Re: O

[Guest guest]

Thank you for the info, Debbie. I may qualify when (if) I am able to get

Medicaid. I have tried contacting Dr. Sinnot this morning and he must be very

busy. I'll keep trying. My breathing is better which encourages me to think

allergies instead of BO. But I intend to get a PFT as soon as possible. I feel

the same about xrays, CT and MRI.

Thanks so much, Debbie. Best to you..

O

>

> , it occurred to me while scrolling thru my files...that without

insurance, it can be sooo very difficult to receive good medical care and then I

remembered a group that was created for just that purpose. It is called the

Patient Advocate Foundation...you can look them up online and they have access

by phone as well...

> I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

> I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

>

>

[Guest guest]

Hey , please keep trying DR. S office...I know he is busy...but he is a

veryy good DR and well versed in these diseases...as is Dr. Whitman...I would go

ahead and get in touch with the Patient Advocate Foundation..they may be able to

help you with Medicaid as well...speed up the process...another thing I thought

of...this helps me sooo much...I went ahead and bought, at a medical supply

place a pulse oximeter...the little thingy that the DR puts on your finger to

measure oxygen...when I feel sob, I can ck it myself and see if I really am...I

do it a couple times a day...cost me, here in Cincinnati, about $125...which I

realize is a lot of money...but knowing what my oxygen levels are

baseline...help me tremendously...and yes, my allergies are horrific right

now..I am spending as little as possible time outside...Keep us all posted.

Debbie

rheumatic Re: O

Thank you for the info, Debbie. I may qualify when (if) I am able to get

Medicaid. I have tried contacting Dr. Sinnot this morning and he must be very

busy. I'll keep trying. My breathing is better which encourages me to think

allergies instead of BO. But I intend to get a PFT as soon as possible. I feel

the same about xrays, CT and MRI.

Thanks so much, Debbie. Best to you..

O

>

> , it occurred to me while scrolling thru my files...that without

insurance, it can be sooo very difficult to receive good medical care and then I

remembered a group that was created for just that purpose. It is called the

Patient Advocate Foundation...you can look them up online and they have access

by phone as well...

> I hope you are going to be able to get the PFT and maybe even a Ct scan to

see what is going on...you know your body better than anyone...I always listen

to mine...

> I did see where another patient posted about seeing Dr. Sinnot in Iowa...he

is veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

>

>

[Guest guest]

O,

i think doc sinnott answers phone in mornings on certain days. or sometimes his

asst. will answer in the afternoons and tell me when to call back. sally

rheumatic Re: O

Thank you for the info, Debbie. I may qualify when (if) I am able to get

Medicaid. I have tried contacting Dr. Sinnot this morning and he must be very

busy. I'll keep trying. My breathing is better which encourages me to think

allergies instead of BO. But I intend to get a PFT as soon as possible. I feel

the same about xrays, CT and MRI.

Thanks so much, Debbie. Best to you..

O

>

> , it occurred to me while scrolling thru my files...that without

insurance, it can be sooo very difficult to receive good medical care and then I

remembered a group that was created for just that purpose. It is called the

Patient Advocate Foundation...you can look them up online and they have access

by phone as well...

> I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

> I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

>

>

[Guest guest]

Hi,

Do you know if any of the doc's in your messege will do treatment over long

distance(Texas) if I can provide him with all the tests and blood work required

Thank you,

kathy egenbacher

From: DEBBIE GIBSON

Sent: Tuesday, September 07, 2010 8:48 AM

support group

Subject: rheumatic O

, it occurred to me while scrolling thru my files...that without insurance,

it can be sooo very difficult to receive good medical care and then I remembered

a group that was created for just that purpose. It is called the Patient

Advocate Foundation...you can look them up online and they have access by phone

as well...

I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

[Guest guest]

In my experience, Drs will only do tx even if you provide tests and labs, if

they have seen the patient at least once in the past year...so they have always

told me...all my DRs work with me out of town...but I have to see them at least

once a year in order for them to prescribe for me, etc..

