to Dolores

[Guest guest]

Hi Emma,  I've been a bit quiet lately. Busy and getting ready for a trip to

P.R. in May and attending my daughter's commencement in St. Croix.  I am doing

well!  Thank you for asking.  Had a kidney stone start moving down to the ureter

about a month ago.  That was painful! 

 

Yes, I moved to Bay Shore when I was 19 years old. Both my children were born at

Southside hospital in Bay Shore.  I left Suffolk County in 1971 and have only

been back for one funeral. My kids visit their father's family often. We

divorced years ago.

 

My mom is 94 years old. She would never survive the herxing.  Plus she has never

been one to take medicine.  At 94, we let her do whatever she likes.  She won't

even go to a dentist.  The main thing is to keep her stress free.  She loves

anything sweet.  If she wants desert first, so be it.  A few years back she was

diagnosed with breast cancer.  She had surgery and radiation.  It has been 7

years and she has survived that. She is the last one left in her family.  She

doesn't hurt anywhere and is basically very healthy for her age.  She is happy

thinking back in time about her twin and her other siblings.  She relates these

younger happier childhood days to me every day and I listen like it is the first

time I am hearing the story. We came home from the chinese restaurant tonight

and she forgot she had eaten.  So, I made her some hot chocolate and she ate a

couple of fig newtons and went to bed.  She gets more upset if I point out to

her

that she ate.  She has a short attention span, so if she forgets, I just

pretend she didn't and go on with the conversation w/o skipping a beat. She gets

an Aricept pill every day.  That is supposed to slow down the memory loss.  She

will eventually forget who I am.  I think by moving to a farm in P.R., she will

have a better quality of life for her remaining years.  She will be back in the

place where she was born and be surrounded by spanish speaking friends.  I plan 

to open the house to one or two other Alzheimer's ladies.  This way they all

have each other to talk to.  We shall see how that turns out.  We will be

growing our own food and living an eco-friendly life.  I think that would be

best for all of us.  Again, we shall see!  First I have to work on getting the

farm.  Then the rest will follow.  I'm going down to P.R. in May.  So, the

answer is no, she will not be going on any protocol.  At this age, no need to

stir up

trouble. 

 

As far as A/P versus M/P.  I see M/P as an extension of A/P. When I was on A/P,

I took Minocin 100mg twice a day every day for almost two years.  I did

fabulously on that. I have micoplasma pneumonae.  My big problem was the

pulmonary fibrosis which developed due to the scleroderma they took almost two

years to diagnose. The minocin only protocol stopped the progression of the

disease and I achieved remission for a time.  But, I knew I was nowhere near

being cured.  I had come a long way from bedridden to fully functional but I

knew that if I didn't address the rest of the cell-wall deficient bacteria

residing in my immune cells, that they would eventually gain strength and come

back to attack me.  So, I decided that while I was still strong enough to fight,

I would get on the MP and add the other antibiotics a little at a time.  In

September, it will be two years of MP. I am in Phase 3 on the triple antibiotic

phase.  I just started two months

ago. I had diarrhea for over a year.  I am finally over that.  So, I have made

some gains.  I am losing the extra collagen in my face which makes me look

older. That part I don't like.  Scleroderma is a nasty disease, especially if it

is systemic, which mine is. I am now seeing an infectious disease doctor so I

can get all the antibiotics I need. He believes that these diseases are

of infectious origin.  As long as I have the infection, I will keep on taking

the antibiotics because I believe that is the way to go.  As far as the Benicar

goes, I stopped taking it about two months ago as I felt it might have been the

cause of my diarrhea.  We shall see.  Will talk to my cardiologist about that. 

