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Bob,

Minocycline (Minocin), an antibiotic, is given to Reactive Arthritis patients in

the hope of killing the triggering infection and eliminating its presence in the

body. Therein lies the problem.

Most people are not diagnosed quickly. Average diagnosis time for women is some

15 years after initial symptoms. For men it runs as high as 10 years. There

is little hope that antibiotic therapy will help long-term existing conditions.

More hard research needs to be done on antibiotic therapy. I tried it

approximately six years ago, some forty years after my initial intestinal

infection as a child. I saw no improvement in my condition and was forced to

discontinue the Minocin due to its causing liver enzymes to go crazy. When I

stopped the Minocin the liver functions returned to normal.

People should attempt to identify and treat any urinary tract infection, STD, or

intestinal infection (food poisoning) as quickly as possible with appropriate

antibiotics.

Ray

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I have Reiter's am in the medical field and have read a great deal

about Minocin. There is an entire book about its use that I read and

has alot to do with a physician named Brown. NIH did a 6 month

trial called MIRA about 5 years ago. It is possible the mechanism of

action could have to do with interference of the inflamation around

cartilage. The data to me suggest a trial may be worthwhile and is

more likely to help someone who has been diagnosed within 2 years.

The book, however has reports of those who had conditions for a

longer period of time. If you do a google.com search on the road back

foundation it should site the name of the book which touts antibiotic

use. It may help but the jury is still out. Dave.

> Bob,

> Minocycline (Minocin), an antibiotic, is given to Reactive

Arthritis patients in the hope of killing the triggering infection

and eliminating its presence in the body. Therein lies the problem.

>

> Most people are not diagnosed quickly. Average diagnosis time for

women is some 15 years after initial symptoms. For men it runs as

high as 10 years. There is little hope that antibiotic therapy will

help long-term existing conditions.

>

> More hard research needs to be done on antibiotic therapy. I tried

it approximately six years ago, some forty years after my initial

intestinal infection as a child. I saw no improvement in my

condition and was forced to discontinue the Minocin due to its

causing liver enzymes to go crazy. When I stopped the Minocin the

liver functions returned to normal.

>

> People should attempt to identify and treat any urinary tract

infection, STD, or intestinal infection (food poisoning) as quickly

as possible with appropriate antibiotics.

> Ray

>

>

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  • 1 month later...

Okay Carol! Now I am really screwed up!

I have been getting Minocin, ( powdered) since I have been on Ap with mixed

results. ( Definitely better with clindamyacin.)

After reading many postings about the superiority of pelleted Minocin I asked my

doctor how to find it. If it was that much better I would have been willing to

go the States.

Sooooo... she did a search suprisingly found it at my own local pharmacist!

Crazy huh?! So now I am on it and I don't think, I am doing as well. I am

not sure if that is the reason or some other

issues.

Now I am wondering if by switching to the Minocin did I actually go to the

generic?

My old Minocin bottle says just that MINOCIN. The new one says MINOCIN and

underneath, Minocycline.

The pills are both by Lederle and are identical orange and blue capsules.

What do you think?

Thanks ,

Lee-Anne

Bob and Carol Zarn wrote:

> Hi, I checked with my pharmacist today and I am taking the real generic

minocycline originally manufactured by Lederle, Wyeth-Ayerst.

>

> The company has changed hands many times and he couldn't remember the actual

name of the current company, but said that the product has never changed.

>

> Being in Canada, it is the powdered minocycline. He had inquired at his

sources for drugs and has had not been able to find out anything about pelleted

generic or the real thing being available in Canada.

>

> Anyone who can tell me the manufacturer of their pelleted minocin or generic

that was bought here in Canada, please email me.

>

> Thanks,

>

> Carol/Piney

>

>

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  • 4 months later...
Guest guest

Thanks Chris.I knew you would know. I know Canada is now able to get the

pelleted like US. I was not sure what they were dooing in Australia.

Having and interesting " ride " with the flagyl. It sure helps sinus issues

that are left over. I think Sentef may be on to something!

Hope all is well.

Love.

Marge

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Guest guest

Hi,

Ann Bell wrote:

" I finally got me some Minocin on the internet, I

> > notice it is from New Zealand...it says on the bottle to take

with milk or food... "

My understanding is that minocin shouldn't be taken with milk or

other dairy products because milk contains calcium, which interferes

with the absorbtion of the minocin.

Sharon

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Guest guest

Hi Ann and Sharon,

We noticed that comment on the Minomycin packet about taking it with milk.

Strange that a manufacturer would put it there when Sharon is correct about

calcium affecting the absorption of the minocycline.

