Re: Response frm Inf D. DR ELLEN McCool ?

September 27, 2009

Beth, thanks for sharing your experience with Dr. Sentef..

Have you ever considered Dr. Whitman? I only heard about him this week but am

considering seeing him (about 6 hours away from me)..

I've never heard of Dr. Franco or Dr. Trentham.. I'm assuming they are very good

AP docs?

> > > >

> > > > Fairly typical response. I have been yelled at by various Drs and

dismissed routinely...par for the course. I was on the Antibiotic Protocol for

over 2 yrs...All of my SD symptoms disappeared....I did quite well until I had

an unfortunate allergic, " hypersensitive reaction " to the minocin...I developed

a lung condition called OB, Obliterative Bronchiolitis....BOOP or OB...or

BO...depending on which DR is speaking of my lung issue...The OB could have been

caused by the minocin...OR...the OB could have also been caused by my RA or the

SD...I am diagnosed with both SD, scleroderma and RA...I have read of cases in

the literature where patients with RA developed OB....and this without being on

the minocin protocol...I have also read of patients, taking minocin protocol for

NOT Autoimmune disease, SD or other...but on the minocin protocol for an acne

therapy....several of these patients developed OB....To the best of my

knowledge, the patients on the

> minocin for Acne....when they developed the OB...they were immediately taken

off the minocin and the resulting lung condition dissipated...So....did I get OB

from the minocin or from RA or SD?? Don't know but my very learned and well

respected rheumy, DR. Hendriks Whitman took me off the minocin

immediately....and I have not been allowed to go back on it...just more

information for you, hope this helps. I felt better on the minocin therapy than

I had in years...most, if not all of my symptoms disappeared until the lung

condition surfaced...Still, while Dr. Whitman will not allow me to try the

minocin again...because of the cases in the literature where minocin caused OB

(particularly in the acne patients) I felt that the antibiotic therapy did help

me.

> > > > Good luck to you....keep searching for good Drs...they are out

there...I found DR. Whitman on this BB....he came highly recommended....and to

this day, we drive from Ohio to NJ to see him once a year.

> > > > Debbie, Loveland, Ohio

> > > > rheumatic Response from an Infectious Diesease physician.

> > > >

> > > > Some of you may remember my wife's name, , from a few weeks

ago. She was recently diagnosed with Lupus and Polymyocitis in April of this

year. We are new to all this and are actively looking for a physician that will

oversee her AP. If you remember, we did find a " pusher " that is willing to

prescribe the antibiotics which she has already started, but, beyond that, is

non-existent.

> > > >

> > > > I thought I would share a letter from an Infectious Diesease physician

that I recently (9/25) presented her records to in order to request his

assistance. The following is his response I just received in email form today:

> > > >

> > > > Dear Mr. _____,

> > > >

> > > > while I am impressed by the incredibly diligent documentation of your

wife's illness and am truly sorry for the devastation that your wife's illness

must have caused both of you, I am unfortunately not a good choice as a

physician to accompany your wife through this ordeal.

> > > >

> > > > While I agree that infections are a likely trigger for many autoimmune

illnesses, there is clear evidence that treatment of any such triggers will not

affect the course of the subsequent illness other than through placebo effect.

Let me give you an example from another field: While it is clear that smoking

induces mutations that cause lung cancer, the treatment for the cancer is

chemotherapy not a nicotine patch and smoking cessation. The same is true for

autoimmune diseases.

> > > >

> > > > Physicians who continue to adhere to Dr. Brown's theories often offer

other " quack " theories and treatments as well, many of which are perfectly

capable of draining patient's wealth or causing major side effects without any

significant improvement. However many of these have appropriately lost their

licenses, more seem to pop up at any given time, willing to take advantage of

desperate patients.

> > > >

> > > > Your wife needs significant immunosuppresive therapy guided by an

experienced rheumatologist and not antibiotics. I can assure you that the

protocol suggested is not benign and can have significant and potentially fatal

side effects, with, in my view, no reasonable chance of improvement. Please

remain vigilant.

> > > >

> > > > With regards and best wishes for the health of your wife

> > > >

> > > > _______________________, MD

> > > >

> > > > Division Chief

> > > > Division of Infectious Diseases

> > > >

> > > > I will say this, he is prompt and direct. Anyway, ....... on to the

next physician.

> > > >

> > > > Rick

> > > >

> > > > BTW, sorry I missed the chat. Found out too late and still had a

problem registering. The process is not very clear.

> > > >

September 28, 2009

Hello Dolores. I have a three part question: 1.) Regarding; " Did the

blood work and said to me, " Go, I only treat sick people and you are no

longer sick. " , Did the doc mean he felt you were medically resolved or

did he mean that he had done all that he could do but you still were not

better? 2.) If he meant that he felt that you were resolved, why did you

switch to the Marshall Protocol? 3.) What is the Marshall Protocol and

how is it different from Dr. Brown's treatment?

