Re: minocyclene and enbrel

[Guest guest]

Cherie,

keep taking the Enbrel but as the MD told you taper it to 10 days, then to 14

days untll you take one a months, the stop and see how you are doing. It took me

three months to stop the Enbrel, Prednison took five months, Cellcept three

months.

What you experience may be a herx that means the antibiotic are fighting the

mycoplasma infection in your body. Do you have the book: The Road Back by Henry

Scammell? if not you can get it at Amazon.com. Some of the books are

inexpensive. If you want to know more go to Road Back Foundation and learn more,

there is also a packet you can print out for the doctor (17 pgs) and you can

join the Road Back Foundation and find a lot of help.

Eva

From: cheriebski <cheriebski@...>

Subject: rheumatic minocyclene and enbrel

rheumatic

Date: Sunday, May 16, 2010, 8:25 AM

 

Hi, I'm new to this group and hope you can help me. I was diagnosed with

rheumatoid arthritis in 2005 and have been on enbrel, prednisone and azulfidine

along with inhalers for asthma, calcium and vit. C. and have been doing very

well, managing occcasional flares in fall and spring with changing my prednisone

dose. But I have been very concerned about taking all this medication and have

done alot of reading, changing my diet to no gluten, no unfermented soy, only

grass fed/free range beef/chicken. I went to see an M.D. last week who is into

alternative therapies and diet. He took me off calcium and put me on minocylene

200mg daily, a B complex vitamin, vit. D, Magnesium, cocunut milk keifer 3x

daily and I am to add iodine in a week. He said I should stay on the enbrel for

now but gradually go to taking it every 10th day if I tolerate it well rather

than every 8th as I have been doing. My rheumatologist has told me in the past

that if I ever go on

antibiotics I should stop taking the enbrel until the course of antibiotics is

over, then resume.

Since starting this new regimen Thursday pm I have not been feeling well, that

is, I feel nervous and dizzy. So I did some reading about minocyclene and

decided to lower my dose to 100 mg Mon, Wed., Fri.

So, 2 questions:

1. Should I keep taking the enbrel or not?

2. Traditional sources say minocyclene works not as an antibiotic with R.A. but

as an immunosuppresent. Alternatives say it's the antibiotic. But whenever I've

been on antibiotics in the past it's only for 10-14 days but it seems that for

R.A. minocyclene is used long term which makes me wonder if rather than killing

off a bug it's just substituting one medication for another. I guess even that

is good in the sense that dizziness (i.e. with minocyclene) is better than

lymphoma (i.e. with enbrel)! But is there hope I can get off medication

altogether?

This whole thing can be so confusing! Which " expert " do you listen to?

Thanks.

Cherie

[Guest guest]

Hi Cherie, good for the doctor who put you on Minocin.  And please follow his

advice.  I have been on Minocin for 5 years now. It is a tetracycline based

antibiotics.  This medication has been given to teenagers for acne for more

than 40 years and no teenager ever died from it.  Yes, you will get a little

dizzy now & then and may have itching and other nuisance side effects.  The

book Eva is talking about is at the back of " The New Arthritis breakthrough " by

Henry Scammell, " The Roadback " by MacPherson Brown, M.D. starts at about

the middle of the book. Dr. Brown is the discoverer of the bacteria/virus

mycoplasmas which are L shape tiny organisms.  He treated all his arthritic

patients successfully for 40 yr with Tetracycline..  Read those (two in one

books.) Order them from Amazon.com.  You can buy them new or used at a very low

price. I paid $10.00- five years ago for my copy.  Then go to .com and

type in, Frequently Asked

Questions about the Antibiotic Protocol.  It is in English and is translated

in about 4 languages. Make a copy and read it often as though it were your

bible. Before starting the minocin, the doctor should have drawn blood for tests

to see what microbe or microbes you are infected with.  This doctor you have

believes, as we all do,  that Arthritis and its' related diseases are of

infectious origin.  You will never get well by just treating the symptoms. You

will get well by attacking the cause.  And you can only do that by taking the

low dose long term antibiotic. Expect to feel worse when you first start. They

call that a herx.  The mycoplasma are slow growing and slow dying and they

don't die gracefully.  As they die off, they emit a toxin that will make you

sicker.  This will pass in time and you will be on your way to a full

remission.  Remember it is not a quick fix.  Stay focused for the long run and

don't dwell on the symptoms. They

will change from week to week or month to month and sometimes several times

during one day. Meanwhile, get lots of rest, be kind to yourself, eat well and

get on a healthy way of life altogether, which sounds like you have already

started.  Congratulations.  The moderators on this site and on The

Roadback.org site will help you through the rough spots.  Keep your mind

focused on getting to the final goal of remission.  I did it and you can do it

also. I am in remission from Scleroderma, R/A, & MCTD (Mixed Connective Tissue

Disease.  I was diagnosed in 2005 &   went into full remission by October

of 2009.I am now on a maintenance dose of Minocin 100mg MWF.  to make sure I

never get reinfected again and to keep away co-infections. It is possible to

have several infections at the same time. Minocin is a good starting

antibiotic.  You may need to add clindamycin and azythromycin later on.  I was

on 5 different antibiotics for a while.  Had to

get all those bugs out of me.  Take care and I wish you well.  Dolores

From: cheriebski <cheriebski@...>

Subject: rheumatic minocyclene and enbrel

rheumatic

Date: Sunday, May 16, 2010, 9:25 AM

 