My B/P was stable when I was on it and continues stable without it.  We shall

see what happens.  Since there is no cure, everything we do is an experiment.  I

continue being fully functional with good days and bad days like anyone else.  I

feel

well most of the time and better in warm weather.  So, we are going further

south.  Take care and hope you are doing well too.  Take care, Dolores & Mike

From: Emma Sand <seneca.whitaker@...>

Subject: rheumatic To Dolores

rheumatic

Date: Friday, March 6, 2009, 10:26 PM

Hi Dolores,

I used to live in Suffolk County too- Southampton- small world!

I wondered how you are feeling about MP versus AP? Any difference? Did the

Benicar help? I also wanted to let you know about two recent studies about

Alzheimers. One found borrelia burgdorferi, the Lyme pathogen, in 100% of

brains of Alzheimers sufferers studied at autopsy vs 0 of the controls.

Another study found chlamydia pneumonia in 16 of 19 ALZ brains vs 0 in the

control. I wondered if you are using AP or MP for your mother? The Marshall

Protocol people certainly believe it would work for that.

Just checking in,

Hope you are well!

Emma

Hi Mona, I raised my children in Suffolk County, but that seems like

another century ago. Hehe! It was. There was a lot of luck involved and my

parents were born there, so there is extended family I plan to get closer

to. As far as the purple dark marks. I developed some on my legs. I got a

very dark tan when I was in P.R. for two months in 2007, but that has mostly

faded away. The part that I want to work on are the white splotches on the

legs and arms. My covered torso never changed, so I know it was the reaction

between the sun and the tetracycline based Minocin. I guess just keep

covered and in time maybe they will fade. I just live with it, but I am

older. When I was younger, I was much more vain about my appearance.

Living with Scleroderma took 1st place over vanity. Us S/D people have

facial changes that are harder to live with than discolorations. I guess it

is all in a prospective view how we categorize symptoms.

And also according to age and our social circles. If I were young, single,

and had competetive friends, I would crawl somewhere & hide. But I am old

and my husband of almost 34 years thinks I am gorgeous. I told my friend in

London, that I hid his glasses. Hehe! Take care and hope you feel better

soon.

Dolores & Mike

[Guest guest]

Hi Dolores,

Ahh, of course your mother is too old for any protocol- I should have

thought of that! My goodness, it sounds like you are giving her the

loveliest, gentlest life possible! She is so lucky to have you! I hope to be

doing the same for my mother one day, but I hope that will be many many

years away.

How exciting that you are moving to an eco friendly farm in PR, and growing

your own food! It sounds so idyllic. I'm in Michigan now and the winter has

been so hard because I am still so cold intolerant.

I am so happy and inspired that you have proven the AP to several mainstream

docs already. I'm looking forward to revealing what I have done to all my

docs -sometime soon- along with all the studies and charts I have made. They

have quite the presentation coming their way! They still think it's some

kind of unexplained miracle that my CK has gone from 17,000 to 2,205. I've

been biding my time.

I'm starting a website soon that will feature all the information I've

collected over the last few years, so that everyone will have access. I'm

starting graduate school in public health and still plan to go on to medical

school- promoting the AP all the way.

How is your book coming? I hope your upcoming travels are wonderful. I feel

privileged to have known you! You bring so much to this group.

Many blessings,

Emma

On Sat, Mar 7, 2009 at 2:07 AM, mike rosner <martysfolks2004@...>wrote:

> Hi Emma, I've been a bit quiet lately. Busy and getting ready for a

> trip to P.R. in May and attending my daughter's commencement in St. Croix.

> I am doing well! Thank you for asking. Had a kidney stone start moving

> down to the ureter about a month ago. That was painful!

>

> Yes, I moved to Bay Shore when I was 19 years old. Both my children were

> born at Southside hospital in Bay Shore. I left Suffolk County in 1971 and

> have only been back for one funeral. My kids visit their father's family

> often. We divorced years ago.

>

> My mom is 94 years old. She would never survive the herxing. Plus she has

> never been one to take medicine. At 94, we let her do whatever she likes.

> She won't even go to a dentist. The main thing is to keep her stress free.