Chris.

> Ann Bell wrote:

>

>

> " I finally got me some Minocin on the internet, I

>> > notice it is from New Zealand...it says on the bottle to take

> with milk or food... "

>

> My understanding is that minocin shouldn't be taken with milk or

> other dairy products because milk contains calcium, which interferes

> with the absorbtion of the minocin.

>

> Sharon

>

>

>

>

>

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  • 2 weeks later...
Guest guest

I would say " yes " in regard to your question about going on Minocin. But I

am hoping you will hear from others out there with more definitive

info--specifically others with Sjogren's and osteo arthritis. I know

they're out there! There's just a wealth of information to be gotten from

the people at this site. I'm sure you'll be hearing from them soon. Good

luck.

Ellen

rheumatic Minocin

> Hi All:

> I am new to this group. I was wondering if Minocin could help me.?

> I had Juvenile Rheumatoid Arthritis when I was young and the

Rheumatologist I

> see now, says I have osteo arthritis. I also have Sjogren's and

depression.

> I have just started to take four salagen a day, but it's still not enough

> moisture. I have to read through a magnifying glass. I am on a

disability

> because I can't work. Would I be able to go on Minocin to help my eyes

and

> glands and help the arthritis pain?

> Thank you.

>

> Pat in Ma

>

>

>

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Guest guest

Hi,

others on this support group would probabaly know the brand names of

minocycline and if they are good. When in doubt though I think you

should find and stick with the pelleted minocin. I just got my Rx filled

yesterday and the minocin ran about 100 dollars at Costco. (30) The

regimen I have used is 100 mg minocin in the am, and then 100 mg doxy in

the pm. I know it's expensive at the pharmacy - but then you know what

you are getting.

K

marymerry12000 wrote:

> I got a bottle of Minocymin from the internet. It says it is equal to

> 100mg minocycline. It is powdered not pelleted. I thought I was

> getting real Minocin the name brand. I am very confused. Someone

> please help. Also which do you think is best for Arthritis, the

> Minocin are the Doxy? Thank You!

>

>

>

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Guest guest

Hello (I'm guessing your name from your email address),

Minomycin is the brand name which you get in the Asia-Pacific region,

including Australia and New Zealand. It is made by the same

manufacturers as Minocin. People here have done well on both

minocycline and doxycycline - generally minocycline is the preferred

antibiotic for most people.

Chris.

On Saturday, May 10, 2003, at 07:38 AM, marymerry12000 wrote:

> I got a bottle of Minocymin from the internet. It says it is equal to

> 100mg minocycline. It is powdered not pelleted. I thought I was

> getting real Minocin the name brand. I am very confused. Someone

> please help. Also which do you think is best for Arthritis, the

> Minocin are the Doxy? Thank You!

>

>

>

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  • 1 year later...

Dear K,

Your pharmacist is mistaken. What was discontinued by Lederle is their

generic version of Minocin. That version was identical to brand name

Minocin, but was sold as generic minocycline at a fraction of the price of

its brand name counterpart.

Brand name Minocin is still very much in production and should be available

from any US pharmacy. Minocin was originally sold by Lederle

Pharmaceuticals Company. That company was then acquired by Wyeth

Pharmaceuticals, which merged with Ayerst Laboratories to form Wyeth-Ayerst

Pharmaceuticals. That mega drug empire also merged with American Cyanamid

Company.

My Minocin bottle (purchased in Southern California), shows the

manufacturer as " Lederle Pharmaceutical Division of American Cyanamid

Company. " Most web pages list the manufacturer of Minocin as Wyeth Lederle

or Wyeth-Ayerst / Lederle.

I hope that this will help you and your pharmacist.

Sincerely, Harald

At 07:32 PM 8/31/2004 +0000, you wrote:

>Hello, I live in Southern california and my doctor just called in my

>prescription of name brand Minocin to Walgreens and the pharmacist said

>that the Minocin they used to carry made by Lederle (might be spelling it

>wrong)...has been discontinued. Then I started reading this board and was

>reading about pellet Minocin. Is there someplace in the US to get Name

>Brand Minocin and hopefully get the pellets since I have been reading the

>pellets seem to work the best??

>Thank you for any help. K

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  • 10 months later...
Guest guest

Hello!!! I am back to taking it daily. I was using the three day a week

schedule to keep me in remission but after almost four years my remission

failed. Went back on the daily dose and am doing much better. Will stay on

the

daily dose another month and then maybe start cutting down again. The daily

dose just seems to get me into a good remission. The mon-wed-fri kept me

there. Have really noticed no problems at all, but I did increase my

probiotics

a lot when I went to daily dose. Other than that I have had no side effects

at all. Martha

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Guest guest

Hi, Martha!

