New to this Group

[Guest guest]

Try to talk to the special ed teacher in charge of your child's case

and find out what they plan to discuss and accomplish at the meeting.

If it's an IEP meeting ask him/her to get you a copy of the blank

form; so that you can be familiar with it. Be ready with your list

of concerns, your child's strengths, your child's challenges, and what

strategies, environment, etc. you think will help him. Think about

what you want his goals (areas of improvement) to be this year, how

those goals can be measured, what supports he'll need to attain the

goals. Write it all down and make copies for everyone at the meeting.

Also, your school system should have a parents rights handbook. Make

sure you've read and are familiar with areas which apply to your

situation. slaw.com is a very helpful site, as well.

Janice

>

> Good morning. My 8 yr old son was recently diagnosed with AS. He was

> previously diagnosed (by the school) with ADHD but I didn't see it. I

> brought all his work in to our pediatrician who agreed with me. He was

> further tested and found to be mildly dyslexic. This made sense to me

> but didn't explain his freaking out about the most minor

> things...getting his hair cut, his food looking or smelling a tiny bit

> different etc. He was then tested for and diagnosed with Sensory

> Integration. While seeing his O/T she asked if anyone had mentioned

> him possibly having aspergers so we talked to his pediatrician for

> another referral. I have a meeting with his school on Thursday which I

> am dreading but I've printed out a bunch of information to take with

> me. We are in a remote location (Upper Michigan) so checking into

> other schools is not an option. Does anyone have any advice? Thanks.

>

> Wind

>

[Guest guest]

Wind,

welcome to our group! How did your school meeting go? I am behind reading emails but most of the time, if you have questions, there are many people here who can help you find information or tell you their own experiences!

RoxannaYou're UniqueJust like everyone else...

( ) new to this group

Good morning. My 8 yr old son was recently diagnosed with AS. He was previously diagnosed (by the school) with ADHD but I didn't see it. I brought all his work in to our pediatrician who agreed with me. He was further tested and found to be mildly dyslexic. This made sense to me but didn't explain his freaking out about the most minor things...getting his hair cut, his food looking or smelling a tiny bit different etc. He was then tested for and diagnosed with Sensory Integration. While seeing his O/T she asked if anyone had mentioned him possibly having aspergers so we talked to his pediatrician for another referral. I have a meeting with his school on Thursday which I am dreading but I've printed out a bunch of information to take with me. We are in a remote location (Upper Michigan) so checking into other schools is not an option. Does anyone have any advice? Thanks.Wind

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.8.4/1752 - Release Date: 10/28/2008 10:04 AM

[Guest guest]

Just a couple of thoughts: I'm not sure what grade your son is in

but we found that my son was very good at math (and consequently

liked it a lot) when it was mostly rote memorization but once it got

into more complicated math he started having problems with some of it

because he has some deficencies in executive function. Therefore,

when he got into things that require more than one step it became

harder. This was amplified when it came to timed tests because he

has to think through each step before he does it. Rushing him causes

stress and makes the whole thing harder. It is not uncommon for AS

kids to have accomodation for timed tests because it can be a

problem. This may not be an issue for your son.

Also, I just wanted to note that having them work in the spec ed room

is not always a bad thing. It is really about how your son view the

whole thing. If he views it as a punishment then it would be bad.

My son does a lot in the spec ed room but for him that room is really

his sanctuary.

vickie

> >

> > Wind,

> > welcome to our group! How did your school meeting go? I am

behind

> reading emails but most of the time, if you have questions, there

are

> many people here who can help you find information or tell you

their

> own experiences!

> >

> > Roxanna

> > You're Unique

> > Just like everyone else...

