when is it too late?

[Guest guest]

Many babies have been helped by a helmet at this age. has

improved a lot in his since 15 months. Improvement will be slower and

not as much though. I'm not sure how much the ears and eye will be

helped, but it is likely the head can be helped. You want to move as

quickly as possible to get the helmet.

-Kathy, mom to 25 months

tinsel2003 wrote:

My ped has always told me my kid's head was fine. I saw some pics

from a website and never though to compare her ears for whatever reason

and they are very much not aligned. Her head is flat on her left side

and her left ear is lower and pushed to the front. Her one eye IS a

little bit smaller. She 14 months old (will be 15 on the 20th. I called

hanger and I need a script. I called ped and he's busy but the lady

said she would ask him for an earlier appt. I really demand a helmut. I

won't be pushed around and be told to ignore our problems because we're

poor or ppl don't care whatever. I will charge it. I don't care. I am

determined to help her no matter what. But is it in vain? At this stage

will nothing help her?

thx Kim

[Guest guest]

I got an appt with the ped on Monday. But then I will need to be refered a few more times and have the helmut made. IF he will help me. Ugh I wish I had stood my ground and gotten it done sooner! Monday seems so far away.Why do you need a script anyway? KimFrom: Kathy Lora Jensen <kathylorajensen@...>Plagiocephaly Sent: Wed, July 7, 2010 6:53:42 PMSubject: Re: when is it too late?

Many babies have been helped by a helmet at this age. has

improved a lot in his since 15 months. Improvement will be slower and

not as much though. I'm not sure how much the ears and eye will be

helped, but it is likely the head can be helped. You want to move as

quickly as possible to get the helmet.

-Kathy, mom to 25 months

tinsel2003 wrote:

My ped has always told me my kid's head was fine. I saw some pics

from a website and never though to compare her ears for whatever reason

and they are very much not aligned. Her head is flat on her left side

and her left ear is lower and pushed to the front. Her one eye IS a

little bit smaller. She 14 months old (will be 15 on the 20th. I called

hanger and I need a script. I called ped and he's busy but the lady

said she would ask him for an earlier appt. I really demand a helmut. I

won't be pushed around and be told to ignore our problems because we're

poor or ppl don't care whatever. I will charge it. I don't care. I am

determined to help her no matter what. But is it in vain? At this stage

will nothing help her?

thx Kim

[Guest guest]

You need the script because it is classified by the FDA as a medical device.

Even though you are waiting for your appointment, I would start making other appointments now. Look into where a baby gets a band in your area and see if you can set up consultations without the script. I believe that Hanger requires the script, but CT does not and neither does many of the starband locations.

If you get the consult set up now, you can try and convince the ped to write the script on Monday and then go forward.

Also, check into what your insurance will cover. If you have no insurance coverage, then order the band as soon as you get the script. We were initially told that we had coverage, then told there was an exclusion, and then told it would only cover Hanger. We wasted three weeks by dealing with insurance AFTER our consult.

My daughter was banded with a STARband at 14 months 3 weeks. She had (has) brachy and not plagio, but she got good improvement and I don't regret banding. To the untrained eye, she looks normal now. These days, I don't worry about how her head shape will influence her life and I used to all of the time. You can see before and after pictures of her at this link.

http://www.flickr.com/photos/11835424@N06/

Oh - I am not alone in banding late and I don't think that any of us who have done it (in this group) have regretted it.

, mom to , 2 3/4 years

STARband grad May 2009

Chiro and CST

land

From: critter lover <tinsel2003@...>Plagiocephaly Sent: Wed, July 7, 2010 10:44:44 PMSubject: Re: when is it too late?

I got an appt with the ped on Monday. But then I will need to be refered a few more times and have the helmut made. IF he will help me. Ugh I wish I had stood my ground and gotten it done sooner! Monday seems so far away.Why do you need a script anyway? Kim

From: Kathy Lora Jensen <kathylorajensen@ gmail.com>PlagiocephalySent: Wed, July 7, 2010 6:53:42 PMSubject: Re: when is it too late?

Many babies have been helped by a helmet at this age. has improved a lot in his since 15 months. Improvement will be slower and not as much though. I'm not sure how much the ears and eye will be helped, but it is likely the head can be helped. You want to move as quickly as possible to get the helmet.-Kathy, mom to 25 monthstinsel2003 wrote:

My ped has always told me my kid's head was fine. I saw some pics from a website and never though to compare her ears for whatever reason and they are very much not aligned. Her head is flat on her left side and her left ear is lower and pushed to the front. Her one eye IS a little bit smaller. She 14 months old (will be 15 on the 20th. I called hanger and I need a script. I called ped and he's busy but the lady said she would ask him for an earlier appt. I really demand a helmut. I won't be pushed around and be told to ignore our problems because we're poor or ppl don't care whatever. I will charge it. I don't care. I am determined to help her no matter what. But is it in vain? At this stage will nothing help her?thx Kim

[Guest guest]

Just an FYI... CT does require a script, so it would be safe to have anyways...