Hi, I'm new to this group and hope you can help me. I was diagnosed with

rheumatoid arthritis in 2005 and have been on enbrel, prednisone and azulfidine

along with inhalers for asthma, calcium and vit. C. and have been doing very

well, managing occcasional flares in fall and spring with changing my prednisone

dose. But I have been very concerned about taking all this medication and have

done alot of reading, changing my diet to no gluten, no unfermented soy, only

grass fed/free range beef/chicken. I went to see an M.D. last week who is into

alternative therapies and diet. He took me off calcium and put me on minocylene

200mg daily, a B complex vitamin, vit. D, Magnesium, cocunut milk keifer 3x

daily and I am to add iodine in a week. He said I should stay on the enbrel for

now but gradually go to taking it every 10th day if I tolerate it well rather

than every 8th as I have been doing. My rheumatologist has told me in the past

that if I ever go on

antibiotics I should stop taking the enbrel until the course of antibiotics is

over, then resume.

Since starting this new regimen Thursday pm I have not been feeling well, that

is, I feel nervous and dizzy. So I did some reading about minocyclene and

decided to lower my dose to 100 mg Mon, Wed., Fri.

So, 2 questions:

1. Should I keep taking the enbrel or not?

2. Traditional sources say minocyclene works not as an antibiotic with R.A. but

as an immunosuppresent. Alternatives say it's the antibiotic. But whenever I've

been on antibiotics in the past it's only for 10-14 days but it seems that for

R.A. minocyclene is used long term which makes me wonder if rather than killing

off a bug it's just substituting one medication for another. I guess even that

is good in the sense that dizziness (i.e. with minocyclene) is better than

lymphoma (i.e. with enbrel)! But is there hope I can get off medication

altogether?

This whole thing can be so confusing! Which " expert " do you listen to?

Thanks.

Cherie

[Guest guest]

Thanks Eva and Delores.  boy, it's so helpful to hear from other people who

have gone through this.  When I first started learning things I would ask my

doctors and they would discourage me (no, diet has nothing to do with it - you

just got R.A., who knows why, it just happened; no, antibiotics don't help,

etc.) but I kept reading because I felt that there must be something I can do

rather than just take all these meds that are foreign to my body and probably

creating a time bomb.

 

Thanks for the advice about the enbrel and books.  I will look into them.  I

also got some private posts - geez, it just feels good to not be all alone in

this, wondering what the heck I am doing and trying to find my way.

Cherie

 

From: cheriebski <cheriebski@...>

Subject: rheumatic minocyclene and enbrel

rheumatic

Date: Sunday, May 16, 2010, 9:25 AM

 

Hi, I'm new to this group and hope you can help me. I was diagnosed with

rheumatoid arthritis in 2005 and have been on enbrel, prednisone and azulfidine

along with inhalers for asthma, calcium and vit. C. and have been doing very

well, managing occcasional flares in fall and spring with changing my prednisone

dose. But I have been very concerned about taking all this medication and have

done alot of reading, changing my diet to no gluten, no unfermented soy, only

grass fed/free range beef/chicken. I went to see an M.D. last week who is into

alternative therapies and diet. He took me off calcium and put me on minocylene

200mg daily, a B complex vitamin, vit. D, Magnesium, cocunut milk keifer 3x

daily and I am to add iodine in a week. He said I should stay on the enbrel for

now but gradually go to taking it every 10th day if I tolerate it well rather

than every 8th as I have been doing. My rheumatologist has told me in the past

that if I ever go on

antibiotics I should stop taking the enbrel until the course of antibiotics is

over, then resume.

Since starting this new regimen Thursday pm I have not been feeling well, that

is, I feel nervous and dizzy. So I did some reading about minocyclene and

decided to lower my dose to 100 mg Mon, Wed., Fri.

So, 2 questions:

1. Should I keep taking the enbrel or not?

2. Traditional sources say minocyclene works not as an antibiotic with R.A. but

as an immunosuppresent. Alternatives say it's the antibiotic. But whenever I've

been on antibiotics in the past it's only for 10-14 days but it seems that for

R.A. minocyclene is used long term which makes me wonder if rather than killing

off a bug it's just substituting one medication for another. I guess even that

is good in the sense that dizziness (i.e. with minocyclene) is better than

lymphoma (i.e. with enbrel)! But is there hope I can get off medication

altogether?

This whole thing can be so confusing! Which " expert " do you listen to?

Thanks.

Cherie