> She loves anything sweet. If she wants desert first, so be it. A few years

> back she was diagnosed with breast cancer. She had surgery and radiation.

> It has been 7 years and she has survived that. She is the last one left in

> her family. She doesn't hurt anywhere and is basically very healthy for her

> age. She is happy thinking back in time about her twin and her other

> siblings. She relates these younger happier childhood days to me every day

> and I listen like it is the first time I am hearing the story. We came home

> from the chinese restaurant tonight and she forgot she had eaten. So, I

> made her some hot chocolate and she ate a couple of fig newtons and went to

> bed. She gets more upset if I point out to her

> that she ate. She has a short attention span, so if she forgets, I just

> pretend she didn't and go on with the conversation w/o skipping a beat. She

> gets an Aricept pill every day. That is supposed to slow down the memory

> loss. She will eventually forget who I am. I think by moving to a farm in

> P.R., she will have a better quality of life for her remaining years. She

> will be back in the place where she was born and be surrounded by spanish

> speaking friends. I plan to open the house to one or two other Alzheimer's

> ladies. This way they all have each other to talk to. We shall see how

> that turns out. We will be growing our own food and living an eco-friendly

> life. I think that would be best for all of us. Again, we shall see!

> First I have to work on getting the farm. Then the rest will follow. I'm

> going down to P.R. in May. So, the answer is no, she will not be going on

> any protocol. At this age, no need to stir up

> trouble.

>

> As far as A/P versus M/P. I see M/P as an extension of A/P. When I was on

> A/P, I took Minocin 100mg twice a day every day for almost two years. I did

> fabulously on that. I have micoplasma pneumonae. My big problem was the

> pulmonary fibrosis which developed due to the scleroderma they took almost

> two years to diagnose. The minocin only protocol stopped the progression of

> the disease and I achieved remission for a time. But, I knew I was nowhere

> near being cured. I had come a long way from bedridden to fully functional

> but I knew that if I didn't address the rest of the cell-wall deficient

> bacteria residing in my immune cells, that they would eventually gain

> strength and come back to attack me. So, I decided that while I was still

> strong enough to fight, I would get on the MP and add the other antibiotics

> a little at a time. In September, it will be two years of MP. I am in Phase

> 3 on the triple antibiotic phase. I just started two months

> ago. I had diarrhea for over a year. I am finally over that. So, I have

> made some gains. I am losing the extra collagen in my face which makes me

> look older. That part I don't like. Scleroderma is a nasty disease,

> especially if it is systemic, which mine is. I am now seeing an infectious

> disease doctor so I can get all the antibiotics I need. He believes that

> these diseases are of infectious origin. As long as I have the infection, I

> will keep on taking the antibiotics because I believe that is the way to

> go. As far as the Benicar goes, I stopped taking it about two months ago as

> I felt it might have been the cause of my diarrhea. We shall see. Will

> talk to my cardiologist about that. My B/P was stable when I was on it and

> continues stable without it. We shall see what happens. Since there is no

> cure, everything we do is an experiment. I continue being fully functional

> with good days and bad days like anyone else. I feel

> well most of the time and better in warm weather. So, we are going further

> south. Take care and hope you are doing well too. Take care, Dolores &

> Mike

>

>

>

> From: Emma Sand <seneca.whitaker@... <seneca.whitaker%40gmail.com>>

> Subject: rheumatic To Dolores

> rheumatic <rheumatic%40>

> Date: Friday, March 6, 2009, 10:26 PM

>

>

> Hi Dolores,

>

> I used to live in Suffolk County too- Southampton- small world!

> I wondered how you are feeling about MP versus AP? Any difference? Did the

> Benicar help? I also wanted to let you know about two recent studies about

> Alzheimers. One found borrelia burgdorferi, the Lyme pathogen, in 100% of

> brains of Alzheimers sufferers studied at autopsy vs 0 of the controls.

