newb

[Guest guest]

Dear Deb,

My given name is Deborah, but later in life I was

given the name Willow Softly Blowing - Willow for

short. If you look at my signature, you'll see we have

several things in common. I will add that I have a son

with ADHD, depression and problems post head injury.

I hope you find this list as helpful as I have. It's a

source of information and there's always someone

around if you just need an ear.

I look forward to getting to know you.

; )

Willow

--- Deb <kisska@...> wrote:

> Hi I am new here, I live in Australia. I am trying

> to live with

> chronic pain, with fibromyalgia, carpel tunnel, TMJ

> (with surgery, on

> the jaw), arthritis in my jaw, hips, knees etc,

> hiatus hernia, gall

> stones, and I am twice the weight i should be (even

My Challenges:

Scoliosis, Radiation Injury to my Brain, Ministrokes, Memory Problems, Cluster

Migraine Headaches, Osteoporosis with Multiple Broken Bones, Fibromyalgia,

Chronic Pain and Fatigue, Depression, PTSD, Bipolar Type II Rapid Cycling,

Anxiety, Chronic Insomnia, Sleep Apnea, Spinal Stenosis, TMJ injury, Thyroid

Cancer X3, Skin Cancer, Loss of Salivary Glands due to Thyroid Radiation Tx,

Teeth Destruction with Loss of Salivary Glands, Obesity, Restless Leg Syndrome,

Alpha Wave Intrusion on Delta Sleep plus many other Sleep Anomalies,

vonWillebrand's disease (genetic bleeding disorder), Hypertension, High

Cholesterol and Triglycerides, Chronic Allergies, Asthma, Peripheral Neuropathy,

Chronic Gastritis, GERD, Adult ADD, Overactive Bladder, Chronic Nosebleeds

[Guest guest]

Ill give a quick introduction this is the first time I've posted. I'm Charlotte

turned 25 and I have been diagnosed with RA been going to the doctors like it's

christmas. I refused the drugs already only a few months ago. Some days I'm good

and somedays I feel like all of you on here. You know the feeling. I am even

refusing to take voltaren. I just bear the pain. I live in Australia and met one

of your recommended doctors. He is doing some tests for me from some really good

clinics as I really would like to know what started this even though there might

be a one in a million chance of finding the culprit. I had ebv when it started

but it was really severe. This other lady I know had it for a year took

enchinacea and she got over it. No pain just a swelling occasionally when she

had meat. She was off meat altogether and grew her own herbs and juiced. That's

what I'd like to do but i can't juice everyday it is really costly. However I

felt better eating certain raw foods now I'm worse I've not been strict enough I

guess because I have family. It feels hard not to be able to eat with them so

I'm finding that a little hard. I also heard recently on the news about this

cream for arthiritis. Once I get these tests done I'm going to try some. I've

been holding out on trying treatments until then but this cream is all natural.

It works on arthiritis however the person who makes it is not a doctor. He was

in the army and whilst overseas he observed the natives over there. They were

using a mix of fruit for wound healing. Anyway he put his finger into some hot

oil and then put it in his mixture and walla his burn had healed. Ill see how it

goes and let you know. Anyway my current doctor is doing the tests for

mycoplasma chyamidia and then gut bugs and then allergies which I am very

grateful for. He has also suggested MP which im not sure about yet. The main

reason I think I'm worse is cause I have not stayed on my alkaline diet

completely. I started eating tomatoes potatoes and meat back which I shouldn't

have. The thing is what do you eat for protein if I give up meat that's safe

even though I hate to give it in I will do it. I am a fairly thin person so I

need a fair amount of protein otherwise my veins stick out. Any suggestions and

as for iron I know that it can contribute to more pain as it helps the bad

bacteria or just the bad stuff do their worst. What do you do when it comes to

iron as it plays an important role in other things as well?

[Guest guest]

G'Day, Charlotte:

You are too young to have RA.

In working up a differential diagnosis, there is an age gap between RA and AS

(Ankylosing Spondylitis) of about 20 years.

If You have the rheumatoid factor elevated only slightly, AS can do this but

elevated considerably, well I guess the diagnosis could be accurate, but I would

still want the HLA B27 test.

Better fatten up if You have AS; the strict diet for this will take weight off!

I don't know of a diet for RA except " Oslo regimen " that is fish oil followed by

fish oil...etc but in RA it is good to drink plenty of cranberry juice or grape

juices; it often begins following UTI due to Proteus mirabilis.  Focal

infection in upper urinary tract in RA; most others including AS it is

intestines; germ in AS is Klebsiella pneumoniae, but many different agents can

trigger this disease in a susceptible individual.

