Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Hi, I'm new to this group and hope you can help me. I was diagnosed with rheumatoid arthritis in 2005 and have been on enbrel, prednisone and azulfidine along with inhalers for asthma, calcium and vit. C. and have been doing very well, managing occcasional flares in fall and spring with changing my prednisone dose. But I have been very concerned about taking all this medication and have done alot of reading, changing my diet to no gluten, no unfermented soy, only grass fed/free range beef/chicken. I went to see an M.D. last week who is into alternative therapies and diet. He took me off calcium and put me on minocylene 200mg daily, a B complex vitamin, vit. D, Magnesium, cocunut milk keifer 3x daily and I am to add iodine in a week. He said I should stay on the enbrel for now but gradually go to taking it every 10th day if I tolerate it well rather than every 8th as I have been doing. My rheumatologist has told me in the past that if I ever go on antibiotics I should stop taking the enbrel until the course of antibiotics is over, then resume. Since starting this new regimen Thursday pm I have not been feeling well, that is, I feel nervous and dizzy. So I did some reading about minocyclene and decided to lower my dose to 100 mg Mon, Wed., Fri. So, 2 questions: 1. Should I keep taking the enbrel or not? 2. Traditional sources say minocyclene works not as an antibiotic with R.A. but as an immunosuppresent. Alternatives say it's the antibiotic. But whenever I've been on antibiotics in the past it's only for 10-14 days but it seems that for R.A. minocyclene is used long term which makes me wonder if rather than killing off a bug it's just substituting one medication for another. I guess even that is good in the sense that dizziness (i.e. with minocyclene) is better than lymphoma (i.e. with enbrel)! But is there hope I can get off medication altogether? This whole thing can be so confusing! Which " expert " do you listen to? Thanks. Cherie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.