Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 Cortef and cortisone are two different things. Example.cortisone 5 mgm cortef 1 mgm= same thing I did cortef almost all my painful days and never went above 5 mgms and once I was in remission it was easy to get off of it. Most docs will not order Cortef. A few people I recommended this to went from cortisone to cortef and they felt their pain was much worse on it. I feel maybe they just did not take it right or their bodies were tooo used to the cortisone. Good luck. Cooky _____ From: rheumatic [mailto:rheumatic ] On Behalf Of emluv23@... Sent: Thursday, May 08, 2008 8:23 PM rheumatic Subject: rheumatic Micro Dose Therapy Has anyone heard of this and know how to do it? www.helenfoundationclinic.com. Dr. Brown used small amounts of cortisone in the original antibiotic protocol. This is tiny amounts whenever you think you need it. But you have to go to a seminar to learn how- and I live too far away. The book From Fatigued to Fantastic also recommends low dose Cortef for a year for CFS patients. I've heard mixed results- for some it seems to be a miracle, others say they got even worse. Always looking for ways to improve my regimen- Emma ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food. <http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001> aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 Stay away from those folks. They want $6500 to get you a food allergy test, keep your diet restricted, and have a dr. prescribe prednisone (used to be that they used hydrocortisone - molecularly identical to body's natural cortisone - also called 'Cortef' by manufacturer). I prefer the Cortef to prednisone. Use it regularly, try to keep it small dose (20-30 mg Cortef = 4-7.5 mg prednisone). Have to use more frewquently throughout the day, but the body uses it up in a more natural pattern. The average dose that the 'Microdose' people take is 7-8 mgs of predisone each day. The dose varies, you take more when you are flaring. The " sales " people are high pressure and bad news. And the " therapy " is exactly as stated above. If you want the food allergy test, I can tell you where to get one. But if you already restrict your diet (I follow the very strict diet for Celiac disease - one that's recommended for Candidiasis - systemic yeast overgrowth - go to the Celiac website and I think you can still get a diet and recipe book) why pay $600 for the food allergy test? Although I did. I am looking forward to my Antibiotic Therapy - just got meds from New Zealand - Minocin by Lederle lab. I will continue the Cortef and adjust dose as I flare or herx. Best, rheumatic Micro Dose Therapy Has anyone heard of this and know how to do it? www.helenfoundationclinic.com. Dr. Brown used small amounts of cortisone in the original antibiotic protocol. This is tiny amounts whenever you think you need it. But you have to go to a seminar to learn how- and I live too far away. The book From Fatigued to Fantastic also recommends low dose Cortef for a year for CFS patients. I've heard mixed results- for some it seems to be a miracle, others say they got even worse. Always looking for ways to improve my regimen- Emma ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 Thank you SO much for this info, ! That just saved me a drive to Ohio. Anytime a " Free Seminar " is involved, you've got to wonder. I do already follow the celiac diet and I'm on AP- and everything's going in the right direction... maybe I'll try just a little Cortef on minor flare days... Thanks again! Emma In a message dated 5/8/2008 11:35:52 P.M. Eastern Daylight Time, maryottman@... writes: Stay away from those folks. They want $6500 to get you a food allergy test, keep your diet restricted, and have a dr. prescribe prednisone (used to be that they used hydrocortisone - molecularly identical to body's natural cortisone - also called 'Cortef' by manufacturer)Stay away from those folks. They want $6500 to get you a food allergy test, keep your diet restricted, and have a dr. prescribe prednisone (used to be that they used hydrocortisone - molecularly identical to body's natural cortisone - also called 'Cortef' by manufacturer)<WBR>. I prefer the Cortef to prednisone. Use it regularly, try to keep it small dose (20-30 mg Cortef = 4-7.5 mg prednisone). Have to use more frewquently throughout the day, but the body uses it up in a more natural pattern. The average dose that the 'Microdose' people take is 7-8 mgs of predisone each day. The dose varies, you take more when you are flaring. The " sales " people are high pressure and bad news. And the " therapy " is exactly as stated above. If you want the food allergy test, I can tell you where to get one. But if you already r I am looking forward to my Antibiotic Therapy - just got meds from New Zealand - Minocin by Lederle lab. I will continue the Cortef and adjust dose as I flare or herx. Best, rheumatic Micro Dose Therapy Has anyone heard of this and know how to do it? www.helenfoundationwww.helenfo Dr. Brown used small amounts of cortisone in the original antibiotic protocol. This is tiny amounts whenever you think you need it. But you have to go to a seminar to learn how- and I live too far away. The book From Fatigued to Fantastic also recommends low dose Cortef for a year for CFS patients. I've heard mixed results- for some it seems to be a miracle, others say they got even worse. Always looking for ways to improve my regimen- Emma ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (_http://food.http://food.<WBhttp://food.http://food.