> > ----- Original Message -----

>

[Guest guest]

Dear Wind:

My son also has the same problems. I home school and his curriculum

requires every other day " speed drills. " I just give him the paper, tell

him to do his best work, and let him go - FORGET THE TIMING. " Now I can do

this because I am at home. Sometimes, I will give him the " squishy ear

plugs. " This eliminates any outside noise. Yes, there is outside noise in

the real world and the modern day work force. My son will have to live in

the real world, BUT for now, here in our home we can take our time. Yes,

the special education room can be his sanctuary. This is great that they

allow this room to be used by him. The only advice I would say is that:

Unless he is going to be in a high stress, time sensitive, mathematician for

his career, this time testing is not necessary. I don't know if you have a

say in his math testing, but can you put your foot down and say it's not

necessary. As far as the " more than one step " processes in math, I would use

index cards with " Step 1 is to Add. " Step 2 is the divide and get the

answer. " Is this allowed by the teachers? Just trying to think of ways

that I use at home with my son. Best of luck and let me know if I can

dialog and help. Blessings for your day....Aleshia ssterland@...

( ) Re: new to this group

> Just a couple of thoughts: I'm not sure what grade your son is in

> but we found that my son was very good at math (and consequently

> liked it a lot) when it was mostly rote memorization but once it got

> into more complicated math he started having problems with some of it

> because he has some deficencies in executive function. Therefore,

> when he got into things that require more than one step it became

> harder. This was amplified when it came to timed tests because he

> has to think through each step before he does it. Rushing him causes

> stress and makes the whole thing harder. It is not uncommon for AS

> kids to have accomodation for timed tests because it can be a

> problem. This may not be an issue for your son.

>

> Also, I just wanted to note that having them work in the spec ed room

> is not always a bad thing. It is really about how your son view the

> whole thing. If he views it as a punishment then it would be bad.

> My son does a lot in the spec ed room but for him that room is really

> his sanctuary.

>

> vickie

>

>

>

>> >

>> > Wind,

>> > welcome to our group! How did your school meeting go? I am

> behind

>> reading emails but most of the time, if you have questions, there

> are

>> many people here who can help you find information or tell you

> their

>> own experiences!

>> >

>> > Roxanna

>> > You're Unique

>> > Just like everyone else...

>> > ----- Original Message -----

>>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Remember you are part of that team. Do not let them just show up with a list and tell you "here it is!" You can add to it what you feel is missing or propose your own goals/objectives or services, accommodations, etc.

What I always like to do myself is to go over the reports and highlight areas of great strength and weakness. I can then make sure all these areas of weakness are addressed and when you have problems thinking of ways to help anything, look to the areas of highlighted strengths.

My list might look something like this:

Needs help gathering materials together at the end of the day.

Needs help turning papers in on time.

Needs to increase receptive and expressive speech scores (currently scores on XX ST test are: XX% expressive, XX% receptive)

Can not do multi-step math problems without guidance

etc.

Either make sure all of these needs are addressed within the IEP they have written or ask to have them addressed. How will we improve his problem with multi-step math problems? Ask them for suggestions or suggest something you've thought of that will help.

It is helpful to get the proposed IEP in advance so that you have time to go over it and make sure it addresses all his educational needs. If you need more time to look it over, ask to reconvene the meeting later that week or whenever is convenient for everyone.

I agree with your outlook on education - it's not as simple and just eliminating him from doing the work. Sometimes that is a good idea for certain situations but it is only one option. And the easiest one for them to implement but the one that causes this to "always" be a problem for him since he won't improve in the skill by not working on it at all. Ask for remediation for these problems, not just excluding him from assignments or certain work.

If he cannot do timed tests, figure out why and address the core root of the problem! Help him learn how to take them. If he can't think fast enough, he can work on improving his processing speed, work on recalling facts by practicing them more often than a typical person might have to do it. If he is just by nature super anxiety ridden and time tests make that twenty times worse for him, maybe he needs 2 minutes to complete the math facts but then slowly increase and improve his time as he learns to recall his facts faster. Or have him take the test and time how long he takes with an emphasis on beating his personal best instead of racing against a clock. Whatever might help him resolve his problem doing these.

I agree with Pam, having an alpha smart is a great option for many kids with handwriting issues. Also, is he going to get OT for handwriting?