Sally in Little Rock here.

I, too, cut back to MWF type deal and relapsed-SO not worth it!! Maybe both

of us need to stick to the daily AP (I certainly will:)!

Daily AP is considered maintenance for most other maladies treated with AP

in the medical world, such as acne, for instance. And, if you have acne and

get off the AP, like RA, the acne usu. comes back.

I, too, use acidophilus twice daily, and am still taking Celebrex and low

dose steroids. I know I should get off the steroids and start to, and then

the d--- hurricanes come up the Gulf Coast and I'm dying again. I am so

glad to have docs here who give me meds like muscle relaxers and steroids

without acting like I really don't need them because " my pain can't be that

bad! " That attitude really ticked me off in the DC area.

I am so grateful that, so far, no methotrexate, or other DMARDS that require

IV's or shots have been required.

Hugs, Martha!

Sally

Re: rheumatic Minocin

> Hello!!! I am back to taking it daily. I was using the three day a week

> schedule to keep me in remission but after almost four years my remission

> failed. Went back on the daily dose and am doing much better. Will stay

> on the

> daily dose another month and then maybe start cutting down again. The

> daily

> dose just seems to get me into a good remission. The mon-wed-fri kept me

> there. Have really noticed no problems at all, but I did increase my

> probiotics

> a lot when I went to daily dose. Other than that I have had no side

> effects

> at all. Martha

>

>

>

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  • 1 year later...

Yes but the generic is just as good and that is what I use. Lynne

G./SD Montreal,Canada

penncraig wrote:

> So, the Stiefel Minocin from Canada is the same as the Lederle Minocin

> in the US? Is the Stiefel brand, peltized?

>

>

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  • 4 months later...
Guest guest

Hi Jim,

You do need a good probiotic . Look for a high active cell count. Mine has

10 billion active cells. Take it 2 hours after the antibiotics. Many of us

use fish oil for its anti-inflammatory qualities. There is a thread going

on that subject at the moment.

Good luck with the starting AP. Remember it is a long term treatment; it

may take a while to see results, but it's worth the effort.

Take care,

Ute

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Guest guest

Definitely take probiotics, these will put the good bacteria that antibiotics

kill off back into your system. I buy mine at a health food store, a good brand

recommended by an ap doc is Ultra Flora ( i think thats the name or close to it)

Sue

rheumatic Minocin

I have RA and will be starting on Minocin as soon as my order comes in.

What do you recommend taking with minocin? I have heard people talk

about fish oil tablets and probiotics. Where do you buy your

probiotics and what dosage do you take?

Thanks,

Jim

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Guest guest

hi jim

Probiotics by genestra are very good.

make sure you take lots. i didn't when i started my mino and that may be

why i developed a problem three years later with it - dizziness, nausea,

extreme fatigue. symptoms of yeast i think? an anti-yeast diet is good

to do to. meat fish vegs eggs no dairy no grains no sugars. that will

also help the RA. after 1 year at 100 mg a day i upped to 200 mg a day

and within a few mos was in remission. i had to stop the mino though

after 3 years when i got sick so RA came back. am starting marshall

protocol for it in mid may.

best to you

monique

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Guest guest

Hi ,

Thanks for the reply!

I also was in remission until a few months ago. I am not sure the reason I

went into remission because all i was taking was ibuprofin. Hopefully, the

minocin will put work for me. Why is it that some people take 100 mg 3

times a week and some take it once or twice everyday?

When you say lots of probiotic, do you mean 4 to 6 pills per day?

What is marshall protocol?

Good luck!

Thanks,

Jim

>From: Sauve <moniquesauve@...>

>Reply-rheumatic

>rheumatic

>Subject: rheumatic Re:Minocin

>Date: Mon, 23 Apr 2007 10:25:53 -0600

>

>hi jim

>

>Probiotics by genestra are very good.

>make sure you take lots. i didn't when i started my mino and that may be

>why i developed a problem three years later with it - dizziness, nausea,

>extreme fatigue. symptoms of yeast i think? an anti-yeast diet is good

>to do to. meat fish vegs eggs no dairy no grains no sugars. that will

>also help the RA. after 1 year at 100 mg a day i upped to 200 mg a day

>and within a few mos was in remission. i had to stop the mino though

>after 3 years when i got sick so RA came back. am starting marshall

>protocol for it in mid may.

>

>best to you

>monique

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Guest guest

Hi ,

Thanks for the reply!

