Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Rhonda: Did your son always have problems of insomnia? My daughter had horrendous problems. Secretin immediately helped her sleep through the night. In addition to a lot of other beneficial things. Elise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Hi Elise He has always suffered from insomnia, but it was MANAGEABLE at the same time. It went in about every 3 months in cycles where for about 7-10 days he would battle it.. other than that, he was a GREAT sleaper. A week ago today, he had his first infusion of secretin. Since then, the insomnia has been AWFUL.. I am NOT going to be doing the secretin again.. if he gets the benedryl at night time, then he is fine the next day.. his behaviors are mild if any at all, but last night, we tried without the benedryl to see how he would react, and today was HELL for him. After speaking to a few people, and to out pediatrician, we attribute this to the secretin.. there isnt a way to PROVE it, but up until the infusion, he didnt have this. Rhonda NH > Rhonda: > > Did your son always have problems of insomnia? My daughter had horrendous > problems. Secretin immediately helped her sleep through the night. In > addition to a lot of other beneficial things. > > Elise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Hi Elise He has always suffered from insomnia, but it was MANAGEABLE at the same time. It went in about every 3 months in cycles where for about 7-10 days he would battle it.. other than that, he was a GREAT sleaper. A week ago today, he had his first infusion of secretin. Since then, the insomnia has been AWFUL.. I am NOT going to be doing the secretin again.. if he gets the benedryl at night time, then he is fine the next day.. his behaviors are mild if any at all, but last night, we tried without the benedryl to see how he would react, and today was HELL for him. After speaking to a few people, and to out pediatrician, we attribute this to the secretin.. there isnt a way to PROVE it, but up until the infusion, he didnt have this. Rhonda NH > Rhonda: > > Did your son always have problems of insomnia? My daughter had horrendous > problems. Secretin immediately helped her sleep through the night. In > addition to a lot of other beneficial things. > > Elise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Hi Elise He has always suffered from insomnia, but it was MANAGEABLE at the same time. It went in about every 3 months in cycles where for about 7-10 days he would battle it.. other than that, he was a GREAT sleaper. A week ago today, he had his first infusion of secretin. Since then, the insomnia has been AWFUL.. I am NOT going to be doing the secretin again.. if he gets the benedryl at night time, then he is fine the next day.. his behaviors are mild if any at all, but last night, we tried without the benedryl to see how he would react, and today was HELL for him. After speaking to a few people, and to out pediatrician, we attribute this to the secretin.. there isnt a way to PROVE it, but up until the infusion, he didnt have this. Rhonda NH > Rhonda: > > Did your son always have problems of insomnia? My daughter had horrendous > problems. Secretin immediately helped her sleep through the night. In > addition to a lot of other beneficial things. > > Elise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 I remember the Secretin infusion days. We used Antihistamine to help Bear sleep. Then used transdermal which didn't interfere with sleep cycles. Barrets allergies are such that we use Zyrtec now and he sleeps all night. We have also been able to wean him off Secretin now that we are treating Underlying Virus and we have tried going back but he is actually functioning higher now without the Secretin and the new treatment. However it took months to get here. Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 What is transdermal anyway? I have not heard of this one? Thank you Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 What is transdermal anyway? I have not heard of this one? Thank you Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 I'm Curious about those of you using secretin we tried it last year and Maranda made some good gains but we have been unable to get any in over a year any suggestions? Thanks Valarie in Ca. (mom to Maranda 5asd and Nick nt) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Hi Everyone I will be six weeks post-op tomorrow and I must say, it has been a hellish recovery. I can eat soft foods, but it is very uncomfortable as my chewing pattern is weird, and i have a lot of discomfort. i also stil have a lot of numbness - my entire lower lip and chin are still numb, making it hard to eat in public (drooling) and Istill ahve numbness in my nose and up to my right eye as well. None of this has improved much since the surgery and I remember the pre-surg waiver I had to sign saying that numbness may be permanent! Anyone else have trouble sleeping? Since surgery I can count on one hand the number of nights I slept well. I did not have sleep problems before surgery and in fact, I slept like a baby the night before the operaiton! A lot of the problems are due to soreness and swelling (still chipmunk face at 6 weeks) and a lot to congestion. Any ideas? Mliz Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.