Regards,

From: nealcharlotte123 <nealcharlotte123@...>

Subject: rheumatic newb

rheumatic

Date: Sunday, October 31, 2010, 4:16 PM

 

Ill give a quick introduction this is the first time I've posted. I'm

Charlotte turned 25 and I have been diagnosed with RA been going to the doctors

like it's christmas. I refused the drugs already only a few months ago. Some

days I'm good and somedays I feel like all of you on here. You know the feeling.

I am even refusing to take voltaren. I just bear the pain. I live in Australia

and met one of your recommended doctors. He is doing some tests for me from some

really good clinics as I really would like to know what started this even though

there might be a one in a million chance of finding the culprit. I had ebv when

it started but it was really severe. This other lady I know had it for a year

took enchinacea and she got over it. No pain just a swelling occasionally when

she had meat. She was off meat altogether and grew her own herbs and juiced.

That's what I'd like to do but i can't juice everyday it is really costly.

However I felt better

eating certain raw foods now I'm worse I've not been strict enough I guess

because I have family. It feels hard not to be able to eat with them so I'm

finding that a little hard. I also heard recently on the news about this cream

for arthiritis. Once I get these tests done I'm going to try some. I've been

holding out on trying treatments until then but this cream is all natural. It

works on arthiritis however the person who makes it is not a doctor. He was in

the army and whilst overseas he observed the natives over there. They were using

a mix of fruit for wound healing. Anyway he put his finger into some hot oil and

then put it in his mixture and walla his burn had healed. Ill see how it goes

and let you know. Anyway my current doctor is doing the tests for mycoplasma

chyamidia and then gut bugs and then allergies which I am very grateful for. He

has also suggested MP which im not sure about yet. The main reason I think I'm

worse is cause I have not

stayed on my alkaline diet completely. I started eating tomatoes potatoes and

meat back which I shouldn't have. The thing is what do you eat for protein if I

give up meat that's safe even though I hate to give it in I will do it. I am a

fairly thin person so I need a fair amount of protein otherwise my veins stick

out. Any suggestions and as for iron I know that it can contribute to more pain

as it helps the bad bacteria or just the bad stuff do their worst. What do you

do when it comes to iron as it plays an important role in other things as well?

[Guest guest]

wow, so much info on this site and people who are in charge of their

life/disease. I've been 90% raw diet for about 5 months (RA 4 yrs) and my body

likes it....I also lost lot of weight...needed to. I live alone and don't go

out, so easy to stay on raw. Times I get lazy, or feel crappy(ier), I order

delivery....which makes me feel crappier. So, even though I've gone a ways to

go for healing, I know the raw diet i'm on helps, and keeps me healthy on some

level. sally

rheumatic newb

rheumatic

Date: Sunday, October 31, 2010, 4:16 PM

Ill give a quick introduction this is the first time I've posted. I'm Charlotte

turned 25 and I have been diagnosed with RA been going to the doctors like it's

christmas. I refused the drugs already only a few months ago. Some days I'm good

and somedays I feel like all of you on here. You know the feeling. I am even

refusing to take voltaren. I just bear the pain. I live in Australia and met one

of your recommended doctors. He is doing some tests for me from some really good

clinics as I really would like to know what started this even though there might

be a one in a million chance of finding the culprit. I had ebv when it started

but it was really severe. This other lady I know had it for a year took

enchinacea and she got over it. No pain just a swelling occasionally when she

had meat. She was off meat altogether and grew her own herbs and juiced. That's

what I'd like to do but i can't juice everyday it is really costly. However I

felt better

eating certain raw foods now I'm worse I've not been strict enough I guess

because I have family. It feels hard not to be able to eat with them so I'm

finding that a little hard. I also heard recently on the news about this cream

for arthiritis. Once I get these tests done I'm going to try some. I've been

holding out on trying treatments until then but this cream is all natural. It

works on arthiritis however the person who makes it is not a doctor. He was in

the army and whilst overseas he observed the natives over there. They were using

a mix of fruit for wound healing. Anyway he put his finger into some hot oil and

then put it in his mixture and walla his burn had healed. Ill see how it goes

and let you know. Anyway my current doctor is doing the tests for mycoplasma

chyamidia and then gut bugs and then allergies which I am very grateful for. He

has also suggested MP which im not sure about yet. The main reason I think I'm

worse is cause I have not

stayed on my alkaline diet completely. I started eating tomatoes potatoes and

meat back which I shouldn't have. The thing is what do you eat for protein if I

give up meat that's safe even though I hate to give it in I will do it. I am a

fairly thin person so I need a fair amount of protein otherwise my veins stick

out. Any suggestions and as for iron I know that it can contribute to more pain

as it helps the bad bacteria or just the bad stuff do their worst. What do you

do when it comes to iron as it plays an important role in other things as well?