> Another study found chlamydia pneumonia in 16 of 19 ALZ brains vs 0 in the

> control. I wondered if you are using AP or MP for your mother? The Marshall

> Protocol people certainly believe it would work for that.

> Just checking in,

> Hope you are well!

> Emma

>

> Hi Mona, I raised my children in Suffolk County, but that seems like

> another century ago. Hehe! It was. There was a lot of luck involved and my

> parents were born there, so there is extended family I plan to get closer

> to. As far as the purple dark marks. I developed some on my legs. I got a

> very dark tan when I was in P.R. for two months in 2007, but that has

> mostly

> faded away. The part that I want to work on are the white splotches on the

> legs and arms. My covered torso never changed, so I know it was the

> reaction

> between the sun and the tetracycline based Minocin. I guess just keep

> covered and in time maybe they will fade. I just live with it, but I am

> older. When I was younger, I was much more vain about my appearance.

> Living with Scleroderma took 1st place over vanity. Us S/D people have

> facial changes that are harder to live with than discolorations. I guess it

> is all in a prospective view how we categorize symptoms.

> And also according to age and our social circles. If I were young, single,

> and had competetive friends, I would crawl somewhere & hide. But I am old

> and my husband of almost 34 years thinks I am gorgeous. I told my friend in

> London, that I hid his glasses. Hehe! Take care and hope you feel better

> soon.

> Dolores & Mike

>

>

[Guest guest]

Hi Emma, You are so sweet, thank you.I hope your mom doesn't ever get Alzheimers

so you won't have to deal with it.  I am lucky to have a husband that is a big

help.  When I want to sleep in late, he will make her breakfast and coffee.  She

loves her morning coffee.  He also makes her corn muffins from a box of mix that

she loves.  He likes to bake and she loves sweets.  They are a match.  It wasn't

always like that.  She has hated my husband since we got married 33 years ago. 

A few weeks ago, she swung at him.  An hour later, she didn't remember a thing.

We have learned to ignore her outbursts.  They are part of the disease.  She

knows I have scleroderma and she sees how much my husband does for me.  I think

she appreciates that, but it is hard to tell.  I really don't know how she feels

with lapses of memory.  She is lost somewhere between 1929 and the 2nd world war

era.  She sometimes says I am her mother and the other day confused my

daughter as though she is my mother.  That is a disease I don't ever want to

get.  Although maybe God in his mercy figures that at 94 it is better not to

remember things.  Who knows!  We shall see.  I'm eagerlylooking forward to going

down to PR. in May and seeing the place we are planning on buying.  We chose it

from photos. I hope I am not disappointed.  I know the house is small and we

will have to enlarge or build another house.  Meanwhile, we will do with what we

get.  The reason we are buying this place is because of the acreage and farm.

The fruit trees are mature and we plan on putting in a vegetable garden and

having chickens for eggs.  Mike will have to build the chicken coop first. 

Well, thank you very much for the compliment.  I give half of that to my

husband.  He deserves it.  Take care and feel better.  I will still be ready

this site from P.R.  If you are ever in P.R. fell free to let me know and I'll

give you directions

to the farm.  Bye for now.  Dolores & Mike

>

> From: Emma Sand <seneca.whitaker@ gmail.com <seneca.whitaker% 40gmail.com> >

> Subject: rheumatic To Dolores

> rheumatic@grou ps.com <rheumatic%40g roups.com>

> Date: Friday, March 6, 2009, 10:26 PM

>

>

> Hi Dolores,

>

> I used to live in Suffolk County too- Southampton- small world!

> I wondered how you are feeling about MP versus AP? Any difference? Did the

> Benicar help? I also wanted to let you know about two recent studies about

> Alzheimers. One found borrelia burgdorferi, the Lyme pathogen, in 100% of

> brains of Alzheimers sufferers studied at autopsy vs 0 of the controls.

> Another study found chlamydia pneumonia in 16 of 19 ALZ brains vs 0 in the

> control. I wondered if you are using AP or MP for your mother? The Marshall

> Protocol people certainly believe it would work for that.

