew. [ ] Re: New to this group Somewhat new as well, I can offer: I love my pediatrician too. After working in the medical field in the offices, I can tell you how they are so blind. Big Pharmaceuticals! They come in and buy everyone lunch, hand out tons of free merchandise with drug names on it. They offer samples of this wonderful new " whatever " . The doctors really go by what they are told as well. The only way they would be more informed is to do their own research just as you and I do. I am not sure they have a lot of time for that. I think it would help if these companies were NOT allowed to give perks to doctors. Essentially, they are saying " look, you use this drug, and I give you all this " . There is a lot of beauracratic bull behind it. We used to dread when the drug reps would show up. " oh, crap, here they come again " . Often times they poke around to find out how often it is being prescribed, is it working well for the doctor etc. Some of these companies I am told, offer trips and prepaid conference's equivalent to vactions to doctors as well. Keep in mind...they are only human too. Some doctors are also C students and some are A students. Then there is the guy/gal who made it through school with D's. > > > > > > My son is 3 1/2 and I'm just recently succeeding in changing his > > diet > > > and am hopefully soon gonna start him on some sort of chelating > > > therapy and I could really use some info on what it was like for > > all > > > of you, since I've only even just found a great sounding DAN doc > > in > > > the St. Louis area and I'm about 2 1/2 hours from there, I'd > just > > like > > > some sort of support maybe on how it will go and how to know if > > this > > > doctor is right for my son, just about everything we've > > accomplished > > > so far has been from my sole research and a few experienced new > > > friends online, nothing hardly from our pediatrician ofcourse, > > whom I > > > still love and want to respect yet, how can a phisician be so > > > uninformed or so blind. Well anyhoo, hope to hear from ya'll > soon. > > > Love one very determined mother with almost nothing but instinct > > to go > > > on. > > > > > > ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I know, they are almost like spies or something. Kind of give you the creeps. > > > > > > > > My son is 3 1/2 and I'm just recently succeeding in changing > his > > > diet > > > > and am hopefully soon gonna start him on some sort of > chelating > > > > therapy and I could really use some info on what it was like > for > > > all > > > > of you, since I've only even just found a great sounding DAN > doc > > > in > > > > the St. Louis area and I'm about 2 1/2 hours from there, I'd > > just > > > like > > > > some sort of support maybe on how it will go and how to know > if > > > this > > > > doctor is right for my son, just about everything we've > > > accomplished > > > > so far has been from my sole research and a few experienced > new > > > > friends online, nothing hardly from our pediatrician ofcourse, > > > whom I > > > > still love and want to respect yet, how can a phisician be so > > > > uninformed or so blind. Well anyhoo, hope to hear from ya'll > > soon. > > > > Love one very determined mother with almost nothing but > instinct > > > to go > > > > on. > > > > > > > > > > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Welcome Kim. Has the school conducted a Functional Behavior Assessment? Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Kim, We just went through this with our 9 year old this fall. I know exactly how you feel, every time I saw the caller ID my heart would sink. My son did all these things plus he was verbally aggressive. He threatened other kids and even challenged the bus driver's authority. It was horrible. Our son did not have the AS diagnosis at the time this started at school although we had been seeking help since he was 3. He is on a boat load of meds and when I asked his doctor if he could have this he said of course he had a PDD. We had him evaluated in December for AS /PDD-NOS and sure enough this is what they say is going on with him. So we are now seeking appropriate treatment and things have gotten better so far. He also is ADHD and ODD, so the school wanted to label him emotionally disturbed and send him off to a SB classroom in another school. We now have a much better IEP and he has an aide which has decreased a lot of his anxiety at school. Has he had an MFE done and a functional behavioral assessment done? What a difference these have made in our lives. This is a great support group so welcome. I don't know where we'd be without this group. Suzanne -- ( ) New to this group Hello, Im so glad I found this group. My son Dylan is 7 yrs old. He has Aspergers Syndrome and ADHD along with a laundry list of other diagnoses. He was diagnosed when he was 3 yrs old. My husband and I do not know anyone else who has a child with AS. Dylan has been having major problems at school since christmas break. He throws huge fits and has to be restrained for his own safety as well as the other students and teachers. He hits, kicks, bites and throws chairs and objects, screams and yells. They have had fits last as long as 40 min. We live in a small town so they are very tolerant of this as opposed to the much larger district we live near, who would have expelled him by now. Dylan is very smart and