Rick

> > > > >

> > > > > Fairly typical response. I have been yelled at by various

Drs and dismissed routinely... par for the course. I was on the

Antibiotic Protocol for over 2 yrs...All of my SD symptoms disappeared.

....I did quite well until I had an unfortunate allergic, " hypersensitive

reaction " to the minocin...I developed a lung condition called OB,

Obliterative Bronchiolitis. ....BOOP or OB...or BO...depending on which

DR is speaking of my lung issue....The OB could have been caused by the

minocin...OR. ..the OB could have also been caused by my RA or the

SD...I am diagnosed with both SD, scleroderma and RA...I have read of

cases in the literature where patients with RA developed OB....and this

without being on the minocin protocol...I have also read of patients,

taking minocin protocol for NOT Autoimmune disease, SD or other...but on

the minocin protocol for an acne therapy....several of these patients

developed OB....To the best of my knowledge, the patients

> on the

> > minocin for Acne....when they developed the OB...they were

immediately taken off the minocin and the resulting lung condition

dissipated.. .So....did I get OB from the minocin or from RA or SD??

Don't know but my very learned and well respected rheumy, DR. Hendriks

Whitman took me off the minocin immediately. ...and I have not been

allowed to go back on it...just more information for you, hope this

helps. I felt better on the minocin therapy than I had in years...most,

if not all of my symptoms disappeared until the lung condition

surfaced...Still, while Dr. Whitman will not allow me to try the minocin

again...because of the cases in the literature where minocin caused OB

(particularly in the acne patients) I felt that the antibiotic therapy

did help me.

> > > > > Good luck to you....keep searching for good Drs...they are

out there...I found DR. Whitman on this BB....he came highly

recommended. ...and to this day, we drive from Ohio to NJ to see him

once a year.

> > > > > Debbie, Loveland, Ohio

> > > > > rheumatic Response from an Infectious Diesease

physician.

> > > > >

> > > > > Some of you may remember my wife's name, , from a few

weeks ago. She was recently diagnosed with Lupus and Polymyocitis in

April of this year. We are new to all this and are actively looking for

a physician that will oversee her AP. If you remember, we did find a

" pusher " that is willing to prescribe the antibiotics which she has

already started, but, beyond that, is non-existent.

> > > > >

> > > > > I thought I would share a letter from an Infectious Diesease

physician that I recently (9/25) presented her records to in order to

request his assistance. The following is his response I just received in

email form today:

> > > > >

> > > > > Dear Mr. _____,

> > > > >

> > > > > while I am impressed by the incredibly diligent

documentation of your wife's illness and am truly sorry for the

devastation that your wife's illness must have caused both of you, I am

unfortunately not a good choice as a physician to accompany your wife

through this ordeal.

> > > > >

> > > > > While I agree that infections are a likely trigger for many

autoimmune illnesses, there is clear evidence that treatment of any such

triggers will not affect the course of the subsequent illness other than

through placebo effect. Let me give you an example from another field:

While it is clear that smoking induces mutations that cause lung cancer,

the treatment for the cancer is chemotherapy not a nicotine patch and

smoking cessation. The same is true for autoimmune diseases.

> > > > >

> > > > > Physicians who continue to adhere to Dr. Brown's theories

often offer other " quack " theories and treatments as well, many of which

are perfectly capable of draining patient's wealth or causing major side

effects without any significant improvement. However many of these have

appropriately lost their licenses, more seem to pop up at any given

time, willing to take advantage of desperate patients.

> > > > >

> > > > > Your wife needs significant immunosuppresive therapy guided

by an experienced rheumatologist and not antibiotics. I can assure you

that the protocol suggested is not benign and can have significant and

potentially fatal side effects, with, in my view, no reasonable chance

of improvement. Please remain vigilant.

> > > > >

> > > > > With regards and best wishes for the health of your wife

> > > > >

> > > > > ____________ _________ __, MD

> > > > >

> > > > > Division Chief

> > > > > Division of Infectious Diseases

> > > > >

> > > > > I will say this, he is prompt and direct. Anyway, ....... on

to the next physician.

> > > > >

> > > > > Rick

> > > > >

> > > > > BTW, sorry I missed the chat. Found out too late and still

had a problem registering. The process is not very clear.

> > > > >

September 28, 2009

Dolores, is he taking on new patients? Since we live in SC, FL is way closer

than NJ.

Rick

> > > >

> > > > Fairly typical response. I have been yelled at by various Drs and

dismissed routinely... par for the course. I was on the Antibiotic Protocol for

over 2 yrs...All of my SD symptoms disappeared. ...I did quite well until I had

an unfortunate allergic, " hypersensitive reaction " to the minocin...I developed

a lung condition called OB, Obliterative Bronchiolitis. ...BOOP or OB...or

BO...depending on which DR is speaking of my lung issue...The OB could have been

caused by the minocin...OR. ..the OB could have also been caused by my RA or the

SD...I am diagnosed with both SD, scleroderma and RA...I have read of cases in

the literature where patients with RA developed OB....and this without being on

the minocin protocol...I have also read of patients, taking minocin protocol for

NOT Autoimmune disease, SD or other...but on the minocin protocol for an acne

therapy....several of these patients developed OB....To the best of my

knowledge, the patients on the

> minocin for Acne....when they developed the OB...they were immediately taken

off the minocin and the resulting lung condition dissipated.. .So....did I get

OB from the minocin or from RA or SD?? Don't know but my very learned and well

respected rheumy, DR. Hendriks Whitman took me off the minocin immediately.