Usually being pulled out to sped classes means he will be taught slower or at a lower level. This is not always true but is often true. Sometimes this is necessary for a particular student but obviously, he is bright enough to stay at grade level work. You will have to advocate hard to keep him at grade level when everyone else wants to just let him slide through everything that is hard. He might need writing pull out but be sure he is getting the same material as his peers and make sure that his writing help is aimed at actually improving his deficits in writing, not just slowing him down to get behind. My own ds, for instance, worked with a tutor one hour each day. They would do his classwork so he got help with problems he was having with an emphasis on attending to specific problems he is known to have.

You need to define what parts of writing are difficult and find solutions for those areas. If it's the physical act of writing that is hard, he needs an OT eval and to work with an OT to improve writing ability, speed. He could use the alpha smart in the meantime (or on a regular basis, for many AS/HFA kids who will never do well in handwriting.) If it's knowing what to write that is a problem, he needs extra help in those areas that are causing him problems.

Well, I'm sure you get the gist of what I mean. Let us know how it goes!

RoxannaYou're UniqueJust like everyone else...

( ) Re: new to this group

-Hi. The school meeting went well I guess. Their testing confirmed what I'd already known but they have to apply it to a school setting. Whatever. The principal thinks medication fixes everything. His teacher thinks just not having him do the work will solve it. That doesn't fly with me. He has 90% or better in everything but language and most of that is due to writing. We had parent teacher conferences today and she asked about having him skip "rocket math...1 minute to complete their individualized goal) because if he doesn't meet it he gets upset and breaks down. I told her that did not work for me because he loves math and he's darn good at it. He can't avoid the work because she doesn't want to see a tantrum! I am not sure I did the right thing but I want him to learn as much as possible. He's smart according to their "IQ test"...above average so I can't see having him to easier work. All he needs is help with writing at this time. They are going to try sending him to the special ed room for writing but we'll see the finalized plan on Monday. I am thinking more of just a scribe in the room for him. He does have trouble with spelling but I don't know if it's so much the spelling or the writing that frustrates him. I am going to see what they come up with as a circiculm for him in the special ed room and see if we need to adapt it or make the change in the regular classroom. What's everyone's opinion on this? Thanks.Wind-- In , "Roxanna" <madideas@...> wrote:>> Wind,> welcome to our group! How did your school meeting go? I am behind reading emails but most of the time, if you have questions, there are many people here who can help you find information or tell you their own experiences!> > Roxanna> You're Unique> Just like everyone else...> ----- Original Message -----

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[Guest guest]

The younger they are, I think the harder it is to get a specific diagnosis. Our son was tested at 6, and we didn't get a diagnosis at that time, he was borderline on several things though. But by 9, the differences became more obvious in comparison to other kids his age and he was diagnosed AS. We went to a private psychologist and then psychiatrist. I think you can do this too, if you don't want to wait. The school district accepted the diagnosis, we didn't have to do any additional assessments with them.

