Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi Maz, Thanks for the reply and info on Lyme's. We actually asked the first rheumatologist for a Lyme's test, but she never ordered it...or it was ordered and not done. Either way, I was a bit frustrated, as I only found out after a series of questions that the test was never done. I approach the Lyme's question with a little skepticism only due to my own past experience with a positive diagnosis I got that I do not believe was accurate .... for reasons too many to go into here. It's a great point considering her outdoor activities, though, and one I will be sure to follow up on. A few years ago, in fact, I had to pull a tick from my other daughter's leg. It looked like a large grain of dark sand. Thanks again and God bless you Lee > > Lee, did your daughter's doctor ask about previous tick exposure? The standard tests for Lyme are notoriously inaccurate, so even if she tests negative or equivocal, Lyme Disease is still possible. She plays and trains for soccer outside, which would increase greatly the chances of Lyme. My seropositive RA was triggered by Lyme Disease, but not everyone with Lyme and/or RA is seropositive, either. In my case, there must have been a strong genetic propensity and the Lyme infection just set it off. Also, joints affected by Lyme are typically non-symmetrical, although this, too, is not always the case. > .... > Peace, Maz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Dear Lee and all, Please don't forget that new research indicates Lyme's is not just caused by tick bites but also by other insect bites. I hear it's also mosquitoes and how many times do we get bitten by those little devils. El _____ From: rheumatic [mailto:rheumatic ] On Behalf Of power2thefaint Sent: Tuesday, April 01, 2008 2:11 PM rheumatic Subject: rheumatic For Lee - Re: Daughter diagnosed with RA Hi Maz, Thanks for the reply and info on Lyme's. We actually asked the first rheumatologist for a Lyme's test, but she never ordered it...or it was ordered and not done. Either way, I was a bit frustrated, as I only found out after a series of questions that the test was never done. I approach the Lyme's question with a little skepticism only due to my own past experience with a positive diagnosis I got that I do not believe was accurate ... for reasons too many to go into here. It's a great point considering her outdoor activities, though, and one I will be sure to follow up on. A few years ago, in fact, I had to pull a tick from my other daughter's leg. It looked like a large grain of dark sand. Thanks again and God bless you Lee > > Lee, did your daughter's doctor ask about previous tick exposure? The standard tests for Lyme are notoriously inaccurate, so even if she tests negative or equivocal, Lyme Disease is still possible. She plays and trains for soccer outside, which would increase greatly the chances of Lyme. My seropositive RA was triggered by Lyme Disease, but not everyone with Lyme and/or RA is seropositive, either. In my case, there must have been a strong genetic propensity and the Lyme infection just set it off. Also, joints affected by Lyme are typically non-symmetrical, although this, too, is not always the case. > .... > Peace, Maz > Quote Link to comment Share on other sites More sharing options...
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