reads better than all of his classmates and loves math. Its sad that his behavior gets in the way of that. I dont know what to tell the school to do because we dont have these problems to this extent neither does the sitter. He is medicated already, maybe we need to change his meds. Im at my wits end it seems like everytime I answer the phone at work its the school calling. Does anyone else have these problems? Thanks Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 no I'm including a link for what a Functional Behavior Assessment is. _slaw - Functional Behavioral Assessments: What? Why? How? Who? by Starin, Ph.D._ (http://www.wrightslaw.com/info/discipl.fab.starin.htm) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Hi! My son, Max, is almost 6, and is very smart. He has a photographic memory, and is starting phonics. I have the same issue as you, about his behavior getting in the way of his (and his siblings) abilities. I homeschool, so I don't have the same school issues. But his behavior does get in the way, which makes me SOOO sad. But, I tell myself as well as his older sister that God made him this way for a reason, and we're learning different things (other than gymnastics lessons). And God does not make mistakes. - Adrienne from Boston --- dylmansmom2002 <dylmansmom@...> wrote: > Hello, Im so glad I found this group. My son Dylan > is 7 yrs old. He > has Aspergers Syndrome and ADHD along with a laundry > list of other > diagnoses. He was diagnosed when he was 3 yrs old. > My husband and I do > not know anyone else who has a child with AS. Dylan > has been having > major problems at school since christmas break. He > throws huge fits > and has to be restrained for his own safety as well > as the other > students and teachers. He hits, kicks, bites and > throws chairs and > objects, screams and yells. They have had fits last > as long as 40 min. > We live in a small town so they are very tolerant of > this as opposed > to the much larger district we live near, who would > have expelled him > by now. Dylan is very smart and reads better than > all of his > classmates and loves math. Its sad that his behavior > gets in the way > of that. I dont know what to tell the school to do > because we dont > have these problems to this extent neither does the > sitter. He is > medicated already, maybe we need to change his meds. > Im at my wits > end it seems like everytime I answer the phone at > work its the school > calling. Does anyone else have these problems? > > Thanks Kim > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Well he has a behavior play is that the same thing? > > Welcome Kim. Has the school conducted a Functional Behavior Assessment? > Pam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 What is an MFE? Who did you have do the functional behavioral assessment? The school district? Thanks for further explaining. Kristy Re: ( ) New to this group . Has he had an MFE done and a functional behavioral assessment done? What a difference these have made in our lives. Suzanne -------Original Message------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 you are describing my son completely. it makes me feel some better that someone else is dealing with the same problems. we have changed my sons meds at least 5 times since september and it works for about 2-3 weeks then they either have to up it and he gets worse or change it. i wish i could lend some advise but im right there with you. ~maggie~ > > Hello, Im so glad I found this group. My son Dylan is 7 yrs old. He > has Aspergers Syndrome and ADHD along with a laundry list of other > diagnoses. He was diagnosed when he was 3 yrs old. My husband and I do > not know anyone else who has a child with AS. Dylan has been having > major problems at school since christmas break. He throws huge fits > and has to be restrained for his own safety as well as the other > students and teachers. He hits, kicks, bites and throws chairs and > objects, screams and yells. They have had fits last as long as 40 min. > We live in a small town so they are very tolerant of this as opposed > to the much larger district we live near, who would have expelled him > by now. Dylan is very smart and reads better than all of his > classmates and loves math. Its sad that his behavior gets in the way > of that. I dont know what to tell the school to do because we dont > have these problems to this extent neither does the sitter. He is > medicated already, maybe we need to change his meds. Im at my wits > end it seems like everytime I answer the phone at work its the school > calling. Does anyone else have these problems? > > Thanks Kim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi , Currently, I live in Alberta. I grew up next door to Ottawa in Toronto. We were told that the evaluation process could take up to 18 months! Fortunately, it was not quite that bad, but it was approximately 8 months or so. Even then, our son was not an " easy " read and ended up attending a diagnostic clinic (school setting in hospital) for 7 weeks last Spring to get a good grasp of his weaknesses and strengths. Start off with either your family physician or pediatrician and request an evaluation based upon your suspicions. After that, there will likely follow a large amount of paper work that they will require be filled in by you and the school to assess whether further evaluation is