Re: mycoplasma test question

[Guest guest]

a,

Stay on the antibiotics! It is the official decree of the Infectious

Diseases Society of America that any bacterial infection, including Lyme can

be eradicated in four weeks of antibiotics or less. This policy has then

been adopted by the American Academy of Neurology, American College of

Rheumatology, etc. We do know that the IDSA is composed of experts with drug

company ties who have a financial stake in the claim that all infections can

be eliminated in this time frame, and that any illness remaining after this

time frame is not an infection but something else. This is contrary to what

is known about cell wall deficient bacteria and spirochetes. Strep too can

become CWD after failed courses of certain antibiotics like penicillins. You

need to stay on the AP for the long haul. It's fine if the prednisone and

IVIG are giving you relief currently, but I wouldn't substitute them for the

AP. As for the mycoplasma becoming positive, Dr. Brown noted this

phenomenon; the antibiotics potentiate the immune system and allow the body

to recover enough function to start producing antibodies to it again.

Similarly, one Lyme physician has noted that 90% of her patients become

seropositive for Lyme at exactly 9 months of treatment, even when previously

negative. This was the case for me. Dermatomyositis is associated with Lyme

in some studies that were done in Europe. I am almost completely recovered

from DM, but it took 2-4 years of these antibiotics, and the IVIG etc were

only palliatives, not cures.

Emma

On Tue, Apr 14, 2009 at 11:13 AM, a <paulakip@...> wrote:

>

>

> In December 2008 I began taking 250 mg erythromycin twice daily. I am

> breastfeeding so can't take tetracyclines. At that time, prior to beginning

> antibiotics, my rheumatologist ran ASO, streptozyme and mycoplasma pneumonia

> tests. ASO and streptozyme were positive for strep A, and mycoplasma was

> negative. I know I was exposed to mycloplasma in Jan 2008 (2 of my kids had

> it) so I was surprised at that result.

>

> I am currently on 11mg prednisone daily, tapering 1mg every 2 weeks, and

> receiving IVIG treatments once every 2 weeks. I am feeling great now. I was

> having a flare of dermatomyositis in Dec. when I began the antibiotics. I

> also began the IVIG and raised my dose to 30mg prednisone at that time. I

> don't know if my improvement is due to the AP or the IVIG.

>

> Recently the rheumatologist said to stop antibiotics because a 10 week

> course should kill off anything. (I know this is contradictory to AP

> protocol). He ran the tests again. ASO and streptozyme are still positive,

> but he said that I just have the antibodies from a previous infection.

> Mycoplasma is now positive! Does that mean that I have been exposed to

> mycoplasma since last Dec.? What is the false negative rate for this test?

> Should I continue the AP? I am confused.

>

> a

>

>

>

[Guest guest]

Emma,

Thanks so much for the information. Is there a citation or link you can give me

to Dr. Brown's research and information about cell wall deficient bacteria that

I can show to my doctor? He is very open minded, but just doesn't have the

expertise in this area.

Thanks,

a

>

> >

> >

> > In December 2008 I began taking 250 mg erythromycin twice daily. I am

> > breastfeeding so can't take tetracyclines. At that time, prior to beginning

> > antibiotics, my rheumatologist ran ASO, streptozyme and mycoplasma pneumonia

> > tests. ASO and streptozyme were positive for strep A, and mycoplasma was

> > negative. I know I was exposed to mycloplasma in Jan 2008 (2 of my kids had

> > it) so I was surprised at that result.

> >

> > I am currently on 11mg prednisone daily, tapering 1mg every 2 weeks, and

> > receiving IVIG treatments once every 2 weeks. I am feeling great now. I was

> > having a flare of dermatomyositis in Dec. when I began the antibiotics. I

> > also began the IVIG and raised my dose to 30mg prednisone at that time. I

> > don't know if my improvement is due to the AP or the IVIG.

> >

> > Recently the rheumatologist said to stop antibiotics because a 10 week

> > course should kill off anything. (I know this is contradictory to AP

> > protocol). He ran the tests again. ASO and streptozyme are still positive,

> > but he said that I just have the antibodies from a previous infection.

> > Mycoplasma is now positive! Does that mean that I have been exposed to

> > mycoplasma since last Dec.? What is the false negative rate for this test?

> > Should I continue the AP? I am confused.

> >

> > a

> >

> >

> >

>

>

>

[Guest guest]

a, I tested negative for any of the mycoplasmas specific to humans when

I first started the therapy, but six months or so later I was retested.

These critters had been uncovered by the antibiotic and now I tested

positive for m. pneumoniae, m. salivarium and m. fermentans. These are

called cell wall deficient stealth pathogens because they are able to hid so

effectively in the body.

When you have a test run for strep, ask for the titer - not just whether it

is positive or negative. If elevated, you stay on the antibiotic. The

protocol will tell you that you need to stay on the antibiotics until labs

return to normal and stabilize. Sometimes symptoms leave before labs return

to normal, and at other times it is just the reverse. You can refer to the

FAQ on www.rheumatic.org for further info.

Ethel

rheumatic mycoplasma test question

> In December 2008 I began taking 250 mg erythromycin twice daily. I am

> breastfeeding so can't take tetracyclines. At that time, prior to

> beginning antibiotics, my rheumatologist ran ASO, streptozyme and

> mycoplasma pneumonia tests. ASO and streptozyme were positive for strep

> A, and mycoplasma was negative. I know I was exposed to mycloplasma in

> Jan 2008 (2 of my kids had it) so I was surprised at that result.

>

> I am currently on 11mg prednisone daily, tapering 1mg every 2 weeks, and

> receiving IVIG treatments once every 2 weeks. I am feeling great now. I

> was having a flare of dermatomyositis in Dec. when I began the

> antibiotics. I also began the IVIG and raised my dose to 30mg prednisone

> at that time. I don't know if my improvement is due to the AP or the

> IVIG.

>

> Recently the rheumatologist said to stop antibiotics because a 10 week

> course should kill off anything. (I know this is contradictory to AP

> protocol). He ran the tests again. ASO and streptozyme are still

> positive, but he said that I just have the antibodies from a previous

> infection. Mycoplasma is now positive! Does that mean that I have been

> exposed to mycoplasma since last Dec.? What is the false negative rate

> for this test? Should I continue the AP? I am confused.

>

> a

>

>

>

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