I'm not sure about the other two places, though. Good luck!!

>  

> >My ped has always told me my kid's head was fine. I saw some pics from a

website and never though to compare her ears for whatever reason and they are

very much not aligned. Her head is flat on her left side and her left ear is

lower and pushed to the front. Her one eye IS a little bit smaller. She 14

months old (will be 15 on the 20th. I called hanger and I need a script. I

called ped and he's busy but the lady said she would ask him for an earlier

appt. I really demand a helmut. I won't be pushed around and be told to ignore

our problems because we're poor or ppl don't care whatever. I will charge it. I

don't care. I am determined to help her no matter what. But is it in vain? At

this stage will nothing help her?

> >thx Kim

> >

> >

>

[Guest guest]

I think Hanger has one in my area. I called them for their free eval and told me get a script first. I'm not sure if they are the only place here. Does anyone know of place in oregon to go so that I may bargain and quality shop?KimFrom: <jessicaroo@...>Plagiocephaly Sent: Thu, July 8, 2010

7:46:32 AMSubject: Re: when is it too late?

Just an FYI... CT does require a script, so it would be safe to have anyways... I'm not sure about the other two places, though. Good luck!!

> Â

> >My ped has always told me my kid's head was fine. I saw some pics from a website and never though to compare her ears for whatever reason and they are very much not aligned. Her head is flat on her left side and her left ear is lower and pushed to the front. Her one eye IS a little bit smaller. She 14 months old (will be 15 on the 20th. I called hanger and I need a script. I called ped and he's busy but the lady said she would ask him for an earlier appt. I really demand a helmut. I won't be pushed around and be told to ignore our problems because we're poor or ppl don't care whatever. I will charge it. I don't care. I am determined to help her no matter what. But is it in vain? At this stage will nothing help her?

> >thx Kim

> >

> >

>

[Guest guest]

oh beautiful, thank you so much. How long did she wear it? Does it take awhile to get an appt? Hanger said they had no physicians so I felt like maybe there was a middle step I was going to need to do like see a neurosurgeon or something?KimFrom: <watsonmel3@...>Plagiocephaly Sent: Thu, July

8, 2010 4:49:08 AMSubject: Re: when is it too late?

You need the script because it is classified by the FDA as a medical device.

Even though you are waiting for your appointment, I would start making other appointments now. Look into where a baby gets a band in your area and see if you can set up consultations without the script. I believe that Hanger requires the script, but CT does not and neither does many of the starband locations.

If you get the consult set up now, you can try and convince the ped to write the script on Monday and then go forward.

Also, check into what your insurance will cover. If you have no insurance coverage, then order the band as soon as you get the script. We were initially told that we had coverage, then told there was an exclusion, and then told it would only cover Hanger. We wasted three weeks by dealing with insurance AFTER our consult.

My daughter was banded with a STARband at 14 months 3 weeks. She had (has) brachy and not plagio, but she got good improvement and I don't regret banding. To the untrained eye, she looks normal now. These days, I don't worry about how her head shape will influence her life and I used to all of the time. You can see before and after pictures of her at this link.

http://www.flickr. com/photos/ 11835424@ N06/

Oh - I am not alone in banding late and I don't think that any of us who have done it (in this group) have regretted it.

, mom to , 2 3/4 years

STARband grad May 2009

Chiro and CST

land

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Wed, July 7, 2010 10:44:44 PMSubject: Re: when is it too late?

I got an appt with the ped on Monday. But then I will need to be refered a few more times and have the helmut made. IF he will help me. Ugh I wish I had stood my ground and gotten it done sooner! Monday seems so far away.Why do you need a script anyway? Kim

From: Kathy Lora Jensen <kathylorajensen@ gmail.com>PlagiocephalySent: Wed, July 7, 2010 6:53:42 PMSubject: Re: when is it too late?

Many babies have been helped by a helmet at this age. has improved a lot in his since 15 months. Improvement will be slower and not as much though. I'm not sure how much the ears and eye will be helped, but it is likely the head can be helped. You want to move as quickly as possible to get the helmet.-Kathy, mom to 25 monthstinsel2003 wrote:

My ped has always told me my kid's head was fine. I saw some pics from a website and never though to compare her ears for whatever reason and they are very much not aligned. Her head is flat on her left side and her left ear is lower and pushed to the front. Her one eye IS a little bit smaller. She 14 months old (will be 15 on the 20th. I called hanger and I need a script. I called ped and he's busy but the lady said she would ask him for an earlier appt. I really demand a helmut. I won't be pushed around and be told to ignore our problems because we're poor or ppl don't care whatever. I will charge it. I don't care. I am determined to help her no matter what. But is it in vain? At this stage will nothing help her?thx Kim

[Guest guest]

My daughter wore it 6 months because that is the longest that they would let her wear it. I did keep it on her at night for another month, but this was unofficial and just because I was paranoid about regression.

