Guest guest Posted February 24, 2011 Report Share Posted February 24, 2011 I guess Rheumatologists all over are afraid of losing their licenses, That is why I went to an infectious disease doc and he was a giant help in getting me into remission. I was bombarded with antibiotics including minocin because there was laboratory proof that I was infected with mycoplasma pneumonae and went into remission within 6 months after I started with him. He used to practise in Pensacola, but last year I got notice that he moved and that my records are still at the hospital. They did not tell me where he moved to. But he has a friend doctor here in San . She is two hours away so I haven't gone to her. My minocin was totally used up by Nov, 2010 and I had to fight with the Insurance company. Changed to a different Insurance company and the fight started all over again. I tried using generic minocin and got worse. so, when they wouldn't give me the Minocin, I wrote my short story of introductory and passed it to my cardiologist, pulmonologist, neurologist and other docs, along with my records of before and after remission. I called Dr. Trentham and with all my labs, MRI's CT-Scans, lab results, etc. for proof, my doctors all wrote letters to the Insurance company, The law says that if you can prove this is a life saving medication for you, they have to approve it.   Insurance opened up an investigation and finally approved that I can and must have Minocin (Brand Only) for the rest of my life. Then the real fight started. There was not one pharmacy in Puerto Rico that carried it. I got all sorts of stories including one that told me that Triax was no longer in business. I tracked down their number and got the most wonderful person in their pharmacy dept,  who said, " of course we are still in business and making Minocin. "  She asked for the name of my pharmacy (CVS) and within 24 hours, I had my bottle of Minocin (Brand Only in my hot little hand.) Most of all the people I spoke to prior, were just too lazy to persue it or didn't think it important enough.  Lesson learned: Take matters into your own hands. Your life depends on it. Most other people don't give a damn. Now I am making arrangements for my 90 day supply to be delivered to my home forever. And a bottle of (50) 100mg pelleted capsules, which was all they could get their hands on in short notice only cost me $15.00. What a fight! I was losing my battle with remission, now I have to get myself back into remission again. Will keep you all updated. Thank you for all the support I received from you all. This was a story in and of itelf and will go into my book. I am now thinking about calling up Triax to see if I coul be a sales rep for their company since no one in Puerto Rico had heard of them. if I had my way, the entire Virgin Islands will know about Minocin, Triax and all the diseases it helps. They will know about the antibiotic protocol and hopefully help save a lot of lives.   BTW, I spoke with my ex-cardiologist in NY. and told her about my remission. She was one doc who was against the A/P in the beginning.  When I left NY, she must have studied up on it because now she uses A/P on her patients who are having heart problems because of an arthritic disease.  She is even planning a trip to Puerto Rico to visit us.   I may have to go to NY to visit the eye institute there. One doctor here did lazer surgery on one eye and now I see fuzzy out of that eye. Went for a second opinion and the second doctor is rushing to get me to consent to having surgery on the other eye. I don't trust anyone anymore. But that outcome will be another chapter in my book. Take care everyone. Dolores & Mike   From: Amy <muttville@...> Subject: rheumatic AP docs in NC rheumatic Date: Wednesday, February 23, 2011, 8:54 PM  http://www.gsmcweb.com/?page_id=7 This is the website for Great Smokies Medical Center. I am not positive that they do AP (antibiotic protocol) but I would highly suggest calling them to ask. They are in Asheville, about 3.5 hours from you. They are on the list below for AP docs in NC. Just note that the area code has changed from 704 to 828. i TYPED IN SOME NOTES ON THAT LIST, CHANGING AREA CODES I KNEW TO HAVE CHANGED. Interesting that Dr. Flechas in ville is on that list. He is the one I went to see earlier this month to ask if he would be open to AP. He said the NC Medical Board reviews prescriptions and he was investigated for writing prescriptions of oxytocin (not the pain killer oxycotin) for people with Lupus, I think it was, as it helps their pain. So he is leary of going off the beaten path. It just stinks. Makes me so angry...Urgh. > I've provided a list of AP-practicing MDs in North Carolina. I > couldn't find any in VA down your way so I thought this might help. There > may be a couple in Richmond and one in Norfolk but I think they are further > away for you then NC. If you want the names in VA let me know. El > > > > > > NORTH CAROLINA > > > > R. Biddle, M.D. (IM - 1989) > > Asheville Integrative Medicine > > 239 S. French Broad Ave., > > Asheville NC. 28801 > > > > P: 828-252-5545 > > > > F: 828-281-3055 > > > > www.integrative-med.com > > > > D. Flechas, M.D. (FP - 1977) > > 724 5th Ave., W. > > ville NC 28739. > > > > P: 828-693-3015 > > > > Neil Speight, (oral and IV) AMA lists Mark O'Neal Speight > > Wellness Center > > > 6900 Farmingdale Dr. > > Charlotte, NC. 28242 Charges excessive > Charlotte, NC 28212 > > > > P: 704-384-1260 > > > > P: 704-334-8447. > > > > > P: 704-384-9920 > > > > Roy Watkins, M.D. (MPH in nutrition FP - 1986) - known as Chip > > Family Practice of Summerfield > > 4431 Highway 220 No > > P. O. Box 220 Patient Betty Ishee > > Greensboro, NC. 27358 > > > > P: 336-643-7711 > > > > C. , M.D. - Nutrition 1986 - open and reasonable in cost > > 4505 Fair Meadows Lane - Suite 111 > > Raleigh, NC 27607 > > > > P: 919-571-4399 > > > > E. Wiley III, M.D. (FP - 1962) oral and IV > > P. O. Box 307 > > 64 High Country Square, > > Banner Elk, NC 28604. > > > > P: 828-898-6949 > > > > L. Jr., M.D., - not listed in AMA or phone directories -takes > referrals WORKS AT GREAT SMOKIES WITH HIS WIFE, EILEEN. THIS IS A RENOWN GROUP FOR ALTERNATIVE TREATMENTS - AMY > > Eileen M. , M.D. > > > > Great Smokies Medical Center, P.A., > > Park Terrace Center, > > 1312 Patton Ave, Bldg 1312 chelation, IV nutrition > > Ashville, NC 28806. > > > > P: 828-252-9833 > > > > P: 800-445-4762 www. gsmcweb.com > > > > <mailto:Greatsmc@...> Greatsmc@... > > > > Dr. also practices at Plaza 21 North > > > > US Route 21 - Box 6981 > > Slaterville, NC 28687 > > > > P: 704-876-1617 THIS MIGHT BE 828 AREA CODE > > > > C. Pittman, M.D. > > 523 N. East St > > Raleigh, NC 27604 > > > > P: 919-821-2552 > > > > Proponent of aloe vera, treats immune disorders - holistic & nutritonal > healing > > > > Watkins, M.D. > > MacGregor Family Physicians > > 121 Edinburgh So. - Suite 100 > > Cary, NC 27511 > > > > P: 919-467-3730 > > > > Jerry M. Pittman, M.D. (GP) > > Tremont Medical Center > > 8312 Creedmore Rd. > > Raleigh, NC 27613 > > > > P: 919-846-7403 > > > > F: 919-870-6635 > > > > > > Quote Link to comment Share on other sites More sharing options...
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