warranted. Because the process is long, I would recommend getting started right away; the faster you recieve help the better for everyone! All the best! Velvet > > Hi there, > > I am new to this group and in the process of trying to get my son (9 > years old) evaluated for AS. We have been struggling for many years > with him not learning from his mistakes and a friend of our suggested > that he might have AS. I started doing research on the topic and I > could not believe how much symptons he has. He does well in school > academically but social he has troubles and the teachers are sometimes > at witts end. > > Well getting him evaluated has been a challenged. I live near Ottawa > in Canada and I was wondering if there is anyone else in group that > lives in this area. I was wondering how long does it take to get to > see someone to be evaluated? > > Any help would be greatly appreciated > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi Velvet I also live in Alberta. I didn't think anybody else on here lived close by. Where in Alberta do you live? ( ) Re: New to this group Hi , Currently, I live in Alberta. I grew up next door to Ottawa in Toronto. We were told that the evaluation process could take up to 18 months! Fortunately, it was not quite that bad, but it was approximately 8 months or so. Even then, our son was not an " easy " read and ended up attending a diagnostic clinic (school setting in hospital) for 7 weeks last Spring to get a good grasp of his weaknesses and strengths. Start off with either your family physician or pediatrician and request an evaluation based upon your suspicions. After that, there will likely follow a large amount of paper work that they will require be filled in by you and the school to assess whether further evaluation is warranted. Because the process is long, I would recommend getting started right away; the faster you recieve help the better for everyone! All the best! Velvet > > Hi there, > > I am new to this group and in the process of trying to get my son (9 > years old) evaluated for AS. We have been struggling for many years > with him not learning from his mistakes and a friend of our suggested > that he might have AS. I started doing research on the topic and I > could not believe how much symptons he has. He does well in school > academically but social he has troubles and the teachers are sometimes > at witts end. > > Well getting him evaluated has been a challenged. I live near Ottawa > in Canada and I was wondering if there is anyone else in group that > lives in this area. I was wondering how long does it take to get to > see someone to be evaluated? > > Any help would be greatly appreciated > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Welcome! Generally, I've found that not much difference made over time. Coping mechanisms and life skills can be taught, each age and stage will bring new challenges. For my DS (who's almost 12) we find that he has " cycles " where nothing seems different or wrong at all, and then slumps where it seems like he can't handle anything. Nothing seems to trigger/stop/effect these slumps. But, I don't think they really " deteriorate " . There's lots and lots of good people here. There are a couple of other resources I recommend, aspergerinfo.com and wrongplanet.com. Different format, but you can " browse " to see if any of your questions have been answered. chaschickpea <chaschickpea@...> wrote: I am a mother of a newly diagnosed 6 year old son. We live in West Virginia and I am uncertain of what I have to look for and be careful of. His circumstance is mild (given what I have read of other Aspergers) but his grandfather is at the extreme other end of the spectrum. Will he get better with time or deteriorate? Any comments or helpful tidbits are welcome. Thanks H --------------------------------- Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Basically, an Asperger's kid will always be an Asperger's person, but there's a lot you can do to help them get along in the world. Especially if you're starting as young as six. Get your son tested by the school district over the summer, if you can, and get an IEP in place in September. The school has services in place, such as occupational therapy (to work on small and large motor control, sensory integration issues, etc.), speech therapists (pragmatic issues, or " social speech " ), counseling, and other therapies as needed. Our school district even sent my son to off-site vision therapy. My 18 year old son is getting ready to go off to a junior college in Massachusetts. He was admitted to their honors program. He's nervous about going, but we'll be in Massachusetts for the year, too. (We're moving from San Diego to Boston for a sabbatical year.) Welcome to the group. We're happy to answer any questions to the best of our combined abilities! Liz On Jun 21, 2006, at 8:23 PM, chaschickpea wrote: > I am a mother of a newly diagnosed 6 year old son. We live in West > Virginia and I am uncertain of what I have to look for and be careful > of. His circumstance is mild (given what I have read of other > Aspergers) but his grandfather is at the extreme other end of the > spectrum. Will he get better with time or deteriorate? Any comments or > helpful tidbits are welcome. Thanks H Quote Link to comment Share on other sites More sharing options...
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