Debbie

rheumatic O

, it occurred to me while scrolling thru my files...that without

insurance, it can be sooo very difficult to receive good medical care and then I

remembered a group that was created for just that purpose. It is called the

Patient Advocate Foundation...you can look them up online and they have access

by phone as well...

I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

[Guest guest]

Hi, Sally.

Thanks for the info. I am trying to reach him this morning. Hope you are doing

OK. For anything topical that is red or inflamed I found that absolute best

thing is Vitamin C.

I use powdered " non-acidic Vitamin C powder - 5000 mg - crystalline calcium

ascorbate " . I dissolve several teaspoons in 1 cup water and soak the area

(typically for me a burn on my hand) but think it could help those with

skin/sclero/dermatomyositis/ issues as well. I use it this way sparingly because

it is expensive. But I soak the burn or inflamed area until the water and Vit C

'pull out' the heat. That is, soak, test the area...if still " hot " , then soak

until cooled off. This cured a horrible burn to my hand once without even a

blister the next day...really. And although you are treating a boil/blister it

could help (unless it is already open).

I also drink this mixed into a liquid to fight a pending cold...it makes the

juice or whatever bitter but drinkable. I found this for my daughter when she

had so many stomach issues and we cut out sugar from our diets. She could not

even have fresh fruits due to the sugar content - except Granny apples. So

this was how to get Vit C into her. She could not ahve anything acidic

either...again this is non-acidic Vitamin C. And this is the only Vitamin C that

I have found to be so.

The brand is Solaray. Many of you supplement users will recognize the brand. It

is getting hard to find this on natural food store shelves, but I do and know it

can be ordered online.

Hoping you are feeling better and able to get out again soon, Sally.

O

> >

> > , it occurred to me while scrolling thru my files...that without

insurance, it can be sooo very difficult to receive good medical care and then I

remembered a group that was created for just that purpose. It is called the

Patient Advocate Foundation...you can look them up online and they have access

by phone as well...

> > I hope you are going to be able to get the PFT and maybe even a Ct scan to

see what is going on...you know your body better than anyone...I always listen

to mine...

> > I did see where another patient posted about seeing Dr. Sinnot in Iowa...he

is veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

> >

> >

[Guest guest]

Kathy,

i don't know about Texas, but many of us have consulted with Dr. Sinnott in Ida

Grove, Iowa (#712-364-3302) without seeing him in person. He's a start, and is

very very kind in helping us over the phone. sally

rheumatic O

, it occurred to me while scrolling thru my files...that without insurance,

it can be sooo very difficult to receive good medical care and then I remembered

a group that was created for just that purpose. It is called the Patient

Advocate Foundation...you can look them up online and they have access by phone

as well...

I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

[Guest guest]

thanks maryo for sending more info to me, and also a help to the group. you

people are such a blessing to me! sally

rheumatic Re: O

Hi, Sally.

Thanks for the info. I am trying to reach him this morning. Hope you are doing

OK. For anything topical that is red or inflamed I found that absolute best

thing is Vitamin C.

I use powdered " non-acidic Vitamin C powder - 5000 mg - crystalline calcium

ascorbate " . I dissolve several teaspoons in 1 cup water and soak the area

(typically for me a burn on my hand) but think it could help those with

skin/sclero/dermatomyositis/ issues as well. I use it this way sparingly because

it is expensive. But I soak the burn or inflamed area until the water and Vit C

'pull out' the heat. That is, soak, test the area...if still " hot " , then soak

until cooled off. This cured a horrible burn to my hand once without even a

blister the next day...really. And although you are treating a boil/blister it

could help (unless it is already open).

I also drink this mixed into a liquid to fight a pending cold...it makes the

juice or whatever bitter but drinkable. I found this for my daughter when she

had so many stomach issues and we cut out sugar from our diets. She could not

even have fresh fruits due to the sugar content - except Granny apples. So

this was how to get Vit C into her. She could not ahve anything acidic

either...again this is non-acidic Vitamin C. And this is the only Vitamin C that

I have found to be so.

The brand is Solaray. Many of you supplement users will recognize the brand. It

is getting hard to find this on natural food store shelves, but I do and know it

can be ordered online.

Hoping you are feeling better and able to get out again soon, Sally.