> Just checking in,

> Hope you are well!

> Emma

>

> Hi Mona, I raised my children in Suffolk County, but that seems like

> another century ago. Hehe! It was. There was a lot of luck involved and my

> parents were born there, so there is extended family I plan to get closer

> to. As far as the purple dark marks. I developed some on my legs. I got a

> very dark tan when I was in P.R. for two months in 2007, but that has

> mostly

> faded away. The part that I want to work on are the white splotches on the

> legs and arms. My covered torso never changed, so I know it was the

> reaction

> between the sun and the tetracycline based Minocin. I guess just keep

> covered and in time maybe they will fade. I just live with it, but I am

> older. When I was younger, I was much more vain about my appearance.

> Living with Scleroderma took 1st place over vanity. Us S/D people have

> facial changes that are harder to live with than discolorations. I guess it

> is all in a prospective view how we categorize symptoms.

> And also according to age and our social circles. If I were young, single,

> and had competetive friends, I would crawl somewhere & hide. But I am old

> and my husband of almost 34 years thinks I am gorgeous. I told my friend in

> London, that I hid his glasses. Hehe! Take care and hope you feel better

> soon.

> Dolores & Mike

>

>

[Guest guest]

Hi Dolores

 

sorry about the irregular rythms of heart. please take good care of yourself

and say Hi to mike.

I,ll write you back later. right now I am so tired and sleepy.

 

Big hug

soheila   

From: phine Bradshaw <jjosie007@...>

Subject: Re: rheumatic Re: Finally Talked to the Rheumy

rheumatic

Date: Monday, June 21, 2010, 10:23 PM

 

AMEN!!!!  So well stated. 

 Josie (Dallas TX)

________________________________

From: Maz <mazm_mm@...>

rheumatic

Sent: Mon, June 21, 2010 8:18:41 PM

Subject: rheumatic Re: Finally Talked to the Rheumy

Hi everyone,

I am aware that I am a new member but would just like to put my 2 cents worth

into the mix. 

I am disappointed that some of you are now attacking Dolores, who in my opinion

didn't do anything wrong.  All she did was tell the truth, as she saw it, and

for what it's worth I would have done the same thing.

After I read the so-called offending post & what started it I think the

merry-go-round I believe went like this:

1  Amy posted & asked for advice,

2  People responded & gave their advice,

3  Amy ignored the advice,

& so it went on until finally Dolores felt it necessary to tell Amy the truth

without gilding the lilly.  I think we can all agree that there are times when

we need to hear the unblemished truth.

Unfortunately there are a couple of issues some people tend to ignore when

looking for a treatment path; the first being that, because they are in pain or

suffering, they don't actually listen to anyone & have trouble thinking

logically;, that, in my opinion, is sometimes where the problem lies.  All the

patient wants is to find a doctor who will tell them take this & it will cure

you! 

With the diseases we have there isn't a specialist or doctor, anywhere in the

world, who will tell a patient 'take this drug & it will cure you, what they do

say is 'take this & it might help ease the symptoms'.  There is no doubt the

traditional way of treating any of the the diseases we have is to give the

patient drugs that have been specifically designed to mask any symptoms you may

have.  The medical professionals have no idea which drug will actually do that,

but they do try the best way they know how with the knowledge they have,

sometimes disguarding other treatment options along the way because that other

treatment is not considered the norm.

Sadly there is a paradox in all this ... Doctor's don't actually listen to their

patients, not because they don't want to but because they hear what they think

is the same stories from patients every day.  Add to that the patients, there

is no doubt that people who are in pain & suffering do not actually listen or

understand exactly what is being said, plus people pain don't think logically. 

What a dilemna!

I don't see what is wrong with Dorores or anyone telling someone who asks for

advice & for all intents in purposes have ignored it, to get off their butts &

be proactive in their own journey.