I also was in remission until a few months ago. I am not sure the reason I

went into remission because all i was taking was ibuprofin. Hopefully, the

minocin will put work for me. Why is it that some people take 100 mg 3

times a week and some take it once or twice everyday?

When you say lots of probiotic, do you mean 4 to 6 pills per day?

What is marshall protocol?

Good luck!

Thanks,

Jim

hi jim

i think it is common for ppl to initially go in and out of remission in

the early stages of RA. i know i had symptoms in 97 but then was fine

til 99. did you have an intense period of stress recently? that brought

mine back. and it started after a lot of emotional stress too.

re probiotics how much depends on kind i think. for ex.

http://www.rockwellnutrition.net/HMF-Probiotics_c_100.html

i woudl recommend loading up with replete - a sachet a day for 2 weeks

and then taking HMF Intensive - 2 a day. these probs.are loaded with

good bact so you don;t need to take as many capsules as with other

brands. be careful what brand you buy as some have dead bact. my doc

recomm these as the are supposed to be very good quality.

there are diff. theories re how much to take. i have met some who went

into remission at 100 mg or 200 mg MWF but they also changed their diet

and did cleansing and took supplmts. 200 mg a day i think suppresses

your immune system which can eventually lead to problems. ppl who took

that dose i have noticed didn't generally make other changes.

this is MP:

http://www.marshallprotocol.com/

happy reading. :-) i can put you in touch with ppl with RA doing well

on MP is you wish. best of luck

monique

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  • 2 months later...
Guest guest

Kamran,

In some countries Minocin has a different brand name. Perhaps some of our

Australian friends can help us out here. If I remember correctly,

tetracycline can be used, but it may not be as effective, and the dosage is

different. Again, someone on this list probably knows the details.

Take care,

Ute

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Guest guest

Thanks, I know about the different usage.

The thing is that I have not a progressed disease yet, just some symptons which

are suspected as " sjögren syndrom " , but not even that in full scale.

I am waiting to get diagnosed. The problem is exactly that I don't know what the

matter is with my body.

Anyway, I am in researching faze and I beleive that the sooner you start a

treatment the better chance you got to get rid of it.

But the put me on hold until, whetever it is, to flare.

I have given the tests for borelia, strop., and mycoplasma and waiting for

results.

Take care

Kamran

Re: rheumatic Minocin

Kamran,

In some countries Minocin has a different brand name. Perhaps some of our

Australian friends can help us out here. If I remember correctly,

tetracycline can be used, but it may not be as effective, and the dosage is

different. Again, someone on this list probably knows the details.

Take care,

Ute

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  • 5 months later...

Dear Judy,

minocycline is what my daughter has been taking from the beginning. As

far as we know, combined with diet it was what brought her back from the severe

SD symptoms she was having when diagnosed in 2000. Very tight skin and much,

much more. All symptoms disappeared within, I believe, three or four months of

starting the minocycline.

Still, I'd like to know what the brand Minocin would do for her. It is being

used experimentally, so I have heard, to treat M.S. which she also has. So far,

the minocycline has done nothing for the M.S.

Ellen McCool

rheumatic minocin

Is brand of minocin working for anybody? Judy

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

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Hi Ellen,have you checked out the Weldon protocol for MS ?

Ellen McCool wrote:

> Dear Judy,

>

> minocycline is what my daughter has been taking from the

> beginning. As far as we know, combined with diet it was what brought

> her back from the severe SD symptoms she was having when diagnosed in

> 2000. Very tight skin and much, much more. All symptoms disappeared

> within, I believe, three or four months of starting the minocycline.

>

> Still, I'd like to know what the brand Minocin would do for her. It is

> being used experimentally, so I have heard, to treat M.S. which she

> also has. So far, the minocycline has done nothing for the M.S.

>

> Ellen McCool

> rheumatic minocin

>

> Is brand of minocin working for anybody? Judy

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004

> <http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004>)

>

>

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Ellen,

Thank you for your positive input on minocycline, which I have

added to www.tmgp.com/minocin.htm. Please press the F5 key to refresh

this web page when viewing.

Sincerely, Harald

At 07:50 PM 12/12/2007, you wrote:

>Dear Judy,

>

> minocycline is what my daughter has been taking from the

>beginning. As far as we know, combined with diet it was what brought

>her back from the severe SD symptoms she was having when diagnosed

>in 2000. Very tight skin and much, much more. All symptoms

>disappeared within, I believe, three or four months of starting the

>minocycline.

>

>Still, I'd like to know what the brand Minocin would do for her. It

>is being used experimentally, so I have heard, to treat M.S. which

>she also has. So far, the minocycline has done nothing for the M.S.

>

>Ellen McCool

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