Your ped may write a script. Mine didn't because she wasn't familiar with whether a band was a good idea for my daughter so she insisted that I see specialists. My ped mentioned a helmet at 12.5 months, but it took two months to see the specialists and get her banded. If I had this group, I would have know how to get things going quicker. I would not have waited for all of the appointments before banding and probably could have shaved a month off of her starting time.

I think that Hanger won't see you without a script so you will probably have to wait. I have no idea how long it would take to get an appointment. I think that every place is different.

From: critter lover <tinsel2003@...>Plagiocephaly Sent: Thu, July 8, 2010 3:37:25 PMSubject: Re: when is it too late?

oh beautiful, thank you so much. How long did she wear it? Does it take awhile to get an appt? Hanger said they had no physicians so I felt like maybe there was a middle step I was going to need to do like see a neurosurgeon or something?Kim

From: <watsonmel3 (DOT) com>PlagiocephalySent: Thu, July 8, 2010 4:49:08 AMSubject: Re: when is it too late?

You need the script because it is classified by the FDA as a medical device.

Even though you are waiting for your appointment, I would start making other appointments now. Look into where a baby gets a band in your area and see if you can set up consultations without the script. I believe that Hanger requires the script, but CT does not and neither does many of the starband locations.

If you get the consult set up now, you can try and convince the ped to write the script on Monday and then go forward.

Also, check into what your insurance will cover. If you have no insurance coverage, then order the band as soon as you get the script. We were initially told that we had coverage, then told there was an exclusion, and then told it would only cover Hanger. We wasted three weeks by dealing with insurance AFTER our consult.

My daughter was banded with a STARband at 14 months 3 weeks. She had (has) brachy and not plagio, but she got good improvement and I don't regret banding. To the untrained eye, she looks normal now. These days, I don't worry about how her head shape will influence her life and I used to all of the time. You can see before and after pictures of her at this link.

http://www.flickr. com/photos/ 11835424@ N06/

Oh - I am not alone in banding late and I don't think that any of us who have done it (in this group) have regretted it.

, mom to , 2 3/4 years

STARband grad May 2009

Chiro and CST

land

From: critter lover <tinsel2003 (DOT) com>PlagiocephalySent: Wed, July 7, 2010 10:44:44 PMSubject: Re: when is it too late?

I got an appt with the ped on Monday. But then I will need to be refered a few more times and have the helmut made. IF he will help me. Ugh I wish I had stood my ground and gotten it done sooner! Monday seems so far away.Why do you need a script anyway? Kim

From: Kathy Lora Jensen <kathylorajensen@ gmail.com>PlagiocephalySent: Wed, July 7, 2010 6:53:42 PMSubject: Re: when is it too late?

Many babies have been helped by a helmet at this age. has improved a lot in his since 15 months. Improvement will be slower and not as much though. I'm not sure how much the ears and eye will be helped, but it is likely the head can be helped. You want to move as quickly as possible to get the helmet.-Kathy, mom to 25 monthstinsel2003 wrote:

My ped has always told me my kid's head was fine. I saw some pics from a website and never though to compare her ears for whatever reason and they are very much not aligned. Her head is flat on her left side and her left ear is lower and pushed to the front. Her one eye IS a little bit smaller. She 14 months old (will be 15 on the 20th. I called hanger and I need a script. I called ped and he's busy but the lady said she would ask him for an earlier appt. I really demand a helmut. I won't be pushed around and be told to ignore our problems because we're poor or ppl don't care whatever. I will charge it. I don't care. I am determined to help her no matter what. But is it in vain? At this stage will nothing help her?thx Kim

[Guest guest]

But they don't require the script for the consult - we were not asked for one.

From: <jessicaroo@...>Plagiocephaly Sent: Thu, July 8, 2010 10:46:32 AMSubject: Re: when is it too late?

Just an FYI... CT does require a script, so it would be safe to have anyways... I'm not sure about the other two places, though. Good luck!! > Â > >My ped has always told me my kid's head was fine. I saw some pics from a website and never though to compare her ears for whatever reason and they are very much not aligned. Her head is flat on her left side and her left ear is lower and pushed to the front. Her

one eye IS a little bit smaller. She 14 months old (will be 15 on the 20th. I called hanger and I need a script. I called ped and he's busy but the lady said she would ask him for an earlier appt. I really demand a helmut. I won't be pushed around and be told to ignore our problems because we're poor or ppl don't care whatever. I will charge it. I don't care. I am determined to help her no matter what. But is it in vain? At this stage will nothing help her?> >thx Kim> >> >>

[Guest guest]

When is it too late to start antibiotics? My step mother is 83 and has bad RA,

shes on every medicine known to man (except antibiotics) now her health is

declineing rapidly (I think due to all the meds) she is also very stubborn so

im not sure she would even welcome my advice on antibiotics... I have mentioned

to her that i have RA and am in remission.. she didint take the bait... Ive kept

quiet because i figure shes already got a huge amount of damage and her health

is bad already..but was wondering if anyone has started AP at a late stage and

been succesful . kathy