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Hi Amy,

I livein Ludlow, MA right next to Springfield.

I am moving toward the Worcetser area in a couple

of months.

On Sun, 5 Mar 2000 19:42:32 -0500, candidiasisonelist wrote:

> Hi , I am from MA also. What area are you from? I live just

north of Boston.

> Amy

:)

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  • 7 months later...

Hi Amy, concerning your mail about drinking Jodi's doctor told her not to

have even one. She is already in cirrhosis stage so I don't know about your

situation. Best to ask your doctor. Hope you are having a good week end.

Genny/Jodi's Mom/AIH

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Amy it's me again. The doctor told Jodi that getting pregnant would be the

worse thing she could do. Of course there again your situation could be

different. Jodi has a problem with a low platelet count, which is something

I haven't heard anything about in this group. At the present her count is

38,000 and bleeds very easily. To be on the safe side, again I would ask my

doctor. Genny

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Genny,

Does sound as if Jodi is having some rough times becoming adjusted to meds

that will work for her. I myself am trying to understand low platelet count

and what it means on my lab reports. But logic tells me she will bleed easy

since her liver is so delicate at this time. Hopefully in time she will be

able to stabilize out.

gayle/trans.6-99

galye@... ^0^

`

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Hi Amy....we must drive right thru your area on the way to CHOP in

Philly....We live in NJ....by Great Adventure...We come on Rt. 38 and

then 70 just before the bridge....

I think Shireen lives pretty close by there also...

Luanne Ty's mom

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  • 3 weeks later...

Hi Amy,

Sorry it's taken me so long to write back.

It sounds like you are doing pretty well overall with the AIH. Have they

considered that you might have PBC? I think that goes hand in hand with

colitis and one of the symptoms is iching...just wondered. I'm sure they

already ruled it out...

may I ask if you are able to draw SSDI? The fatigue does make it hard for

me to work. I'm self employed... I work part-time for friends who do

relationship seminars (out of my home) and I do Kay. But, I " m finding

it hard to work with the fatigue and chasing after my busy busy 19 month old

son, C.J. He's the reason I'm trying to keep a positive attitude...

everyone reacts to news differently. We all handle it the best way we can.

I'm sure you had to go thru what you did to move to the next stage. My mom

lives in OH (I'm in MI) and my husband's family is 45 minutes away. I

really couldn't just give up if I wanted to...even temporarily! My son

needs me too much.... Don't get me wrong, in an emergency, they'd be here in

a heartbeat...I just don't have the everyday help of someone if I stayed in

bed....

you asked about my son....as I said, he's 19 months old, thin and tall, thin

brown hair, beautiful blue eyes (everyone comments), and a bundle of energy!

he's been walking since before he was 10 months old, so he's been on the go

a long time. He's my pride and joy. How about your kids?

I look forward to getting to know you better,

Beth, AIH 10/00 MI

[ ] Re: Beth

> Hi Beth, its Amy. I was diagnosed 10 months after I had my son. He will

be

> 3 in Dec. They think I had this affliction while I was pregnant with him.

I

> had elevated LFT's while I was pregnant and they just thought it was due

to

> colitis(Dx after my first child 4 years ago). I f was not from the

colitis

> or the pregnancy. Here all along it was the AIH. I have never been told

> that I could not have anymore children. Doc says that I probably could if

I

> wanted to, but I chose not to since I have to take care of these 2 and

feel

> healthy at the same time. Which is a job in itself. I think you should

talk

> to your doc. It depends on your own situation. Your liver, your body and

> your overall health.

>

> I am from Washington Twp, NJ and I am 30. When I was diagnosed I felt

awful.

> I have joint pain, ulcers in my mouth, and terrible sore throats. I was

> soooooo scared. I laid in bed and my mother came everyday. I cried and

> cried constantly. The kids were so confused. I was hospitalized three

times

> with dehydration from the colitis and everything was going haywire. Now I

> feel better than I have felt in a long long time and I can manage the kids

> myself. I am still tired and by the mid afternoon, man I could fall right

> asleep. I don't I try to make the kids rest, but of course I don't have

very

> sedentary children. They have more energy than a barrel of monkeys.

>

> Right now I have a rash on my stomach, I am not sure what this from.

I

> have a lot of rashes and itches and my skin is very broken out but I just

try

> to look at the bright side I am here and alive!!!!!

>

> Please fill me in on your son. I love to hear about others stories

esp

> kiddies!!!