As far as playing with him, focus on his interests even though you get sick of them, lol. And try to expand on them a little - if he likes trains, take the trains to the park sometime, roll them down the slide or put them in the sandbox. Show him how to make trains out of play doh, paint a train, etc. But then again, if he is getting a lot of stimulation as school, he may just prefer to "veg out" at home, so try to be understanding of that. Trust your intuition and do your best (one day at a time!) I think other people here would tell you the same.

~~~~~~~~~~~~~~~~~~~~~~

Suzanne

suzmarkwood@...

From: janebard <jelpick@...>Subject: ( ) New to this group Date: Wednesday, October 7, 2009, 10:16 PM

Hello,My husband and I have a 4 year old son named who may have an autism spectrum disorder. He hasnt been assessed yet but we have suspected for a while that there is something unique going on with him. Now his kindergarten teachers have picked up on the same things, and have encouraged us to get assessed. He is now on a waiting list so we may be waiting a long time before assessment can take place. Have any of you had similarly aged children assessed for Autism spectrum disorders? I guess it appears to be Aspergers in our son, as I have been doing a good amount of reading about it. I can answer yes on many areas of the assessment tools. Can anyone tell me how to respond to ? How do we play with him in a way that will interest him? He is a very smart boy who knows his letters, numbers, colors, shapes, and he has a very detailed knowledge of the the Tank Engine series. His main characteristics which seem in common with

Aspergers are, he avoids eye contact except with us (at times), he fixates on things, he doesnt answer questions appropriately (like he will either not respond or say something unrelated to the question topic), he has tantrums, he is very difficult to get to do simple things like washing his hands after going to the bathroom without putting on a fuss. Does any of this sound familiar to anyone? I would like to get in touch with anyone who is interested in talk to me about this, and making new friends in the process as well. Thanks for reading this screed. Jane

[Guest guest]

Hello everyone,

I am new to this group (although I think I recognise a couple of people here) I

am looking for another group to be a part of. There aren't too many places you

can say you are using AP therapy without being targetted by those who don't

agree or understand what you are doing.

I have been using AP since Jun 08 & with a lot of tweaking/changing combinations

of meds along the way (last time in Sep 09) eventually found a combo that works

for me & I am now asymptomatic.

MazM

[Guest guest]

Just expanding what I said ... I use the term AP meaning antibiotic therapy & I

am on a combination of abx.

[Guest guest]

Hello Maz,

thank you for your response!

yes, I am under the care of a doctor but so far nothing positive.

rheumatic

From: marilyn.m@...

Date: Wed, 19 May 2010 02:04:03 +0000

Subject: rheumatic Re: New to this Group

I understand your frustration in all this but hope you are under the care of an

AP Dr ???

My Dr tweaks the medication to suit the patient as well as the disease, it's not

a 'one fits all' kind of regime & has absolutely no hesitation in treating the

co-infections at the same time;

In my case my treatment regime is ::

Sept 9, 09 MWF

Breakfast Amoxil (amoxicillin) x 2-1/2 ml

Rulide (roxithromycin) 150mg x ½ tablet

Lunch Dalacin C (clindamycin) 150mg x 1 tablet

Dinner Ibilex (cephalosporin) 250mg x 1 tablet

Bedtime Nexium (Esomeprazole) 40mg x ½ tablet

However I have to say it took 6 or 7 tweaks/changes of meds before this combo

worked for me.

_________________________________________________________________

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with

Hotmail.

http://www.windowslive.com/campaign/thenewbusy?tile=multicalendar & ocid=PID28326:\

:T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_5

[Guest guest]

Maz what is your AP combination? I finally talked my RA Dr into giving me AB -

so I have been trying to be my own Dr. with the help of the books and the net.

Any help you could give me would be appreciation. Thanks,

kathy egenbacher

From: Maz

Sent: Tuesday, May 18, 2010 8:19 PM

rheumatic

Subject: rheumatic Re: New to this Group

Just expanding what I said ... I use the term AP meaning antibiotic therapy & I

am on a combination of abx.

--------------------------------------------------------------------------------

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Checked by AVG - www.avg.com

Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

----------

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Checked by AVG - www.avg.com

Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