....and I have not been allowed to go back on it...just more information for you,

hope this helps. I felt better on the minocin therapy than I had in

years...most, if not all of my symptoms disappeared until the lung condition

surfaced...Still, while Dr. Whitman will not allow me to try the minocin

again...because of the cases in the literature where minocin caused OB

(particularly in the acne patients) I felt that the antibiotic therapy did help

me.

> > > > Good luck to you....keep searching for good Drs...they are out there...I

found DR. Whitman on this BB....he came highly recommended. ...and to this day,

we drive from Ohio to NJ to see him once a year.

> > > > Debbie, Loveland, Ohio

> > > > rheumatic Response from an Infectious Diesease physician.

> > > >

> > > > Some of you may remember my wife's name, , from a few weeks ago.

She was recently diagnosed with Lupus and Polymyocitis in April of this year. We

are new to all this and are actively looking for a physician that will oversee

her AP. If you remember, we did find a " pusher " that is willing to prescribe the

antibiotics which she has already started, but, beyond that, is non-existent.

> > > >

> > > > I thought I would share a letter from an Infectious Diesease physician

that I recently (9/25) presented her records to in order to request his

assistance. The following is his response I just received in email form today:

> > > >

> > > > Dear Mr. _____,

> > > >

> > > > while I am impressed by the incredibly diligent documentation of your

wife's illness and am truly sorry for the devastation that your wife's illness

must have caused both of you, I am unfortunately not a good choice as a

physician to accompany your wife through this ordeal.

> > > >

> > > > While I agree that infections are a likely trigger for many autoimmune

illnesses, there is clear evidence that treatment of any such triggers will not

affect the course of the subsequent illness other than through placebo effect.

Let me give you an example from another field: While it is clear that smoking

induces mutations that cause lung cancer, the treatment for the cancer is

chemotherapy not a nicotine patch and smoking cessation. The same is true for

autoimmune diseases.

> > > >

> > > > Physicians who continue to adhere to Dr. Brown's theories often offer

other " quack " theories and treatments as well, many of which are perfectly

capable of draining patient's wealth or causing major side effects without any

significant improvement. However many of these have appropriately lost their

licenses, more seem to pop up at any given time, willing to take advantage of

desperate patients.

> > > >

> > > > Your wife needs significant immunosuppresive therapy guided by an

experienced rheumatologist and not antibiotics. I can assure you that the

protocol suggested is not benign and can have significant and potentially fatal

side effects, with, in my view, no reasonable chance of improvement. Please

remain vigilant.

> > > >

> > > > With regards and best wishes for the health of your wife

> > > >

> > > > ____________ _________ __, MD

> > > >

> > > > Division Chief

> > > > Division of Infectious Diseases

> > > >

> > > > I will say this, he is prompt and direct. Anyway, ....... on to the next

physician.

> > > >

> > > > Rick

> > > >

> > > > BTW, sorry I missed the chat. Found out too late and still had a problem

registering. The process is not very clear.

> > > >

September 29, 2009

Thanks Dolores. Yes, we live in the interior, just northeast of Columbia. We

decided last night that we will go to see Dr. Penico. I have a good friend that

lives in Huntsville, AL so we will make a " trip " out of it. I will call his

office today and see how soon we can get in. Where in PR will you be living? I

(my family) lived in Bayamon when I was of junior high age. Of course that was

many moons ago. My father is from there and he was in the military back then. I

liked the island back then, especially the beach. Now I would be leaning more

towards the food as the main attraction. God, it is SOOOO good. However, not

good for you.

I will let you know when we are coming and see if we can get togehter. I am sure

my wife will really want to meet and talk to you, as will I.

Rick

> > > > >

> > > > > Fairly typical response. I have been yelled at by various Drs and

dismissed routinely... par for the course. I was on the Antibiotic Protocol for

over 2 yrs...All of my SD symptoms disappeared. ...I did quite well until I had

an unfortunate allergic, " hypersensitive reaction " to the minocin...I developed

a lung condition called OB, Obliterative Bronchiolitis. ...BOOP or OB...or

BO...depending on which DR is speaking of my lung issue...The OB could have been

caused by the minocin...OR. ..the OB could have also been caused by my RA or the

SD...I am diagnosed with both SD, scleroderma and RA....I have read of cases in

the literature where patients with RA developed OB....and this without being on

the minocin protocol...I have also read of patients, taking minocin protocol for

NOT Autoimmune disease, SD or other...but on the minocin protocol for an acne

therapy....several of these patients developed OB....To the best of my

knowledge, the patients on

> the

> > minocin for Acne....when they developed the OB...they were immediately taken