In my view the logics here are:

1  Traditional drugs only mask the symptoms,

2  The diseases will & do keep raging underneath,

3  These drugs do not target the cause (or to be politically correct possible

cause) of the disease,

4  These drugs are not intended to target the cause of the disease,

5  These drugs will eventually stop working,

6  When the drug of choice stops working the doctors will prescribe another &

another & another in the hope that one of them will work for a while & so the

cycle turns.

Unfortunately the current drugs of choice prescribed by most medical

professionals appear to stifle the immune system in the process so what you have

at the end of the day is yet another big problem to deal with.

With AP, this treatment is designed to target what is the probable, most likely

the cause of the disease.  Taking what is essentially miniscule amounts of

antibiotics for an indefinate period of time does not pose a great health risk

to the majority of people.

Surely if you want to be proactive in any decision regarding treatment options

you should be aware & well versed in what the options are. 

In defending Amy's position you are demeaning Dolores'.  I would ask all of you

to think before you take someone to task.  I repeat, Dolores didn't do anything

wrong!

------------------------------------

To unsubscribe, email: rheumatic-unsubscribe@...! Groups Links

[Guest guest]

Hi Sohelia,  Have a good sleep!  Talk with you tomorrow!  Mike says hi,

too!  Our best to you, Dolores & Mike

From: phine Bradshaw <jjosie007@...>

Subject: Re: rheumatic Re: Finally Talked to the Rheumy

rheumatic

Date: Monday, June 21, 2010, 10:23 PM

 

AMEN!!!!  So well stated. 

 Josie (Dallas TX)

________________________________

From: Maz <mazm_mm@...>

rheumatic

Sent: Mon, June 21, 2010 8:18:41 PM

Subject: rheumatic Re: Finally Talked to the Rheumy

Hi everyone,

I am aware that I am a new member but would just like to put my 2 cents worth

into the mix. 

I am disappointed that some of you are now attacking Dolores, who in my opinion

didn't do anything wrong.  All she did was tell the truth, as she saw it, and

for what it's worth I would have done the same thing.

After I read the so-called offending post & what started it I think the

merry-go-round I believe went like this:

1  Amy posted & asked for advice,

2  People responded & gave their advice,

3  Amy ignored the advice,

& so it went on until finally Dolores felt it necessary to tell Amy the truth

without gilding the lilly.  I think we can all agree that there are times when

we need to hear the unblemished truth.

Unfortunately there are a couple of issues some people tend to ignore when

looking for a treatment path; the first being that, because they are in pain or

suffering, they don't actually listen to anyone & have trouble thinking

logically;, that, in my opinion, is sometimes where the problem lies.  All the

patient wants is to find a doctor who will tell them take this & it will cure

you! 

With the diseases we have there isn't a specialist or doctor, anywhere in the

world, who will tell a patient 'take this drug & it will cure you, what they do

say is 'take this & it might help ease the symptoms'.  There is no doubt the

traditional way of treating any of the the diseases we have is to give the

patient drugs that have been specifically designed to mask any symptoms you may

have.  The medical professionals have no idea which drug will actually do that,

but they do try the best way they know how with the knowledge they have,

sometimes disguarding other treatment options along the way because that other

treatment is not considered the norm.

Sadly there is a paradox in all this ... Doctor's don't actually listen to their

patients, not because they don't want to but because they hear what they think

is the same stories from patients every day.  Add to that the patients, there

is no doubt that people who are in pain & suffering do not actually listen or

understand exactly what is being said, plus people pain don't think logically. 

What a dilemna!

I don't see what is wrong with Dorores or anyone telling someone who asks for

advice & for all intents in purposes have ignored it, to get off their butts &

be proactive in their own journey.

In my view the logics here are:

1  Traditional drugs only mask the symptoms,

2  The diseases will & do keep raging underneath,

3  These drugs do not target the cause (or to be politically correct possible

cause) of the disease,

4  These drugs are not intended to target the cause of the disease,

5  These drugs will eventually stop working,

6  When the drug of choice stops working the doctors will prescribe another &

another & another in the hope that one of them will work for a while & so the

cycle turns.