O

> >

> > , it occurred to me while scrolling thru my files...that without

insurance, it can be sooo very difficult to receive good medical care and then I

remembered a group that was created for just that purpose. It is called the

Patient Advocate Foundation...you can look them up online and they have access

by phone as well...

> > I hope you are going to be able to get the PFT and maybe even a Ct scan to

see what is going on...you know your body better than anyone...I always listen

to mine...

> > I did see where another patient posted about seeing Dr. Sinnot in Iowa...he

is veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

> >

> >

[Guest guest]

Kathy,

where about in Texas do you live? There is a doctor in Lufkin, TX that treats

people for RA with antibiotics.

Eva

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic O

rheumatic

Date: Wednesday, September 8, 2010, 5:06 PM

 

Kathy,

i don't know about Texas, but many of us have consulted with Dr. Sinnott in Ida

Grove, Iowa (#712-364-3302) without seeing him in person. He's a start, and is

very very kind in helping us over the phone. sally

rheumatic O

, it occurred to me while scrolling thru my files...that without insurance,

it can be sooo very difficult to receive good medical care and then I remembered

a group that was created for just that purpose. It is called the Patient

Advocate Foundation...you can look them up online and they have access by phone

as well...

I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

[Guest guest]

Hi Eva I live in Lubbock Texas way up in the panhandle of Texas --Lufkin is

probably 10 hours away---thank you for caring-I went to my RA dr. today and he

did not cancel my AB -yea-he still does not believe in AB-but at least I still

have a script-- so with all of you guys help and the books I will still try to

be a dr of self.

I pray you have a blessed evening.

kathy

From: Eva Holloway

Sent: Wednesday, September 08, 2010 9:10 PM

rheumatic

Subject: Re: rheumatic O

Kathy,

where about in Texas do you live? There is a doctor in Lufkin, TX that treats

people for RA with antibiotics.

Eva

From: mannasal@... <mannasal@...>

Subject: Re: rheumatic O

rheumatic

Date: Wednesday, September 8, 2010, 5:06 PM

Kathy,

i don't know about Texas, but many of us have consulted with Dr. Sinnott in Ida

Grove, Iowa (#712-364-3302) without seeing him in person. He's a start, and is

very very kind in helping us over the phone. sally

rheumatic O

, it occurred to me while scrolling thru my files...that without insurance,

it can be sooo very difficult to receive good medical care and then I remembered

a group that was created for just that purpose. It is called the Patient

Advocate Foundation...you can look them up online and they have access by phone

as well...

I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie

[Guest guest]

i've not been back to my rhemy for over 2 years. not taking any RA drugs

(slowing getting off prednison) once i got medicare, i went to local dr. to

establish having a family doc. don't know if i'm better off not having a doc??

my rhemy said they do not do AP, so got script from our beloved dr. S. now,

next battle is seeing surgeon in Nov. about knee surgery. working mostly with

diet and supplements, and consult with naturepathic dr. in idaho. however, i

am very open to a miracle and not have to have knee surgery..........sally

rheumatic O

, it occurred to me while scrolling thru my files...that without insurance,

it can be sooo very difficult to receive good medical care and then I remembered

a group that was created for just that purpose. It is called the Patient

Advocate Foundation...you can look them up online and they have access by phone

as well...

I hope you are going to be able to get the PFT and maybe even a Ct scan to see

what is going on...you know your body better than anyone...I always listen to

mine...

I did see where another patient posted about seeing Dr. Sinnot in Iowa...he is

veryyy good...I have never seen him but have consulted him via telephone a

couple times...Now, and for the past 10 yrs or so I have just seen Dr. Whitman

in NJ...I have seen Dr. Trentham in Boston and Dr. Franco in Riverside, CA...I

made it my business to avail myself of the best physicians using the ABX

therapy...but I had insurance at that time...even so...I did not do all the

xrays that Dr. Franco's ofc wanted to do...I am leery of radiation...xrays,

Ct's...I believe you have to be very careful...anyway...please think about

contacting the Patient Advocate Foundation, I believe they are in Virginia or

something...they can be veryyy useful...for patients...Hang in there, Debbie