>

> AMY

> RN

>

>

>

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Amy,

  At first i thought this paian was actually a hernia. When i bent to tie shoes or whatever, it felt like something popped out, so i would stand and in a few moments the pain would subside. That had been going on for several months.  Acouple of weeks ago, it became more consistent but still not real painful, just sore in the area. I went to the doc and he first asked me if i had thought about my liver. I am not the one with AIH, my son is, and believe it or not i have not even thought about the possiblity of it being my liver. Scared me to death. He did notice that my liver was swollen and ordered an ultrasound on my gallbladder and liver. I also had the same labs done and all of you do , the lft's. Labs came back fine but they definitelu saw lots of stones in my gallbladder. It needs to come out. Since that time i have been having alot of pain, especially in my back and upper abdomen. Seems that what is going on the that the stones are blocking the way for the bile to help in the digesive process and that is causing the pain. At least that is what i understand. I do know that 3 advil  and a heating pad helps alot. Yes, Amy get it checked out and let us know.

Rosemary

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Hi

I have had it done both ways. I prefer by the radiologist. He also gives

you something to relax, numbs the area on your neck, inserts a needle and

guides it to your liver.

Now having a choice, I will definately use the radiologist. Much less

painfull, lesser risks. I had versed when I had it done the other way, I

remember everything!!

Tracie

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  • 6 months later...
Guest guest

Hi, Amy,

I am from land, and going to graduate school in Cambridge, MA. Where

are you from? Isn't Dr. D. a wonderful man and physician?

I don't know where I got bitten (I remember a tick bite in NY State, and

there are a number of other possible places, such as Cape Cod). I was

here in school when I fell ill.

I had been to countless other doctors in MA before a guardian angel (who

is on this list) saw my posts on a Chronic Fatigue Syndrome list and sent

me to him. Now I am back in school and working on my dissertation.

If you'd like, write me about your treatment and how you're doing. I'm

sorry it sounds like your little ones have this, too. But they will be in

good hands.

Sincerely,

Marie :)

On Wed, 13 Jun 2001 A1M1BISHOP@... wrote:

> Hi Marie where are you from??? I go to Dr D also and he will soon be seeing

> my 2 little ones

>

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Guest guest

Oh Amy,

All I can send is my thoughts and a big cyber hug for you both.

I cant imagine what you must be going through right now.

I would be thinking the same things if Ruby became really ill. I think it is

alot of people's dread......I know it is mine.

I will be thinking of you both often............

SUE

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Guest guest

AND homeopath, homeopath, homeopath.

I've posted tons here since you've been on here.

I know its scary but life is scary. You can't vaccinate away everything.

In my opinon the vaccine is scarier than the disease and I've seen

children/babies with pertussis.

Sheri

moderator

At 10:18 PM 06/19/2001 EDT, you wrote:

>

>Heavens! That's just it - you CAN do something about it!!! You can help

her

>get better quicker. Did you read the Pertussis info that was posted

>yesterday? Please by all means, like says, if you are this scared,

>then yes you should vax, but please try to focus on getting your baby well

>now!

>

>Again, SODIUM ascorbate and Vitamin A and the Pertussin nosode are ways to

>help that little baby get better faster. Did you ever read the seanet link

>which is Dr. Klenner's work on therapeutic doses of sodium ascorbate?

>

>Please just ask if you have any questions. We all want your baby to be well.

>

>Kathleen

>

>In a message dated 6/19/2001 8:32:49 PM Central Daylight Time,

>laura_j_Luster@... writes:

>

>

>> If you feel this way, then yes, you should vax. I for one WANT my

>> son to get it so he'll be immune for life. I don't live in fear or

>> regrets - and if you do, then make the decision to vax but follow the

>> good addvice about boosting your child's immune system first.

>>

>> Subjecting her to shots right after Pertussis, or even the croup, is

>> not a good idea.

>>

>> Hugs,

>>

>>

>>

>>

>> > well ni can ssay that if what my daughter has is whoooping cough

>> its horrid.

>> > i am so upset with my self for the decison i have made NOT to vax.

>> I fear my

>> > baby will die and it is ALL my fault. I truely didnt think she

>> would catch

>> > this even though i knew the risk. I want to stay a member of this

>> board but

>> > you can bet your hiney i am gonna vax when she is well if she gets

>> well. to

>> > watch you 6 mo old baby gasp for air and you cant do a thing its

>> horrid

>> > Amy

>>

>>

>>

>>

>>

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  • 2 months later...

In a message dated 8/27/01 9:24:39 AM Central Daylight Time, amypoe@...

writes:

> Anyway, I really hope to see you while we’re in town. That special

> group (You, , , V, na, Trish, etc) was

> my first “real†contacts on here, and helped me so much. I have

> never forgotten that!!! I remember seeing Amber last year in a size

> 14 and thinking she was so tiny! Now I hear she’s like an 8!!! Ah,

> this is the life…

>

> Love you bunches!