Unfortunately the current drugs of choice prescribed by most medical

professionals appear to stifle the immune system in the process so what you have

at the end of the day is yet another big problem to deal with.

With AP, this treatment is designed to target what is the probable, most likely

the cause of the disease.  Taking what is essentially miniscule amounts of

antibiotics for an indefinate period of time does not pose a great health risk

to the majority of people.

Surely if you want to be proactive in any decision regarding treatment options

you should be aware & well versed in what the options are. 

In defending Amy's position you are demeaning Dolores'.  I would ask all of you

to think before you take someone to task.  I repeat, Dolores didn't do anything

wrong!

------------------------------------

To unsubscribe, email: rheumatic-unsubscribe@...! Groups Links

[Guest guest]

Dolores,

I am so glad for you! I agree we have to do all the work or nothing gets done. I

hope you get back to remission soon.

Would you please tell me the number for Triax since the minocin we her from

Canada is not Triax and am wondering why so many people on the Canada minocin

have had relapses lately.

Please check into what you will be paying. If the minocin is paid for by partD

of your social security…. don’t forget that what the insurance pays and what

you pay for drug is deducted from the yearly amount Part D pays for.

Good luck.

cooky

Subject: Re: rheumatic AP docs in NC

I guess Rheumatologists all over are afraid of losing their licenses, That is

why I went to an infectious disease doc and he was a giant help in getting me

into remission. I was bombarded with antibiotics including minocin because

there was laboratory proof that I was infected with mycoplasma pneumonae and

went into remission within 6 months after I started with him. He used to

practise in Pensacola, but last year I got notice that he moved and that my

records are still at the hospital. They did not tell me where he moved to. But

he has a friend doctor here in San . She is two hours away so I haven't

gone to her. My minocin was totally used up by Nov, 2010 and I had to fight with

the Insurance company. Changed to a different Insurance company and the fight

started all over again. I tried using generic minocin and got worse. so, when

they wouldn't give me the Minocin, I wrote my short story of introductory and

passed it to my

cardiologist, pulmonologist, neurologist and other docs, along with my records

of before and after remission. I called Dr. Trentham and with all my labs, MRI's

CT-Scans, lab results, etc. for proof, my doctors all wrote letters to the

Insurance company, The law says that if you can prove this is a life saving

medication for you, they have to approve it. Insurance opened up an

investigation and finally approved that I can and must have Minocin (Brand Only)

for the rest of my life. Then the real fight started. There was not one

pharmacy in Puerto Rico that carried it. I got all sorts of stories including

one that told me that Triax was no longer in business. I tracked down their

number and got the most wonderful person in their pharmacy dept, who said, " of

course we are still in business and making Minocin. " She asked for the name of

my pharmacy (CVS) and within 24 hours, I had my bottle of Minocin (Brand Only in

my hot little hand.)

Most of all the people I spoke to prior, were just too lazy to persue it or

didn't think it important enough.

Lesson learned: Take matters into your own hands. Your life depends on it.

Most other people don't give a damn. Now I am making arrangements for my 90 day

supply to be delivered to my home forever. And a bottle of (50) 100mg pelleted

capsules, which was all they could get their hands on in short notice only cost

me $15.00. What a fight! I was losing my battle with remission, now I have to

get myself back into remission again. Will keep you all updated. Thank you for

all the support I received from you all. This was a story in and of itelf and

will go into my book. I am now thinking about calling up Triax to see if I coul

be a sales rep for their company since no one in Puerto Rico had heard of them.

if I had my way, the entire Virgin Islands will know about Minocin, Triax and

all the diseases it helps. They will know about the antibiotic protocol and

hopefully help save a lot of lives. BTW, I spoke with my ex-cardiologist