[Guest guest]

Hello Maz,

how long did it take you to start feeling better while on the four antibiotics

and the nexium?

thanks,

rheumatic

From: marilyn.m@...

Date: Wed, 19 May 2010 02:04:03 +0000

Subject: rheumatic Re: New to this Group

I understand your frustration in all this but hope you are under the care of an

AP Dr ???

My Dr tweaks the medication to suit the patient as well as the disease, it's not

a 'one fits all' kind of regime & has absolutely no hesitation in treating the

co-infections at the same time;

In my case my treatment regime is ::

Sept 9, 09 MWF

Breakfast Amoxil (amoxicillin) x 2-1/2 ml

Rulide (roxithromycin) 150mg x ½ tablet

Lunch Dalacin C (clindamycin) 150mg x 1 tablet

Dinner Ibilex (cephalosporin) 250mg x 1 tablet

Bedtime Nexium (Esomeprazole) 40mg x ½ tablet

However I have to say it took 6 or 7 tweaks/changes of meds before this combo

worked for me.

_________________________________________________________________

The New Busy is not the old busy. Search, chat and e-mail from your inbox.

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_3

[Guest guest]

Hi Kathy,

Although I would love to be able to help you the best advice I could give would

be for you to join the Roadback forum ,, they are what I call the patient

experts in all this. Eva would I am sure agree with me on that.

Their website address is : http://www.rbfbb.org/

MazM

>

> Maz what is your AP combination? I finally talked my RA Dr into giving me AB -

so I have been trying to be my own Dr. with the help of the books and the net.

Any help you could give me would be appreciation. Thanks,

> kathy egenbacher

>

>

> From: Maz

> Sent: Tuesday, May 18, 2010 8:19 PM

> rheumatic

> Subject: rheumatic Re: New to this Group

>

>

>

> Just expanding what I said ... I use the term AP meaning antibiotic therapy &

I am on a combination of abx.

>

>

>

>

>

>

>

--------------------------------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

>

> ----------

>

>

> No virus found in this outgoing message.

> Checked by AVG - www.avg.com

> Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

>

>

>

[Guest guest]

Yes, I agree with Maz, there is a lot of people on the Road Back Forum that have

gone  through a lot and are now doing well with the antibiotics. I take a

different type of antibiotics then Maz, but every RA issue must be treated

diffent.

Eva

From: Maz <marilyn.m@...>

Subject: rheumatic Re: New to this Group

rheumatic

Date: Wednesday, May 19, 2010, 6:54 PM

 

Hi Kathy,

Although I would love to be able to help you the best advice I could give would

be for you to join the Roadback forum ,, they are what I call the patient

experts in all this. Eva would I am sure agree with me on that.

Their website address is : http://www.rbfbb.org/

MazM

>

> Maz what is your AP combination? I finally talked my RA Dr into giving me AB -

so I have been trying to be my own Dr. with the help of the books and the net.

Any help you could give me would be appreciation. Thanks,

> kathy egenbacher

>

>

> From: Maz

> Sent: Tuesday, May 18, 2010 8:19 PM

> rheumatic

> Subject: rheumatic Re: New to this Group

>

>

>

> Just expanding what I said ... I use the term AP meaning antibiotic therapy &

I am on a combination of abx.

>

>

>

>

>

>

> ----------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

>

> ----------

>

>

> No virus found in this outgoing message.

> Checked by AVG - www.avg.com

> Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

>

>

>

[Guest guest]

Thank you, I will do that. I pray all of your days are sunny.

kathy egenbacher

From: Maz

Sent: Wednesday, May 19, 2010 6:54 PM

rheumatic

Subject: rheumatic Re: New to this Group

Hi Kathy,

Although I would love to be able to help you the best advice I could give would

be for you to join the Roadback forum ,, they are what I call the patient

experts in all this. Eva would I am sure agree with me on that.

Their website address is : http://www.rbfbb.org/

MazM

>

> Maz what is your AP combination? I finally talked my RA Dr into giving me AB -

so I have been trying to be my own Dr. with the help of the books and the net.

Any help you could give me would be appreciation. Thanks,

> kathy egenbacher

>

>

> From: Maz

> Sent: Tuesday, May 18, 2010 8:19 PM

> rheumatic

> Subject: rheumatic Re: New to this Group

>

>

>

> Just expanding what I said ... I use the term AP meaning antibiotic therapy &

I am on a combination of abx.

>

>

>

>

>

>

> ----------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

>

> ----------

>

>

> No virus found in this outgoing message.

> Checked by AVG - www.avg.com

> Version: 9.0.819 / Virus Database: 271.1.1/2882 - Release Date: 05/18/10

13:26:00

>

>

>