>

You got that right girlfriend!! This IS the life and I will never forget the

good ole days (only a year or two ago, LOL) and remembering how we all felt

at that time.

I can't wait for us all to be together again at the picnic..........hey, what

about dancing Saturday night? You all pooped out on me last time!!

Love ya girl!

in Raleigh

MGB 11/22/99 270/128 size 24/4 or 6

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> She's posted to the list twice.. in April.

Now you see why I was kicked out of crime scene investigation

school! lololol

Thanks Manda....Sorry Amy!

BethBNParanoid

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  • 2 weeks later...

Well, I DO carry all of my weight in my tummy. Hopefully, after the

TT, I will be more well proportioned and a size 12. That's my goal,

and that's what I'm hoping for! :-)

Amy.

Amy

Hi Amy!

I am sorry! I bet though when you get your TT that you will be

smaller than

I am. Then I get to go

WWWWWWWAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHH!! LOL!!!

I have always been able to have high numbers of weight and wear a

sizes

smaller than you would think. I dont understand it, except I am

built very

solid. On Trishs website, in that picture of me, I was wearing a

size 16 and

weighing at 218.

Bad Carla.

Carla Medlin

MGB 12-15-00

312 / 185, Anything more is just a blessing.

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  • 1 month later...
  • 2 months later...

Hi Amy: Glad to hear you are still doing so well. Sounds like a winner to

me. Was I not right? Do you or are you going to be about a size 8 or below?

You looked fantastic last week and I know when the swelling goes down you

will look even better. How is the family? Phyllis

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Amy: I will verify that the surgery picture was pretty bad. You just can't

imagine that much coming off. I think Dr. Weiss is very thorough and has all

his i's dotted and t's crossed. Phyllis

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Amy, I have quick question for you. What post op pain meds did your plastic

surgeon give you for after your tummy tuck. PLEASE answer me back soon my

doctor is waiting to hear what other MGBers are taking for pain. Liz

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My family is great - very happy to have me HOME! I'm about a 10

now. Remember, I'm tall! 5'8 " ! Thanks for the compliments,

though. I've lost an additional 5 inches in my hips, so now I've

lost almost 20 since WLS. WOW.

Thanks again for everything you did Phyllis. You are a true gem!!!

Love,

Amy.

Re: Amy

Hi Amy: Glad to hear you are still doing so well. Sounds like a

winner to

me. Was I not right? Do you or are you going to be about a size

8 or below?

You looked fantastic last week and I know when the swelling goes

down you

will look even better. How is the family? Phyllis

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Amy, Is that the pain med he sent you home with? Remember I am having mine

done on an outpatient basis and I am going home an hour or 2 after my

surgery. I am just not sure what to tell him to give me with our restrictions

after the MGB to certain meds. Thanks, Liz

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morphine pump? I will only be at the PS after surgery for about 4 hours, is

that when I would get it or a shot?

Re: Amy

Amy, I have quick question for you. What post op pain meds did

your plastic

surgeon give you for after your tummy tuck. PLEASE answer me back

soon my

doctor is waiting to hear what other MGBers are taking for pain.

Liz

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He put me on a morphine pump, then when I got the itchies, switched

me to Mepergan (a mix of Demoral and Phenergan). It's powerful

stuff!

Amy.

Re: Amy

Amy, I have quick question for you. What post op pain meds did

your plastic

surgeon give you for after your tummy tuck. PLEASE answer me back

soon my

doctor is waiting to hear what other MGBers are taking for pain.

Liz

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  • 2 months later...

YOu know i must say Phyliss is one mighty smart cookie I am amazed everytime

i talk with her. I could talk with her for hours and learn from her. Not only

is she a good homeopath but she is a great person. I can call her any time

day and night I remeber calling her in the middle of the night when chaela

was sick. i remeber her sitting on the phone with me through Chaelas coughing

spells. She is really a great friend

Amy ohio

AMY

MOMMY TO 4 KIDDIES

Chelsea 9

Carrigian 5

4

Chaela Noelle Almost 1

from the mouth of a 4 yr old

" your not fat mommy just squishy! " !!!! :o)

<A

HREF= " http://hometown.aol.com/chevy974/myhomepagebaby.html " >The Haskett

bunch</A>

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>SEE This is why I love this women!!!!!!!!!<

You know Amy, you have one of the best homeopaths I reckon!

You should feel so safe and confident that Phyllis is there for you. Enjoy her!!

;-)

Suzanne

dd Ruby 2.8yrs

South Wales

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  • 2 months later...
Guest guest

Hi Amy...

Thanks for letting us know that you are thinking of us at a tough time....right now he is doing well and we don't even have to think about it until the next one in the beginning of June....

Take care and talk soon........

Luanne Ty's mom

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