<WBRhttp_ (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 Hi, Emma. I am glad to be able to help. The original " Helen " and her husband are out of the picture now and these used-car sales people have taken over. If you want to know the story, read the book " Arthritis: The Simple Solution. " Everyone here has been so good...caring and helpful. BTW, my mainstay for my RA is Bioidentical Hormone Replacement Therapy (BHRT) plus the Cortef (and, now, the AT - Minocin - I just started). These have kept me at a very good functioning level, except for the recent numbness and neuropathy. The neuropathy is much better from rest...and have started NSF - highly absorbable B-1 and B-12 - Methylcobalamin. But, I'll be really careful from now on. The BHRT took me from 60% functioning level to about 90%, I'd say. First, injections : testosterone, estriol/estriadol, progesterone, pregnenolone, estriadol, DHEA (in 2 injections per visit) and now capsules plus creams. As someone else said I'd never give them up again. To know if you need them have your hormone levels tested. I've read that everyone starts to lose their hormone " edge " past the age of 35. One of the best tests comes from GDX - Essence Test (former Great Smokies Lab - where I had a previous heavy metals testing done). But your obg/gyn should have a trusted lab...just make sure they test for the same hormones that I mentioned above...while you're at it I'd test my Thyroid as well. You can call Bellevue Pharmacy - one of the highest respected compounding pharmacies in the US. They may know someone in your area that orders from them (means that dr. respects the huge difference in Bio-Identical). http://www.genovadiagnostics.com/ Best wishes, rheumatic Micro Dose Therapy Has anyone heard of this and know how to do it? www.helenfoundationwww.helenfo Dr. Brown used small amounts of cortisone in the original antibiotic protocol. This is tiny amounts whenever you think you need it. But you have to go to a seminar to learn how- and I live too far away. The book From Fatigued to Fantastic also recommends low dose Cortef for a year for CFS patients. I've heard mixed results- for some it seems to be a miracle, others say they got even worse. Always looking for ways to improve my regimen- Emma ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (_http://food.http://food.<WBhttp://food.http://food.<WBRhttp_ (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 I am interested in hearing anything more you can tell me about the Microdose Therapy, as I attended a seminar and was talked into signing up for the 'long haul.' When I talk to the person who is guiding me through this, she assures me that she contacts Dr. Stenberg for his advice. The main office or clinic is in Arizona, and I am from South Dakota, so everything is done over the phone. I felt wonderful on the 3 week 'shower', but then go downhill when I taper off on the Cortisol. Now we are trying to adjust the method with a little more cortisol to see if that is what I need. They think my adrenal gland is not producing enought natural cortisol. How did you get started with the BHRT? I seem to have a lot of hormonal imbalances and have been battling them for years. I think my RA is connected to these imbalances. Hoping to hear back from you. Sincerely, Corrine Hanson echanson@... rheumatic Micro Dose Therapy Has anyone heard of this and know how to do it? www.helenfoundationwww.helenfo Dr. Brown used small amounts of cortisone in the original antibiotic protocol. This is tiny amounts whenever you think you need it. But you have to go to a seminar to learn how- and I live too far away. The book From Fatigued to Fantastic also recommends low dose Cortef for a year for CFS patients. I've heard mixed results- for some it seems to be a miracle, others say they got even worse. Always looking for ways to improve my regimen- Emma ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (_http://food.http://food.<WBhttp://food.http://food.<WBRhttp_ (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 Hi, Corrine. What I think is so evil is that there are people who " prey " on those of us with illness because they know we are deperate to get better. I, too, signed up for Microdose. I was able to get out of it, but only barely. They are not happy when you want out. Stenburg and his wife Helen moved to Florida after they " sold " the business in AZ to these used car sales guys. I bet you got offered a " discount " ? The deal is to have the " cortisol shower " (except they use prednisone anymore) which is typically what EVERY dr. does when you present with severe RA symptoms. It is what I had when I first was diagnosed and went to my dr. barely able to walk. Anyway the shower is high dose 80-100 mg cortisol (divide by 4 to get prednisone dosage). You probably have already taken a food allergy test. For the next 4 weeks as you come off the high dose pred. the " great " feeling slowly goes away. Their research has learned that much of the flaring can be controlled by food intake. So when you flare (you are to keep diaries of each day's doses and pain levels) you can give yourself a higher dose of steroid. That's it. For $6500. Food intake and steroids. Interesting that many rheumatologists have their patients taking low dose steroids along with whatever else they are on - they know it controls the pain...the problem is the body's dependence on the steroids...and it is a big problem. So after getting out of the Microdose contract I went to a chiropractor/naturopath who understood the steroid/cortisol function in the body (he knew of Dr. Stenburg - microdose therapy - this part I believe Stenburg got right - the steroid use) and was willing to prescribe hydrocortisone (Cortef) for me if I would take the food allergy test. Well, I already put myself on a stricter diet than any of the tests would indicate that I needed, so I really did not believe in that being of great help, but needed to start the cortisol shower, and went ahead and took the food allergy test. As I was starting the shower I learned of a book that had helped many people with rheumatoid diseases: " The Hormone Solution " . In it the doctor/author (Thierre Hertoghe) explains a lot of things about hormones and steroids (what is too much, why we need them to live, how to tell from your own experience what some imbalances could be). I put 2 and 2 together...went to find a BHRT doctor and started bioidentical (natural) hormone replacement therapy halfway into the cortisol shower and have stayed feeling very good (for the most part - except worrisome numbness as mentioned previously). I found my BHRT dr. through Bellevue Pharmacy. If you are up north you may find the Women's International Pharmacy in Madison, WI to have more drs they could point you to in your area. http://www.womensinternational.com/ I apologize to all who have read this now several times. I am sorry to be repetitive. But I am glad if one person is helped. I hope I've answered your questions, Corrine. BTW I got out of the Microdose contract because they could not come up with a doctor in the area (within a 100-mile radius) who would work with them. I had heard from another dr. that he quit the program because of a payment dispute. Best wishes, mary rheumatic Micro Dose Therapy Has anyone heard of this and know how to do it? www.helenfoundationwww.helenfo Dr. Brown used small amounts of cortisone in the original antibiotic protocol. This is tiny amounts whenever you think you need it. But you have to go to a seminar to learn how- and I live too far away. The book From Fatigued to Fantastic also recommends low dose Cortef for a year for CFS patients. I've heard mixed results- for some it seems to be a miracle, others say they got even worse. Always looking for ways to improve my regimen- Emma ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (_http://food.http://food.<WBhttp://food.http://food.<WBRhttp_ (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 I feel so sad that the really good care charges are so ridiculous. At least, this was my experience. I didn't pay $6500, but after years, it adds up to a lot. It was my experience that main stream doctors won't give you allergy tests, and in fact won't do anything except to prescribe steroids and metho, etc. For me, basic food allergy testing was incredibly relevant to my illness. Also, hormone testing was probably the biggest component for me. These things gave me some clues about where I have 'breakdowns'. BTW, I got a food allergy test via Quest Labs. It did not cost me, as insurance paid for it. However, the doctor was very expensive. For me the test for helpful. The Quest Labs measured about 20 common foods (oats, wheat, milk, soy, nuts, etc.) Later, I also had an ELISA test, which cost quite a bit (I forget the amt). This one measures delayed reactions to foods & chemicals (about 375 substances) I didn't find that one to be especially helpful. Anyway, I do resent those high priced doctors. Amy mary ottman wrote: > > Stay away from those folks. They want $6500 to get you a food allergy > test, keep your diet restricted, and have a dr. prescribe prednisone > (used to be that they used hydrocortisone - molecularly identical to > body's natural cortisone - also called 'Cortef' by manufacturer). I > prefer the Cortef to prednisone. Use it regularly, try to keep it > small dose (20-30 mg Cortef = 4-7.5 mg prednisone). Have to use more > frewquently throughout the day, but the body uses it up in a more > natural pattern. The average dose that the 'Microdose' people take is > 7-8 mgs of predisone each day. The dose varies, you take more when you > are flaring. The " sales " people are high pressure and bad news. And > the " therapy " is exactly as stated above. If you want the food allergy > test, I can tell you where to get one. But if you already restrict > your diet (I follow the very strict diet for Celiac disease - one > that's recommended for Candidiasis - systemic yeast overgrowt! h - go > to the Celiac website and I think you can still get a diet and recipe > book) why pay $600 for the food allergy test? Although I did. > > I am looking forward to my Antibiotic Therapy - just got meds from New > Zealand - Minocin by Lederle lab. I will continue the Cortef and > adjust dose as I flare or herx. > > Best, > > > rheumatic Micro Dose Therapy > > Has anyone heard of this and know how to do it? > www.helenfoundationclinic.com. > Dr. Brown used small amounts of cortisone in the original antibiotic > protocol. This is tiny amounts whenever you think you need it. But you > have to go to a > seminar to learn how- and I live too far away. The book From Fatigued to > Fantastic also recommends low dose Cortef for a year for CFS patients. > I've heard > mixed results- for some it seems to be a miracle, others say they got > even > worse. > Always looking for ways to improve my regimen- > Emma > > ************** > Wondering what's for Dinner Tonight? Get new twists on family > favorites at AOL Food. > > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001 > <http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001>) > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.